Is your supplement on this list?
Comments
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Hi Yazmin, I definitely agree that we need to look on the bright side. The PARPS are showing a lot of potential, but as of now the clinical trials are mostly for metastatic triple-negative patients, so hopefully it will pan out! Yes, there is so much unknown about it.
Anomdenet, LOL - I define "facts" as concepts whose truth can be proven. Or as Webster defines it, " a piece of information presented as having objective reality." Do you have a different definition?
I'm not "steering" anyone anywhere. I'm bringing FACTS (as defined above) to the discussion so that people can make their own treatment decisions.
Again, I ask who exactly are the experts "qualified in alternative medicine?" I've started several threads asking just that, and also asked for facts on a variety of different alternative treatments, and the silence has been deafening.
Hi Mathteacher, please feel free to ignore or block my posts. Also, if you feel that I or anyone else is spamming the forum, please do contact the moderators!
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thenewme, I will ask again what you want to accomplish by starting this thread? As you seem to believe that my argurments are lacking in substance and I am obtuse by choice, I'll make it easy on myself ask that you simplfy your answer and choose one of the options below.
Did you start this thread to:
A. To warn against the companies
or
B. To warn against the supplements.
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Efflorescing,
I started this thread to share what I consider to be an important resource. We can all choose to use the list or not, but if I see a specific supplement OR company on that list, you can bet I'll be looking further into it to see why it was included on the list and make an informed choice!
I personally would not feel comfortable buying a "health" product from a company that misrepresents what it can do. That's all.
I guess my simple answer to you is C-Both.
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Oh brother. There is nothing wrong with the FDA publishing a list of companies who make unreasonable claims (such as "This product is THE CURE for every kind of cancer!!!"), nor is there anything wrong with you posting it here.
What IS completely idiotic is your beginning your post with, "This list from FDA/Dana-Farber shows a lot of supplements to avoid."
Um, that's like saying "here is a list of foods you should avoid because some people claim they cure cancer: broccoli, onions, tomatoes, garlic, green tea" etc.
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Yes, Crunchy, it is so deluded to think there are absolute facts.
And that there is an absolute list.
And an absolute source of reliable information.
This is wacky fundamendalist thinking.
Some trolls are what Eric Hoffer called, "True Believers." http://en.wikipedia.org/wiki/The_True_Believer
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CrunchyPoodleMama,
Idiotic, maybe, but I didn't write the article "187 Fake Cancer "Cures" Consumers Should Avoid. You might want to send a suggestion to the FDA about that.
Mollyann - so now I'm the FDA Church Lady, troll, wacky fundamentalist, "True Believer", idiotic, and delusional? What else ya got?
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I miss Florida Lady so much. She would have just added to the list of "fake cures" the current supplements and substances that are undergoing clinical trials. That would let us all choose the ones that are showing legitimate promise that prompted research. Instead of arguing about the FDA, the supplment companies, etc., we would know which to avoid, and to which to turn.
We need both directions, and not vitrolic personal attacks. They accomplish nothing but to further alienate and confuse.
Florida Lady had class we need to emulate.
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thenewme, do you plan to refelect your simple answer by revising the wording of your lead in post? You stated that the supplements on the list should be avoided, not the companies, Previously you mentioned that you take supplements so I would appreciate heairng from you which supplements you take and which companies you purchase them from.
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motheroffoursons, you're right... I let my frustration with the silliness of the post get to me. thenewme, I meant to insult only the wording and intent of your post, not you yourself. I apologize for any offense caused.
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Efflorescing wrote:
From the very beginning, I always found it odd that Consumer Lab, a For Profit Organization (...), didn't test the Doctor's Best curcumin (very popular among us curcumin-takers; I have taken it, too) or the more popular NSI curcumin brand. It instead tested some obscure (to me, at least!) curcumin brands.
That's one reason I haven't joined Consumer Lab. I get a newsletter from them enticing me to join. However, when I follow their link to their claims, I never see the place I buy most of my supplements from...Vita Cost. However, I do believe Doctor's Best and NSI brands are reputable so I take'em.
I do believe the curcumin supplements should be stopped before we have any procedures (surgical) done. I was having my teeth cleaned the other day and asked my hygienist if I was bleeding because it tasted like it. She said a little. My gums do not normally bleed. I'm having a wisdom tooth extracted soon, so I'll stop Tumeric, aspirin and fish oil for now.
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Motheroffoursons - you're absolutely right. Thanks the for reminder!
Crunchy, apology accepted. Thanks!
Efflorescing, I've corrected my initial post. I'm not sure why you want to know, but I take Vitamin D, multivitamin, magnesium, curcumin, glutamine, and occasional melatonin. I buy my supplements from a variety of sources. Why do you ask?
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thenewme, which sources do you purchase supplements from? I asked so I can avoid purchasing from unreputable companies. Your revision does not reflect your simple answer of C as it still does not contain a reference to avoid the companies only to avoid the supplements.
ShirleyHughes, I posted the information about Consumer Labs from a another site.Sorry for the confusion. I am scheduled to have dental work soon and your comments about stopping the supplements are quite timely. Thank you for the reminder.
