Critical Thinking Not Fear Based
Comments
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Colette, I am minimizing my time on this board and frankly don't care if I get kicked off. So let me very bluntly say to you: "Please shut the @#!* up about Canadian healthcare! If you don't want the Canadian women here to participate in threads about American healthcare, it would help if you stopped slandering the Canadian healthcare system (which you clearly know nothing about) every time you post."
This thread is a discussion about the new mammogram guidelines, and it was set up specifically for those of us who want to discuss the new guidelines using real scientific data and critical thinking. Posting a youtube video about Canadian healthcare is about as irrelevant as you can get. For the sake of those who are interested in continuing the good discussion, I hope that this thread can get back on track.
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BEESIE, so good to see you! Same old, same old, eh?
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Colette, you said:
"Ok...I can understand US women coming on these threads and talking about what is happening, but why are Canadians chiming in about something that is happening in the US and is US legislation?"
1) The new mammography guidelines are NOT legislation (yes, I know about that paragraph stating that insurance companies will have to provide A and B level recommendations without co-pays, but the guidelines THEMSELVES are not legislation)
2) This thread was started by someone living Italy for the purposes of discussion of the scientific merits/shortcomings of the recommendations. The first response was from a Canadian living in the U.S. The second response was from an Australian. These kinds of scientific analyses and recommendations/guidelines affect women all over the world.
3) On page 2 of this thread, you posted speculation that the USPSTF was "one of 23 working groups of the North American Union" -- I don't think you can expect to post such political speculations (which to me seemed to imply Canada was a threat to the U.S.), on a thread whose stated purpose is to discuss the scientific merits and shortcomings of guidelines -- and then wonder "why are Canadians chiming in about something that is happening in the US?"
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Colette - your post made me LOL! You said:
--------Quote--------
"Ok...I can understand US women coming on these threads and talking about what is happening, but why are Canadians chiming in about something that is happening in the US and is US legislation?
---------Unquote---------
Seriously? Are you really asking? I'm certainly not Canadian (although I did cross the border once on a date!), and don't presume to speak for Canadians, but my guess is that they keep "poking their runny noses in" to correct misinformation you've provided and to try to keep this thread on topic with some reason, logic, and <dare I say it?...> critical thinking!
Oh, and by the way I don't get the "runny nose" thing, but maybe I should move to Canada since I have both allergies and the chemo-runny nose?
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"Since this topic was addressed by me at this thread, I will respond here and also share it with my fellow Americans at Shirley's thread (although the Cans have and continue to poke their runny noses in)"
I stopped reading that thread when homeless people were described as dirty and disease carrying. Unbelievable. But not surprising when you consider that uninsured people are lazy and uneducated. However, I didn't see the "Canadian noses" that you referred to. ?
Regarding the 'lottery'. Is it not a different form of lottery when you expect a 25 year old to choose the type of insurance they will need to cover themselves in the years to come? Talk about playing the odds!
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Yes, Layne! That catchy tune, "Blame Canada!", runs through my head as the soundtrack to some of these posts!
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This seems like a good place to relate this story. We have long been aware that many (certainly not all) Americans have some strange ideas about Canada.
When we were in the States last year, we mentioned that we needed to go for a walk after a restaurant meal. Our waiter was quite curious as to why we would want to do that. Then he says, "Oh right. You're from Canada. I guess you don't really have anywhere to just walk up there."
HUH!
I said,"yes, the polar bears and lumber jacks make it quite difficult." We all had a good laugh at that. But the real joke was that there were NO sidewalks to take a walk on. The street lights were only set up for cars. We did not pass ONE other person while on our mile or so (2 km) walk. People in cars looked at us like we were nuts!
What a culture shock for us. Just saying, maybe we are not as alike as I once thought! (With the exception of our 'adoptive' sisters here, of course1)
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PIP,
LOL! We don't have many lumberjacks or polar bears here in Colorado, but the mountain lions and covered wagons keep us from taking walks, LOLOL!!!
