November Rads 2009

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Comments

  • josybee
    josybee Member Posts: 86
    edited December 2009

    Hi Ladies,Finished #24, have 4 more to go. I am now peeling under the arm and in the crease under my reconstructed breast. It is so uncomfortable. Using Biofine and Aquafor. At home just keeping a mens white t shirt on, haven't put a bra on in weeks, and still taking vicodin for the pain 2x a day(rads are bothering the reconstruction site even more)  Any suggestions for the soreness and burning??

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    Niknak, I am not scheduled for "boosters" that I know of. After joining and reading the rads threads, I assumed I was going to have to do at least 30 tx's, but my rad onc says he only does 28 for mastectomies and 30 or 30+ for lumectomies.

    My last three tx's were done without the "boula" in hopes that the rads would not affect the skin as much, but that didn't seem to work...sigh.

    Thanks to all for your encouragement.

  • Sparrow
    Sparrow Member Posts: 262
    edited December 2009

    Swampy, I hope you're feeling better!  Nobody ever mentioned boosters to me either.  I had a lumpectomy on both sides but I'm only getting 25 txs.  I hope that will be enough to mop things up.  ;)

    I am now on Facebook.  :D  I just sent you a friend request, Niknak.  If anyone wants to friend me, search for Tamara Gardner.  :)

  • Sparrow
    Sparrow Member Posts: 262
    edited December 2009

    Granny Romaine, I'm so glad you're done!!!  Smile   Sorry about the skin problems, I'm hoping you will heal fast.

    Niknak, glad you found the bag!  Smile  I'm constantly doing stuff like that but since I didn't do chemo I have no excuse...  ;) 

  • Lauren3
    Lauren3 Member Posts: 289
    edited December 2009

    No boosters here.  I can't believe in 48 hours I will be done.  A little nervous but excited nonetheless.

    Sparrow, I'm going to go friend you now Cool

  • amlg1
    amlg1 Member Posts: 596
    edited December 2009

    Monday the last of my 28,they will also do a new simulation for my 5 boost,then I am done.This part of my treatment seemed never ending.What will I do with myself when this is all over...duh !!!Oh yea still have to get herceptin every 3 weeks until June.I do have to say the journey is long but I faired pretty well with chemo and rads,starting now to get peeling skin,but I'll survive.

    Swampy..sorry that you have such burns,sounds so painful.

  • cherneski
    cherneski Member Posts: 726
    edited December 2009

    HI ALL!  Just checking in, I havent been on in a long while.  I only have 5 more txs to do, as long as my skin holds up.  I am black, red and peeling.  I am scared they will make me take a break because of the peeling.  I will find out tomorrow.  I am scheduled to have my port out the Monday after rads stop on the 21`st.  I will be so happy to be done with this by Christmas. 

    I start tomoxifen in Jan. I am not happy about that but what can you do?  I probably have to wait about 6 months before I can do recon, so I will be laid up next summer with that but I will finally have boobs again~lol

    I hope everyone is doing great!  Miss you all!  

    Love Deb

  • cherneski
    cherneski Member Posts: 726
    edited December 2009

    Sparrow~ I am on fb and we also have a group there.  Check out the group.  It is private so you will have to ask to join.  It is private so that we dont have weird ppl lurking at us, and we can say what we like there.  I havent been keeping up on the group as much as I should but I will get it more active again soon.  Just search in the search box "crusading breast cancer" ask to join and I will get you in.

    Anyone can join if you want.

    Deb

  • debnyc
    debnyc Member Posts: 111
    edited December 2009

    Hey Deb, Glad to hear you're almost done. I just requested to join your fb group. And don't worry about the tamoxifen. I'm starting my 3rd month and am happy to say that it's not bad at all.

    For anyone who's itching, the hydrocortisone actually helped me alot. It also lessened the bumps and raised areas that were popping up.

    Found out today that I have 2 more full tx followed by 7 boosts. I'm hoping that the boosts will be a little more gentle on my skin. For those who've had them, what can I expect? Is that wishful thinking?