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ShirleyHughes and Efflorescing: I know from ConsumerLabs that my Doctor's best Ubiquinol is a good product.
Having said that, I am now wary of ConsumerLabs: it has come to my attention that, in their latest evaluation of multivitamins, what they have taken into consideration is ONLY the amount of ingredients in each of the products evaluated. They totally overlooked the possible toxicity of those products, in terms of the fillers, excipients, etc... used to actually manufacture them.
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Hi Efflorescing,
I think we each have to decide for ourselves where to buy supplements, and I'd never presume to know what's right for you. I certainly don't claim to have all the answers, but there have been a lot of resources posted that can help you find a source that you believe in.
I'm grateful for the information shared here, and even when I disagree with certain ideas, I've learned a lot by asking questions and researching (Yazmin - love your tag line, BTW!)
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thenewme: it is a great quality to be able to keep on learning. I try to do just that.... I try to go back and reevaluate everything all the time, and to accept when I find that I was wrong in the first place. I try to readjust, and readjust, and readjust.
Please keep up the good work.
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thenewme, You are not being presumptive. I asked if you could share your sources for purchasing supplements not which supplements I should use. I already purchased from one of the companies listed on the fakes cures link you posted so it would be helpful if I had a trusted resource for curcumin. I didn't know FlaLady but I read how invaluable her knowledge and dedication was to the women here. I searched posts for others who used Curcumin with Bioperine before purchasing it and I was comforted because Ageless Cures was a company she used. I'm sure you can understand my confusion and concern. Actually, I only need a resource for the Curcumin. Thanks!
motheroffoursons, thank you for mentioning FlaLady because it reminded me to refer to her comments.
This is what FlaLady wrote in response to someone asking about her skin Mets: My skin mets have not returned in 13 months. See "Tenders note one up on curcumin. I believe this help with my skin a lot. It's and herb that fights inflammtory. See Ageless Cures.com and go under research.
FDA forced them to remove thier links so I could not read any of them.
and
I order online from Ageless cures website-Super Curcumin-C3 Complex w/Bioperine 1000mg 3X daily.
And
I also used the alternative herb "super curcumin" by Ageless Cures. This is designed for imflammatory dieases. Look at their website for medical proof.
Again, FDA forced them to remove their links. No idea what the proof was.
thenewme, how about those links???
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I believe Curcumin is also good for triple negatives. Or has this been mentioned here? I also believe for mets it has been suggested to take 6000 mg. I try to take 4 - 6000 mgs. Of course, as mentioned, I'm off of it for now due to upcoming dental work. I too have taken Doctor's Best Ubiquinol featuring Kaneka. I believe NSI (Vita Cost) has a similar product. I have noticed that all of NSI's products no longer has any extra info written. I wonder it that's due to FDA rules.
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This is why I liked Flalady so much. The following is from her thread, Supplements in Trial. She does not state they are a "cure" or established treatment. She says they are in trials. These aree things you MIGHT want to try, even though the results were not in. See her note at the bottom.
Fla Lady Wrote:
I finally figure out how to get this formated. There are over 3,000 vitamins and supplement that are in trials. This is just a sample. I find it very interesting there is so much negative thought in this area from some about supplement values. Well...obviously there must be something to them for so many trials being ran. What bad is this information takes years before it is released. No matter what the out come is. Just think they are looking for changes in the body from supplements....who would have guessed?
Flalady
Here I go...hope it works this time. The first word describes the stage of the study.
FloridaLady wrote: 1 Recruiting Yunzhi as Dietary Supplement in Breast Cancer (mushrooms)
2 Not yet recruiting Nutritional Supplements and Hormonal Manipulations for Breast Cancer Prevention
3 Active, not recruiting Soy Protein Supplement In Treating Hot Flashes in Postmenopausal Women Receiving Tamoxifen for Breast Disease
4 Completed Standard Whole Brain Radiation Therapy With Supplemental Oxygen, With or Without Concurrent RSR13 (Efaproxiral), in Women With Brain Metastases From Breast Cancer
5 Recruiting Vitamin D Deficiency and Muscle Pain and/or Joint Pain in Postmenopausal Women Receiving Letrozole for Stage I, Stage II, or Stage III Breast Cancer