And when I lived in Italy, it was the runaway gondolas that got me! Be very careful, Blundin!
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Touche!
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LADIES: STOP..... This is a breast cancer board to help all of us on this journey. I recently berated some of our Canadian sisters for bashing America, and I have to ask my American sisters to stop bashing Canada. It is one thing to give your views on the current state of health care, but the entire environment is becoming hostile and ugly. I can't believe what I'm reading here, canadian noses running, and the Canadian link, like them laughing at us, and mentioning books called idiot americans, etc. Let's be honest, the Canadian system I'm sure is not perfect, but it's their system, and they like it. Those who don't go elsewhere for care.. Our system is far from perfect, and I for one don't want a government option, but we have many problems with our system also.It's okay to debate the issues, but making fun of each other, and each other's country is terrible. I have nothing more to say on this subject.
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Ummm, I don't like it.I am canadian and I work in health care and have seen things that can make your head spin.Including my own botched diagnosis.
Don't lump us all into one group.Thanks
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Beesie...the US legistlation gives power to the USPSTF's new US guidelines here in the US. They are very much intertwinded within each other.
I was not the one who started attacking the other countries medical care. I pointed out information that maybe one should pay attention to their own home before critisizing anothers (and then gave proof of why), furthermore, From what I understand the USPSTF is recommending it to the US and is a US task force panel, and not Canada. Please let me know if I am wrong.
As far as the link to the youtube video..what of it that he is a comedian..So is John Stewart...and he comes closer to the truth than the news does any day of the week. And what I gathered from the video, is that there are some real problems with Canada's system (which people keep touting as wonderful and that the US (Where "I" live) should go to their type of health care system) also. Sure, there are problems with the US, but if it came between our waiting times and Canada's waiting times, I choose ours. The worst part of the video was the woman who lost both of her legs after waiting on a list for a year for surgery, and then they removed the one good leg first. I am not saying that things like that don't happen here in the US, because they do...but I know in the US that if the Dr. *&(& up bad then people could sue them for compensation. And you are right...I didn't know anything of Canada's health care system until reading a few very sad stories on this site, and then I went and started looking at some of Canada's papers and found the truth. I have more information now than I did at the beginning because of this site.
mittmott and newday1976...I agree 110% with you.
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AnneNYC..Ok..I finally have had a chance to read your post...and I will respond in like:
"1) The new mammography guidelines are NOT legislation (yes, I know about that paragraph stating that insurance companies will have to provide A and B level recommendations without co-pays, but the guidelines THEMSELVES are not legislation)"
The current legislation in the US Congress states that the USPSTF (the people who created the new guidelines) will decide what is acceptable for the insurances to pay for. These two are intertwined, which is WHY I brought up and continue to bring up the bill in the Senate.
"2) This thread was started by someone living Italy for the purposes of discussion of the scientific merits/shortcomings of the recommendations. The first response was from a Canadian living in the U.S. The second response was from an Australian. These kinds of scientific analyses and recommendations/guidelines affect women all over the world."
Sorry, if I do not where everyone is from, nor most of the time do I even look. No, not everyone has where they are from under their name. I know a few women directly on here and I have supported more than one when other women started attacking her because of the hardship of her anger towards the cancer. One thing which I have learned from this site is that women can be very ugly towards newly diagnosed women who are having to deal with the horrors of breast cancer and only wanting to find out more information.
What I don't understand is why it would affect women from all over the world considering that the studies that the USPSTF used were based on the OLD mammogram machines which have been replaced with the more sensitive digital machines..so the studies in and of itself are worthless.
3) On page 2 of this thread, you posted speculation that the USPSTF was "one of 23 working groups of the North American Union" -- I don't think you can expect to post such political speculations (which to me seemed to imply Canada was a threat to the U.S.), on a thread whose stated purpose is to discuss the scientific merits and shortcomings of guidelines -- and then wonder "why are Canadians chiming in about something that is happening in the US?"
