Chemo Starting Sep 09

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  • BarbAnne41
    BarbAnne41 Member Posts: 380
    edited January 2010

    First off Holly and Catherine I am thinking of you both and your tests--- hope all is well.

    Patty thanks for the advice, they do sound about the same, maybe I will switch up the lotion. We are having a sunnier winter than normal, but when I am outside I am so bundled up, cause its like 10 degrees, that it can't be that, I suspect maybe a combo of soap, loofah, and lotion. A trip to the store sounds in order! Congrats on having number 9 out of the way, the best part of a countdown is 3..2..1, I am so excited for you.

    Neece congrats on the wedding, how fun, what is the weather like in Australia during September? That was me prattling on about water and rads-very very important, drink drink, but I was glad to hear Melinda had dry mouth, because I did too, and the rad-onc-doc office said "Oh no that's not a side effect" well I think they are wrong and hard candy helped me a lot.

    Anita-sorry for the pain, hope the nap helped.

    BarbT- gosh it sucks to feel so miserable, I am sending you a gentle hug and hope you feel better soon.

    Melinda- Hoping your panic and worry have subsided a bit. Of course I do the same thing here and there, I just don't want anyone else to suffer too!

    Hope you all are well!

    Took our teenage daughter to have her braces removed today, very exciting after 2 1/2 years. Frankly, I am just excited to get rid of a monthly errand, and to stop hearing the complaints about rubber bands and this bracket and that one-woo hoo.

    Had Taxol 5 yesterday and it seems to be the same, no tingling or numbness yet, but it is so cold in Michigan I don't know if I could tell. I am just willing to believe the daily B complex is doing its job.

    Take Care and Holly and Catherine I am thinking of you both

    Barbara

  • hbowser
    hbowser Member Posts: 253
    edited January 2010

    Hello, All.

    Thank you all for your prayers.  The radiologist came in and said he will do another MRI and if he did not see the area in question "enhanced" he would not have to do the biopsy.  I asked him why my MRI in October didn't show it and he said hormones will do things to a sensitive MRI.  So there I was strapped face down and told to lie still while they did the MRI and then he came in and did the biopsy.  The biopsy itself was fine, didn't feel anything after the initial shot for numbness.  I told them that I did not wanted to be sedated, that I could be still.  I know God was with me the whole time since I know I would not have been able to be still for 2 hours without his help.  The doctor and nurses were all amazed that I was able to stay still for so long without them coming in to adjust me.  I arrived at the center at 9:00 and was rolled into recovery room around 12:15.  We didn't begin until around 10:00 or so.  They keep you in recovery for an hour and then I was able to go home.  I have to go in on Friday for a follow-up mammogram.  They said they have in the past just sent their patient up from biopsy to mammo, but they had issues with bleeding from the biopsy site.  You think!!!  What sadistic person came up with women having a mammo right after a biopsy?! 

    Barbara - I hope changing lotions and body products will get rid of your rashes. I had rashes around my ankles and upper arm while on Taxol.  I took benedryl and used hydrocortisone cream.  I don' t know if that would help you.

    Neece - Congrats on the wedding. How exciting to focus on something else besides txts.

    Catherine - Good luck on your MRI today.

    Barb T - Sorry you are having a tough time on Taxotere.  Praying that you will feel better soon. 

    Anita - I hope you will get some relief soon from the pain in your arm.  How is your bone and joint pain?

    Anita, Patty, Chinablue - Is the main purpose of the Zometa trial to reduce recurrence or help with bone density?  I guess I am clueless and haven't understood it completely.  Sorry if I am repeating myself.

    To all who are taking Tamoxifen - It sounds like you are all doing pretty well with minimal SEs.  I hope it continues to be so for you all.  We love hearing that you guys are doing well on it since a lot of us gals will be starting it soon

    Take care everyone and my prayers and thoughts are with you all.

