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  • Stonebrook108
    Stonebrook108 Member Posts: 237
    edited January 2010

    Looking forward to meeting all of you ladies.

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010
  • OG56
    OG56 Member Posts: 897
    edited January 2010

    Okay my breast friends keep your fingers crossed, I had a follow-up MRI at Sloan last Thursday and my BS called to say that another spot enhanced...damn double damn, this will be my 3rd MRI biopsy since June.....she did say that she looked at the results and feels it is probably more LCIS. I do wish The Queen of Hearts would come by and issue the edict "off with her boobs"  I am just a big chicken about surgery.

  • crusader1
    crusader1 Member Posts: 1,222
    edited January 2010

    Omaha Girl,

    I do hope things go smoothly with your biopsy and that you get the results you are wishing for.

    This BC stuff takes strong women. I do like your attitude but I know it is always hard on us with these tests.

    Stay strong,

    Francine

  • Bigapple09
    Bigapple09 Member Posts: 440
    edited January 2010

    Omaha, it may be nothing. Ihad a BIRADS 5 that came back b9 once, they did the MRI at the wrong time during my cycle.

    Wendy

  • flash
    flash Member Posts: 1,685
    edited January 2010

    Omaha- crossing fingers and toes.

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    og...got your back.

    Tickets for the boat show are in the mail!

  • debnyc
    debnyc Member Posts: 111
    edited January 2010

    omaha, my fingers and toes are crossed for you too.

  • OG56
    OG56 Member Posts: 897
    edited January 2010

    Thank you so much I really do believe in the power of the collective minds, and we are some very talented women (: so fingers and toes crossed should do it!

  • Angel10
    Angel10 Member Posts: 682
    edited January 2010

    Omaha,

    Wendy brings up a good point.  I am not sure whether or not you are still mensing but I was struck by the fact that when I called Sloan about scheduling an MRI...the scheduler never asked where I was in my cycle. When I called Mt. Sinai...they immediately asked about that!!  Go figure!

    If you can keep your breasts and stay healthy and sane...do.  If you can't you know you have many sisters here who can help you through the process....been there, done that! Tongue out

    I'll say a special prayer for you...right now!

    God Bless!

    Angel

  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    Oh GAWD - best wishes OG!!!!!!!!!

    Set a tentative date today, Jan 28th for a Guth/Karp remove the bad, smush the good, lift and separate.  Whoever said you feel better after you make a plan is a damned liar.  I'm completely freaking out.  I liked denial a WHOLE lot better.

    While I'd like to go to the Boat Show, I'm afraid I'll be too much of a basket case to be around anyone.

    Tempted to get on a plane and go see Silverstein at Hoag in SoCal, tempted to say 'screw this' and go with Swistel ("I'm so good I can do two lumpectomies and you'd never even know the dif."), tempted to jump off a bridge but don't want to spend my last few seconds freezing my ass off.

    And BTW, my breast STILL hurts after the 2nd biopsy - months later.

    PLUS, a woman I'd met at a SHARE meeting called to tell me her DCIS was actually found to be invasive on final path.  Lovely.   

    /rant

  • MBCR
    MBCR Member Posts: 161
    edited January 2010

    cookiegal: Can I join you ladies on the 23rd?

  • Stonebrook108
    Stonebrook108 Member Posts: 237
    edited January 2010

    Omaha,

    You'll be in my prayers. You'll be fine.

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    MBCR sure....I already ordered the tickets for the boat show, but it's just 12$ at the door.

    Looking forward to seeing old friends and meeting new ones!!

    anyone who needs my cell pm me!

    Cheers!

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    sweaty, I will say this, having the cosmetic improvement helps sugar coat  the reality that it's cancer surgery.

    Glad you made a choice!!!!!

  • Kitchenwitch
    Kitchenwitch Member Posts: 374
    edited January 2010

    Sweaty, congratulations on your date! (Tentative though it is...) Eh, it sucks when you get your date and stop searching. I felt a little relief, now I'm back to agonizing. Just because one person had invasive on the path report doesn't mean that will happen to you. At least you only have a couple of weeks to get through - then you have your procedure (procedures?) and you start healing. 

  • tweetybird
    tweetybird Member Posts: 815
    edited January 2010

    Omaha, That totally sucks with your MRI. I'll keep my fingers crossed (physical therapy for my elbow!), and say a prayer for you that everything turns out OK.