  • Sparrow
    Sparrow Member Posts: 262
    edited December 2009

    Just checking in.  17 down, 8 to go.  

    I picked up some kind of stomach bug over the weekend.  Thanks for all the friend requests!  :)  I will add you guys as soon as I feel human again.  I'm crawling back to the couch now...   ;)

  • gillyone
    gillyone Member Posts: 1,727
    edited December 2009

    Had number 20/33 today. I was supposed to see the doctor and get set up measured up (whatever) in preparation for boosts but neither happened as the doctor had a meeting. Maybe tomorrow. I only have 5 more regular txs followed by 8 boosts. My skin is a little pink but that's all - so far so good.

    Had to drive (30 miles) in the snow today for the first time. I'm hoping the weather is kind for the next couple of weeks.

  • buccaneersdj
    buccaneersdj Member Posts: 241
    edited December 2009

    Hi everyone, I am done with #15 as of today. I'm wondering if any of you are having shortness of breath, kinda like the feeling of not being able to take in a full breath? I asked rad. tech. about this and was told it might be from rads, don't see the RO till Wednesday. I wouldn't be that concerned but it started Saturday and even happens when I am at rest. I still have at least 20 tx left, boob is already pinking up but I am fair skinned so that I expected.  Donna

  • Lauren3
    Lauren3 Member Posts: 289
    edited December 2009

    I'm DONNNNNNNNNNNNNNNNNNNNNNNNNNNNE!

    Of course they kept me waiting an hour and a half today of all days... when I got there I was so excited to be getting my last treatment but I got so irritated waiting around that by time I left I was just annoyed.  It doesn't matter though.  I'm so thrilled to be done.  It was getting super annoying going there every day.  Skin is really red and angry looking and peeling in a couple different places now.  My clothes are stained from the Aquaphor but oh well, it's an excuse to shop right?

    Hope everyone is doing great!

  • Niknak0320
    Niknak0320 Member Posts: 138
    edited December 2009

    Congratulations again Lauren!  I am 3 days behind you and I can't wait!  Did you celebrate tonight?

    Deb, I requested to join the group on FB.  I too decided to wait until January to start tomaxifen.  Have you seen a plastic surgeon for a consult for recon?  I did over Thanksgiving break and i'm glad I did because his schedule is booked through June!  I was able to get penciled in for July 5th (DIEP).  You might want to think about making some consult appointments soon.

    DebNYC, My boosts were pretty easy. All 5 were bolus treatments and were very quick zaps directed at my scar. 

  • Sparrow
    Sparrow Member Posts: 262
    edited December 2009

    Hooray Lauren, that is awesome!!!  :D  Niknak, you are almost done!!!  :D  I can't wait till my last day.  I'm going to dance all the way to the parking lot.  ;)

    I have 7 left.  After my treatment today I noticed a lot of tiny red dots all over my breast.  The RO said it was from the radiation and is normal at this point. She was surprised how well my skin has held up so far because I'm so fair skinned.   I'm not itchy yet. 

    She said I may get one blister under my arm before it's all over.  I think I can deal with that.  I may be able to get my extra treatment in this Saturday.  They may be open to treat an emergency patient.  I'll know by Friday if they can fit me in.  If I get a blister I may want to wait till after Xmas anyway.  :(

    Hubby is at the office Xmas party tonight.  I think I'll take that time to update my FB.  :D 

  • Niknak0320
    Niknak0320 Member Posts: 138
    edited December 2009

    I had treatment # 23 today...saw the RO, she put on a wound dressing and sent me home with the supplies to do another in the morning.  She also gave me a prescription for a pain reliever.  She is going to see me again briefly on Thursday after my last treatment :) and again in 2 weeks!  I can't wait!

  • mom2acat
    mom2acat Member Posts: 556
    edited December 2009

    Lauren, I don't remember right now what percentage my ER was. If I can find my path report again I'll let you know. I think my onc. put me on the Lupron because of my age; I was only 39 when first diagnosed, and from what I've heard, it more aggresive the younger you are.