    Love, Holly

  • chinablue
    chinablue Member Posts: 545
    edited January 2010

    Holly - Thank goodness the biopsy is over.  You are such a trooper.  I think I would have lost it.  My thoughts and prayers are with you. 

    Zometa's main purpose is to help with bone density.  It is often given to women with osteoporosis.  However, it was found to reduce recurrence in women with bc.  The purpose of trial that my onc told me about is to find out if zometa is more effective in pill form or iv form.  I think I am going to sign up even though there are se's.  As a triple neg., it is the only protection I know about from recurrence.

  • positiveme
    positiveme Member Posts: 157
    edited January 2010

    Hello Everyone

    I just got back from my MRI. I am sure everything is fine but we have to do these tests to make sure.

    Melinda- I am premenapausal also(44). My period stopped in sept. during chemo. My onc. does not think I will get it again. My hot flashes and flushing started the second day on tamoxifen. After a week I saw onc and he prescribed effexor xr and it reduced the flashes and flushing almost to nothing. It really works for me.

    Holly- Sending positive thoughts on your biopsy results.

    THINK POSITIVE

    Catherine

  • Melinda-Tma3
    Melinda-Tma3 Member Posts: 168
    edited January 2010

    Catherine-Thanks so much for the info.  Still a little concerned that I am having no noticeable changes.  Guess I'll  call my doctor and see what she thinks.  I've read that the first three months are the ramp up and then things calm down and level out.  I guess my concern is if it's not doing it's job then maybe I should be looking at other options.  I let you all know what I find out.  

    Hoping for good news from your tests (Catherine and Holly)!

    Have a great evening everyone! 

    Melinda 

  • jadams1264
    jadams1264 Member Posts: 417
    edited January 2010

    Hello SOSisters.  I am so behind in posts I'm am having to play catch up here.  Got a good report from the cardiologist, I will be able to continue with my Herceptin, which will last through Sept.  Don't know yet if it will be once a week or every 3rd week, I'm hoping for every 3rd!  Meet with the radiologist on the 29th for tatoos, placement, etc.  Thanks to all of you for so much information on what to expect!

    Patty - how did your consult go with the radiologist?  If you are like me you ljust want to get it over with, it is going to be a major pain for me to take off to go to radiation for 6.5 weeks!  Not to mention I also have to do my Herceptin until Sept.  It does seem to be never ending.

    BarbAnne41 - don't envy you your cold weather.  Glad #5 went well.  How is the itching?  Have you found some relief?  I remember taking my daughter to get her braces off, her teeth were beautiful, I had a "mom" moment and teared up!

    Neece - we should all come to the wedding (not really, but wouldn't that be fun!).  How exciting for you, plans to make, things to do, life is getting back on track.  How are you feeling?  Energy level any better?

    Barb0323 - I'm so sorry you are having a bad time.  Are you working?  Can they slow down your drip - my nurse swears that the drip has a lot to do with se's.  I am also doing the swelling thing, feet, legs, hands, face.  The fluid pill really works but brings another set of se's.  My onc says swelling is from accumulation of chemo drugs.

    Melinda - glad to hear the rads are going ok.  It is something to want to have hot flashes and bone pain but I know exactly what you mean.  Somewhere on another thread I read about bone pain meaning the chemo was working and while I had some bone pain, I was fortunate to never had it really bad or was I fortunate?  I think we can over think some of this stuff and everyone is different.  I worry about all my aches and pains being something I don't even want to know about!  Yes, I am ready for daffiodils and tulips and crocus and warm weather!  I love the thoughts of spring and everything new!

    Catherine - so glad to hear the hot flashes are better.  Gives us all hope when we start our daily pill.  When will you hear back from your MRI?  We will all be waiting with you!

    Holly - so glad to hear you came through your biopsy so well.  I do believe that God was with you and a lot of positive vibes from your sisters!  When will you get your results?  Don't you hate waiting?  We will all be waiting with you. When they did my biopsy the machine made a sound and I jumped.  They had to reposition me, you are a trooper to endure that table and being still for 2 hours!

