help with vit D levels

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  • rreynolds1
    rreynolds1 Member Posts: 450
    edited December 2009

    A 38 year old women who works for me had 2 children close together and she was having some health issues (besides lack of sleep).  Her hair was thinning, he skin was bumpy and she couldn't drop weight.  I suggested her doctor check her Vit d levels.  By the way, she had a large non-cancerous lump removed when she was 18.  Her tyroid was within normal ranges (if that's accurate) but her vit d level was 18!  He put her on vit d3 and her symptoms are gone.  Her skin is good, her hair stopped shedding and she has dropped 15 lbs.  This is a powerful nutrient and seems to have more benefits than most doctors realize.

    Roseann

  • rgiuff
    rgiuff Member Posts: 1,094
    edited December 2009

    At a recent conference that I went to to promote a company that sells natural supplements, they discussed Vit. D as being important for balancing the hormones and as being necessary to have a good libido because it prevents sexual aging.  Since my lack in that area has been one of my most distressing menopause symptoms, I'm so eager to get my levels up higher to see what happens!  The speaker also stated that levels below 32ng/ml put you at higher risk of metabolic syndrome (high BP and cholesterol, heart conditions, diabetes, weight gain).  He said that levels over 200 were toxic and that 1,200 to 10,000 IU daily usually need to be taken.

    Shara, I'd be curious to know if your book states the same information?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    Shara - I think I need to get that book!  I have lived in the Pacific Northwest for 16 years - so I think my natural absorption of vitamin D is minimal due to our weather and latitude. 

    I have read that people in northern states, canada and scandinavian (spelling?) countries have high rates of BC and a theory is lack of natural vitamin D.  Of course, scandinavians get a lot thru diet (salmon etc).  This may have been mentioned earlier in this thread - I have scanned the whole thing, but didn't see it.  Is this mentioned in the book?

    For those of you in Ca or Fla I have also read that Vita D is absorbed  well thru your eyes, so sun glasses block absorbtion.  Don't know if this is true or not, but have heard that.

  • Meece
    Meece Member Posts: 19,483
    edited December 2009

    I wear sunglasses whenever outside, so that might not help my absorbtion.

  • Nan56143
    Nan56143 Member Posts: 349
    edited December 2009

    Dear rgiuff,

    Since my daughter Lori has been on the BHRT, her D levels went up to 82.6, and before the BHRT, they were 44. So it is all hormones balanced as nature would balance them which brings your body back to normal. I wonder how many years it will take for conventional medicine to finally realize that all humans need every hormone that we were born with, and removing even one, or having too much of one, will cause many diseases.

    SharaD...you are so correct as to diet, but unfortunately, unless you are able to purchase all organic foods, you cannot get all the vitamins/nutrients your body requires. The foods are contaminated, and the seeds genetically modified...thanks to Monsanto. Everyone needs to have testing for everything, which of course most conventional doctors never order. There was one country which is not even doing D testing anymore, as they found that everyone who was tested had low D levels. They are just telling everyone to take D3. I will have to get the book you are reading!

  • Meece
    Meece Member Posts: 19,483
    edited December 2009

    Nan,

    That sounds great about the hormones, but what about us triple negs?  Are we out of luck?

  • ananda8
    ananda8 Member Posts: 2,755
    edited December 2009

    Meece, 

    Vitamin D is a hormone, not a vitamin.  I know that's strange, but when a name gets stuck to something, it's hard to change

  • Nan56143
    Nan56143 Member Posts: 349
    edited December 2009

    Meece,

    Lori was dx with TNBC in June of 2007.Went through chemo, ACT all 3, every 3 weeks for 6 treatments, and then 28 rads.  She has been seeing an antiaging specialist in Pittsburgh since May of this year. Do not allow the conventional docs to tell you that you cannot take hormones. You would never want to take the synthetic hormones, but the BHRT are of the same molecular structure as you own hormones. This doctor was more than willing to trake Lori as a patient even though she had bc. He monitors her, and of course, after months of research, before deciding to take complete control of her life, she is very knowledgeable as to the BHRT.  Notself is right...D is a prohormone.

