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  • Angel10
    Angel10 Member Posts: 682
    edited January 2010

    Tweety....we are meeting next weekend!  So if you are already cleaning this week...you really should meet up with us next weekend! Sounds like you need to get your priorities straight!  Ha ha!

    Heal well Janet!

    God Bless!

  • flash
    flash Member Posts: 1,685
    edited January 2010

    Sweaty- go to 4th floor boutique at the Cancer Center on 34th and 3rd. She's a cancer survivor and she will know what Guth needs or will talk with the nurse to get exactly what you need.  She's really helpful.

    flash

  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    Thanks Flash, but been there, done that.

    Guth's people gave me a "prescription" for a cami, but the lack of compression didn't really make sense to me given my intended lift & reduction procedure.  I asked the store lady who suggested I call Karp's office.  Neither the scheduling person or practice manager were in, so I was transferred to someone I hadn't spoken to before. She didn't know either but said if Karp wanted me in a compression bra, he'd just give me one as a freebie.

    So....I bought the cami, the store lady said if I didn't use it she'd give me a refund.

    I'd also like to have a compression bra that I know is comfy, just in case.  Because I imagine I'll be living in it for quite a while.   The cami doesn't seem to serve any purpose other than drain storage, and I could always pin them or put them in a fanny pack or something....so I don't know that I'd need more than one.  Also, I probably won't have drains as long as I'll have breast pain every time they move.  Unless they'll suddenly be so small they won't move anymore.  Now I'm babbling......

    Store lady was awfully cute though. 

    The whole morning, with Guth's scheduler and NYU's nurse educator lady who tells you what to expect form surgery - neither of them could answer any of my questions either - b/c my case/treatment plan is so atypical.   *sigh*

    If I'm such a rare (hence glamour) case, I wonder how packed the OR will be with fellows and residents, and whether they'll be the ones holding the X-acto knife when I'm unconscious....  Signing  the consent form could get interesting.

    They had some cute caps in the store, if anyone needs one.  A woman was trying on some new arrivals.

    One of my friends called and left a message about going out in celebration of one last night with my boobs, or something like that.  Aside from the fact that I don't have the time, I'm not really in the mood to celebrate this.  It isn't too weird to NOT want to go out with your healthy-breasted girlfriends and talk about your impending breast cancer surgery, is it?    

    Tweety - I'm glad you mixed up the date in your head, b/c I look forward to seeing you.

  • Bigapple09
    Bigapple09 Member Posts: 440
    edited January 2010

    Sweaty

    When I had my mast and then the removal of the rads side implant the hospital gave me two compression bras each time. They are ugly as sin, but I still put them on if I don't feel like wearing the prosthetic around the house, to give the other side some support.

    The new breast center at Memorial on 66th and 2nd has a great boutique on the second floor, they may be able to help.

     Also, the American Cancer Society TLC site has some post surgical bras

    http://www.tlcdirect.org/products/sku-7904__dept-14.html 

    Wendy

  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    Thanks, Wendy!

    Edited to add:  Hey, how'd the type get so big?

  • Bigapple09
    Bigapple09 Member Posts: 440
    edited January 2010

    It was a BIG thank you, so they adjusted it

  • tweetybird
    tweetybird Member Posts: 815
    edited January 2010

    Sounds like it was great get together, what time and where are you meeting up next week? I usually get out of work at 3 on Fridays, so anything is possible.

  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    Janet - there was no recent gtg.  It's next Saturday.  At the Boat Show, with dinner at Hudson Yards afterwards..

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    Honestly I found the compression bras very difficult to wear. I wore the surgical bra for a week, then a post surgical bra. Pretty quickly I changed to cheap sports bras. The cheaper the more comfortable they are. Kmarts are the best, they close in front, but the fruit of the loom 3/8$ were the best.

    Flash was with me in FL when I literally bought every sportsbra in walmart and target.

    Cami shelf tops are good as well. Get some racer and some regular strap.

  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    Thanks, I guess I'll be stopping by at Kmart and maybe Target....  3 for $8?????  Wow.  If that works, it will be the high point of my BC experience so far.  Well, that and the way Sacchini says "incision."

    There are surgical AND post-surgical bras?????  WTF????  What's the diff?