6 Recruiting Zoledronate, Vitamin D, and Calcium With or Without Strontium 89 or Samarium 153 in Preventing or Delaying Bone Problems in Patients With Bone Metastases From Prostate Cancer, Lung Cancer, or Breast Cancer
7 Recruiting Study of the Effect of Glutamine Supplementation on Chemotherapy Induced Toxicities in Breast Cancer Patients
8 Active, not recruiting Zoledronate, Calcium, and Vitamin D in Preventing Bone Loss in Women Receiving Adjuvant Chemotherapy for Breast Cancer
9 Active, not recruiting Bone Mineral Density in Postmenopausal Women With Primary Breast Cancer Who Are Receiving Treatment on Clinical Trial CAN-NCIC-MA27
10 Active, not recruiting Soy-Based Meal Replacement in Helping Women With Stage I, Stage II, or Stage III Breast Cancer in Complete Remission Lose Weight
11 Completed Risedronate in Preventing Bone Loss in Premenopausal Women Receiving Chemotherapy for Primary Breast Cancer
12 Active, not recruiting Omega-3 Fatty Acids in Preventing Breast Cancer in Women at High Risk of Developing Breast Cancer
13 Recruiting Coenzyme Q10 in Relieving Treatment-Related Fatigue in Women With Breast Cancer
14 Completed Docetaxel Plus Garlic in Treating Patients With Locally Advanced or Metastatic Breast Cancer
15 Not yet recruiting Docetaxel With or Without a Phytochemical in Treating Patients With Breast Cancer
16 Recruiting Soy Protein and Breast Cancer Risk Reduction
17 Recruiting Soy Isoflavones and Breast Cancer Risk Reduction
18 Completed Black Cohosh in Treating Hot Flashes in Women Who Have or Who Are At Risk of Developing Breast Cancer
19 Not yet recruiting Acetyl-L-Carnitine in Preventing Neuropathy in Women With Stage I, Stage II, or Stage IIIA Breast Cancer Undergoing Chemotherapy
20 Recruiting Use of Organic Germanium or Placebo for the Prevention of Radiation Induced Fatiguetrip neg stageIV spread to IBC (2X) & 7 recur's, Treat Alt & Conv
21 Active, not recruiting Effect of Soy Supplementation on Cellular Markers in Normal and Cancerous Breast Tissue: A Randomized Placebo Controlled Study
22 Suspended Cholecalciferol and Genistein in Treating Patients Undergoing External-Beam Radiation Therapy for Bone Metastases
23 Active, not recruiting Women's Isoflavone Soy Health (WISH) Trial
24 Not yet recruiting Broccoli Sprout Extract in Treating Women With Newly Diagnosed Ductal Carcinoma In Situ and/or Atypical Ductal Hyperplasia
25 Recruiting Flaxseed in Preventing Breast Cancer in Premenopausal Women at Risk of Developing Breast Cancer
26 Active, not recruiting Genistein in Preventing Breast Cancer in Women at High Risk for Breast Cancer
27 Recruiting Green Tea Extract in Treating Women With Hormone Receptor-Negative Stage I, Stage II, or Stage III Breast Cancer
28 Recruiting Coriolus Versicolor Extract in Treating Women With Stage I, Stage II, or Stage III Breast Cancer Who Have Finished Radiation Therapy
29 Recruiting IH636 Grape Seed Extract in Preventing Breast Cancer in Postmenopausal Women at Risk of Developing Breast Cancer
30 Completed Soy, Selenium and Breast Cancer Risk
31 Recruiting Flaxseed and/or Anastrozole in Treating Postmenopausal Women Undergoing Surgery for Newly Diagnosed Stage I or Stage II Breast Cancer
32 Active, not recruiting Gemcitabine Hydrochloride and Genistein in Treating Women With Stage IV Breast Cancer
33 Completed Hypericum Perforatum (St. John's Wort) in Relieving Hot Flashes in Postmenopausal Women With Non-Metastatic Breast Cancer
34 Active, not recruiting Herbal Therapy in Treating Women With Metastatic Breast Cancer
35 Active, not recruiting Combination Chemotherapy After Surgery With or Without Chinese Herbal Therapy to Treat Symptoms in Women With Breast Cancer
36 Active, not recruiting L-Carnitine L-Tartrate in Preventing Peripheral Neuropathy Caused By Chemotherapy in Women With Metastatic Breast Cancer
37 Completed Isoflavones in Treating Women Who Have Breast Cancer and Are Planning to Undergo Mastectomy or Lumpectomy
38 Recruiting Flaxseed, Aromatase Inhibitors and Breast Tumor Characteristics
39 Active, not recruiting Vitamin E and Pentoxifylline in Treating Women With Lymphedema After Radiation Therapy for Breast Cancer
40 Completed Effects of Soy Compounds on Breast Cancer, Prostate Cancer, and Bone Health
trip neg stageIV spread to IBC (2X) & 7 recur's, Treat Alt & Conv
wrote: 41 Completed EGb761 in Maintaining Mental Clarity in Women Receiving Chemotherapy for Newly Diagnosed Breast Cancer
42 Active, not recruiting IH636 Grape Seed Extract in Treating Hardening of Breast Tissue in Women Who Have Undergone Radiation Therapy for Early Breast Cancer
43 Recruiting Effect of a Low-Calorie Diet and/or Exercise Program on Risk Factors for Developing Breast Cancer in Overweight or Obese Postmenopausal Women
44 Active, not recruiting Pyridoxine and Topical Urea/Lactic Acid-Based Cream in Preventing Hand-Foot Syndrome in Patients Receiving Capecitabine for Breast Cancer or Other Cancer
