I SHOULD BE HAPPY, BUT I'M NOT
This week I will only have 2 rad visits left then I'm done with the Rad Onc.. I know Ishould be so glad it's over, but I am scared. I'm being turned loose with all the fear and what ifs now that treatment will be over. I've embraced this whole journey, every horrible aspect of it. Now I feel like everyone will look at me like " oh she's fixed now, she's cured" Today I feel like I was run over by a truck, like I did with Chemo. I feel burned under my armpit and down my neck and I feel exhausted. What if this feeling keeps lasting a few more weeks. Will my family and fiends think I'm just milking it now because I should be "cured" ? I have an appt with my onc next week for a zometa infusion, and I'm really nervous about that too. I have such horrible pain in my lower back and left hip area, so scared it's mets..... I'm a real mess tonight.
Comments
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((((((((((Hugs Shanagirl))))))))))))))) I'm so sorry you're having a tough time!!!!! I remember when my rads were ending I had the same thought. But I am still so bombarded with "How are you feeling...how are you doing...you look well, etc" comments, that I guess I didnt have to worry. I remember I decided I would milk it cuz I deserved it after all the crap I had to go through.
And all the crap you have had to go through...and everyone else here on this site, right? But I didnt really need to because I do have good people around me which is a blessing. Hopefully, you're family and friends will show all the love and care that you deserve and need and have every right to receive, even if treatments are done!
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shana,
It will take a few weeks before the rad exhaustion is gone. It took me about 10 days, but I was 30.
Finishing active treatment (surgery/chemo/rads) is a scary time." Thats it all done, see you in 3 months." Is what my onc said. I freaked. But, it is just time. Now, with my checks its like," oh ya my check up."
You will most likely review all that you have gone through in the last year. Emotions will come up. Anger,sadness, fear...where the ones I felt. Its all normal, and we have all gone through it.
Don't feel like you are doing nothing. You will be taking an anti hormone wich is the most important for us ER+ girls. AND...Zometa!
My advice...try not to look back too much...just keep movin forward!! Try to do something special for yourself. Facial, dinner with friends...mega shopping trip. You deserve it.
Congrats on finishing!!
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I posted something very similar (many of us have) right after finishing rads last feb. It takes time to build your confidence back but you are not doing nothing- antihormonals, zometa, exercise, vitamin d.
as far as feeling better - it does take a few weeks but you will feel better. Be good to yourself.
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shana
i really get what you are saying. first of all, just because you have finished rads doesn't mean you feel finished with cancer. you have finished the treatments; chemo and rads. your body will have to heal; yes, i remember the burns and the feelings left over from rads. it will take awhile for your chest area to really heal up. it is all so hard. i also think finishing up leaves us with " yikes...i have been battling for my life and now i am finished with doctor?" actually, you aren't finished...and you will have followup visits and you can always call and go in when you need to. feeling run over by a truck is typical; just because you are finishing up doesn;t mean your body...after chemo and rads...recognizes that. psychologically and emotionally you aren;'t finished. it takes awhile to heal. i think what helped me deal with family and friends....after i fisnished was to say...."well,that toxic treatment takes awhile for your body to recover" and really, that is all you have to say. people would say.." you look fantastic:" and i really hated that because i still felt like shit...and part of the thing i did was try to educate people about what i went through. most people have no idea of what treatment is like; so...i tried to educate them.
you will feel better. your burns will heal. it takes some time. you don't need to be anywhere else but where you are right now. talk to us. we are here. hang in there. ((((hugs))))
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Shana - I had a sore back during rads and I think that the board they had me laying on might have had something to do with it. Yes, it totally freaked me out. One day, when I was leaving rads, I ran into my medical oncologist on the street. I took that as a sign to have confidence in my medical team. I am 3 months out of rads but still working at getting my energy back. I am not ill; just extremely fatigued. Every ache in my body worries me. I saw a psychiatrist last week and he said a couple of things that made sense. He said that people usually do better with handling cancer fears over time. Reasoning is that when you repeatedly get presented with the same fear you develop a bit of a resistance to it. Used the scarry movie example. ie the 1st time you watch the scarry movie it is extremely scarry; 2nd time not so much, 3rd time even less. Hope this make some sense to you. These are tough times. Be gentle on yourself! And, yes, go shopping.
