Help. So scared!
Hi everyone,
I am new here, been reading posts for a few days.
I had a masectomy and all lymph glands removed (right side) 3 weeks ago. last week, saw my Consultant and he said the news was not the best! He said it was a large aggressive stage 3 and that 11 out of the 17 total lymphs were cancerous!!!!
I am so scared!!! Have lost lots of weight and found telling my family so hard. I lost my husband nearly 2 years ago and have had other health problems. I have a good friend staying with me since i came out of hosptal and she helps me with the tears i seem to cry most mornings when it dawns on me. Consultant is referring me to an oncologist and says I must have chemo for 16 sessions spaced 3 weeks apart, followed by radiotherapy. I just do not feel strong enough physically to cope with all this, and the fact that 11 out of 17 glands were affected makes me wonder if there is any hope at all. i shall also (he said) be having a CT scan (the tunnel). I try so hard to be strong and positive but this is so hard and so scarey...not like a broken leg that heals eventually. Would be grateful to know that the lymph glands results are not desperately fatal???? thank you for this site which I found when I Googled Stage 3 breast cancer survivors... I hope there are many.
Love and God bless to you all
Comments
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((((Merryheart)))) - I cannot provide much information for you my dear, but I can tell you that I am so very sorry! You have been dealing with so much lately! Hugs are going out to you!!!!!!!
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Merry-- this is the worst part that you are going through-- BELIEVE me, once you see your oncologist and get a treatment plan you will feel stronger. Chemo is awful BUT totally doable and the chances are extremely good that it will kick your cancer's butt. There are many of us on this board who had lots of lymph involvement and are doing just fine now. There is plenty of hope!
Christine
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(((MerryHeart)))
I also had a mastectomy with 9 out of 19 positive lymph nodes. I am now doing chemo and my Onc says we are shooting for CURE not just control. Yeah, our situation could be better, but I do not feel like I have been given a death sentence. The next year or so is going to be tough but we can get through it.
I work at a nursing home and see many women in their 80s who are survivors of breast cancer. I have to believe that our treatment options are improving every day and that we will be OK.
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Merry,
Wow, you have been through so much the last couple of years! I know this just feels like too much, because we all have been there. But many women do get cured of Stage III breast cancer-why can't you be one of them? Surround yourself with good friends, build up your support team, and work with your oncologist on your treatment plan. You can get through this. Try not to read too much on these boards and don't look at the statistics. Whatever gives you joy and inspiration-try to spend a little time on that too. We are here for you!
Hugs
Bobbie
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go to the stage 3 forum-tons of survivors. You can be cured! Lots of women many many years out.
I was where you are 4 months ago-I suggest getting some xanax or some meds to help you cope.
Getting this diagnosis is like a death so expect to go through stages of mourning-but know in the end you will be ok and can be cured!
Do you know your er status?
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Merry - just want to add my welcome too. This really is the hardest part right now. I know how shocking it all seems. And the prospect of chemo is overwhelming. Try not to think too far ahead of yourself, just take it day by day. It seems that at the beginning there is so much ahead of you. I was right where you are this time last year, but, I got through it, and so will you!
It will get better. There are so many Stage 3 women doing so well, many, many years out from Diagnosis. I have great hope for all of us - this is absolutely NOT a death sentence.
Hang in there!
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Merry
we are here for you. just ask all the qustions you want; many many women post here. as kerry said; take it one step at a time. try to not get too far ahead of yourself; surgery is rough..your body has to heal...and then you begin the other treatments. look at each stage as Treatment...getting rid of the cancer cells...clearing your body...and then the healing. the treatment for stage 3 is very very good; lots of options and by the time you finish you will have had the "full monty" which is a good thing. try to rest...very important...pace yourself. remember; you are alive right now....and in treatment. i joined a support group at my place of treatment and met some women who are still my breast buddies to this day. it was helpful to talk with folks who had been in treatment or were going through what i was going through.
i will be hitting the 8 year mark in feb....doing well at this end. this is not an easy trip; but necessary to go through all the stuff they put us through. be sure you like your doctors..and medical team; as they will be with you a long time. ask questiosn when you don't understand something...write to us on this forum and lots of women will answer your questions.
hang in and gentle hugs
diana50
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Thank you all so much for your support and encouragement. (I am not used to discussion boards so hope I am doing it right)
I was not able to face looking at my wound and cried so much at the loss of my breast...this morning I took a little peek..its all so sad. I am getting out a bit more now and can now drive again as my arm/shoulder is getting more mobile. It all feels like a bad dream and how I wish I could just wake up out of it, but know I have to face the reality of it, day by day, hour by hour. I find the mornings are awful...the "what ifs" start as soon as I awaken.
No, I do not know about ER..status as yet. So far, have not had my appointment to see oncologist. Need to build up my energy and strength. it is a great help to be able to write all this and have caring people to support me...thank you all so much.
Love xxx.
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Merry,
I'm sorry for the dx but I'm glad you reached out for support. These women are great!
I echo what everyone else has said. I think the hardest part is waiting for all the testing and scanning to be done. Getting a CT scan is standard. And there could be more scans such as a bone scan or a PET. I have found them to be reassuring to help the onc (and me!) to understand my dx so we know how to fight it. These tests have validated that everything is in the breast and lymph nodes.
Be very selective in what you read. There is a lot of misinformation on the net and a lot of information that just isn't going to apply to you. Once I had my dx I have stayed focus on my particular cancer. Other than this site I relied on the American Cancer Society and National Cancer Institue for quality information.
I'm in chemo now. Sugery comes next for me but, as suggested in the other posts, I'm not worried about it. It will be fine. We do this one step at a time.
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Merry - Sorry you are going through this, but I echo what was said above you will find a lot of support here. Take it one day at a time and remember this is all doable.