45 Active, not recruiting Pyridoxine in Preventing Hand-Foot Syndrome in Patients Who Are Receiving Liposomal Doxorubicin for Recurrent Ovarian, Fallopian Tube, or Peritoneal Cancer, Metastatic Breast Cancer, or Advanced Endometrial Cancer
46 Recruiting Glucosamine and Chondroitin for Aromatase Inhibitor Induced Joint Symptoms in Women With Breast Cancer
47 Active, not recruiting Pyridoxine in Preventing Hand-Foot Syndrome in Patients Who Are Receiving Capecitabine for Advanced Colorectal Cancer or Breast Cancer
48 Recruiting Dietary Phytoestrogens, Complementary and Alternative Medicine, and Lifestyle in Predicting Survival of Women With Breast Cancer
49 Recruiting Studying the Effect of Freeze-Dried Table Grape Powder on Blood Estrogen Levels in Postmenopausal Women
50 Recruiting Omega-3 Fatty Acids in Treating Women With Newly Diagnosed Ductal Carcinoma In Situ and/or Atypical Ductal Hyperplasia
51 Active, not recruiting Gemcitabine Combined With Mistletoe in Treating Patients With Advanced Solid Tumors
52 Recruiting Effect of Dietary Soy on Estrogens in Breast Fluid, Blood, and Urine Samples From Healthy Women
53 Completed Genistein in Preventing Breast or Endometrial Cancer in Healthy Postmenopausal Women
54 Recruiting Safety Assessment of Lactobacillus Fermented Extract in Cancer Patients Undergoing Chemotherapy
55 Not yet recruiting The Effect of Grape Seed Extract on Estrogen Levels of Postmenopausal Women
56 Completed Women's Health Initiative (WHI)
57 Completed Combined Estrogen Blockade of the Breast With Exemestane and Raloxifene in Postmenopausal Women With a History of Breast Cancer Who Have No Clinical Evidence of Disease
58 Completed Bone Mineral Density and Subsequent Cancer Risk
59 Completed Prevention of Osteoporosis in Breast Cancer Survivors
60 Completed Flaxseed for the Treatment of Hot Flashes
trip neg stageIV spread to IBC (2X) & 7 recur's, Treat Alt & Conv
61 Recruiting American Ginseng in Treating Patients With Fatigue Caused by Cancer
62 Active, not recruiting Carotene and Retinol Efficacy Trial
63 Completed The Effect of Testosterone Supplementation on Rehabilitation Outcomes
64 Completed Isotretinoin, Interferon Alfa, and Vitamin E in Treating Patients With Stage III or Stage IV Head and Neck Cancer
65 Recruiting A Phase I/II, Multi-Center, Open-Label, Dose-Escalation, Safety and Efficacy Study of PHY906 Plus Capecitabine in Patients With Advanced Pancreatic Carcinoma
66 Recruiting Selenium in Preventing Tumor Growth in Patients With Previously Resected Stage I Non-Small Cell Lung Cancer
67 Recruiting Radiation Therapy in Treating Patients With Stage II Prostate Cancer
trip neg stageIV spread to IBC (2X) & 7 recur's, Treat Alt & Conv
Next group is for cancer in general.
trip neg stageIV spread to IBC (2X) & 7 recur's, Treat Alt & Conv
wrote: 1 Recruiting Effect of an Oral Supplement on the Total Energy and Protein Intake of Head and Neck Cancer Patients in the Last 2 Weeks of Radiation Therapy
2 Active, not recruiting Omeprazole and Amoxicillin and/or Vitamin and Mineral Supplements and/or Garlic Supplements in Preventing Stomach Cancer in Patients With Precancerous Stomach Lesions
3 Active, not recruiting Lycopene or Omega-3 Fatty Acid Nutritional Supplements in Treating Patients With Stage I or Stage II Prostate Cancer
4 Recruiting Effects of Nutritional Supplementation (Product 4808) on Acute Skeletal Muscle Protein Synthesis in Cancer Patients
5 Active, not recruiting Arginine/Omega-3 Fatty Acids/Nucleotides Nutritional Supplement in Treating Patients With Stage III or Stage IV Head and Neck Cancer Undergoing Chemotherapy and Radiation Therapy
6 Completed Influence of an Oral Nutritional Supplement Rich in Omega-3 Fatty Acids on Functional State and Quality of Life in Malnourished Patients With Gastroenterological Tumors
7 Completed Comparison of Nutritional Supplements in Preventing Weight Loss in Patients With Cancer
8 Recruiting L-Arginine Supplements in Treating Women Who Are Cancer Survivors
9 Recruiting Low-Fat Fish Oil Diet for Prostate Cancer Prevention
10 Terminated Study to Assess the Effectiveness of a Omega-3 Enriched Supplement on Chemotherapy Tolerance in Colon Cancer Patients
11 Active, not recruiting Zinc Supplements in Lowering Cadmium Levels in Smokers
12 Completed Comparison of Megestrol and/or Omega-3 Fatty Acid-Enriched Nutritional Supplement in Treating Patients With Cancer-Related Weight Loss and Lack of Appetite
13 Recruiting Vitamin D and Soy Supplements in Treating Patients With Recurrent Prostate Cancer
14 Recruiting Yunzhi as Dietary Supplement in Breast Cancer
15 Not yet recruiting Safety, Tolerance and Efficacy of an Oral Nutritional Supplement in Lung Cancer Patients
16 Active, not recruiting Soy Supplements in Treating Patients Undergoing Surgery for Localized Prostate Cancer
17 Recruiting Safety Assessment of Lactobacillus Fermented Extract in Cancer Patients Undergoing Chemotherapy
18 Active, not recruiting Physicians' Health Study II: Vitamin E, Ascorbic Acid, Beta Carotene, and/or Multivitamins in Preventing Cancer and Cardiovascular Disease in Older Healthy Male Doctors