Bev
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And who says you should be happy anyway? When soldiers come back from war many are relieved to be home but few come home unscathed and "happy". It takes awhile to relearn how to live in the every day world
Go easy on yourself!
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Shanna - some excellent points here. I can only further add to what has been already said - that what you are feeling is normal, and again, good old Father Time will help some.
I think there is a sort of "let down" as you have been in fighting mode for months and months, and then poof, all the active stuff is done with, you get to take a pill a day and be on your way.
Give yourself a bit of time to regroup, and get yourself back on your feet. For me, having a little vacation helped. Try and do things that make you happy.
I finished Rads in July, and I have noticed that only in the past few weeks have I been truly feeling like "myself" again. Like that "inside" happy. I am enjoying my kids and my husband much more than I have done in the last year. I don't think about cancer all the time. I am feeling physically and mentally strong.
It doesn't happen overnight, but it will happen.
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You women are all so awesome. I love you stage 3ers. Each and everyone here on this board I feel so comfortable with. You've all said things to me that have really helped. (((((((((all of you))))) I thought I was sailing thru rads all these weeks but this weekend I felt like I did when I took my Neulasta shots after chemo. Couldn't get out of bed, and the burn in my armpit. Well I go for my next to last appt today at 10:30 so I will lay there on that table and meditate on everything you have all said to me., Again I love all you ladies.
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Yup. You are normal.
It is going to take some time to recover, physically and emotionally, from cancer treatment.
It is a hard road.
Try to get some rest and get well soon.
tl
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As usual, it sounds like you have received some wonderful advice from the women on the thread. And by sharing your feelings your are also helping the women who haven't reached the end of treatment.
You have provided a reality check for me about radiation.
I do think you can compare your situation to Post Traumatic Stress Syndrome. You have been focusing all your energy on the fight of your life and all the accumulated emotions are only released when your body feels it is safe to do so. I heard many women say that the period after intense treatment is one of the most difficult. But it will get better.
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is tomorrow your last rads?
think of the time you'll have. you've survived cancer treatment.. wait till you really start feeling better.. it's almost magical how your energy returns and you don't have to go to the stupid cancer center every day.
maybe they'll give a certificate (i threw mine in the trash).
i hope you smile a big smile today and think of tomorrow.
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I'm so happy to read this thread!
I'm done with rad last Feb and my burn wound is still healing but my exchange surgery- permanent implant was done Nov. 16. Emotionally I'm not okay. I don't want to talk to people, I don't want to talk about my implants, I'm so scared to face the world again.
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Right now, I think you're raw, Angel.
It is going to take some time...both physical and emotional healing...for you to even remotely feel like "dealing" with people.
It is possible that some grief counseling would help.
Coping with the losses takes some time. Try to be kind to yourself...you've been through alot.
xx
tl
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Thank you TammyLou
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Shanagirl-So far I have had panic attacks about mets in my rear, mets in my neck, mets in my brain, mets in my back, and mets in my knee. I went running in tears to my oncologist every time only to have my fears become unfounded. I know a lot of my pains have been needlessly amplified by my fear. For a while I wondered if I was in a severe depression and wondered if life would ever be joyful without so much fear. I watched the boards and heard so many other women having the exact same fears and reactions and now...slowly... I have begun to fear less and not over-react to each pain. This is a long process and the end of rads is just the beginning of your full recovery and getting back to the real world. It took a long time to get here, give yourself twice as much time to emotionally heal.
My heart goes out to you and I wish you all the best. Stay confident!
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