Uh...No, I never implied nor said that Canada was a threat to the US. I implied the NAU was a threat to our sovereignty. Canada and their people have nothing to do with that...THE LEADERS DO. The way we keep our sovereignty is by stopping the integration which both governments are trying to have take place. I.E. Keep the US from passing that dam health care bill would be one way to stop it. If they like their health care, GREAT! That is for them to decide, but I also have heard the other side of the coin.
You know what? You win. I have more important things to do than pound my head against the wall...like trying to recover from radiation and try to prevent my developing Mets. Arguing with people will not aid in my karma so to speak and I have 3 beautiful kids to enjoy...so, you win. There. Wont hear from me again.
I am going to go and play some XBox 360 Rock Band.
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oh my god!
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There is no perfect world (although Norway sounds close and dang why didn't my husband take that offer). I've worked in QA/RM in community and long term care hospitals in Canada, every mistake, complaint, med error, fall, that was documented came across my desk. Sure there were things that spin your head - actually we banged our heads.
My mother worked for decades in health care in the US, she had tales that were head bangers too. The head banger ratio - I don't know. I do know that on both sides of the border, and elsewhere people are trying to reduce the errors. I also know that some will continue to occur because people are involved.
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As an FYI, the woman who started this thread is an American with lots of American health care industry experience, now retired in Italy (lucky duck!). I'm the guilty Canadian who has lived in the US for just over 3 years, just returned to Canada 4 days ago -- hence my interest. Canadians chime in to correct errors, and well, out of concern for their neighbours.
AND, in no way, no how, never, ever (am I clear enough?) do Canadians nor Canadian leaders want to integrate with the US! I strongly suspect Americans feel the same way! I don't know where this silliness comes from. Linking the mammo guidelines to some NAU conspiracy theory is, well, laughable. Now, back to mammos...
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I just wish we could have one thread on this whole board that discusses these guidelines from a scientific, medical perspective. Everyone who thinks the guidelines were politically motivated has a zillion other threads to say that on.
Personally, I think the guidelines were horribly worded -- which the USPSTF has just "fessed up to" themselves -- see here:
http://www.boston.com/news/nation/washington/articles/2009/12/03/panel_clarifies_mammogram_advice/
As initially worded, I disagreed strenuously with the Task Force's conclusions.Colette, I agree with you that conclusions based on film mammography don't make much sense at this point -- unless they would have explicitly said something like "better screening methods are needed in younger women, and studies should be performed to assess the effectiveness of screening with digital mammography, ultrasound, thermagraphy in women under 50..."
You know that I have expressed my disagreement with these guidelines. I just find that very hard to continue to do in an environment that is determined to make political hay out of this.
Let me just explain, one more time -- I work in medical research, and the publication of the three USPSTF-related papers in the peer-reviewed medical literature means that it becomes part of the world literature that doctors around the world consult.
Sorry -- when I see something posted that I think is inaccurate, I will try to post what I consider to be a correction.
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Thank you, AnnNYC.
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Colette - Thanks for all the info! Keep fighting - not only for yourself - but for your kids future! You have my support and hopefully I'll meet you in DC!
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truegrit: You wrote However, in light of the attacks you would most likely bring on, I can understand if you don't want to go into detail.
That was uncalled-for and provocative. If ANewDay wants to tell her story on this website, she can certainly go ahead. It's her story, and doesn't represent the whole of Canadian healthcare. There are several of us who have worked in the healthcare field for years, and we also have seen things that are upsetting. Doesn't mean that those incidents are the "norm". As some have said, when humans are involved, all kinds of bad things can (and do) happen.
Might be a good idea to review Blundin's intentions for this thread when she started it.
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Pod cast of Dr. Weiss and Dr. Tice on Radio Times
I found this posted here on bc.org
http://www.breastcancer.org/opinion/mamm_guidelines/news_coverage.jsp
One thing that struck me was that only 15% of machines are digital. So it follows that access to them is also limited to fewer patients. If this is true, then using film instead of digital for the purpose of the study isn't so far fetched. If digital was available to everyone who needed the screening, then the arguments that isolate that aspect would be more credible. For that matter, how are the people selected for these studies? What cross section of the population do these studies reflect? What other co-morbidities exist and how to they factor into the outcomes?