  • Nan56143
    Nan56143 Member Posts: 349
    edited December 2009

    Meece,

    I see where you are from California. That's where all these  antiaging specialists are located...or at least the majority of them. LUCKY YOU!!! Dr. Uzzi Reiss (Beverly Hills), has a cancer protocol for his patients. His book "The Natural Super Woman " is one I would recommend to you. Lori got it a few weeks ago, and I must get it also. I hesitate to tell you (after all the horrible posts I have read in the past few days as to SS), that the book Ageless more or less convinced Lori to do her research on BHRT.

    Lori finished all her treatments in January of 2008, feeling like a piece of sh$$, and was told....this is the new normal!! Conventional medicine can offer you tons of drugs which only add insult to injury, and eventually will kill you, for they never address the real problems.

  • Meece
    Meece Member Posts: 19,483
    edited December 2009

    Nan, I really don't take anything.  On occasion I take Atenalol (?) and I take Aleve.  Oter than that I don't take anything regularily. 

    As Roseanne stated about her friend at work, I have had unhealthy hair since giving birth to my first child.  In 61 months I had been pregnant or breastfeeding for 50 of them.  Giving birth 4 times.  I thought that was what had destroyed my hair.  I thought after chemo, I might have a new start on the thicker hair I had in my youth and early adulthood.  But, after chemo, my hair came in nicely for about 8 months, then thinned out once again.  Could that be an issue for me since I have low Vit D?  I am not asking you to diagnose me, but I am not familiar with which vitamins are attributed to which heathly functions of the body.

  • Nan56143
    Nan56143 Member Posts: 349
    edited December 2009

    Meece,

    Lori always had unhealthy hair, no matter what she did! Lori's hair did exactly the same thing after chemo. Then she really started balding on the crown of her head. Then in early Spring she developed shingles for the second time, the first being 2 years before dx. She says she knew she was headed for mets and had to do something. Her immune system was shot, her hormones completely out of whack, as is every person who takes chemo. Her libido...gone...she said she could have entered a convent!! Lori's dx was Stage11A, with bi-focal tumors.

    I certainly would never try to diagnose you or anyone else, I am just the mother of a woman dx with TNBC, and I want to know why and how the hell she ever developed bc. It stands to reason if your immune system is compromised and your hormones are not balanced that you...anyone will have problems. Your thyroid (how it is functioning), also contributes to many many problems, and one is the hair.

    Lori takes 22 different vitamins/supplements plus the BHRT, has eliminated all sugar and processed foods from her diet, buys only grass fed beef, free range poultry and organic fruits and veggies. She says she feels like she is in her thirties once again, and she will be 48 in April. Her rad onc had a fit when she told him she was on BHRT, and then conceded that this is her body ...her life. She will not tell her med onc, says it is none of his business. Her PCP and GYN know and back her 100%. They think outside the box and they do the research also.

    Guess that blows the theory that women who have children at an early age, and breast feed all their children have less of a chance of developing bc!! Lori breast fed her 3 children also. She did read where that is a no no for women predisposed to TNBC. How the hell is a woman supposed to know if she is predisposed for TNBC or BC+ or for that matter any bc? Of course with 1 in 7 women dx with bc...???

    The antiaging specialists are not covered by insurance, even though like Lori's doc, he is a MD. Her insurance did cover all the testing, and a small portion of the visits. The insurance companies and the pharmaceuticals are in this hand in hand, as the BHRT cannot be manufactured, like the mares urine (HRT), can!! Of course most conventional docs know very little as to the BHRT, and follow only what the pharmaceutical companies tell them to prescribe so they can get all the kick backs.

    Can you tell I am a bit biased in my thinking when it coms to our health?? lol!!

    Meece, I think it is absolutely wonderful that you are 6 years out from dx!!! Fantastic sweetie!!

  • Meece
    Meece Member Posts: 19,483
    edited December 2009

    Thank you!

    I am heading to my PCP in two weeks and will through out some questions to her.

    I remember the October before I received my dx, I was watching "The View".  They had a list of all the things which make you more likely to have BC.  Of their list, I fell into one out of 10-12 catagories.  So what a shocker!!

  • Estepp
    Estepp Member Posts: 6,416
    edited December 2009
  • Meece
    Meece Member Posts: 19,483
    edited December 2009

    Your level is  zero???