    ChinaBlue - thank you so much for the information on Zometa.  Does this mean if you do the trial that you could get either a pill or IV form?  Is there any bone disease in your family?  My mother had brittle bone disease and I have osteopina (sp?).

    Well everyone, I will try not to miss 2 days again, wow, a lot to catch up on.  Everyone take care.  For those of you with se's, hope they are subsiding and you are feeling better!

    Thoughts and prayers are with you!

    Jane

  • vickilynn
    vickilynn Member Posts: 422
    edited January 2010

    Hello Sisters!

    Here's some Blunt Talk - especially from me!  

    I went to the dr. today (the onc. didn't want to see me, so sent me to a FNP I see) because I had severe pain during intercourse!  I was certain I had cervical cancer or at least an infection... but after exam, the FNP told me that chemo can alter things even there!  It changed the Ph in my vagina, the tissues and cells and cervix were incredibly softened and who knows what else!?!?! 

    Anyway, thought I'd share that with you in case any of you experience a similar thing.  Pretty scary - wondering about the cancer!   But she recommended something called Replens which is an over-the-counter vaginal moisturizer (not a lubricant) and it specifically states on the box for chemo patients (as well as others)!  It's also estrogen free.  Supposed to bring everything back to a "healthy" state eventually.

     Now did any of your oncs or nurses tell you about that side effect?   And it's been 6 weeks since my last chemo!  Fingernails are discolored and breaking, but not coming loose.  Hair is soft and fuzzy and see-through white.  Energy comes and goes, but I know I'm getting stronger. 

    It's sort of like taking 2 steps forward and 1 step back... know what I mean?

    I'm reading the posts, praying and thinking about you all.  Vickilynn

  • Melinda-Tma3
    Melinda-Tma3 Member Posts: 168
    edited January 2010

    Vicki ;ynn...thanks having a few problems in that area too...thanks for towing the line and sharing! Glad the days are getting better and the nails don't sound like fun at all! I swear they grow faster than hair though.  Hope all of you returns to healthy soon! 

    Melinda 

  • Scoobydoo
    Scoobydoo Member Posts: 499
    edited January 2010

    Hi Ladies.

    Vickilynn- Thanks ffor sharing that info.  It is so good to hear from you ladies that have finished chemo before  others and share what is going on.

    Jane - glad to hear your good news from cardiologist.  At this point I celebrate every victory.  I just received my referral to my rad onc.  I will probably start rads at the end of this month also. 

    Melinda - I also heard that bone pain is a sign the chemo is working really well.  If that is the case I must have the best chemo in the world because I had severe pain from taxol.  I have to take percocet for the bone pain. 

    Holly - Still praying that your biopsy results are benign. You are such a strong woman.  Continue to lean on the Lord and He will see you though.

    Saw my onc yesterday.  She thinks the pain in my arm is because I have been nursing it too much.  So gave me stretches to do.  She said if it doesnt get better she will refer me to a physcial therapist.  So hubby massaged my arm and we did stretches together.  I have my dental appt tomorrow so that I can get in the Zometa trial before it closes.  I am a week out from my last chemo and nothing has changed yet.  I still have neuropathy in my feet, however, my fingers are a whole lot better.  Still taking neurontin for that. 

    Wishing everyone a SE free day.  Keep moving forward.

    Anita

  • chinablue
    chinablue Member Posts: 545
    edited January 2010

    Only two more taxols to go!!!  (but who is counting)

    Scoobydoo - I got the information packet for the zometa trial.  I know I have to make dental appt. and schedule a MUGA heart test, and CT scan.  The packet says something about checking my kidney function.  I don't know if that is a blood test, urine test or some new test that I have never heard about.  I will ask the clinical trial advisor later.  I bring it up because the kidney function test seems to be a very regular part of the trial. 