19 Completed Soy Protein Supplement in Preventing Prostate Cancer in Patients With Elevated Prostate-Specific Antigen Levels
20 Active, not recruiting DNA Changes That Affect Vitamin D Metabolism in Patients With Colorectal Cancer Receiving Vitamin D Supplements
trip neg stageIV spread to IBC (2X) & 7 recur's, Treat Alt & Conv
wrote: 21 Active, not recruiting Soy Protein Supplement In Treating Hot Flashes in Postmenopausal Women Receiving Tamoxifen for Breast Disease
22 Terminated Effect of a Perioperative Oral Nutritional Supplementation on Patients Undergoing Hepatic Surgery for Liver Cancer
23 Not yet recruiting Nutritional Supplements and Hormonal Manipulations for Breast Cancer Prevention
24 Active, not recruiting Selenium and Vitamin E in Preventing Prostate Cancer
25 Active, not recruiting Alpha-Tocopherol, Beta-Carotene Cancer Prevention (ATBC) Study
26 Completed Tube Feedings in Younger Patients Receiving Chemotherapy for Newly Diagnosed Acute Myeloid Leukemia, Myelodysplastic Syndromes, or High-Risk Solid Tumors
27 Recruiting Effect of a Nutritional Supplement on H&N Cancer Patients
28 Recruiting Role of Soy Supplementation in Prostate Cancer Development
29 Completed Lycopene in Preventing Prostate Cancer in Healthy Participants
30 Completed A Fish Oil Supplement to Maintain Body Weight in Patients With Disease-Related Weight Loss
31 Recruiting Trial of Enteral Nutrition Enriched With Eicosapentaenoic Acid (EPA) in Upper Gastrointestinal Cancer Surgery
32 Active, not recruiting Lycopene in Healthy Male Participants
33 Completed Standard Whole Brain Radiation Therapy With Supplemental Oxygen, With or Without Concurrent RSR13 (Efaproxiral), in Women With Brain Metastases From Breast Cancer
34 Completed High Versus Low Dose Supplemental External Radiation With Pd-103 for Prostate Cancer
35 Recruiting Zoledronate, Vitamin D, and Calcium With or Without Strontium 89 or Samarium 153 in Preventing or Delaying Bone Problems in Patients With Bone Metastases From Prostate Cancer, Lung Cancer, or Breast Cancer
36 Active, not recruiting Zoledronate in Preventing Osteoporosis and Bone Fractures in Patients With Locally Advanced Nonmetastatic Prostate Cancer Undergoing Radiation Therapy and Hormone Therapy
37 Recruiting Vitamin D Deficiency and Muscle Pain and/or Joint Pain in Postmenopausal Women Receiving Letrozole for Stage I, Stage II, or Stage III Breast Cancer
38 Recruiting Fish Oil and Green Tea Extract in Preventing Prostate Cancer in Patients Who Are at Risk for Developing Prostate Cancer
39 Recruiting Zoledronic Acid in Preventing Osteoporosis in Patients Undergoing Donor Stem Cell Transplant
40 Recruiting Perioperative Nutrition in Upper Gastrointestinal (GI) Cancer Surgery
trip neg stageIV spread to IBC (2X) & 7 recur's, Treat Alt & Conv
41 Recruiting Study of the Effect of Glutamine Supplementation on Chemotherapy Induced Toxicities in Breast Cancer Patients
42 Recruiting Acidophilus for the Treatment and Prevention of Oral Candidiasis in Head and Neck Cancer Patients Undergoing Radiation Therapy
43 Completed Iscar for Supplemental Care in Stage IV Lung Cancer
44 Recruiting Herbal Therapy for Treatment of Recurrent Prostate Cancer
45 Active, not recruiting Bone Mineral Density in Postmenopausal Women With Primary Breast Cancer Who Are Receiving Treatment on Clinical Trial CAN-NCIC-MA27
46 Completed Isoflavones Compared With Lycopene Before Surgery in Treating Patients With Stage I or Stage II Prostate Cancer
47 Active, not recruiting Zoledronate, Calcium, and Vitamin D in Preventing Bone Loss in Women Receiving Adjuvant Chemotherapy for Breast Cancer
48 Active, not recruiting Diet and PSA Levels in Patients With Prostate Cancer
49 Active, not recruiting Vitamin E, Selenium, and Soy Protein in Preventing Cancer in Patients With High-Grade Prostate Neoplasia
50 Recruiting Phase I Biomarker Study of Dietary Grape-Derived Low Dose Resveratrol for Colon Cancer Prevention
51 Recruiting Effects of Selected Vegetable and Herb Mix (SV) on Advanced Non-Small Cell Lung Cancer
52 Recruiting Folic Acid Clinical Trial for the Prevention of Cervical Cancer
53 Recruiting A Study for Patients With Non-Squamous Non-Small Cell Lung Cancer
54 Not yet recruiting Flavonoids to Prevent Recurrence in Patients With Resected Colorectal Cancer or Colorectal Adenomas
55 Active, not recruiting Vitamin D/Calcium Polyp Prevention Study
56 Active, not recruiting The Specific Role of Isoflavones in Reducing Prostate Cancer Risk
57 Recruiting Effectiveness and Tolerability of an Oral Nutritional Supplement (PreOP Booster) Given Before Surgery
58 Recruiting Study of Nutrition Regimens in Treating Patients With Cancer of the Upper Aerodigestive Tract
59 Active, not recruiting Mistletoe in Treating Patients With Advanced Non-Small Cell Lung Cancer Who Are Receiving Palliative Chemotherapy
60 Active, not recruiting Haelan and Nutrition in Cancer Patients
trip neg stageIV spread to IBC (2X) & 7 recur's, Treat Alt & Conv
FloridaLady...
