How many docs on a team for DCIS?
Comments
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I haven't yet chosen a breast surgeon (hope to make decision after tomorrow, when I see the 3rd one - everyone's pretty good; I'm sure no one will do a bad job so I just have to figure out which one I think will do the BEST job).
So assuming lumpectomy goes OK and doesn't need re-excission, that's it for the BS, right? I probably don't see her again? (Let's hope...) Then it's onto radiology after the proper amount of time. So I need a radiation oncologist and a regular oncologist?? Or just the rad. onc.?
Anyone else?? And who is the "air traffic controller" who coordinates everything?
Thanks for all the info - I'm still wrapping my head around everything I need to learn and do. -
kitchenwitch-
you will have a follow-up or two with the breast surgeon post-lumpectomy. I haven't seen mine since that, I am not sure if other BS keep seeing their DCIS patients post-lumpectomy. This is fine with me, I feel I can call her if/when I have a problem. If you are interested in mammosite, you may want to discuss this with the breast surgeon prelumpectomy since sometimes something special can be done at the lumpectomy? anyway, The week after my lumpectomy - with pathology results in - I had visits with the radiology oncologist and the medical oncologist. So, eventhough I wouldn't be starting radiation for at least a month, we discussed what I would need and started the scheduling. With the medical oncologist it was also an introductory meeting, perhaps more interesting because we discussed a clinical trial which would have necessitated changing radiologists and delaying radiology ( I decided against it).S we agreed that I would probably take tamoxifen and wouldn't start til after radiation. I think my next appt with the medical oncologist was near the end of my 7 weeks of radiation.
At the outset the breast surgeon was calling the shots, setting up the appts with the radiologist and medical oncologist I had told her I wanted. then, most of my interaction was with the radiologist and now, the medical oncologist. I make sure the medical oncologist gets all my lab reports etc. For example, I felt I needed a gyn for possible tamoxifen ses (had been going to my internist for everything) and I now make sure all my gyn reports go to the medical oncologist as well as my primary care doctor. I made an appt with an opthamologist also to be monitored for possible tamoxifen issues, and will ask that the visit report go to the medical oncologist too.
I am sure when there is chemo and/or a plastic surgeon in the mix everything gets much more complicated!!!
Julie E
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The "air traffic controller" unfortunately, will often be you. It's amazing the lack of coordination sometimes on the part of the medical professionals. My rads doc, for example, scheduled a follow-up but made the appointment for before the follow-up mammo was scheduled by the surgeon. I had to call around rescheduling people.
I'd be sure to pick the surgeon I was most comfortable with because it could turned out to be a long-term relationship. I thought I'd get cut, we'd check it a few weeks later and never meet again but that's not the case. She's following me every six months for the next three years and then once a year after that without giving me an end date. So as I said before, if the skills are comparable, pick the one you would like to see every six months for the next three years.
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Kitchenwitch -
In regards to your picking a surgeon, FLMel is right. Just make sure that you are comfortable with your BS. I started with one who did my biopsy and I fired him right after. I was then referred to another one and found him to be great. My husband even likes him.
Even if your lumpectomy doesn't go okay and you need a re-excision (I did), it's not because the surgeon did a bad job. It's because the DCIS is microscopic and the patholigists find it when examining the slides. So don't worry too much if that happens. What matters is that they get a clean enough margin.
I have met with both the rad onc and med onc. They will work hand in hand for the most part. But I won't see the med onc until after my radiation treatments. We will then talk about tamoxifen and if I need it. You will then follow up with med onc every 6 months for between 3 and 5 years.
So, hang in there. We all know what you are going through. And good luck in picking a BS.
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I have to agree with everybody else, find a BS that you feel comfortable with. I had the names of 2 surgeons, but only saw one. I fell in love with him the second I met him, and my husband felt comfortable with him. He has another doctor in his practice, so I'm seeing her now, every 6 months until I hit the 5 year mark, then it's once a year. She's also the one that I get my referrals for my MRI's, mamo's and ultrasounds.
I was seeing my rad oncologist every 6 months, then once a year, but he left the practice, and another doctor took over. He said that I'm doing great and that there's no need for me to see another doctor. Yea! The doctor who was with me through treatment wanted me to see him once a year for 5 years. Guess each doctor is different with that.
I see my oncologist every 6 months. At the beginning it was every 3 months, at the 2 year mark it went to every 4 months, when I hit the 3 year mark it's now every 6. I'm hoping to go down to once a year when I hit the 5 year mark. I get my Tamoxifen prescriptions and blood work through her.
Good luck with everything. I'll be thinking of you!
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Thanks, all - I'm probably going to go to the third one, because of the three I saw she's a) experienced and b) pretty nice and c) will do a very good job. I didn't like anyone as much as the first one, but most everyone (my dad and a couple of others) think she's just not experienced enough (she's been in practice about 5 months; getting ready to take her boards). Sigh. I really, really liked her. No one spoke as cautiously about cosmetic results as she did.
My husband pointed out that even tho I'll be followed for a long, long, long time (rest of my life, acc. to 3rd surgeon) I really don't have to keep on schlepping all the way to see the same one. Can (and will) switch in a couple of years. i'm sure someone else will be perfectly happy to follow me. In a more convenient neighborhood.
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