Why do I need full breast radiation vs partial?

Options
Anonymous
Anonymous Member Posts: 1,376
Why do I need full breast radiation vs partial?

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    I am about to start radiation next week for a small area of DCIS in the left breast which was removed with 2mm clear margins. I have asked the radiologist why I need the 28 full breast treatments in addition to 5 boosts to the exact spot. Since the DCIS was in such a small part of my breast, why radiate healthy breast tissue and why not just the exact spot? An MRI before surgery showed both breasts were clear except for the one DCIS area. My question has not been answered by the radiologist. Anyone out there know about this?

  • redsox
    redsox Member Posts: 523
    edited January 2010

    Studies of partial breast irradiation are underway but generally have much shorter follow-up data (usually 5 years or so) than studies for whole breast irradiation (15-20 years).  Many doctors think the data is too short to support using partial breast irradiation for DCIS because the risk of recurrence with a non-aggressive cancer continues for many years.  The area of the breast treated with whole breast irradiation but not with partial does have some risk of recurrence although the risk is lower than for the area immediately around the tumor that is treated by both methods.  

    Some doctors are using partial breast irradiation for DCIS patients and another doctor might consider it for you.  There are some reasons that would rule you out with almost all doctors.  Age is an important issue -- most would not use it for younger women.  The longer your life expectancy the less likely they would take the risk.  Also, younger women tend to have more aggressive tumors than older women.  Location can also be a factor.  If the tumor is close to the skin, nipple, or chest wall some techniques will not work. 

    You could try asking the rad onc again.  The most likely answer is that he thinks partial breast irradiation is not proven and the risk is higher.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Thank you so much Redsox! Your explanation makes sense. (Wish I could have heard it from the radiologist!) I am 53 and I do believe the DCIS was close to my chest wall. It was taken out with clear 2 mm margins, after a re-excision. It was small, grade 1 & 2 wih necrosis. I have decided to skip the Tamoxifen.  I am always concerned that I am being herded through and everyone gets the same treatment...whether they need it or not. I actually came to the decision to go ahead with the radiation after a second opinion-consultation with Dr. Michael Lagios in CA...thought I could get out of rads, but he scored me a 7 on the VNPI, which put things in perspective for me. It sounds like you know quite a bit. Are you in the healthcare field? I research non-stop, but still things get a bit confusing for me!

  • Kitchenwitch
    Kitchenwitch Member Posts: 374
    edited January 2010

    Sue, Don't mean to hijack your thread, but I also have a small lesion (less than 1 cm) close to the chest wall. The surgeon says she will be removing some fascia. Do you know if you had that done? I would love to hear from a patient who had that if you can feel any difference. Doctors all tell me I won't even know... but I just don't really believe them.

     Congratulations on your clear margins! That is wonderful news.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Hi Kitchenwitch! Actually I don't know if that was done...it could have been. My surgeon did tell me that during my re-excision, she did take a generous amount and she said she did scrape my chest wall. (Sounds horrible!) I don't feel anything in that particular spot, although I do have general discomfort in my breast...but nothing too serious. My last surgery was Oct. 27th, so I am hoping over time it will improve. I know what you mean! I never believe the doctors either and I give myself a lot of stress...but I want to know the truth! Good luck. I think you'll be fine.

  • IronJawedBCAngel
    IronJawedBCAngel Member Posts: 470
    edited January 2010

    I know women who have been able to take advantage of the "partial" breast radiation, but even if it had been offered at my facility five years ago, I was not a candidate because my breasts are pretty small.  There is all kinds of criteria, but if you think you might be a candidate and your facility just does not offer it, get a second opinion at a facility that does.  I had 32 rad treatments.  My biggest issue was terrible fatigue starting less than two weeks into treatment.  Not the norm but I know other women that had the same issue.  I did find that no matter how bad I felt, I always felt better if I made myself walk everyday.  I was fortunate enough not to be working, so I took naps as needed to get through the day and learned to cut out unnecessary activities and take short cuts on housework and cooking.  

    For your peace of mind, check with someone who does brachytherapy and see if you would be able to have it.  That 5 day treatment plan is pretty appealing!   God bless you.

  • Kitchenwitch
    Kitchenwitch Member Posts: 374
    edited January 2010

    Thanks, Sue! And good luck with your radiation research. I asked one doc about Mammosite and she said there weren't enough years of follow-up study to use it on someone in her 50s (I am 51). 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Thank you Jenn! I really appreciate everyone's input. I am sorry you were so tired, and I'm sure it was a plus to be able to be at home. I hope I will not have that issue, since I commute over an hour each way to work and I am on my feet all day long. I am normally an energetic person, but some nights I am just exhausted. Add the daily trip to the hospital for rads BEFORE work and I am scared to think about it! I finally spoke to the radiologist this morning and she said I did have the option for the mammosite, but my "cavity" (which was never much of a cavity) is healed now. She said unless there is a problem with the patient, such as a 90 year old woman with heart problems, etc, they don't do partial breast because it is not as reliable. Spots can be missed, plus there are no long term studies on DCIS patients and partial breast. I'm still not happy about radiating my full breast for 6 1/2 weeks, but once again, here I go! 