    I get my Lupron just once every 3 months; and I'm in the office anyway because I'm seeing the onc. and getting my Zometa that day. And the insurance covers most of the cost if it's done in the office; if I had to get it by prescription, I wouldn't be able to afford the copay.

    My MRI went fine; I took Xanax and it really helped. Another thing that helped is that they had an MRI machine that was bigger around than the machine at the hospital where I usually get all my tests. If I need any more MRIs, I'm going to ask they do at that hospital, and I'll ask for a Xanax again too. 

    I see the radiation oncologist on Thursday, and get my results then.

  • Niknak0320
    Niknak0320 Member Posts: 138
    edited December 2009

    is anyone getting the staff at RO office a holiday or completion "gift"??

  • amlg1
    amlg1 Member Posts: 596
    edited December 2009

    Congratulations Lauren...

    Did my 1st boost today,it was so much faster than my last 28 rads.4 more to go CAN'T WAIT.

    I am getting gifts for my RO techs,and DR. Saw my med.onco today,just love her so much,I also bought her a gift.I just feel they are so caring and compassionate and thats my way of saying Thank you. When I thanked her for being my Dr.she made me cry by saying" I want to thank you for letting me be your Dr."I always feel so positive when I leave her.

    Oh my skin did great until #26,where I had my axillary dissection,it is rip roaring red,and peeling,also under my boob.The RO prescibed a burn cream.

  • Lauren3
    Lauren3 Member Posts: 289
    edited December 2009

    NikNak I did celebrate... my son was completely out of control at dinner but it was still fun!  I got cookies for the rads staff but that's it.  I had brought cookies to the onc. staff after chemo was over too so I kept with the tradition.

    Sparrow I have the dots everywhere too.  One of the nurses told me it was the follicles or something.  They started way earlier than 7 days before the end and they did not turn into blisters.  Hoping yours don't either!

    Mom2acat -- good luck on Thursday with your results.  Please keep us posted!

  • Sparrow
    Sparrow Member Posts: 262
    edited December 2009

    Mom2acat my fingers are crossed for you!

    I'm so over rads!  My inner 2 year old wants to throw a fit every day.  I feel like the little bird inside a cuckoo clock, 3:30 strikes and I pop out and get zapped and then I go back in until tomorrow.   I'm really exhausted and burned under my arm.  I'm having a hard time getting the simplest things done.

    I'm depressed too although I know it's from being so tired. I'm on Lexapro and I was fine before rads. 6 more days of this feels like an eternity.

    Sorry to be such a Debbie downer but it felt good unloading.  I can't wait to feel normal again!  ;) 

  • debnyc
    debnyc Member Posts: 111
    edited December 2009

    Good luck Mom2acat! I hope your appointment goes well!

    I start my boosts tomorrow. 7 more to go. I have a follow up appointment with my breast surgeon tomorrow morning and dread the thought of her touching my burnt boobie.

    I'm so over it too!!!!!!!!! I'm tired, greasy and cranky. I hate aquaphor! It ruins clothes. If I hand wash my camisoles to try and get it out, it clogs my sink!!! I can't win. I have patches of light pink on my red nipple. I'm guessing this is where skin has peeled off, and my extremely sensitive headlight is always on. Why does the machine have to make that horrible noise when it zaps? Why can't it be a nice chime sound? Why do the techs always say you did great today? As if I have a choice? And I do not want to talk to the chaplain while I'm waiting! Please go away lady!

    Aaaaah, you're right Sparrow, unloading does feel pretty good :)

  • Niknak0320
    Niknak0320 Member Posts: 138
    edited December 2009

    hang in there girls, we are all SO close!