This demonstrates even more that screening for bc is limited by more than this debate acknowledges don't you think?
I had a casual opportunity in the last week to speak with a researcher in this field. I had great difficulty to follow the DNA tables and arrays he was trying his best to explain in terms I would understand. What I did take away from the conversation is that we are each of us so unique, so different that a one-size-fits all approach to diagnosis will leave many of us on the tails of the curve and frustrated for a long time to come. We need a better method and they are working on it. But even if there is a better method of diagnosis, even if it can be individual in nature, my question to him was "Then what...can you tell me that treatment and quality of life too improves?". He admits that the more they learn, the more they know what they don't know. That answer is one reason I like to talk with him...he's honest. He also does this research now for 30+ years and is personally committed to it.
He and the people he is working with are from multiple cultures....doctors without borders....and we are all very fortunate for their perspectives of life and science.
Best wishes to all as always,
Marilyn
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http://www.cato.org/pubs/pas/pa-613.pdf
This is a policy analysis of world healthcare (March 2008). I found it when I was cleaning my bookmarks.....it is well done and I thought others here might want to read it.
When I follow the ebb and flow of the current debates I begin to see a pattern. Whether it's journalism, democracy, terrorism, of our own interests in cancer research and treatment, there seems to be a shift toward intolerance of gross ignorance and the damage it causes. I find this hopeful.
Squeaky wheels get greased .... that's the basis of politics. That does not necessarily equate to priority of needs as we can witness in the healthcare reform debates and the Copenhagen meeting--both issues of critical importance to the quality of life on our planet and yet they can be intentionally torpedoed with the criminal use of misinformation to raise the voice of squeaky wheels without purpose. This is why I turn to reports such as what I posted above.
Best wishes to all as always,
Marilyn
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Thanks for that, Marilyn!
Anne
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Prego Anne.
This is one of the best summaries I've read on this topic that in itself is difficult to quantify and compare. My vote is for a system like Switzerland. But as it was noted, that too requires the mindset of the Swiss which isn't shared by all cultures, thus the differences between them.
As I now live in Italy I can comment too that the author was accurate of this country's NHS and private systems. The north and the south are like two different worlds here. They've long wanted to separate the two into different countries because the mindset is so very different. Mafia etc. has much, if not everything, to do with that.
Travel to the north for hospitals and doctors is not unusual. We use a teaching hospital in Rome and often use private services paid out of pocket. We also have private insurance which is a supplement so to speak for the NHS. At this point on the economic curve, the costs out of pocket are not beyond our reach....and that is relative. Not everyone can pay for private care. It is about the distribution of wealth. I would also offer that if I had been diagnosed with bc in the US, my personal savings and security would have all but disappeared by now. I live on far less money here.
I disagree with the author that more government involvement isn't needed in US. It's enough to think about the US Banking industry that brought the world economies to its' knees, to understand that this is possible in any industry that is profit driven and deregulated beyond respected wisdom.
"Do the right thing" requires more integrity than we all imagined...in the US or anywhere else in the world. The Internet has made that crystal clear....no more hiding places. More regulations for the industry model of public/private would help to herd the excesses of greed mongers and misers toward a more humane system. This potentially equates to more productive workers, a sustainable economy and quality of life.
....and "If wishes were horses, beggars would ride" ... I think that was from Mother Goose.
Marilyn
I edited to add an "e" to human. The system is 100% human but needs to find that "e" on the end.
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Amazing article, and understandable. I am grateful to learn about the other countries, their medical systems and a clarifcation of all the stats we have heard bandied about over the past few months and why they are only sound bites.
As noted, stats and polls, etc., can be made to say anything a person wants them to say. I Did have a hard time believing the US was so far down on the list re: medical care and was interested in how we got there---according to WHO and what criteria they actually used. Shame on Michel Moore, always thought him a ______________. Fill in the blank.