  • redsox
    redsox Member Posts: 523
    edited January 2010

    Sue-  If your tumor was near the chest wall then partial breast irradiation probably would not work.  Mine was near the nipple and the problem is similar.  I am not a clinician but I do work in cancer research and I am used to searching the medical literature and reading papers in journals.  I also work with many oncologists and was able to call some I know and ask whatever questions I wanted.  Definitely a luxury -- especially because I already knew who I trusted completely. 

    Regarding breast discomfort -- a month ago I was wondering if the breast would ever feel normal again.  It wasn't painful, just discomfort or tenderness or a feeling that was not normal.  In the last week or two I noticed that the breast feels normal!  ...even if I touch the nipple.  That is really great progress!  If my experience is a guide, it took seven months from the last surgery and three months from the end of radiation for that to happen and I had just minimal normal side effects from both treatments.   

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Wow Redsox! That is good to know! I had a feeling you knew what you were talking about! It makes me feel better to hear that PBI wouldn't have worked and I am doing the right thing. I'm glad to hear that my breast will once again feel normal, and not like some alien grapefruit parked on my chest! We are having some strangely cold weather here in Atlanta, and I have noticed that the ice and cold hurt!

  • IronJawedBCAngel
    IronJawedBCAngel Member Posts: 470
    edited January 2010

    My radiation appointment was the very first one in the morning and I loved that time slot.  I would take my shower and head to my appointment.  My onc recommended a radiation moisturizing cream, so I would take that with me and slather it on in the dressing room after my treatment. (You are not supposed to use deodorant or have anything on your skin during the treatment) My skin held up pretty well until the boost, so I think that the cream helped. Some of the girls on the Komen message boards have used a gel that is made by the same company and really liked that.

    Do you have a really good support bra?  That really helped cut down on my discomfort, couldn't stand any jiggling at all.  I liked the champion zip front best. I'm not sure exactly when my breast stopped hurting, it was a gradual process.  I had to tell my husband to avoid my nipple for quite some time after treatment, but it seems to me that about 8 months after I was pain free.  Also, do not wear your best bras to treatments as they have to mark the field occasionally and I ruined a really nice bra.  Some ladies are not comfortable wearing one during treatment so it may not even be an issue for you.

    Take some cat naps during the day and you will do fine. Focus on taking care of you. Good luck!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Thanks Jen. Your advice is a big help. I know I will need some kind of cream and I think my bras will work. I already have welts and blisters from the tape covering the big black marker x's they put on me after the simulation. I'm allergic. Figures! Truly, my biggest concern is the fatigue. I wish I had the option of a cat nap. Maybe I can lie down behind the Bobbi Brown makeup counter between appointments. I can just see the look on my store manager's face now. In the summer, I could go to my car and sleep during my lunch break, but it's way too cold now! They actually closed my store today due to icy conditions...hence, the fun I am having right now!

  • IronJawedBCAngel
    IronJawedBCAngel Member Posts: 470
    edited January 2010

    I was a sales leader at Bath & Body Works, so I know when you work retail it can be tough, but ask for any help they can give you.  If someone can cover your counter for 10 minutes so that you can just sit down and close your eyes, it will make a world of difference.  Keep in mind, you may not have any fatigue issues at all, many women don't.  14 degrees in Paducah with wind chills below zero.  We were supposed to go away for our anniversary this weekend but have opted to stay home, just too cold.  I take care of my Dad who has advanced colon cancer, so suffering major guilt as I just dropped him off at the hospice respite care. Plan on just cuddling up with my husband for two days, first break I've had since June.  Be careful out in that ice.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    I'm sorry to hear about your dad. I bet they take great care of him there. I know how hard you worked at Bath & Body Works. I have a friend who worked there and it was brutal! I am hoping for no fatigue, but my HR dept. gave me the Family and Medical Leave Act paperwork to have the radiologist sign off on. It allows me to sit from time to time or call out and come in late if need be...or do whatever the situation calls for, without being penalized and loosing my job. It protects me during the seven weeks and even two weeks after. I think that is important for everyone to know. You are protected by law if they get this paperwork filled out and turned in. I have never called out sick in ten years, so I'm playing it by ear. All kidding aside, I will absolutely do what I need to do to get through this. I heard it was colder yesterday in Atlanta than in Fairbanks, Alaska. Sounds like Paducah is beating Alaska too!

  • MaryF2
    MaryF2 Member Posts: 51
    edited February 2010

    I had partial breast radiation via external cornformal beam. I had 10 treatments in 5 days. My radiation oncologist is one of the chief national investigators of partial breast irradiation and gave me some interesting stats at my checkup this week. He said the control rates over 10 years over brachytherapy exceeds 98%.  He has four years of data on the external conformal beam that also exceeds 98%. One of the reasons the control rates are high is that they are very selective about appropriate candidates in terms of margins, age, and grade of DCIS.

    I had 4 mm of an intermediate grade DCIS and had to have reexcision to achieve margins of nearly 1 cm. My doctors told me that that the recurrence rate without radiation was approximately 30% which was unacceptable to me in with other options.

Categories