So Now What???

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Anonymous
Anonymous Member Posts: 1,376

That's what I've been wondering the last few days.  I finished rads today and had my last treatment.  My rad treatment team presented me with a "graduation diploma" signed by everyone for me to frameUndecided  I wish I could be happy about this but I'm left feeling fearful now that treatment is over.  I've been on this whirlwind of Dr. appts for tests, surgeries, consultations, chemo rads, and I felt safe and taken care of during this nightmare.  Now I'm left with the fear of what if none if it "took" and that beast is seething somewhere inside ready to rear it's ugly cancer face.  My next appt is a follow up with my onc after next week, and I have to start taking Arimidex.  And I will see my rad onc in 6 weeks. But now I'm done.  I should be joyful especially with the holidays coming, but I'm scared sh%t.  This whole breast cancer journey has been so all consuming and overwhelming, and yet I have embraced the whole experience.  The what happens next is in my mind. And how can I deal with friends and family members who will see it as "well now your cured so get on with life"  I don't feel cured. I feel as if there is a little seed somewhere waiting to sprout either in my bones or liver , lung or brain.  I don't trust this breast cancer beast at all, and right now I am so very tired and warn out from all the treatment.  I don't feel like the person I was before it all.  I don't look like that person anymore.  Has anyone else gone thru this?

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    Oops! how did this topic show up twice??  Sorry.

  • AzKim
    AzKim Member Posts: 124
    edited December 2009

    Hi Shanagirl,

    I STILL feel like this and it's been 9 months since my last treatment. I've been seen every 3 months and I'll tell ya,..I do good for about a month and half after an onc appt,..the other month and a half,.I'm very nervous,.anticipating my next appt. Will it be good news or bad?,.ugh. This whole "experience" blows! I am getting better though,.I feel great,.wake up every day and thank God I'm still here. I plan on being here till I'm old and wrinkley,..well,.old at least! lol. ' )

    ((Hugs))

  • lexislove
    lexislove Member Posts: 2,645
    edited December 2009

    So now what?

    You go on with your life. You say to yourself ,"I have had the best treatment to date, and I am still getting treatment (Tamox/AI, Zometa). You believe in the treatment and that you are going to live a long life.

    I went through the exact same feelings you are right now. EXACT. I finished Herceptin November 2008. I was done.Finished.Onc said, "see you in 3 months, heres your Tamox." Ummmmm....ok.

    I focused on Christmas. 2007 Christmas I was going through chemo, so 2008 christmas I was going to make special. I took my daughter to have pictures with Santa.I made holiday gifts ect...ect. It helped take my mind of my whole BC experience.

    It is literally a one day at a time thing. The more that time passes...the less you think of BC and the fear that comes with it. Things do get easier...trust me.

    I wish I could wave a magic wand....for all of us.

  • lexislove
    lexislove Member Posts: 2,645
    edited December 2009

    Oh ya. A book that I read that helped so much.....Picking Up the Pieces, by Sherri MacGee. A book for cancer survivors and all the feelings of being dignosed,treatment and then moving forward.

    I highly recommend!

  • weesa
    weesa Member Posts: 707
    edited December 2009

    Shanagirl, YOU ARE NOT DONE! The most important part of your treatment regime lies in front of you--the Arimidex. You will take it every day and will feel you are personally doing something proactive for you, instead of lying there passively. You will no doubt have se's from the AI's and will learn to battle them. When it is finally over, a long time from now, you will really feel cut loose.Soon you will be asking us--your support group here-- about the Arimidex--"could it be causing thus and such?" And I sincerely hope you will have an easy course of treatment with the AI's--but you know from being here that they are often tricky to take. Listen to the cumulative wisdom here, and then find your own way through this often frustrating passage.I will be here to offer my own thoughts. My very best wishes from Weesa, queen of the AI se's...

  • KerryMac
    KerryMac Member Posts: 3,529
    edited December 2009

    Weesa - you just said exactly what I was going to say!

    Shana - The most important part of your treatment is just beginning. You will be fighting this every day your take your Arimidex. I say a little "take that cancer" to myself every night when I take mine.

    Again, don't expect yourself to be feeling any other than you are.  What you feel is exactly right for you, they are your feelings and it is OK to feel a bit deflated.

    You know, I think we all have that magical finish line in sight through all of out treatments, it is the date we have been aiming for for months and months, through all our tough times. And then, finally you are there, and you don't feel like you thought you would.

    Give yourself some time to relax and find your footing again.  Everything has changed, it will take a while to feel OK again. But you will!

  • Bugs
    Bugs Member Posts: 1,719
    edited December 2009

    You've been on the go since your diagnosis. Appts, chemo, side effects from chemo, then radiation every day then........wait..now an appt in 3 months?  You have been so busy with the physical aspect of this disease that now your mind is saying "ok, my turn" and all these feelings come to the surface.   I was super depressed for around 3 months after treatment.  So totally surprised me and didn't find out it was normal until I came here with a simular post.

    It will ease...slowly but surely.  Don't be too proud to ask for meds to help you through it.  I was just about to ask my GP for something when I noticed it improving.