    I am in the same boat as you with regards to my cording and my neuropathy.  I do stretches, but nothing is helping.  I have had the cording since surgery Aug. 6th.  My onc wants me to start cymbalta for the neuropathy, but I am very hesitant.  My toes are completely numb. I feel like I am walking on a hairbrush.  My fingers tips feel bruised and the nails are light brown (yuck).  I just don't want to start cymbalta because it is supposed to reduce libido.  I need all the help I can get with that right now.

  • Scoobydoo
    Scoobydoo Member Posts: 499
    edited January 2010

    Chinablue- you are funny.  Ask your dr about neurontin.  Not sure if it is the same as cymbalta.  It is helping with my neuropathy and my limbido is intact.  LOL.  My DH massages the arm area twice a day, plus I am doing the stretches.  It is really helping me.  Are you massaging the area?  That is just as important as the stretches.  My fingertips are much better...not 100% normal but I would say 90%.  I hear the trial closes Feb 1 so I am trying to get everything doen before that.

    Your neuropathy will get better once you are done with taxol.  Not overnight though.  But slowly over time. 

    Anita

  • chinablue
    chinablue Member Posts: 545
    edited January 2010

    I am going to ask my DH to help with massaging. I think it might also help with the libido.  Great idea!

  • msmpatty
    msmpatty Member Posts: 818
    edited January 2010

    Holly - Good job on the biopsy!   I'm pretty sure I could not hold still for two hours.  I can not believe they would give a mammogram after a biopsy....OUCH!!!   Keeping my fingers crossed for B9 results.

    China Blue - I'm planning to sign up for the Zometa trial as well if I can get all the stuff done on time.  If I don't get in my Onc said we can do the Zometa anyway...it involves a brief 15-minute infusion every six months for 2.5 years or something.   I totally agree with you that you triple neg gals should jump on this!

    Jane - my first radiology visit was a bit of a waste.  They were running 45-minutes late...I was not pleased!  Doesn't bode well for having to be there everyday for six weeks, I am hoping the treatment area is better organized that the office.  Anyway, I really didn't learn anything that I didn't already know from listening to you ladies.  I go back in February for the scans and tattoos and will start rads in early March.  Oh boy!

    More to say...but have to get my son to an appointment...back later...

    Patty

  • jadams1264
    jadams1264 Member Posts: 417
    edited January 2010

    Hello SOSisters.. dragging this evening, energy comes and goes but I am not complaining since I'm through with bad chemo!  Could be part of it is just getting back to work and playing catch up.  A little warm weather, buds in bloom and I'll be good to go....

    Vickilynn - thanks for sharing.  I have had some spotting and actually intend to address the issue tomorrow when I get my Herceptin.  If you go to the taxotere, carboplatin, herceptin thread you will find a lot of ladies who have experienced the samething.  I have followed this since finding this website since they are doing the exact same txt as me.  Just didn't join them because I liked this thread better - can't imagine not being on here now.  I'm only 2 weeks out but still having bloody noses, swelling.  I keep telling myself it's okay, it's getting better - some times I believe myself better than others!  And no, nobody has mentioned this particular side effect.

    Anita - sorry you are having problems with your arm.  So good that hubby is willing to massage the arm and share in your exercises.  It is always so much easier when your partner is there for you 110%.

    ChinaBlue - almost done!  Sounds like a lot of us have that libido thing going.  I'm sure this is all in our head and couldn't possibly be a side effect - HA.  My fingers are still numb but I do believe they are slowly getting somewhat better.  I can appreciate your not wanting to take another rx, if you are like me you want to have less not more!

    Patty - what a bummer to go for your visit and have to wait 45 minutes.  Don't want to jinx myself because I have only been to the rad center once but they were efficient that day.  I know exactly what you mean about wondering how it will be everyday, I either need  after work appts or lunch time and am concerned how that will work out.  I'm sure everyone probably wants the same times. On the other hand from listening to our sisters certainly sounds like something we can handle after all the chemo trials!  I'm thinking that I may get my tatoos when I go on the 29th, I have a 2.5 hr appointment.  