    Sweaty, I'll also be thinking about you, and keeping my fingers crossed that the 28th is a definite date. I found once I got my surgery date, the blur of everything went away, and made it reality, so I know exactly where you're coming from.

    I'm still up in the air about dinner on Saturday night. It'll all depend on how much I get beat up this week at physical therapy, and how I feel on Saturday.

  • flash
    flash Member Posts: 1,685
    edited January 2010

    sweaty- Hang in there woman!  No matter what you do, DON'T LOOK BACK! come to the boat show anyways.  If anyone is going to understand, it would definitely be us. Do you have someone to be there with you for this? Call if you want any back up in any way.

  • crusader1
    crusader1 Member Posts: 1,222
    edited January 2010

    Fran..I agree with Flash.Coming out with us to the Boat show would definitely be a fun way to pass the time. Keeping busy is always better than staying home.

    Just remember we have all been through so much of this stuff. You can't find a better support network.

    Hope to see you..

    Francine

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    um...would love to have sweaty...but only have limited # of freebie tix!

    But it's 12 bucks if you want in! I think you can get half price though goldstar events website.

  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    Thanks, everyone. 

    Don't worry about the freebie-ness.  I still haven't cried over any of this other than a stray tear here and there, and I'm afraid one of these days I'm going to fall apart mega.  I don't want that to happen at the gtg, it's not fair to everyone else.  I was enough of a neurotic attention hog last time.  Let's see how my emotional state goes.  Also, I assume we can add a me to the dinner reservation without much fuss or advance notice, but let me know if that's wrong.

    Also, might be running into yet another snag with Guth & Co.  Seems like they're planning on Mammo guided wire placement (not MRI), which makes ZERO sense to me.  The way I see it, either they switch to MRI guided or someone makes a convincing argument for mammo working in my situation.  Hopefully this will be resolved, b/c I can't stand the thought of more surgeon shopping.

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    I had US and mammo for what it's worth.

    Since I am a neurotic attention hog it's nice it have a comradeWink to distract from me!

  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    One of the two areas, which is shaped like a sperm cell (small clump with v. long, thin tail) is visible ONLY on MRI.  They biopsied the clump (the hole from biopsy would show on mammo, it also has a clip) but there's nothing other than MRI to indicate the location and length of the long tail.

    The other area is your average round/oblong clump; the remaining calcs, biopsy defect and clip would all show on mammo.  It would probably be easy to mark and for a surgeon to guesstimate a margin, so I'm not as worried about that one.

    None of the disease in my breast shows up on U/S.  Zip, zilch, nada.  Healthy as can be.

    Since my only shot at re-excision is mastectomy, I'm hell-bent on getting the sites well marked.  In other words, I don't want to have a mastectomy b/c the tail area of the 'sperm cell shaped disease' got left behind.

    F*ck.

  • Annisti
    Annisti Member Posts: 1
    edited January 2010

    Hello everyone, Thanks for information me on party. HI ladies what's up. I am coming in party.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Hi, ladies.  Actually, I put 10 tickets to the NY Boat Show in the packet for Cookiegal, so there should be enough for any last minute additions.  Enjoy!

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    Ok....yea Chelev!!!! ((((   ))))

    Mbcr and Sweaty you are in!

    Annisti...you appear to be an acai berry spammer, so not so much.

  • flash
    flash Member Posts: 1,685
    edited January 2010

    ((((((sweaty)))))))

  • sweatyspice
    sweatyspice Member Posts: 922
    edited January 2010

    Thanks,

    Looks like I'm working out the details with Guth.  At first she agreed with me, then she looked at all the stuff again and said another MRI wasn't necessary, she could handle it w/mammo.  I'll trust her judgment. 

    I still have some concerns which I will try to resolve in the next few days, but I think the existing plan will probably not change.

    Bought a camisole for drains, but don't I need a compression bra?  Where does one buy such things?

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2010

    I got mine from a website I think it's called contemporary design.

  • tweetybird
    tweetybird Member Posts: 815
    edited January 2010

    All,

    I know that all aren't going to be getting this message until after the meet up, but hopefully you all had a great time. I over did it with my elbow today. I got the OK to clean my apartment, and I'm paying for it now. I'm extremely close to having full movement back, and they want me to work on getting my strength back, and said cleaning is the best thing for it. Guess they haven't seen my place! It hasn't had a good clean in about a month.

    Hope to meet up with you at the next get together!

    Janet

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