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  • covertanjou
    covertanjou Member Posts: 569
    edited January 2010

    ((((((PIP)))))

    My dear, dear friend.  I cannot imagine what you have gone through.  I wish I could be there to give the biggest hug.  No parent should have to go through what you did. 

    (((((((HUGS))))))) 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010
  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited January 2010

    (((((((((PiP))))))))), I was watching that Dateline special last night and thinking of you too.

    Also thinking of my cousin Gary who died of sarcoma in 2007 -- and all the fundraising needed in order for him to continue treatment.  Fortunately, the huge network of his family of 10 siblings, and 50+ first cousins, and church, and long-time neighbors in the farming community he grew up in, and his carpenter union "brothers" (and on and on) really were organized, energetic and generous in raising money -- but not everyone has such resources -- and a lot of these same people wouldn't have as much to contribute in today's economy -- it's just scary...

  • rinna40
    rinna40 Member Posts: 357
    edited January 2010

    I have a question that sort of fits on this thread. I finished treatment on Dec. 31, and had a follow up with my onc  a week ago. He did a manual exam of the breasts but couldn't do too much with my bc breast because it was still a little swollen and tender. That was it. I see him again in April, probably for the same thing, then he's scheduled an MRI and a mamogram for June. Does that sound like the normal follow-up? If so, OK. I thought he would stagger the MRI and mammo so that I was getting some sort of screaning every six months. Just wanted to know what you ladies think. 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2010

    Wow, you're getting an MRI for followup? Good for you! I got a mammo....the letter they sent back said nothing showed and to rebook in TWO years. Doi! I have no breasts you assholes...what did you think was going to show!

  • konakat
    konakat Member Posts: 6,085
    edited January 2010

    Hi Rinna -- I had the same thing -- seemed weird having both the mammo and MRI at the same time.  Then the mammo was at 3 (or 6) months, annual...  Annual MRI.

  • lassie11
    lassie11 Member Posts: 1,500
    edited January 2010

    That follow up stuff is something I had been wondering about as well - and forgot to ask the oncologist last week when I was there. I had an MRI a few months ago and asked about having mammograms - but it was during chemo and I can't recall the answer. I trust my oncologist so figure if there was a great need, he'd be on it. Next time I'll ask.

    Speaking of great needs, I ordered a mastectomy swim suit top online - it came from California and arrived today in an envelope that said "Urgent. Rush" and some such nonsense even though I can't see how a swim top could ever be a urgent issue. Apparently that is what is printed on the express envelope. It was so urgent that it arrived before 8:30 am and I had to get out of bed too early! Poor delivery guy had to see my in my pjs. I didn't have my glasses on yet so I didn't have to see me.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited January 2010

    lassie, I love your droll wit -- you paint SUCH a picture!!!!

    So, do you like the swimsuit top?

  • lassie11
    lassie11 Member Posts: 1,500
    edited January 2010

    Well - the colour is OK - it says it has a tummy slimming effect but that part wasn't so successful. There are some tummies that just are not going to look slim no matter what the clothing tries to do. I think it will work and, as a public service, I will only wear it at places like my brother's remote cottage.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited January 2010

    "as a public service"  -- ha ha!

    I think the only way we can overcome our fear of showing our tummy profiles in public is if we all do it at the same time, in the same place.  So, where is your brother's remote cottage??Tongue out

  • rinna40
    rinna40 Member Posts: 357
    edited January 2010

    I'm in. I feel a loose fitted cover up over the tummy slimming swim suit works well. He He. We're going to Cuba on Sunday for a week, and my kids are so excited that I can actually go in the pool - no ports, no open wounds..... so I'll be brave and show my belly too.

  • lassie11
    lassie11 Member Posts: 1,500
    edited January 2010

    I'll check to see if the tentmaker is ready with my coverup.

    Have you heard the Arrogant Worms' song about Rocks and Trees and Water? My brother's cottage is near there.

  • pip57
    pip57 Member Posts: 12,401
    edited January 2010

    I just got a new mast bathing suit too!  I went to a store in Newmarket where I could try on several.  It is a good thing that I did.  I also bought some very expensive new boobs to wear with the bathing suit.  My mom has moved into a retirement home that has a pool so I hope to use it there, a lot.  This store will also sew the prost pockets into a regular bathing suit as well.

  • lassie11
    lassie11 Member Posts: 1,500
    edited January 2010

    PiP - in Newmarket you say? What makes a swimming boobs different from the big plastic thing I have? Are they lighter? Do they help you float?

    Come to think of it, there's no reason I couldn't sew a pocket into an existing bathing suit as well. Why didn't I think of that sooner?!

  • pip57
    pip57 Member Posts: 12,401
    edited January 2010

    No. They are not special for swimming.  I just meant that I got them for  swimming.  I am wearing them occasionally to fill out certain tops.  But I still prefer being a 'free girl'.  And they are just little ones.

    The store is called 'Changes Boutique'.  They have everything bc women need there.  The only thing you have to  watch for in the regular bathing suits is that the top is not so low that it shows cleavage.  Remember cleavage?  What a weird word! 