  • Lauren3
    Lauren3 Member Posts: 289
    edited December 2009

    Yesterday was my first day without rads... I had a really fun day and I was just so happy to feel like a somewhat normal person (without hair) again.  But today I crashed.  I'm exhausted plus I went for bloodwork at the regular onc. office and my WBC are still down.  So I got another shot in my belly (had one last Wednesday for the same reason) and I have to go back on Tuesday now.  I thought I was goint to have a doctor break till after the New Year!  (except for my 6 month surgery followup next week, lol, there's always something).  I am so bummed.

    Has anyone else's WBC dropped from rads?

    Deb -- that really sucks about the nipple!  It never dawned on me since the breast I had radiated doesn't have a nipple (yet) but that does not sound fun at all.  I have the same type of thing going on along my incision and it creeps me out.

  • Sparrow
    Sparrow Member Posts: 262
    edited December 2009

    Ugh, Deb, a chaplain?  How horrible!  ;)  My Cancer center has a social worker that manages to corral me once a week in the waiting room.  She's a nice lady but gee whiz, I'd rather be left alone.  ;)

    I hate the buzzing too!  I usually park in the hospital parking deck.  You have to push a button for a ticket.   The ticket machine makes exactly the same buzzing sound as the rads machine!  :P It startles me every time.  ;)

    Lauren, sorry about the shot!  Sorry you have to go back Tuesday too!  :(   Thank goodness you're all done with rads!  :D

    Niknak, did I friend you on FB yet?  I thought I did but now I'm not sure.  Ugh, I'm turning into my mother!  ;D 

  • Lauren3
    Lauren3 Member Posts: 289
    edited December 2009

    Mom2aCat - thinking of you today, hope all is going well for you.  XOXO

  • mom2acat
    mom2acat Member Posts: 556
    edited December 2009

    Thank you everyone for th good thoughts!

     I had my MRI of the cervical and thoracic spine last week. Today I saw the radiation oncologist.
    Good news, no cancer in the cervical spine. I already knew I had mets in the T-10 and T-12 spine; the T-10 being the worst. But the MRI also showed mets in the T-6, and T-11. They also happened to get the the L-1 and the L-2 of the lumbar spine in the MRI; they weren't expecting to find anything there. But that could explain why I am still having pain in my hip even after the radiation to the lesions on my hip joint.

    So, before I have any more treatment, my doctor wants to see the rest of the lumbar spine, so I will be having an MRI done on it. And it's also possible that the pain could be coming from something that is not cancer, like a bone spur or a chip in a bone. The radiation center is going to set up the appointment for the MRI, and then I will see the doctor again. Until then, I don't know if i will be getting more radiation, or another type of treatment.

    The diarrhea from the radiation is starting to get better finally. Yesterday I actually felt pretty good, hardly had any of my IBS symptoms at all. Today I was back to having to take the Imodium again, but I think part of that was nerves. It started this morning, and my appointment was at 2pm this afternoon.

  • Sparrow
    Sparrow Member Posts: 262
    edited December 2009

    Oh, Mom2acat, I'm so sorry you have to deal with this!  My mom has stage IV BC with mets to her spine... and lungs too.  I'll be sending you good thoughts!

    20 down, only 5 more to go.  My armpit is burned black and I still have lots of tiny red dots and a bunch of dark freckles I never had before.  My rad techs are so sweet but I really hope I never, ever have to see them again.  ;)

    I'm expecting my giant pacifier award any day now.  ;) 

  • Sparrow
    Sparrow Member Posts: 262
    edited December 2009

    Buccaneersdj, what did your RO say about your shortness of breath?  Thinking of you!  XOXO- Tamara

  • buccaneersdj
    buccaneersdj Member Posts: 241
    edited December 2009

    Sparrow, He said the same thing he says about all my complaints, "It is not related to radiation therapy if it is not in the radiation field". He said the same thing about my upset stomach. The breathing has got better in the last couple of days, I'm trying not to be so "focused" on it. So far the only complaint he will acknowledge is fatigue, is that in the radiation field???.

    Thanks for asking.....{{{HUGS}}}} Donna

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