No soy?

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kimber3006
kimber3006 Member Posts: 586

I was taking flaxseed oil to combat the side effects of all of these meds until I found out it was a phyto-estrogen and possibly a no-no for us ER+ ladies.  So I asked at my appointment Monday and she said there haven't been enough studies to show whether it's truly a danger or not, but to be on the safe side, stop taking the flaxseed supplements and stay away from soy (also a phyto-estrogen).  Soybean oil is in so many things!  So I was wondering if anyone else has been given the same advice, and if so, are we talking about just avoiding the obvious soy, tofu, endamame, or everything that may have even a little soybean oil in it?  Surely compared to what my ovaries are producing, a little soybean oil in something wouldn't be significant?

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  • DCMom
    DCMom Member Posts: 624
    edited December 2009

    This is a tough one, because your right everything has soy.  There are also some that argue that soy actually is good because it blocks the use of the stronger estrogen that would feed the cancer. 

    After months of being afraid of everything I ate I decided to just watch the blatant soy inundations.  I eat a lot of oriental food and was worried about soy sauce until I discovered it's primary ingredient is wheat.  I also heard the problem is more with processed soy, not pure soy bean products.  I don't have any vegetable oil in my house (it's soybean oil) and I only use canola. 

    There was a long thread about soy, but I can't recall under what topic.  Perhaps someone else will come along.  Soy is a tough one to yeah or neigh with a blanket statement.  There are studies that show that children in china with higher soy intake actually have lower breast cancer risk, as well as soy being one of the health products touted to reduce breast cancer until we have it.  I am left wondering. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    I know, I've heard this also, but it's just confusing.  I just try to eat in moderation anything that is  "phyto-estrogen".  I've also heard that Japan has the lowest instance of BC and they eat so much soy.  So go figure.  I just don't want to live my life being afraid to take a glass of wine or have some soy sauce on my sushi, or  have a glass of choc soy milk, or a  good juicy steak, once in awhile.  I also read somewhere that it's only the "bastardized" forms of phytoestrogens that are harmful.  An example would be natural soybeans vs, soy sauce, There are phyto estrogens in almost anything that is good for us nutritionally, for instance yams, pomegranite, and many other fruits and veggies.

  • smithlme
    smithlme Member Posts: 1,322
    edited December 2009

    I was told no soy, also. My first BC was triple negative but my second was ER+/PR-. I've since had a hysterectomy w/BSO but I am to avoid soy, which is difficult considering animals are fed soy. I eat more fruits and vegetables and try to limit eating meat and chicken.

  • Mom3
    Mom3 Member Posts: 170
    edited December 2009

    DC Mom ~ I don't use veggie oil either. Isn't corn also ok to use? Pls. say yes b/c it's what I use.

  • karen1956
    karen1956 Member Posts: 6,503
    edited December 2009

    My onc told me that I could have a little soy...haven't eaten tofu in a while as it just doesn't appeal lately, but he said I could eat it on occasion...I figure once a week can't hurt that much...I don't take any supplements that are phyto-estrogens though.  Its such a cr** shoot.  I try to be good, but I gave up enough to BC to give up tofu once in a while or my red wine when the mood strikes.....

  • lexislove
    lexislove Member Posts: 2,645
    edited December 2009

    I avoided soy for 18 months.....untill Monday. Had to grocery shopping and was sick of eating fish or chicken...more fish...and more chicken. I was stuck in a food rut, since I avoid red meat.

    I picked up some firm tofu and made a veggie/tofu stirfry with udon noodles. It was delicious, and a change from my chicken and fish.

      Im sure I consume most foods that containe phytoestrogens, but its moderation. Plain and simple...moderation.

    I do avoid anything flax because it has such a higher concentration of soy.

    My motto: Eat,live!!!!

  • ddlatt
    ddlatt Member Posts: 448
    edited December 2009
  • rgiuff
    rgiuff Member Posts: 1,094
    edited December 2009

    My Onc said flaxseed is fine, and soy in moderation.  I've read more good than bad about flaxseed and I personally am convinced that it's a good thing to use, studies have shown that it's Omega 3 properties are beneficial to cardiac health, skin, joints, and it's phytoestrogenic properties do similar things to what tamoxifen does.  It's a weak estrogen which can crowd out the stronger estrogens.  I find it's also good for digestive system, prevents constipation.