  • SharaD
    SharaD Member Posts: 100
    edited December 2009
    When my son first brought the Vitamin D Revolution to my attention, I was taking the minimum daily 400iu and not getting much of it in my diet, and not getting much sun. Our first discussion was with the Nurse Practicioner who said "Do not take Vitamin D supplements! We do not want to introduce anything new into your system at this point!" To which my son replied, "You mean, like the Decadron and Emend and Taxol and Carboplatin and Zofran an Compazine and Benadryl and Hydrocordisone that you introduced to her system last week???????"
    Then she said "just take a multivitamin" which made no sense since the multi contained the same amount of Vitamin D that I was taking before. Finally it was only my cardiologist who became convinced that I needed my Vitamin D and Magnesium levels checked. Low levels of D and magnesium can lead to heart attack and stroke.  I had arterial heart disease, clogged arteries, and no doc really knew why since I didn't have high cholesterol, didn't smoke, wasn't overweight, no high-bP, nothing. 
    I am at a famous research hospital, and I think they are just so focused on finding out what DRUGS will help us, that they don't want anything else to interfere. They want to know if the TAXOL is working, and they don't want to have to wonder if it is other things that I am doing that is making the Taxol work. It's like I would be messing with their data or something. I think they are focused on the CURE and the FUTURE, but I personally need to be focused on MY cure and MY future. I really can't worry about whether or not my data is going to help other women down the line. It would be nice, it would be wonderful....but if the medical community cannot come up with a system that can treat each one of us as individuals and keep data on EVERYTHING that we're doing, it's their pitfall not mine. It seems in this day and age they would be taking down not only our MEDICAL history, but also our diet information, our supplements, even information about our environments and our stress levels. Computers can handle a WEALTH of data and turn around and make sense of it all. Hopefully it won't be long before they wise up, they are missing out on a lot of information about us that could be very valuable to everyone.
  • Makratz
    Makratz Member Posts: 12,678
    edited December 2009

    Shana, You are very smart to look out for yourself!  Keep it up!  Smart son too!

    Meece, I think Estepp meant that her zero was in reference to "the Views" list of 10-12 categories that may lead to breast cancer.  I'm not sure that's what she meant, but that's how I understood it.

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited December 2009

    Oh Shara... that would all be funny if it weren't so pathetic. And I agree, why not input all that data (supplements, stress levels, exercise type and amount, even things like sunlight exposure, diet, and sleep habits)... even if they aren't prepared to analyze all that data NOW, why not at least COLLECT it for when they can surely analyze it at some point in the future?

    Estepp, I had only one risk factor (not having a surviving baby before the age of 30) so I was baffled... but in reality, I know I had a lot more risk factors than that (very little lifetime sun exposure and therefore chronically low vitamin D level, years of consuming microwave-heated BPA-leaching frozen dinners, years of Diet Coke addiction, etc. etc.

  • Meece
    Meece Member Posts: 19,483
    edited December 2009
    I guess I forgot what I had written.  Embarassed
  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited December 2009

    Dear all,

    I take 5000 IU D3 daily without having gotten my blood D levels tested.

    I am firmly of the belief that lack of D was the main culprit in my case. I have no other risk factors that I know of.

  • Nan56143
    Nan56143 Member Posts: 349
    edited December 2009

    Dear SharaD,

    I am saving your post...this one is a winner!!! If more women/people would think as you do when taking chemo and rads, perhaps there would be fewer people with all the horrendous side effects from the treatments.

    The oncs put the "fear" in everyone that the vitamins/supplements and even foods, will alter the effects of the chemo/rads, when the real truth is that the pharmaceutical companies want to have data that it was strictly their drugs which "killed the cancer". Of course if the drugs don't work, then they can always give you another one. My daughter Lori says that if she knew then what she knows now, she would have taken every vitamin/supplement, eaten all the foods proven to fight cancer, and just would not have told them!

    You are so right, that you have to look after you. "They" really are not interested in anything other than the drugs and reaping the biggest profits that they can. Cancer is the biggest money making industry in the world. Do they even bother to test you D levels when you are dx? Nope! Yet low levels are an indicator of a compromised immune system, and hormonal imbalance.

  • Estepp
    Estepp Member Posts: 6,416
    edited December 2009

    I had 0 reasons to get BC

    My Vit D levels, that were tested three weeks ago... were 31 and 4. My Onco said there are two types.... ???????????

