I'm so happy to find you guys!
Comments
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PureE - That's where I'm trying to get. I don't want to let this thing keep a cloud over everything I do from here on out. I've been so blessed by my wonderful husband and child, a job I like with people I love, and my friends and family. None of that has changed. I'm just sick and I'm doing all I can to get better. I just have to accept that only time will tell and live like I am cured until/if ever I know differently. If my husband has any doubt, he doesn't show it. I've been trying to adopt his outlook.
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I think your attitude will serve you well during this journey. This is a wonderful group to be part of of, and there is loads of good information and support to help you along your way.
I'm just finishing my last round of AC and move onto Taxol next week. I think it helps to just keep focused on moving forward with treatment.
Sorry, in a chemo haze right now, but welcome Kimber.
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I never say I am sick-b-c I am not. I had cancer,it's gone and I feel fine. Chemo makes me tired but I am not sick-according to my blood work I am healthier then most:))
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I wanted to tell you as well my mom had bc. I have been going to a surgeoun and doc since the age of 19. I was determined to catch the bc if I happen to get it. Well the surgeoun I went to for the past 8 years said the area that was cancer was nothing-he felt it was simply milk ducts. He found another area that turned out to be cancer. It was .7mm and when the biopsied it it came back stage 1a grade 1. When I went to the oncologist he insisted I check this other area and that is the area that came back stage 3 cancer. The surgeoun missed it-so how ironic I spend my entire adult life chasing bc and end up with being on the verge of stage 4.
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And then there is the rest of the population that plans for their future without worrying about what could or may (or not) happen even though they really don't know.
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I also am trying to get into the mindset that I need to make plans and if something happens, things can be rearranged.
You can't put your life on hold "just in case" - you wouldn't end up doing a damn thing then.
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SherriG - Yeah, I remember using the word "surreal" a lot the first few weeks. It still feels that way sometimes. Mine has all gone SO fast. The PA at my first meeting with the onc said she never saw people with their drains still in. I was still so unsteady at that appointment that my husband leaned on the table to give me something to lean on so I wouldn't fall off - lol! I try to remember to give myself a break and let myself work through it all.
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Today was the first chemo I didn't break down and cry for more then 2 hours. It has taken me 4 months to get to this point. Give yourself lots of time-this is normal emotions.
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I seem to get down every afternoon. Mornings and evenings are fine, but in the afternoon I'm sometimes alone and thinking too much, or at work looking at that calendar. I've got to find a way to deal with that calendar. I am looking forward to this weekend, though. We're going to the Festival of Lights (an annual tradition). We'll have to alter our usual plan a bit so I can avoid being in a crowd, but we'll still get to do some of the biggest stuff. I just need to get some rest. I overdid it today - stayed too long at work and felt like a drunk trying to drive home without falling asleep. This fatigue is insane. The nurse said the chemo is cumulative, so I just keep wondering how much worse it will get......
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Kimber, Remember, your body chemistry is totally out of wack with what you are going through. This really takes a toll on us emotionally and physically. I found the effects were cumulative as your nurse said. Every one of us is different in how this affects us, but we all need to take very good care of ourselves. The fatigue can be overwhelming as you have discovered. I took time off from work and slept a lot!
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Hi Kimber,
I'm glad that you found us. There are some wonderful and supportive women here. I don't post alot but I wanted to welcome another stage 3er. There are a few of us 'in the 30's at diagnosis' on here. I hope you enjoy the holiday lights with your family. We are going to get a tree this weekend, hopefully it's not quite so cold then.
Annie
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Hi Kimber,
I am glad you found us too. We have similar stats...except here I am 4 years later. There was mych stress and sadness in the first year. But whenever I needed a boost or someone to talk me down this thread has been the place. Everyone here gets it...they just do.
I have regained all aspects of my pre BC life...same goals, same house, same job, same DH...LOL.The only difference for me is a few times a day...just afew I find my mind thinking about what has happened and what might happen. Fot the most part I am who i was...if that makes any sense.
You can do this and we can help.
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Kimber - I am at the end of chemo (2 left) and have found that the fatigue is really hitting me. I get that foggy feeling and just need to stop and rest, which I do. Then I'm good to go...... Since starting chemo in Aug I have had to alter plans or cancel a few things, but when I feel good I get out and enjoy myself. Two weeks ago I took a last minute trip to Asheville with my sister and had a great time.