    To everyone I didn't mention, hope you are doing well.  If you are having se's hope they are minimal and manageable.  Take care everyone.

    Thoughts and prayers are with you!

    Jane

  • msmpatty
    msmpatty Member Posts: 818
    edited January 2010

    Jane - I hear you on the radiation appointment times.  The radiation place is almost 20 miles from my home in city traffic.  I take my son to school, which is 10 miles in the right direction, so I'm hoping for an appointment time that will let me drop him off and just keep going.  But...we'll see.  I keep telling myself that if I can do 24-weeks of chemo, I can put up with some inconvenience for six weeks.  But I'm afraid all that driving is going to make me really cranky. (or maybe I should say "crankier"?!)

    Barbara - So good to hear that you are doing so well on Taxol, itchy spots aside.  I get my 10th Taxol TX this Friday and so far no pain and just a tiny bit of intermittent numbness in my fingers.  Let's count our selves lucky in the Taxol SEs department!  Last time I saw my Onc he laughingly said "Your labs look great, you look great, get out of here!"

    Melinda - Are you sure that having no SEs from the Tamox is a sign it isn't working?  My Onc keeps telling me that (at least for chemo) side effects and the effectiveness of the chemo are not related.   Not sure it is the same with Tamox..but wouldn't it be great if it is working and you don't feel a thing?  Score!

    VickiLynn - Sorry you had such a scare.   I'm thinking that after a cancer diagnosis, every time we feel an ache or pain our minds will go to the "oh no, it's back" place.   Not sure what to do about that.  Anyway, I'm glad your Dr was able to help.  Two steps forward, one step back...you're still making progress!

    Here's to more energy...less nueropathy...massages...stretches...ticking off the final TXs & rads....we're getting there ladies!

    Patty

  • Neece
    Neece Member Posts: 270
    edited January 2010

    hi everyone

    Had my onc visit this morning and will be starting on Tamoxifen next week - I almost feel like I have "graduated" to the next treatment after chemo! Melinda I am not sure if it is correct to think that no se's like hot flushes = reduced efficacy. my onc seemed to think that not everyone experiences these se's to the same degree and that is just one of those individual difference things, to count yourself lucky of you don't. So I wouldn't worry too much.

    Barb I am so sorry you are having a hard time, hope it improves very soon for you.And go hair! Don't forget - a new pic from everyone on this thread once there is some hair to show off!!!! Wink

    Anita the "pulling" pain you describe sounds like it could be "cording" or "axillary web syndrome" especially if the pain runs right down your arm. It feels like an invisible piano wire inside the arm, pulled tight. I have had that too since my mastectomy and axially clearance in August. It comes and goes a bit and stretches (gentle and VERY regular) and massage of the "cord" and under the arm (ditto) really do help but it has never gone away completely. On the Lymphodema topic board there is a thread about cording that you may like to read if you haven't already. A PT who is experienced in lymphodema and aws can help too.You can also google "axiallary web sydnrome" - there are a couple of articles on the internet about it. Most therapists know very little about it I have found!

    China your toes and fingers sound EXACTLY like mine! My onc today said it might take months to get better. Sigh.

    Holly so glad your biopsy went well.

    Jane my energy like everyone who has finished chemo I guess, is very variable. Fitness still extremely low. _ i am working on it slowly.

    Vickilynn thanks you too for your honesty in raising a "delicate" side effect not often mentioned. Certainly libido has taken the world's biggest nosedive for me since surgery and chemo - much of last year in fact because prior to that I had broken bones from the car accident in April - so pain and exhaustion don't help let alone chemo induced effects. yuk. Hope things improve on that front for you  too.

    Love to all and down with se's!!!!