    Also have no clue what a cami shelf top is, I have so much learning to do! 

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    2 for 8 I guess, 3 for 11 something ridiculous!

    Only time in life the cheapest choice is the best.

    Oh and you can wear two at once if you need more support.

    Surgical bra they will give you in the hospital. Once it comes off you will never want to see it again.

    Lots of vecro. Place to hang drains.

    Post surgical is a soft front closing bra.I got at mast shop.

    Kmart's were the only sports bras that closed in front I found. 8$ comfy cheap comes up to size 46.

    Buy multiple sizes, sometimes you will want support, sometimes not so much.

  • Lilah
    Lilah Member Posts: 4,898
    edited January 2010

    Hi Ladies -- I live in Northern NJ but am in the city a lot and used to live there, so I think of myself as a city girl.  Just read all the posts and have to say, Sweaty, you are a riot (don't know how that person says "incision" but I am SO having fun imagining it)!  Good luck with your surgery. 

    I had a unilateral MX in December... felt nothing but relieved when it was over.  Currently getting fills on the TE, which ache a day or two after the fill and then, thankfully, don't bother me again.

    And Cookie I totally agree about never wanting to see the surgical bra again!  The velcro itched. 

    I have been wearing inexpensive zip-front sports bras from JC Penney (around $12 each I think)... called Underscore (but no underwire). 

    And Wendy -- my Big Apple friend from EC thread -- waving hello! 

    So: my BF and I are away next weekend or I'd float a plea to let me join you at that restaurant this weekend (it sounds fab and Cookie that is TWO great choices of venue); so perhaps you guys will settle for me waving hello now and hoping to join you for the next get together.

    Cheers,

    Lilah

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    I say take the boobie party. Go out and see burlesque.

    I'm gonna get a pastie for my healthy breast on the last day of rads.

  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    Hi Lilah.

    Nah, Cookie - I'm not emotionally prepared for burlesque.  Every time I see a woman showing nice cleavage and looking healthy I want to cry.  TV commercials, magazine ads....not good.  I hope I get over this, b/c, well, women have breasts and being upset every time I see them means I'll be spending a lot of time upset.  Pfft to that.

    Sacchini is a BS at Sloan (I really liked him but didn't go with him b/c I didn't like Sloan's PS), he's from Milan and says "incision" with an Italian accent.  He says everything with an Italian accent, and it's all much less horrible that way.    

  • Lilah
    Lilah Member Posts: 4,898
    edited January 2010

    Sweaty -- That's delightful (the Italian accent).  I'm at Sloan, actually, and love my PS.   They have many.  Too bad you weren't able to find one you liked.  That said, it sounds like you've got good people at NYU.

    I don't blame you for skipping the burlesque.  I have, on occasion, if not crying at least a wistfulness sometimes when I see healthy women (or what looks healthy).  The truth is, you never know.  But I do understand.

    Cheers,

    Lilah

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010
  • tweetybird
    tweetybird Member Posts: 815
    edited January 2010

    Cookie,

    I read Angel's response and thought we were going to be meeting up 2 weekends in a row. The cleaning fumes must have killed off a few brain cells. I sure can't blame it on cancer brain anymore.

    You guys are right about the sports bra's. I bought mine at a Vanity Fair outlet store, and they were dirt cheap. I think they were in the 3 - 4 dollar price range, and they gave me alot more support than the 1 or 2 expensive ones I bought at a "real" store. I don't know why, but I'm still holding on to them, and it's been 3 1/2 years since surgery. I would have thought by now I would have wanted to have a bra burning party.

  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    Went to Kmart, they only had one style/brand that closed in front (hook/eye) - got 2 of them in different band sizes so hopefully one size will fit.  $7.99 each.  I wonder if they're the same ones you got, Cookie.  I'll try em on at home and maybe go back for more.  Also got a possibly oversized pair of men's PJs.  Staying at a friend's house after surgery, and will need something to sleep in - not sure if I'll be able to pull the T shirts I'd normally wear over my head, so.....

    Went to Target.  Nothing.  So I got a new shower curtain.