  • lassie11
    lassie11 Member Posts: 1,500
    edited January 2010

    I have half a cleavage! - with a single mastectomy and one not so tiny breast left, it is yet another public service that I try to have some sort of "foob" most of the time (except for that poor fellow who rang my doorbell early this morning).

    Good point PiP - I won't add any pockets without first trying on previous swimsuits to make sure it is decent.

  • Caya
    Caya Member Posts: 971
    edited January 2010

    There are special foobs for swimming - they are concave in the middle, so the water flows through more easily.  I bought mine at the Mastectomy Store at Mount Sinai Hospital in downtown T.O.  I believe the one foob was $100 , but they will probably last a lifetime, unless you go swimming every day.

    Another great store for mastectomy bathing suits is Melmira Boutique on Yonge Street.  Your fitter takes you into a change room and brings you all the suits you want - they have suits from about $80 up. The fitter I had also brought me regular bathing suits (they will sew a pocket in them for you), but I preferred to only buy the mast. ones, and they had quite the selection.  I just walked in, but I believe you can make an appointment in advance.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Another Thornhiller? That makes three already.

  • lewing
    lewing Member Posts: 1,288
    edited January 2010

    The Arrogant Worms: are they the group that does that song about the War of 1812?  My daughter and her friends *love* that song!   Canadian humour is a wonderful thing.

    Linda

  • mumito
    mumito Member Posts: 4,562
    edited January 2010

    I swim in the salty sea water when ever we travel not sure how those 100$ foobies would hold out.But I will check out that store on Yonge st.

  • pip57
    pip57 Member Posts: 12,401
    edited January 2010

    My mom's pool is salt water.  Should I check that out too.  My foobies were quite expensive!

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited January 2010

    Hey, are there any decent foobies that aren't expensive?Frown  PiP, check out the manufacturer's website re salt water.  I have two different kinds, both Amoena, and they're good for salt water.

    Linda:  Not sure about the song you mentioned, but The Arrogant Worms do have a website that contains all the lyrics to all their songs.  They are darn funny, those guys!  Canadian humour -- interesting -- there really is a difference.  Do you ever watch CBC?  Rick Mercer Report, 22 Minutes?   My favourite show of all time was SCTV!

    The other Linda

  • lassie11
    lassie11 Member Posts: 1,500
    edited January 2010

    I called a sort of near by shop and found out that their swim foob is about $200 - the regular one was over $400. My knitted ones are  .  . .  free. Some searching around is in order for that swim one.

    Yes  Linda,  the Arrogant Worms did the War of 1812 song - and some really fun ones about Canada.

  • pip57
    pip57 Member Posts: 12,401
    edited January 2010

    Linda, mine are Amoena too.  So I guess I am good to go.  

    Leslie, mine are the $400 ones.  I had cheaper ones but they were too heavy.  The puff ones were too light.  But these are just right.  LOL  The nice thing is that the government gives you 50% back.   

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited January 2010
    Ha ha - what a great song title!  Too heavy.... too light.....ooh, just right!Wink
  • pip57
    pip57 Member Posts: 12,401
    edited January 2010
  • lassie11
    lassie11 Member Posts: 1,500
    edited January 2010

    Big surprise to me - I found out this morning that the local health supply store in our not so big town has a secret room with all sorts of breast forms including a choice of swim ones, mastectomy bras, bathing suits to buy or order, lymphodema products to order - with a qualified, really helpful fitter woman. Who knew?! And the nice woman tentatively asked me if I am over 55 - quite, yes  - which qualified me for 20% off on everything.

    No more trips out of town for such things. And now almost everything is in place for me to go somewhere - with the exception of choosing a where and when.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited January 2010

    Lassie, your new "find" was a lucky one!  There are 3 stores within a 30-minute drive of me that carry mast supplies, but because  the prostheses are SO expensive, they just don't carry much in stock, which means we always have to wait for the orders to come in (pay in advance, of course!) and hope we like them! The other thing is that they all only carry Amoena products, although I think I've convinced one owner to start looking at some of the other products.

    Linda

  • lassie11
    lassie11 Member Posts: 1,500
    edited January 2010

    This place had a few different brands and I was very pleased to have her show me the different varieties, talk to me about the options and have me choose. I think the prices were reasonable if not lower than in other places - especially after the 20% discount. All but the lymphodema sleeve were in stock too! I suggested they might have some sort of pamphlet available at the hospital.

    At the place I went last year,  the woman just handed me something and told me that was what I needed.  Other people might like to check out your neighbourhood health supply store (this one is a chain). I have looked in there before but didn't know about the mastectomy products tucked away - and didn't ask. I hope they stay there - it's a short walk from my house and a great comfort to know it is there.

  • konakat
    konakat Member Posts: 6,085
    edited March 2010

    There was a bit of discussion on a health reform thread about Ann Coulter in Canada.  It might be better here.  This clip is a hoot -- she gets into a discussion about Canada and the Vietnam War.

    http://www.youtube.com/watch?v=LmcZG87Fmxc

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