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I would highly suggest fighting the symptoms with nurtiriton-juice! You will see an amazing difference in your fatigue.
I will tell you my depression hits everyday around 3:00. I usually call in my husband and cry. He sits with me-gives me the usual speech and I get back up.
I would say let it out-holding it and being strong does nothing for you except hurt your immune system. I am Italian so we tend to hold nothing in but if I didn't have those afternoon crys then...
I also cry in the shower and pray .
Or I will go to church and cry and pray.
I literally schedule time to let it out and cry.
I will tell you this -I am prego so I am probably 10 times more emotional then normal people. I was diagnosed in August. I would say Just now over the past 2 weeks did he crying every day stop.
Plus I am pissed-I am pissed at my docs for having ye little faith and pissed at this stupid disease. So for me it's not going to take any more then it has. You go through phases-almost like when you loose someone. Its a process-you have to move through it.
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Maryannecb - Thanks for the inspiration! It's been a rough afternoon and I needed to see a post like that!
PureE - I often feel like I'm in a mourning process. The mornings are the worst - just like when my dad passed away. Having to wake up and remember was like finding out all over again every morning. It's getting easier. I'm working at starting each morning as I wake with a prayer thanking God for another day and asking for the strength and wisdom to make it a good one.
So what's nutrition juice?
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I agree with Sherri, sometimes you just have to ride the emotions out, it will pass in time and you will feel more like yourself.
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I try to find a place to be alone when I really need to cry and just let it out. It usually hits in the afternoons. I don't want my son to see me (he's seen too much of it lately already), and of course I don't want to lose it at work, so those are the only times I really force myself to keep it in.
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My thoughts about crying is that it's the mind's way of cleaning the system of all the negatives. It's a good thing. But sometimes we are so overwhelmed that we still are see all the things that are wrong -- the tears just aren't cleaning the windows in our mind like they should. If that is the case then I believe you should talk to your onc about something to help you through the depressing thoughts.
I can see in your posts that you're normally a positive person. But you've also recognized that there is some sort of emotional cycle going on that hits in the afternoons. If you can figure out a way to move past that without drugs then that would be great. If not, then maybe the support of an anti-depressant to aid the process might be a good thing.
For me, the emotional rollercoaster hit about halfway through my first 12 weeks of chemo. One of my personal insights was that I needed to take more time for myself. I really admire the women who can maintain such full days with work, kids at home and other activities. I finally accepted the fact each of us is different and that I needed to do a better job listening to my own body. So if I wake up and feel lousy (either emotionally or physically) then I take a disability day. I would love to be stronger and be a super woman. But all I am doing is adding more stress by giving myself expectations that will cost me too high a price in the long run. It was hard to accept this because I was always the lead and strongest team member. You know, the one who got the high ranking? Well, now I'm sitting back and letting some of those other people shine and now I'm realizing it's a good thing for both them and me.
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Sherri - Thank you! I've got a list of stuff to go over with my onc and a seperate list started for the RNs doing my chemo, so I'll put that at the top.
Anacortes - I am normally a very positive person. I don't know what the deal is with the afternoons, but I feel better....calmer....after I let myself cry. Then I get up and get busy with something productive and snap out of it. It's weird, but I figure as long as I can move on afterward and have a nice evening, it's okay.
I was amazed at how easily I gave up my superwoman status at work. I've let go of a ton of stuff, and would actually happily relinquish more if I could, but I don't really have anyone who can do a lot of it. I just told them all that nothing is more important than me getting through this treatment successfully. I'm considering asking the owner to bring in a temp part-time person to handle payrolls so I'm not locked in certain days I HAVE to be in the office. Then I can continue to do taxes, financials, etc. from home at my own pace. I'm sure he'll agree, but I want to see how the next couple of weeks go before I commit to that route.
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You know I kept telling myself that getting through this was the most important thing but I was such a slow learner. My DH was trying to be patient with my trying to work each day but he kept telling me to not do it if I didn't feel good. I just didn't want to let anybody down. I had to get down myself before I realized that I still hadn't let go. You have been much quicker than me to figure that out. I admire the way you've been able to get the right priorities so quickly!