    From what I've read about soy, the fermented forms, such as tofu, tempeh, and miso, are beneficial, and the concentrated forms, such as those found in supplements and soy powders, are to be avoided.  And it's important that it be organic.  If it's not, it can be full of estrogenic pesticides.  Also, too much soy can affect the thyroid function.

    Most of the best, clean foods are phytoestrogenic, legumes, many fruits and vegetables, seeds, grains, so trying to avoid them, may be detrimental to our health in other areas. 

  • lexislove
    lexislove Member Posts: 2,645
    edited December 2009

    Rose,

    Good post. I was trying to say the same thing...but I havent had my espresso yet!..lol. Oh I will never, give up an occasional coffee.

  • kimber3006
    kimber3006 Member Posts: 586
    edited December 2009

    Thanks for all the great info!  I really felt that I was being told to just stop adding the unusual dose (flaxseed oil supplements), but then started to wonder if I needed to eliminate all of it (and was saddened to see flaxseed as a major ingredient in my favorite pasta!).  It's already so hard to maintain my pre-BC super-healthy diet (not allowed to eat salad b/c risk of contaminated veggies and no citrus b/c my mouth and stomach can't take it anymore - just wiped out a third of my previous normal weekly diet!).  I'm trying to find more ways to cook the veggies I've always preferred fresh and have added preservative-free fruit & veggie smoothies in place of fresh berries in my yogurt (even found one that has broccoli and ginger), though I can't stomach them until a few days after treatment.  It's so hard to find a new balance.  I, too, have always tried to live by "everything in moderation" and figured if soy were so bad, wouldn't BC be higher in Japan, and if daily wine consumption were so bad, wouldn't BC be higher in France?  Granted there are other dietary/lifestyle variables to take into account, but if that's all there were to it, neither I nor many of these other previously very healthy-living people would have this awful disease in the first place!  Okay, sorry, this has turned into a bit of a vent.  I think I'm just tired and frustrated and sick of worrying if every little thing I put in my body might have something in it to feed this beast (and then worrying over worrying feeding the beast - ha!).  So thanks for helping me get back to balance.

  • lovetosail
    lovetosail Member Posts: 544
    edited December 2009

    A recent paper in the Journal of the American Medical Association (Shu et al. JAMA 302:2437, in the Dec 9 2009 edition) showed NO relationship between soy consumption and increased mortality or recurrence, in a study of 5042 female breast cancer patients in Shanghai, China.  Another US (or Canadian, I can't remember) study with a somewhat smaller sample size came to the same conclusions.  Researchers not involved in these studies reviewed the work and supported the work and its conclusions.  I think an "everything in moderation" philosophy is a good thing, and the work I cited would suggest that occasional soy intake is not harmful.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited December 2009

    Kimber - My advice during Chemo, is just eat to get through Chemo. The drugs are doing more to kill cancer than anything you put in your mouth.

    I do think diet is important after treatment, but really, don't try and be super healthy during Chemo. It's too hard! There are so many other things going on - altered taste, sore mouth, nausea, pain, you name it. Don't put too much pressure on yourself on top of everything else.

    The thing that made me feel best a day or two after my infusion - KFC!  be nice to yourself, eat what makes you feel better.

  • NancyD
    NancyD Member Posts: 3,562
    edited December 2009

    I second Kerry's advice!

    On the soy issue (when you get past chemo): I avoid overly processed products that contain soy protein and soybean oil. At first, you may be overwhelmed at the number of everyday fooods that contain soybean oil and protein, but if you do a little research you can find very good substitutes with very little or no soy at all.

    For instance, it appears that most commercial salad dressings and mayonnaises use soybean oil, but if you use a mix like Good Seasons, you can use whatever oil you like (I think I've cornered the market on extra virgin olive oil, lol). Cindy's Kitchen dressings have a few varieties without soy, too.  Hellman's has come out with canola and olive oil versions of their mayonnaise, but before they did, I found similar products in the organic or health food sections of my supermarket.

    And that would be a good place to start. Since people buying those products are very particular about the ingredients, the manufacturers tend to make foods that cater to those who have special dietary needs. Annie's Cheddar Bunnies are a good substitute for Cheese-Its crackers. My store even markets an organic potato chip made with sunflower oil under their own brand, and it's very good!