  • Bigapple09
    Bigapple09 Member Posts: 440
    edited January 2010

    Hi Lilah
    I'm sure you told me but I have post anesthesia brain, who was your ps at sloan?

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    no...you will not want to pull over head. At all. Or do laundry.

    Would buy a few pairs of inexpensive button front pj's.

    I still avoid longer niteshirts and gowns, too much to pull down on breasts.

    I would get a few stretchy undershirt/tank top things.

    Also low armholes. Find something with low armholes if you are having SNB.

    (which you may not I guess)

    Put stuff you need on low shelves.

  • Lilah
    Lilah Member Posts: 4,898
    edited January 2010

    Hi Wendy -- my PS at Sloan is Dr. Pusic.  I really like her and how careful she is.  How are you feeling? 

    Sweaty you keep making me laugh -- no bras at target so you got a shower curtain!  Are you a writer?  You are very funny.  How are you feeling?  For me the few weeks before surgery were the most emotional (except, of course, for the diagnosis weeks and the freaking out).  I agree with Cookie: get button down tops (or zip front) or tanks with armholes that you can slip on without having to raise your arms above your shoulders (if you keep your elbows to your side and try to brush your hair, that is a good measure of how much reach you'll have at first... but it gets better quickly, at least it did for me).  Also: if you take medicine, put it in NON-childproof cap bottles... those are so hard to open after surgery.

    Lilah

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010
    We could throw you a pink ribbon showerWink
  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    My current shower curtain is nasty filthy and either needs to be cleaned or replaced.   I may not have the time or patience to clean it before surgery, so I might just put up the new one.  I'd been thinking about getting a new design lately anyway, I've had the old one forever.  I think I'm on the third version of it.  Or I might just clean the old one.  Or do nothing and live with the nasty.

    The pj's I got are HUGE.  I decided I wanted something loose & baggy, so got men's XL.  Too much.  I'll try men's L next. 

    While diff surgeons have had different ideas about this, I don't think Guth wants to do SNB unless path returns bad news.  One of the things I have to confirm with her this week.

    But I'm all about the big & baggy right now anyway.

    The bras...OK, I don't get it.  At all.  They're comfy enough - but how the F do you get them on?  The way I normally put them on, well, I noticed it seems to involve a lot of arm-raising; and closing the hook & eye thingies required a lof of fumbling with/smushing of my breasts.  I can't imagine doing that to them post-surgery.  I'm panicked that I'd pop an incision, a nipple would go flying across the room, I'd scream my head off in pain - I'm imagining a real horror-show.  How the heck are you supposed to get dressed???????  Do I need the zipper ones??  Velcro??  Have I been getting dressed incorrectly my entire life?  A "regular" bra doesn't give the same support, but it's a hell of a lot easier to get into!     (I so wish I'd bought one of these for the biopsies!)

    Due to a midlife crisis career change, I'm a lawyer.  Dumbass move.  *sigh*

    I'm veering between total mess and slow acceptance.

    Had a fight yesterday with an old friend in Ohio who was calling to check in.  I'll have to apologize.  I didn't want to talk to anyone so didn't call her back after she'd left several messages, then she got hardcore and called 3x yesterday.  I finally picked up and basically yelled at her.  She was all crying and "I'm so relieved to talk to you, I was so worried about you," and I'm all "stop friggin harassing me, I'll call you when I have some news." 

    This is the same friend who, when I told her about my diagnosis, started crying on the phone - which put me in the position of having to talk her down.  Just what I needed right at the beginning when I wasn't eating, had nonstop diahrrea anyway, and maybe 2 hours of sleep per night - my freakin' friends crying so I could take care of THEM!! 

    On another past check-in call, she asked "Who's there with you?"  I'm single, no family - it was such a dumbass question, it really pissed me off.  So I've been keeping some distance.  Somehow it all becomes about her and how she feels so bad and is so far away, etc etc etc.  I have zero patience for a lot of things these days, and that sort of conversation is on the "I don't have time or energy for this" list.

    If she ever asks me who's with me again, I might invent a husband and some kids.  Parents.  Siblings.  And a dog.

    Still, I know she meant well and didn't deserve my yelling at her - so, an apology is in my future.  BAH!  BC has made my fuse much shorter than it previously was.