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Iodine, I agree with you about the sound bites. I wonder often why it is that we prefer sound bites to full disclosure. Maybe it's a psychological protection mechanism of some sort. I know when I reach my saturation point I turn off any input that puts me under stress and that point varies considerably by the topic...my biases so to speak. Distraction, misinformation whatever label you choose is a successful strategy of competitive environments to divert the opponent's attention and gain the edge. I'm more a fan of win win strategy.
Yesterday I was reading an article and it reminded me of this conversation in a way. It seems society is unable to avoid economic slavery. This can be masked by racial, gender, cultural issues but it is always economic. It's like trying to find the cause of cancer when the symptoms mask so many other diseases. Anyway, I thought you might like to read this too.
http://www.newyorker.com/reporting/2009/08/10/090810fa_fact_gladwell
I also agree that Micheal Moore's documentary of sorts fell short on in depth analysis. But he was successful to bring the topic of humanity in healthcare to a world debate level. Even allowing for the absence of some fact, he was dead on for so many others. He did the same sort of thing with the exposure of the human impact of the economic decisions made by corporations to break the strength of the unions.
Sweeping dirt under the carpet just puts off the inevitable and makes it harder to clean later.
I was a bit surprised with the criteria for the WHO study. I'll need to revisit that again. But I agree with you again that the ranking surprised me somewhat....not completely. I still agree with the premise of access to everyone with basic care (defined by international standards). My study of economics is not deep enough to know how to create incentive to fund research and technology in a way that shares the wealth of outcomes. I took a C because I told my economics professor that 'corporate' over fishing in territorial waters that were the sole source of food and economy for an island was wrong. He'd still give me a C today....my answer did not fit economic models.
Best wishes to all as always,
Marilyn
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Blundin:
I cannot tell you how much I enjoy reading your posts... and learn from them.
I was wondering if you have a non PDF link to that CATO article you posted?
If not, would anyone be willing to post a few key snippets here?
An aside:
Sometimes reading these threads IS like watching comedy central.... but without the irony, its more painful than funny...
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Yes, Blundin, as they say "follow the money". The only problem with Moore's films is that so many see them as documentary films, not as that man's viewpoint that he, like stats and polls, has shaped to meet his vision. Discussion of facts is always a good thing among folks, but when the facts are are more vauge than real, like many on this topic, it does become comedy central. but as noted by Pill, more painful than funny.
Pill: love the Buffet quote!
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Pill--Thanks for you kind comment. About the link .... go to www.cato.org and on the left side click on Publications. You'll see this one among others. http://www.cato.org/pubs/pubs.html Here is the link to it. They are independent. I'm not always sure what that means because I could read a slant in their writing. Still I found much it acceptable. It's a lengthy article and frankly can't be snipped and retain its' value. Essentially, it outlines the economic and political framework of the delivery of health care in many countries including the US (a slight bias on the writer's part).
Iodine--ain't it the truth! Documentary and news is a blur. I crave the real thing to come back in style. And if I'm honest with myself, that too is probably biased. Walter Cronkite was one of my touch stones. This style doesn't "sell" because sometimes the truth hurts. It's similar to our disease. People, including the medical community, don't always want us to talk about how we really feel ... they just keep telling us how great we look in a Billy Crystal sort of way....'You look mavelous'! Actually, some days we do look 'mavelous' and that's the truth too.
Pill--I second that vote on the Buffet quote!
Best wishes to all as always,
Marilyn
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I was always shocked at Everyone, and I mean everyone, saying to me, the first time they saw me after dx: you look great, good, fine, wonderful, etc.
I do believe they thought I should be on a walker and my skin turning grey! LOL
And, like you, I dream of a better time with news and journalists who actually Reported the news and were not commentators. I cannot even find print or internet news without a slant. And some of the emails sent to me by my conservative/liberal friends are truly shocking (and I'm not easily shocked). But what scares me the most is that, on Both ends of the spectrum, left and right, is the depth of their belief and inability to even consider another point of view.
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