Joined: Dec 2006
Posts: 2,155 • Report this Post
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Mar 12, 2009 05:53 pm FloridaLady wrote: 61 Recruiting Medical Nutrition Therapy or Standard Care in Treating Patients With Lung Cancer, Pancreatic Cancer, or Stage III or Stage IV Prostate Cancer
62 Completed Isoflavones in Preventing Further Development of Cancer in Patients With Stage I or Stage II Prostate Cancer
63 Active, not recruiting Calcium With or Without Estrogen and/or Risedronate in Preventing Osteoporosis in Patients With Prostate Cancer
64 Recruiting Soy Protein/Isoflavones and Venlafaxine in Treating Hot Flashes in Patients Receiving Hormone Therapy for Prostate Cancer
65 Active, not recruiting Cholecalciferol and Calcium Carbonate in Treating Patients With Colon Cancer That Has Been Removed by Surgery
66 Recruiting Green Tea, Decaffeinated Black Tea, or Water in Treating Patients With Prostate Cancer Undergoing Surgery
67 Active, not recruiting Gemcitabine With or Without Pemetrexed Disodium in Treating Patients With Unresectable Stage II, Stage III, or Stage IV Pancreatic Cancer
68 Active, not recruiting Soy-Based Meal Replacement in Helping Women With Stage I, Stage II, or Stage III Breast Cancer in Complete Remission Lose Weight
69 Active, not recruiting Folate-Depleted Diet Compared With Folate-Supplemented Diet in Preventing Colorectal Cancer in Patients at High Risk for Colorectal Cancer
70 Completed Risedronate in Preventing Bone Loss in Premenopausal Women Receiving Chemotherapy for Primary Breast Cancer
71 Completed Low-Fat Diet and/or Flaxseed in Preventing Prostate Cancer
72 Recruiting Coenzyme Q10 in Relieving Treatment-Related Fatigue in Women With Breast Cancer
73 Recruiting Adjuvant Melatonin for Prevention of Lung Cancer Recurrence and Mortality
74 Recruiting Green Tea or Polyphenon E in Preventing Lung Cancer in Former Smokers With Chronic Obstructive Pulmonary Disease
75 Recruiting Use of Organic Germanium or Placebo for the Prevention of Radiation Induced Fatigue
76 Completed Pemetrexed as Second-Line Therapy in Treating Patients With Hormone Refractory Prostate Cancer
77 Recruiting Vitamin D for Chemoprevention
78 Recruiting A Randomized Placebo-Controlled Trial of Manuka Honey for Oral Mucositis Due to Radiation Therapy for Cancer
79 Suspended Cholecalciferol and Genistein in Treating Patients Undergoing External-Beam Radiation Therapy for Bone Metastases
80 Suspended Sulindac and Plant Compounds in Preventing Colon Cance
trip neg stageIV spread to IBC (2X) & 7 recur's, Treat Alt & Conv
FloridaLady...