  • barbt0323
    barbt0323 Member Posts: 99
    edited January 2010

    Good afternoon!

    Just a short note to let you know that I have decided to take a leave of absence from work.  I have about 2 weeks vacation left.  One of my very dear friends has donated her remaining vacation time to me.  Brought tears to my eyes.  After I run out of vacation time I will get 75% of my pay on short term disability.  Just have to wait until I come back to work to get the pay. 

    I start my leave on January 25th.  At that time, I am going to have some time to help Jane work on our reunion.  I am so much looking forward to us getting together.

    Hope everyone is doing well!

    Barb T Cool 

  • BarbAnne41
    BarbAnne41 Member Posts: 380
    edited January 2010

    Holly- Glad to hear you made it through, and I know what you mean about God being there with you, and I am sure he was. Let us know as soon as you do! Thoughts and prayers are with you as always.

    Catherine- Have you gotten any MRI results?

    Melinda- I am with everyone else I am not sure se's mean it is working. One of my coworkers is 5 years out and didn't experience any se's from Tamox, she finishes her 5 year stint next week and had her mammo/scans two weeks ago and got the all clear. No se's are good.Hope you are doing ok and the rads are treating you well.

    Jane- Glad to hear you are having energized days. It is suppose to be a high of 38/39 here for the rest of the week so it is like a heat wave, maybe I can go out on the deck and get that sun on my bald head I keep wanting!! 

    Vicki Lynn- Thanks for the info. I seem to have the opposite problem, too much moisture, which is odd but maybe I will ask next time I see my onc. I am sorry you had such a scare, I am afraid we may all be looking over our shoulders for awhile.

    Anita- Good luck with the stretches and massages, hope they help. 

    China and Anita- Can I ask whats with the dental appt before joining the Zometa trial?

    China- Cymbalta for nueropathy? Wow I hadn't heard of that one. I don't blame you for counting, good for you we are counting with you.

    Patty- My Rad-Onc office was running behind and the scan machine wasn't working properly the day I went in for my tats. In fact I feel asleep, in position, no shirt, while waiting for them to make up their minds. But when it came time to do the rads they were almost always on time and very quick. I can tell you that my first 6 to 8 appointments weren't at my "ideal" time, but as soon as an opening happened in my "ideal time" they put me in, so I hope you get the time you want. 

    Neece- So glad to hear from you, and congratulations on graduating-feeling better every day?

    BarbT-I am sorry you are having such a rough time, but I am very glad you have people around you who care enough to donate their time. My thoughts and prayers are with you.

    Well some of the itching is gone, thank you Patty, the Aveeno is great. A couple of spots are being pretty stubborn, but I am hopeful. I haven't had any tingling or numbness, that I can tell, I can be klutzy occasionally, I hope it is the B-Complex I have been taking before I began the Taxol. Thank you again Patty. 

    The problem I have had since the start of chemo is that constant feeling of bloat and pressure, like I have had a Thanksgiving meal when I may have had a couple of crackers. My onc said it should all be cleared up about 6 months after chemo-yeah. 

    You know I told someone at work today, who is having problems, that if I could go back two years ago and talk to myself, the me who, back then, could eat what she wanted without feeling bloated and crappy, and could sleep peacefully, do yoga etc..I probably would have had a list of things that pissed me off, now I have such perspective on what is important, and what, if anything is worth getting mad about (not much) and I would have slapped that girl (me back then) for not appreciating all the simple things instead of looking for things that were wrong. I can't wait to be "normal" again, and eat what I want, sleep, yoga etc.. and not worry about that which is out of my control or just not worth it.

    Thanks for listening ladies

    Love and Hugs

    Barbara 

  • positiveme
    positiveme Member Posts: 157
    edited January 2010

    Hello Ladies

    I am still waiting for the mri results. I am sure they are fine because bad news comes alot faster than the good news.