    YOU ARE TOTALLY NORMAL. : D

  • apple
    apple Member Posts: 7,799
    edited December 2009

    i'll just congratulations again..

    i thought it a wonderful milestone.. not having to go to the doctor all the time.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    lexislove, KerryMac, Weesa, Apple,Bugs, Azkim, you are all so awesome with your support and encouragement.  I love all of you girls.  Today is another day and I woke up more positive and did something proactive to fight this bitch beast inside.  My Arimidex is ready to be picked up at the pharmacy, and this morning Instead of juicing, I through some veggie (yams & spinach) and fruit (cranberries, apples,and grapes ) into a blender and pulverized them into a smoothie,. Then I'm going to cook up some steal cut oats.  Get this tired over treated body back in shape.  Maybe I'll take Bruno, my jeuvenile delinquent 10 mounth Great Dane Pup for a walk on the beach.  Thanks all for your wonderful words.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    lexislove, KerryMac, Weesa, Apple,Bugs, Azkim, you are all so awesome with your support and encouragement.  I love all of you girls.  Today is another day and I woke up more positive and did something proactive to fight this bitch beast inside.  My Arimidex is ready to be picked up at the pharmacy, and this morning Instead of juicing, I through some veggie (yams & spinach) and fruit (cranberries, apples,and grapes ) into a blender and pulverized them into a smoothie,. Then I'm going to cook up some steal cut oats.  Get this tired over treated body back in shape.  Maybe I'll take Bruno, my jeuvenile delinquent 10 mounth Great Dane Pup for a walk on the beach.  Thanks all for your wonderful words.

  • Pure
    Pure Member Posts: 1,796
    edited December 2009

    Girl go live your life-I bet there is close to a 90% chance your done with this disease. Start the healing process! Deal with your emotions so cancer doesn't take much more from you. Get it out and get on with it.

    I know as soon as I am done I will go on a yoga retreat.

  • diana50
    diana50 Member Posts: 2,134
    edited December 2009

    dear shana

    i want to "ditto" what everyone else had said.  especially, give your self some time to get your "feet on the ground"  and allow your body to heal from chemo and rads.  the arimidex will work for you....you are still in treatment as you take your little pill.  i always felt secure while i was on the arimidex...thinking..wow...another good treatment for my cancer that lasts for 5 years..or longer.  in another 5 years they will have more information on these treatments...which is a good thing for us.

    something else i did after i finished the rads and chemo.  i took "stock" in my life prior to being diagnosed and realized that there were a few things for me to "think" about and maybe change.  yes, i was different from going through all of this cancer business.  so, while i was healing...i decided to think about any changes i wanted to make in "how i was doing my life" prior to cancer diagnoses.

    a few things i realized:  1. i was working way too much and not nurturing my personal relationships. 2. i wasn't as emphathic to others as i could be. 3. i didn't exactly take 'excellent" care of myself all the time. 4. i took a lot for "granted" in my life...and 5. i seemed to always be in a hurry. 

    so, i set some goals for myself...not to be realized all at once but to begin working on . i won;t go into all my goals i set because it is too lengthy...but now, after 7 and half years...i have actually changed things...and i think have become a different person in how i do life and how i am in life.

    i think "now what" is such a good question you have raised.  i find myself still asking myself "now what" as i continue to move forward. i think it is a good thing.

    you will follow up with your doctor...there will be days where you will still feel that "cancer" anxiety..you can always go in and see your doctor..and will figure our your own way of dealing with this.  you have done great and your postings and questions are just so great to read....and gives me....and all of us things to think about. 

     let your body heal.  i finished my rads back in oct 2002.  i was growing hair...and allowing my body to heal over the Holidays...just like you.  i let people know..who were my "peeps"  that i was healing....and would be for awhile.  i educated my peeps. lol  i was happy to have  my tastebuds working for me...and that i wasn't spending my days at the rad place or getting a 'white blood cell" shot. 

    so, hang in there. one day at at time. that is one thing i have gotten really good at; i have slowed down and have learned to "focus" on one day at a time...and just "being" and enjoying each day.

    hang in there./ Hugs

    diana50

  • lexislove
    lexislove Member Posts: 2,645
    edited December 2009

    shana,

    Im so glad your feeling better. Today, is a new day. No appointments, no rushing, no radiation. Celebrate!!!

    You get to do whatever you want! Go to the beach with your dog (I wish I had one :( ) Enjoy the air...breathe. Stop and buy youself a lil somethin somethin. I found retail therapy to be real helpful...lol.

    We are here when ever you need us! Kiss

  • jenn3
    jenn3 Member Posts: 3,316
    edited December 2009

     I know when I reach the point where you are (which is soon) I'll be having the same feelings - as they are starting to creep up now as I near my completion date. 

    Glad you're feeling better today - a good walk on the beach with your "little" baby I'm sure will be just the thing to bring continued smiles........................

  • maltomlin
    maltomlin Member Posts: 343
    edited December 2009
    I'm not taking anything away from those with secondaries as I may join them at some point in the future.

    BUT today 18 months after dx, 12 months after finishing chemo, 9 months after rads, my surgeon has told me that he he doesn't want to see me for 12 months!

    A year ago I was in a very dark place and really didn't think I'd see another Christmas (Grade 3 + 3 lymph nodes involved). I'm not stupid and know that a recurrence can come at any time, but decided that in the meantime I can enjoy life!

    I've taken early retirement (from a job I loved and had done for 28 years) and have really started to enjoy life. I don't suffer fools gladly and have 'disposed' of those who don't care about me.

    Result? I'm really enjoying life. Making the most of every day. OK my energy levels aren't what they were but last week I was snorkelling in the Red Sea!

    So those of you in the early days, waiting for your results, waiting for your treatment plan, please know that life goes on and does get better.

    Mal x

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