    Trace amounts of soybean oil in a snack you rarely have won't do much to hurt you. Just watch out for the things you eat regularly and often. Try to find soybean oil-free substitutes for those. The oil and the protein are the worst because they are so heavily processed. Part of the process uses solvents that aren't entirely eliminated by the end. So if the phytoestrogenic properties don't kill you, the latent solvent just might.

  • kimber3006
    kimber3006 Member Posts: 586
    edited December 2009

    Kerry - lol @ KFC!  My dirty little secret since starting chemo?  I crave Chick-Fil-A french fries - something I used to avoid other than the rare indulgence, yet I've had more of in the last few weeks than I've had in the last 2 years!  I lost so much weight those first few weeks that I rationalized that anything I actually craved and could keep down was better than nothing.  With the addition of Prilosec, it seems my ability to eat is coming back quicker this time so I'm going to have to watch it more now.  My weight is back to my normal, but I'm reading I should actually have a slightly lower BMI (around 24 now, and thinking 22 might be better, especially since I've read a lot of women have to fight their weight with the hormone therapy after chemo, and I have a natural tendancy to gain anyway if I'm not vigilant).

    NancyD - Thanks for the brand tips!  My husband is doing most of the grocery shopping these days (bless this wonderful man!), so I haven't had the opportunity to look myself yet.  Since I never considered soybean oil harmful before (granted not as good as olive or canola, but not harmful), I have a few things I would like to find replacements for now.

  • weesa
    weesa Member Posts: 707
    edited December 2009

    kimber 3006, In my opinion it is important to get away from the mindset of finding supplements to take during chemo to counteract the side effects of chemo. Some supplements diminish the efficacy of the chemo, and we simply don't know enough about these interactions. Many supplements strengthen your cells--the good and the bad.You don't want to help your cancer cells along while the chemo is trying to kill them.

    My onc, who was just voted one of the best oncs in NC by some sort of peer review, always insisted I not take anything--even extra vitamin c-- in the way of supplementation during chemo and radiation. I know it is tempting to want to make yourself feel better, and you can do this by eating food, which is always a good drug anyway. As usual, Kerry is right!

  • kimber3006
    kimber3006 Member Posts: 586
    edited December 2009

    Weesa - I've taken the flax seed supplements to battle constipation for years (discovered it during pregnancy), so it was my natural go-to when the chemo/drugs caused the same problem.  My onc did recomend a daily multi-vitamin, though.  The smoothies definitely make me feel better than anything else!

  • Jean09
    Jean09 Member Posts: 126
    edited December 2009

    Hi Ladies,

    I wish all the oncologists would get together for on BIG meeting about treating their patients.  So they will all be on the same page.  My onc told me it was ok to take vitamin C during chemo, it helps boost the immune system.  And I was told to avoid soy, as much as I can.  You can't avoid it totally, just dont start overloading on it.  Also, I've read that people who live in countries that eat alot of soy have eaten soy all their life so their body is used to it.  We americans have not had a soy based diet all of our lives like other countries.  So when diagnosed with ER+ breast cancer it is NOT a good thing to suddenly put tons of soy into our bodies.

  • weesa
    weesa Member Posts: 707
    edited December 2009

    Oh, yeah, I forgot the constipation thing...felt like my insides had been turned into concrete. Sometimes my chemo days revolved around whether or not I would find success in the bathroom.

    I craved a certain kind of fried chicken while doing chemo, you probably know what I mean. It is that great fried chicken you can only get at gas stations in SC.I would make my dh go down I-26 to just over the SC line, there is a big gas station--Aunti M's--with the best fried chicken, fried gizzards, fried livers. That was my secret indulgence during chemo. I think history will show that SC definitely made a huge contribution to uniquely American haute cuisine with that incredible fried chicken.

    Sounds like you are taking good care of yourself and eating wisely!

  • kimber3006
    kimber3006 Member Posts: 586
    edited December 2009

    Weesa - Yeah, they do take fried chicken to a whole new level here!

    My boss is good friends with a top guy at one of the cancer treatment centers here, and since my diagnosis he has been doing a lot of reading and they are looking into the possibility of  bringing in a nutritionist to become part of the standard care there.  It seems like a no-brainer to me, especially to help those who are trying to improve their lifestyle after treatment to prevent recurrence, but maybe it is just that there isn't enough solid evidence one way or the other on so many supplements/vitamins, that they just don't feel like they can say for sure, so it's avoided.  It will be interesting to see what they discover on the topic.

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