  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    A pink ribbon shower????

    *runs off to Jersey*

    *or Connecticut*

    *or something*

    I'm a native New Yorker.  Let's just stick to black.

  • Lilah
    Lilah Member Posts: 4,898
    edited January 2010

    Sweaty -- tell that friend to get a spine and woman up / stop making herself a problem... or just stop talking to her for awhile.  Who needs that?

    Also re: the bras... while I don't know exactly what you bought I will say this: the first week you are in a surgical bra and bandages and once you get the drains out you should be able to move more than you think you will be able to.  I thought, prior to surgery, that I'd be laid up for months but I was driving after a week and moving my arms and after 10 days the nurse (doing a fill) asked me to show her my range of motion and I duly raised my arm to shoulder height only and she shook her head and I said: But I thought nothing higher?!  And she said: well NOW you can reach up.  So I started stretching up.  Maybe it will be two weeks for you... but the point is: you'll be able to move pretty soon after and to raise your hands up, etc... just carefully.  Don't buy a whole new wardrobe.  Just a few things to wear comfortably. 

    I do love the zip front sports bras though... pretty easy to get on and off and soft. 

    Cheers,

    Lilah

  • Bigapple09
    Bigapple09 Member Posts: 440
    edited January 2010

    The had me doing the range of motion exercises the afternoon of the day following the bilateral, they even gave a DVD to take home.I did the religiously, I put them in as a repeating event in my iPhone and had an alarm so that I did not miss doing them. They were sucky and stupid, but they did work.

    Bring a big baggy zip front sweat shirt and comfy pants to the hospital, also ankle socks so you dont have a lot to pull up,baggy granny panties and comfy easy on shoes. Also think about bringing ear plugs so you can sleep at night and don't worry about asking for a sleeping pill, they will tell you if you can or can't have it, but even if you are wondering the floor at 4 am, no one is going to suggest one.

    Get an rx for Xanax and fill it now, it helped a lot and I wish I had used it earlier than I did, I might not have stressed out so many people.

    People say stupid things,because they don't know what to say and the truth is, there really is not a right thing to say, do or way to act, odds are they are gonna piss us off anyway, because we are pissed and scared and none of this is fair. While we get mad when we have to deal with the emotions of others and it is not fair to put that on us also, it is what happens, so a little chemical intervention may make it easier to put up with in the short term and make our nerves less raw.

     It all stinks, and Sweaty I am so sorry you are going through this. I do hope you come to the dinner, we are all here to support you.

    Now I need to get my pink lovin, only wear black to court, NY lawyer A$$ to the gym to keep it from being viewed as a donor site by my PS.

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    I took off the surg bra after a week and went to the mast shop and got the post -surg.

    The post- surg opens in the back and front. Also insurance will usually pay for it.

    boobies will be stand up straight perky

    it's freaky after a life time of mushing saggy ones.

  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    So the post-surg bra is NOT the same as the sportsbra.  How long are you in the post-surg before you "graduate" to the Kmarts?

  • Lilah
    Lilah Member Posts: 4,898
    edited January 2010

    I went from surgical bra to sports bra, Sweaty, for what it's worth.  Didn't bother getting a post-surgical bra (not even really sure what that is).

    Or maybe the surgical bra WAS the post-surgical bra?  I don't know.  It's the bra I woke up wearing (over bandages) in the recovery room.  It had velcro to hook the drains to (under each cup) and a velcro close front.  My PS wrote "DO NOT REMOVE" across the bandages on my chest so I didn't even SEE my chest until I had my drains out about 6 days post-surgery.  At that time I went right to the sports bra, which was like wearing butter after the surgical bra (and no shower for 6 days). 

    I drove myself to the doctor's office to get the drains out.  I think that since I only had a unilateral MX (one side) I had an easier time recovering, since I was able to lean on my left side.  But after two weeks (for sure) I was able to do a lot with both arms (except opening those child-proof caps is STILL a bit of a challenge and I had my surgery Dec 9).

    Lilah

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    The post surg is very similar to the kmart bra in shape--

    It has more support, both front and back closures, and a lining designed to be nice to incisions.

    I got it from a mastectomy shop.

    It may not be a must, but all the closures were nice to have.

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