    Barb- I am glad you are able to take the time you need. It is so nice to hear that there are such kind people around.

    THINK POSITIVE

    Catherine

  • Scoobydoo
    Scoobydoo Member Posts: 499
    edited January 2010

    Hi Barbara.  The dental appt is to make you do not have any hidden tooth issues that could happen while on Zometa.  Such issues, like root canal or tooth extraction could cause what they call "death jaw".  That is where the jaw bone actually dies...ugh.  You do not want to know.  So the full dental exam is just to make sure there is nothing hidden or lingering.  My dental exam came out perfect.  Healthy teeth and gums.  So I can now move forward to start the trial.

    There is an actual medical term for death jaw.  I think it is osteonecrosis.  Hope this helps.

  • chinablue
    chinablue Member Posts: 545
    edited January 2010

    Scoobydoo - I don't think I am going to do the Zometa trial after all.  I think my onc or my internist will prescribe Zometa IV every six months for me anyway.  I don't chance getting the pill arm of the clinical trial because it is not Zometa, but a similar drug.  

  • Scoobydoo
    Scoobydoo Member Posts: 499
    edited January 2010

    That is still really good China that you will be able to be on Zometa.  You can always back out of the trial if you do not like the arm.  They are both bisphosphonates though and both arms have proved to be successful.  I think the dosage that you get on the trial is much higher than what you will get, you should check with your dr about that before you decide.

    Either way, I think it is great that you are able to do it outside the trial.

    Anita

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited January 2010

    Anita is right. You will get 4 or 6 doses for bone disease but 16 for bc prevention.





  • jadams1264
    jadams1264 Member Posts: 417
    edited January 2010

    Hello SOSisters... okay here is my 3 steps backwards.  Went for Herceptin txt yesterday.  Onc says my eckocardiogram showed a 12% decrease in heart function since starting chemo.  PA at cardiologist office apparently did not look at last report!  Anyway, I will have one more Herceptin in 3 weeks, go for another ecko in 6 weeks and then onc will determine if I can continue Herceptin.  I was really bumed out, need to finish my Herceptin, it really increases chances for no recurrence.  Other than that made it through a whole week of work and I am so tired.... I'm sure tomorrow will be better.

    Patty - my onc nurse described daily trips for radiation as "tedious".  Sounds like an apt description to me.  Not looking forward to it at all and already found out that there are not any afternoon appts after I get off work.  How did your txt go today?

    Neece - congratulations on moving on to the next step.  You'll have to let us know how the tamoxifin goes - sounds like it isn't too bad from what the other sisters are saying.  I wish that everyone was reporting that energy levels came back quickly, but doesn't seem to work that way!

    Barb0323 - I hope you have had a very restful day today!  Please take care of yourself and rest as much as you can - you will be feeling better in no time.  I'm sorry you are having to take off but it is probably best since you have had so many se's with the taxol.  You are in my prayers.

    Holly - thinking of you.  Any news yet?

    BarbAnne - I'm with you, I have quit sweating the small stuff that would have driven me nuts before BC.  It just doesn't seem so important anymore.  Wake up call?  I think in my case it has been, I know I can't get too serious about the petty stuff anymore.

    Catherine - sorry you haven't gotten your results yet.  I know waiting is so hard but I like your attitude and am sure that all is well with your MRI.

    Scoobydoo - thank you for going forward with the trial.  You will be one of the sisters who help those who will come after us, this may be a new method of treatment and become a gold standard somewhere down the line. 

    Onty - good to hear from you.  How is the radiation going, have you started yet?  Keep us posted how it's going.

    To everyone I didn't mention, hope all is well.  Take care.

    Thoughts & prayers are with you.

    Jane

  • msmpatty
    msmpatty Member Posts: 818
    edited January 2010

    Barbara - Glad to hear the itchies are going away.   I'm taking the B vitamins too.  I'm convinced they have helped prevent the nueropathy.   If it weren't for the fact we live in different states,  we might be going to the same slow rads place.  HA!   Thanks for the assurance that it is possible to eventually get the appointment time you want.