  • Estepp
    Estepp Member Posts: 6,416
    edited December 2009

    oh.. I should add.. that even though I went from 1000-2000iu OTC... to 5000 D3 OTC.. I still have almost all my bones in pain...... it sucks.. and I am 41 with NOT ONE pain in my life until BC at age 40... grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr

  • Nan56143
    Nan56143 Member Posts: 349
    edited December 2009

    Dear Estepp,

    Here are my levels and if you had the 25-Hydroxy test, your results should read as this does. BTW...do you have a copy of the test? If not ask them to send it to you. Of course you should have a copy of each and every test you have ever had done.

    This is what my vitamin D level test from Mayo Medical Laboratories looks like. My vitamin D levels are 66.

    25-hydroxyvitamin D2 and D3, S

    25-Hydroxy D2                         <4.0    ng/mL</p>

    25-Hydroxy D3                           66     ng/mL

    25-Hydroxy D Total                     66     ng/mL

  • Meece
    Meece Member Posts: 19,483
    edited December 2009

    My onc. sends my results to me on a form from their office, Someone just writes in the number on the line.  I will have to see about getting the actual report.

  • Makratz
    Makratz Member Posts: 12,678
    edited December 2009

    Meece, that's what my doc does too but if you ask, they will send you a copy.

  • sanaisa
    sanaisa Member Posts: 167
    edited December 2009

    Do our Oncs regularly test our D levels?  Are we supposed to ask our Onc to test our D level?  Like Onty, I have no risk factors to be the culprit of my BC. All the causes, with the exception of taking the birth control pill in my past, were ruled out. I was told that my BC was caused by "environmental" factors. If only I could find a doctor in CA that could make sense of all these supplements! Gosh...

  • Makratz
    Makratz Member Posts: 12,678
    edited December 2009

    Sanaisa,

    I had no risk factors either.  It seems like we hear more and more of that now a days. I also took birth control for MANY years and think that may have been the cause.

    If only we knew.

    Linda

  • Nan56143
    Nan56143 Member Posts: 349
    edited December 2009

    Dear Sanaisa,

    Birth control pills contain synthetic hormones just as the HRT. It is not natural to supress ovulation.

    http://www.disabled-world.com/artman/publish/birthcontrolpills.shtml

    http://womenshealth.about.com/od/thepill/f/howpillworks.htm

    Quote from the second link above:

    Question: How Does the Birth Control Pill Work? Answer: Birth control pills, or oral contraceptives, contain hormones that suppress ovulation. During ovulation an egg is released from the ovaries, without ovulation there is no egg to be fertilized and pregnancy cannot occur. There are 2 types of birth control pills -- the combined pill and the Minipill. The combined pill contains both estrogen and progestin, while the Minipill contains only progestin

    "They" would like you to believe that your bc was caused by "enviromental" factors, but I would bet the farm that in the years to come there will be lawsuits galore from women dx with bc who took birth control and you will be one of them.

  • Nan56143
    Nan56143 Member Posts: 349
    edited December 2009

    Dear Sanaisa,

    There are many many antiaging specialists in California!! You are so lucky! Go see one sweetie!! However....most insurance companies will not cover antiaging specialists, even though most are MD's.

    Here in PA we have 2 antiaging clinics and my daughter Lori goes to the one in Pittsburgh. As to the oncs testing for D levels....HAH!!! Most don't even know to what you are referring when you bring this up. If that is the case, then find an onc who does know. Your health is at stake. You have to take care of you!

  • althea
    althea Member Posts: 1,595
    edited December 2009

    sanaisa, I couldn't even get my hormone levels tested at my onc's office.  They only test 'cancer-related' things, according to the nurse that day.  Never mind my tumor was er/pr+ and I was given tamoxifen for hormone therapy.  Heck, I couldn't even get a full thyroid panel from my primary care doctor, who was an internist, and I've had hypothyroid symptoms for a loooooooooooooong time now.  I think most people in these forums have access to better care than I do.  You can certainly ask for a vit d test.  If your request is denied, you can still get one.  There's internet sites where you can pay for your own tests.  lef.org is one.  I haven't used them yet, but I hope to soon.  There's also healthcheckusa.com and canaryclub.??  com or org

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