Joined: Dec 2006
Posts: 2,155 • Report this Post
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Mar 12, 2009 05:56 pm FloridaLady wrote: 81 Active, not recruiting Omega-3 Fatty Acids in Preventing Breast Cancer in Women at High Risk of Developing Breast Cancer
82 Recruiting Epoetin Alfa or Epoetin Beta With or Without Iron Infusion in Treating Anemia in Patients With Cancer
83 Active, not recruiting Selenium in Treating Patients Who Are Undergoing Brachytherapy for Stage I or Stage II Prostate Cancer
84 Completed Docetaxel Plus Garlic in Treating Patients With Locally Advanced or Metastatic Breast Cancer
85 Recruiting Low-Fat Diet and Omega-Fatty Acids for Prostate Cancer Prevention
86 Recruiting Omega-3 Fatty Acids and Postoperative Complications After Colorectal Surgery
87 Not yet recruiting Docetaxel With or Without a Phytochemical in Treating Patients With Breast Cancer
88 Recruiting Soy Protein and Breast Cancer Risk Reduction
89 Not yet recruiting Effect of Vitamin E and/or Selenium on Colorectal Polyps in Men Enrolled on SELECT Trial SWOG-S0000
90 Recruiting Low Dose Supplemental External Radiation With pd-103 vs pd-103 Alone for Prostate Cancer
91 Active, not recruiting Safety of Antioxidants During GYN Cancer Care
92 Recruiting A Study Of the Effectiveness Of Pomegranate Pills in Men With Prostate Cancer Before Prostatectomy
93 Recruiting Soy Isoflavones and Breast Cancer Risk Reduction
94 Active, not recruiting Glutamine in Treating Side Effects in Children Who Are Undergoing Stem Cell Transplantation
95 Active, not recruiting Glutamine in Preventing Myalgia and/or Arthralgia in Patients Who Are Receiving Paclitaxel For Cancer
96 Not yet recruiting Acetyl-L-Carnitine in Preventing Neuropathy in Women With Stage I, Stage II, or Stage IIIA Breast Cancer Undergoing Chemotherapy
97 Completed Black Cohosh in Treating Hot Flashes in Women Who Have or Who Are At Risk of Developing Breast Cancer
98 Active, not recruiting Creatine in Treating Patients With Cancer-Associated Weight Loss
99 Completed Broccoli, Peas and PIN
100 Not yet recruiting Vitamin E and/or Selenium in Preventing Cataract and Age-Related Macular Degeneration in Older Men Enrolled on SELECT Clinical Trial SWOG-S0000
trip neg stageIV spread to IBC (2X) & 7 recur's, Treat Alt & Conv
FloridaLady...
Joined: Dec 2006
Posts: 2,155 • Report this Post
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Mar 12, 2009 06:08 pm FloridaLady wrote:
Here a list of the items we have "tried to discuss in this area" that have been listed here as being in research. There has to be some truth or these supplements would never made this list. It is just too expensive to do trials with out some hope.
Vit D, Soy, COQ10, Garlic, Isoflavones, Acetyl-L carnitine, Germanium, Broccoli sprounts extract, Green tea, Omega3, mistleoe, grape seed extract, selenium, flaxseed, st john wort, vit e, diet, glucosmaine, ginseng, carotine, zinc, choline are just a few.
Flalady
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God Bless you FlaLady. Your work lives on. I miss you so much, my dear, beloved mentor.
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God Bless you, FlaLady. Thank you for all the life-saving information you provided over the years. You live on.
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The drug companies probably put a lot of pressure on the FDA, demanding that the supplement manufacturers play fair. A drug company can't claim to "cure" so why should the supplement companies be allowed to claim this? The drug companies have to test and re-test and they have to put out a four page instruction manual with every pill....side effects, warnings, findings etc....but the supplement companies don't have to give us much information at all. Drugs come with a warning...don't take if you're allergic to this, use caution if you're also taking that....etc. Supplements are usually just out there, one size fits all.
I'm sure that the drug companies spend lots of time and money trying to stop losing market share to supplements. When Vitamin D or Vitamin C or Zinc are touted to boost immunity and "cure the common cold"...you can bet that sales of Nyquil and Dimetapp go way down.
I would imagine that the drug companies are responsible for a lot of the literature that is sent out to doctors and hospitals regarding supplements. And that the reason a doctor is hesitant to jump on the Vitamin D bandwagon or the Turmeric bandwagan has a lot to do with "press releases" that originate from the drug companies. I can understand why doctors and nurses would tire of trying to rummage through all the latest "findings" and instead would stick to what they consider "proven" or "factual". Not to mention that with drugs.....a hospital would not be liable for an allergic reaction or overdose if they followed the drug companies instructions, the drug company would be liable. I think that doctors hesitate to recommend supplements because they are not regulated and controlled and the doctor has probably been told by the hospital to tread very carefully where these things are concerned.
So it becomes up to the individual, and what works for one of us won't work for someone else. It would be great if everyone did tons of research on supplements before depending on them for help....but we all know that many people who are hit with a diagnosis will just run out and get whatever they've heard will work. I can certainly see why the FDA would be upset with supplement distributors who claim that something will CURE cancer, or any other disease. I know for a fact that curcumin did wonders for my cousins' multiple sclerosis...but I tell others to TRY it and see if it does them any good....I don't exclaim that it is a CURE and is all that they will ever need to get better.
I believe that if someone is diagnosed, they need to seek professional care whether it be traditional or alternative. Trying to self-cure without BEYONDextensive research, with just the weak information available from the supplement companies....can lead to tragic delays and progression of disease. In a nutshell I see nothing wrong with the FDA telling supplement companies to clean up their act as far as claims of CURE. Such claims are unfair and very misleading to people at a time when they are so desperate and hoping for a miracle.
I just checked my own bottle of Vitamin D, and the fine print states that "this product is not intended to diagnose, treat, cure or prevent any disease". I wonder if the supplements mentioned in the original FDA post also have this warning? And if so, how SMALL is the print? -
Going off topic here motheroffoursons, but in reviewing a previous post of yours you said "Assalamu alaikum to me. Are you Muslim or do you speak arabic?
motheroffoursons, yes Flalady was special and her efforts to provide current, accurate and beneficial information is unparalleled from what I have read.
