Favorite sites for breast cancer info??
What are your favorite Internet sites for good breast cancer information? Let's see if we can compile some sort reference resource of breast cancer information.
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My 2 favorites:
For hereditary breast/ovarian cancer, seek FORCE @ www.facingourrisk.org and explore the site map, main forum message boards and the articles/journal forum.
If searching the latest reasearch articles and/or studies, go to www.sciencedaily.com and click on breast cancer.
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You can go to our own site, e.g.
Research news on diagnosis http://www.breastcancer.org/symptoms/new_research/
Research on day-to-day matters http://www.breastcancer.org/tips/new_research/
There's Artemis from Johns Hopkins http://www.hopkinsbreastcenter.org/artemis/
But if you want the info 'from the horses' mouth', I go to Pubmed, because that's from 'the horses' mouth' - sometimes these secondary sources do not explain relevant details such as number of subjects, how the subjects were defined, potential biases, etc. etc. Of course, the search results can vary radically depending on the exact search terms. It can also use a lot of technical language and concepts that may be difficult to understand. http://www.ncbi.nlm.nih.gov/sites/entrez?db=PubMed
Its important to do critical thinking when looking at studies (not that I'm so terribly good at that). Each study may or may not have relevance to your situation.
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They have an excellent Ask the Expert section on the Johns Hopkins site.
I like to review the info presented at the San Antonio conferences...often the latest and greatest things are presented and discussed there.
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For treatment guidelines, nothing beats the National Comprehensive Cancer Network (NCCN) Practice Guidelines in Oncology, Breast Cancer. These are updated annually; the 2010 report just recently replaced the 2009 version on-line although the 'discussion' section update is still in progress. These guidelines are written for physicans yet they are quite easy to understand. The first part of the document allows you to work through a decision tree of treatment options based on your specific diagnosis (tumor size, hormone status, nodal status) in order to see what the standard treatment guidelines are for your diagnosis. The second part of the document provides a detailed discussion on the treatments for each type of diagnosis. These guidelines are used by most breast cancer specialists in the U.S. (and elsewhere) so it's a great document to use to prepare for your visit with your doctors (so that you have an idea of what to expect), or to get an understanding of why your doctors are recommending what they are recommending (our doctors don't always explain things that well), or to compare your doctors' treatment recommendations with the standard treatment guidelines (a difference isn't necessarily bad or wrong but if your treatment plan is different it might be something you want to ask your doctors about so that you better understand what they are thinking and why they are recommending certain treatments).
Here's the document: http://www.nccn.org/professionals/physician_gls/PDF/breast.pdf
If you can't access the document from the above link, another way to get to it is from here:
http://www.nccn.org/index.asp - Under "Clinical Recommendations" in the bottom left corner, click on "NCCN Clinical Practice Guidelines in Oncology". On the next webpage that comes up, in the center of the page, scroll down about 1/4 of the page till you see the word "Breast Cancer" and click there. The guidelines should come up as a PDF file.
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My favorite site is www.breastcancer.org. I also like www.mdanderson.org
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