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I own my own business so it's a bit easier for me to delegate and not have to work much. I tol myhusband today for the next 3 months I want no stres sin my life as I go through this time with my baby. I try and take very good care of myself. I pray, do yoga, take about 15 minutes to just deep breathe. I then juice and cook fresh foods-so part of my day is literally spent on preparing good foor which benifits everyone.
When I feel bad I lay in bed and have the kids lay with me to watch movies or play games. THey think I am ill from the pregnancy-which is actually the truth.
Juicing, exercise, prayer, etc its my way to control th situation-you'll get there.
The thing is we have all been let in on this secret-a secret we never wanted to know but was always there and that is that sickness, disease, bad tragic events are what life is made up of in a way. I struggle with that most of all now-why life is so hard and filled with so much pain. And yes I constantly ask Where is God in this and why is this all happening.
This is a process-allow yourself to go through the process... You can't change it but you can fight, and allow your self to heal.
Its hard being in our 30's and getting this - we have way to much life to live.
You have 3a which you know what-MD Anderson considers EARLY stage bc.
You will be ok and hopefully you discover some truths about yourself and life as a result.
I refuse to not let something good comeout of this process.
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I can't imagine how much harder going through this while pregnant must be. I really admire your strength and determination. I just keep praying for strength and wisdom, for God to help me see what my purpose is in this.
I found myself picking out things that my son and I could do together while I'm resting when I was doing my online Christmas shopping.
Tomorrow is my second chemo. I'm hoping that now that I've had a little more time to heal from my surgery, it won't be quite so hard to bounce back as it was the first time. Now that I've almost got full range back in my arm and my incisions have healed more, I'm looking forward to starting back to yoga next week (at home, since I'm totally paranoid about going out in public and ending up sick) and then back on the elliptical by next weekend!
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yes I pray for peace every day. We all deseve some sense of peace.
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Hi Kimber,
I had a very simlar dx -- will be five years ago this Feb 4. Well, actually I found the lump about five years ago exactly. At first I too beat myself up that I didn't go in and get it checked sooner.
I actually had two lumps - really the whole breast was filled with DCIS . There really isn't a good way for us to figure it out .... Anyhow... wishing you the best of treatment . It is hard when you have young kids. I have five and my youngest two were 3 and 4 at the time.
Hang in there. Chemo was rough for me too. Actually AC was horrible but taxol and Herceptin were not as bad.
Come anytime with questions. The ladies here were so wonderful ( and still are) for me... made lots of good friends -- I still come here almost every day.
blessings,
Wendy--- private message also anytime.....
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Round two definitely went better. She did do the adriamycin slower than last time, and I don't know if that made the difference or if it was just that I made sure to eat that morning and get super hydrated and wasn't such a bundle of nerves, or all of it together, but other than a little redness in the face, no allergic reactions this time - hooray! I am awfully weepy today - woke up that way after a rough night with little sleep. Plus my son's Christmas program was this morning and I was so upset that we couldn't participate like we usually do (since I had to stay out of the crowd), but at least I got to see him, right? He was beaming when he saw us. So that's what I need to focus on. And I need to go try to get a quick nap - the lack of sleep is never good for my emotional state. Plus I think I'm so tired I'm rambling anyway......
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Kimber - remnember the steroids turn you into a crazy person! Glad the infusion went better. Try not to feel too guilty about your son, I know I felt like I was letting mine down all the time, but I really don't think they ever felt that way. You can only do as much as you can. It is all now a very distant memory for them.
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Kerry - Yes, I'm sure he doesn't even notice half of the stuff I worry he'll be upset about.
So is it the Neulasta that's making me such an emotional wreck?
I've asked everyone who wants to help but doesn't know what to do to send me stage 3 survivor stories, jokes, and funny movies.
A lady I work with just dropped by some play doh and some pre-baked gingerbread men complete with bags of icing and decorations so I can decorate cookies with my little boy without all the work from the preparation. So sweet!
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Did you get nasuea with the treatment? If not you might ask if they can pull back on the decatron downt he road.
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Yes, bad nausea. And, yes, I'm taking the generic for Decadron. That's why I didn't recognize the name. My onc actually gave me an extra Rx for an additional one to take the day of treatment this time because I was so sick the first time. I'm praying once we get past the next 2 that the taxol/herceptin won't be so rough so maybe I won't have to take so much.
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Kimber - the neulasta causes bone pain for some people, not all. The decadron helps with the nausea, allergic reactions and makes us crazy........................
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