I suppose there was no need for her to list the trials which supported the benefits of curcumin as according to her posts, Ageless Cures provided "medical proof" on thier website before they were forced by the FDA to remove it.
thenewme, again, I am not asking for you to recommened a supplement but I would really appreciate having a source to purchase a supplement that you use and believe in.
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SharaD,
I agree that there is some pretty shady marketing going on out there, and the fact that the FDA is watchful must help some.
On the other hand, the FDA is in-bed with the pharma folks, and I think their oversight can go overboard. I think it's great that they block unsustantiated claims, but its horrible that they also block
access to studies. The bottom line for them is not - "does the supplement really work?" -
the issue is "you must be approved as a drug in order to make ANY claims, whether true or not."
That's creepy. That's where Vit C and scurvy type issue becomes so important. We KNOW for a fact vitamin C cures scurvy - but no supplement company may dare say so under our current laws. It's bizarro..
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Off Topic question for Efflorescing,
My eyes are not what they used to be - I'm wondering what the pic in your avatar is?
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Here's another thing I like about supplements: They do not come with pages of disclaimers about all the possible side effects. I suppose that you can OD on anything, but if you are just taking vit. D or curcumin, or whatever, at least you do not have to worry about them killing you or causing horrible side effects.
A while ago, I posted a link somewhere from a doctor who was talking about trying to get his casestudies allowed for peer review at an oncology conference. He said that while all kinds of drug trials were on the official agenda, anything dealing with an "alternative" never even got past the panel that reviewed what studies would be presented. For instance, he was involved in a phase 3 trial on a supplement, but it was passed up over drugs that were still in phase one. He said that they would only allow less than 5% of alternative studies to be presented. It just goes to show you that just because a supplement does not have all kinds of studies accepted, it does not mean that there is not proof that they work. The drug companies continue to bury the evidence so that they do not lose business. If more women understood how I3C/DIM/Miomin has the exact same effect on preventing bc as tamox, the drug companies would lose millions. So even though the proof is out there, doctors are not taught about it and drug companies will come up with some propaganda against it. It is absolutely insane. Treating cancer is all about business, not about patients.
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Runswithscissors, My Avatar is a pic of the Kaaba located in Saudi Arabia. It is the holiest place for Muslims, which I am.
Thanks for asking!
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Oh I feel so dumb! I cannot recognize Mecca when I see it! It's very beautiful.
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Thanks RunswithScissors. I've mentioned your nic to my girlfriends and we love it!
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On the other hand, the FDA is in-bed with the pharma folks, and I think their oversight can go overboard. I think it's great that they block unsustantiated claims, but its horrible that they also block access to studies.
Not to mention the many items they APPROVE for political reasons only to be forced to recall it once people start dying or suffering hideous side effects en masse because of it (think Vioxx, Fen-Phen, Zelnorm, DES, and many others). I saw an ad the other day that proudly declared, "and it's approved by the FDA!!!!" I laughed wryly... knowing what I know now about the FDA, that no longer gives me a shred of confidence in any product.
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Don't get me wrong. I'm not against conventional treatment. But I do believe some people have the sense to research before going overboard on supplements. Then, maybe not. How many of us do not research traditional therapies? I know I didn't. My GYN recommended progesterone for me to get my periods normalized. Okay, I took it. I was still having heavy periods. Then, after taking it for a length of time I missed two periods. I called him and told him. He asked me if I had any symptoms from menopause...No, I told him. No hot flashes, no night sweats, no insomnia, no "crazy lady syndrome," (my medical name)....NADA. So, he said, well, let's get you started on estrogen before you do. So, I took a drug called FemHrt..it's like Prempro. I too. I was still having heavy periods. He then told me to take it every day instead of 28 days. Thus, no periods. When the trial ended the women taking these hormones due to adverse SE I stopped IMMEDIATELY. Guess what. I never had one symptom of menopause..NADA! And to this day I believe with ALL my heart it is what caused my breast cancer. Taking the combo drug is even worse than just estrogen. I did speak to my gyn about estrogen causing breast cancer. He was very doubtful about that, but said the benefits outweighed the risks. I hope he's changed his mind. This is what doctors are told, and this is what they prescribe.
Everytime I hear a drug advertised (I hate that) on TV and hear the side effects, I think...geez, I hope I don't have to take that. I have mets to one of my vertabra. I am in denial so I call it "progression."
I was looking for a supplement to use instead of Fosamax (that was before the progression). I found Strontium. In Europe they use it in a prescription form, but not quite the same as the supplement. I asked my onc about it and she never heard of it. This is something I would really like to try for the ole bones, but now I'm afraid to. I even found a forum where many people were having success on this supplement.Every single prescription pill we put in our mouth has a side effect. One of the drug companies was going to use Co-Q10 in their statin because of the depletion of this "vitamin." I can't remember why they didn't..perhaps the expense.
So, I take my prescriptions and I take my supplements.
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