    Jane - So sorry to learn about the heart results.   The plan sounds good though.   I'm keeping my fingers crossed that the next echo shows no further decline and you can continue the herceptin.

    Catherine - Fingers crossed for good MRI results!

    Taxol #10 done today...two to go!   The chemo nurse said I could be the poster child for a "good" chemo experience.   Hmmm..."good" is not exactly how I would describe the last 22 weeks.   But I certainly haven't had the worst experience either.   Gosh, I hope things don't completely fall apart in the next two weeks...unlikely!

    I am in total agreement that this BC and chemo experience has changed my priorities and put things in a better perspective.   The minute I was diagnosed my mind seemed to narrow down to shine a high beam on what is important in my life. And then with the reduced energy of chemo, one just has no choice but to do only the really important things and not sweat the small stuff.   I used to be a big sweat-er of the small stuff.  Not anymore.   I like my new mellow me.  So does my family and my business partner! 

    This horrible trajedy in Haiti even puts BC in perspective.  Gosh, we have our problems, but those people had next to nothing and now that is gone.  It is just heartbreaking.  

    Patty

     

  • hbowser
    hbowser Member Posts: 253
    edited January 2010

    Good evening, All.   I had my mammo this morning and stopped by the cancer center to talk with my onc.  The place was hopping and I wasn't even able to talk with the secretary.  Left a message asking them to call me with the results.  By 4:00 PM, I hadn't heard anything so I called and reached the secretary.  She told me that Onc. wanted to schedule an appointment to go over the results.  I said I'm a big girl, you can tell me over the phone.  She told me to hold and came back on the phone and told me my onc. would talk to me.  She came on the phone and told me that it was NOT cancerous, that it was nothing, like they thought.  PRAISE THE LORD, GOD IS AWESOME. 

    Jane - Sorry to hear about your heart results.  I will be praying that your next test results will be good and that you will be able to continue your treatments.

    Barbara - Glad to hear that your itching has decreased. 

    Vickilynn - Thank you for your frank talk; I think it is more common than we believed.

    Catherine - Thinking positive; that you will get good news.  As I said, I had to call them, but I was thinking the same thing; that they would definitely call to set up an appt. if it was bad news.

    Anita - Glad you got the go ahead from your dentist. 

    Chinablue, Patty - only two more to go; almost done; the end is in sight!!

    Neece - Congrats on graduating to your next treatment.  Praying it works without any SEs.  I am in total agreement with you, no SEs is a good thing. 

    Thanks again everyone for your prayers.  I am getting tired, so will post more later.  Have a great weekend, everyone.

    Love, Holly

  • chinablue
    chinablue Member Posts: 545
    edited January 2010

    Oh Holly, what an incredible relief!!  I am so glad to hear your news.  Good news is a great thing to spread.  Enjoy the day.

  • msmpatty
    msmpatty Member Posts: 818
    edited January 2010

    Holly - Finally!   Wonderful news!

    I saw a lady this morning at Starbucks with a t-shirt that had a pink ribbon and the words "Fight like a Girl".   That's us!

    Patty

  • BarbAnne41
    BarbAnne41 Member Posts: 380
    edited January 2010

    Yea Holly!!!! So happy for you!! You go girl!

    Barbara

  • Scoobydoo
    Scoobydoo Member Posts: 499
    edited January 2010

    Praise the Lord Holly!  He does answer prayer.  That is the best news.

    My cording has gotten a lot better.  My husband is a taskmaster when it comes to stretching and massaging my arm.  But just in two days the improvement has been increditble.

    I have an appt on Tues with the lady in charge of the bisphosphate trial and to find out which arm I iwll be on...oral or IV.

    Thinking of all you ladies.  I hope you are having a SE free weekend.

    Anita

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