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Lots of good advice here from wonderful women! I just want to say that we are quite a few "multi-node" women here and it is always inspiring to see how many are several years out and doing great. It really does get better. I was diagnosed in July so I am a few months ahead of you. Everything so far for me has been better than I've been afraid of. We all get through it and you will too.
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Hi Merry.
I am so glad you found us. There is a wealth of accurate and up to date information , plus lots of stage III ladies doing great here
I was were you are over four yrs ago. I had a very aggresive tumor, 12 positive nodes, no clear surgical margins, vascular involvment, blah, blah blah. It rocked me to the very core. Facing a mastectomy, moving to Florida for chemo , surgeries, rads, ( and having to leave behind my " life and husband) I was beyond a basket case. You will get through this. it is a hard journey, but doable. Take one day at a time, do not search the web( lots of mis information and old irrelevant stats) Surround yourself ONLY with positive people. Take good care of yourself. Come here often for support. We've all been there. If you feel anxious, get on some Xanax. If you have trouble sleeping, getsome Rx for that too. You need sleep ,rest, and lots of TLC.
You will also feel better once you have a tx plan and get started.
I am back home , healthy, " reconstructed" ,have hair, started my own company, and look forward to spending lots and lots of happy days with my family and friends and baby grand daughter . My dark days are now a memory.
You will get there too.
God Bless,
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Merry,
I'm so sorry you had to join us. These ladies have said it all. You CAN get through this one day at a time. Sometimes, one hour at a time. You will feel much more stable when you have your treatment plan in place. It's hard, this part. Feeling like you have no control over things. This stage III forum was my lifeline during treatment.
I'm almost 4 years out now and life is great!
Bugs
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Dear Merry, I have read so many postings and talked to different people, they are so many survivors living beautiful life. There is no reason that you won't be in the same group, search knowledge to be your power and God will guild you on the right path, he will give you the strength and peace. Hugs, karen
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I was diagnosed in April of this year. I was so terrified like you are. I still have days where I need to come on here and ask questions and seek reassurance. I asked for an anxiety med right away from my regular doctor. I have learned so much from this site from all of the GREAT people I have met here. I went through 4 AC, 12 Taxol/herceptin, and will have herceptin for 1 year and have done 28 of 33 radiations. I was so worried about so much that did not happen. I 100% know what you mean about not wanting to look at the mastectomy site. It took me a VERY long time. Trust in your doctor(s) and ask tons of questions and do tons of research and asking questions here, and hang in there!
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Hi Merry, I just am adding my voice to the many encouraging voices here. You are among people who have been there and understand. That feeling you mentioned, about it seeming like a bad dream, kind of unreal, is very common. Hold on to hope. It's not false hope, either. Listen to the wonderful women, here, they know!
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You Can do this Merry!
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Just celebrating my sixth anniversary this month! Multifocal cancer, 5 out of 13 nodes with extra capsular extension and perineural invasion. I feel FABULOUS! My onc told me "we are going for a cure--you are fit and strong." I was 65 and there were times during treatment when I felt I might not be as strong and fit as he thought I was. I made it through TAC--6 treatments 3 weeks apart, 30 rads and 5 years of Arimidex. The first 6 months were horrible, the next 3 were O.K., the last 5 years have been the best of my life. Hunker down, do whatever it takes and enjoy the rest of your life which will probably be a long one.
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I echo these ladies. Throw everything at it. Be kind to yourself and your body. Then get back to life and live. I have never felt better than I do now.
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I have this forum under my favorites. I don't visit the other sites very often because I have learned to really protect myself from what I read. Don't wallow in statistics...they just don't matter because you are not a statistic. I think the women that post here are an amazing group and please feel free to post all your feelings and fears. I'm willing to bet you will be hard pressed to have a unique experience because we have all been through the same fears.
One thing I heard and that makes a lot of sense...we stage IIIer's get the kitchen sink thrown at us. My oncology nurse actually said that once the cancer has been surgically removed and we have been found cancer free we are all in the same boat regardless of stage.
Statistics stink so don't let your node count matter as much as the fact that they have been removed along with the cancer!
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Merry,
I know this is a very difficult time, but you WILL get through it. There is light at the end of the tunnel! I was there two years ago and now that I have completed my treatment, I do not visit this board as much as I use to. However, it was great to have all these women to talk to and I will never forget how supportive everyone was. I tell myself everyday that there are many stage III survivors and I am gonna be one of them! And you will too! Hang in there ... it gets better I promise!
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Merry
Welcome to the club that nobody wants to join! It is tough, very tough in the beginning. Getting your d/x, surgery, chemo, rads, etc. It is tough, feels like a bomb was thrown at you.
You are at the hardest part of this whole thing right now. Waiting is the worst when it comes to finding out your treatment plan. Once you pathology comes back with your hormone status, you will feel better. When your onc gives you the date as to when you are starting chemo, you will then find yourself in the fighting mode.
I was d/x this past January. Like you, I have lots of nodes positive - 14. I was scared out of my mind when my doctor gave me the news. It's scary - no doubt about it. I came to these boards for support and for answers but I got more than that. I got to meet women from all over the world who I consider my friends. Your "sistahs" will be here for you when you needs us. Don't be afraid to ask any questions or to vent.
You will get throught this Merry. One foot in front of the other. It is a hard road to go down on, but in the end, it is worth it.
Hang tight!
(((HUGS)))
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Hang around Merry.
there are many of us who are successfully battling and are now NED (no evidence of disease)... oh yeah, and with hair!
A big hug to you and know that chemo is really quite doable. I was able to sail thru.. just as if things were going along as normal.. not to brag, just an example.
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Merry, I see you have "met" many of us stage 3'ers in the past couple of days. Many of us are further along on the long scary journey you have just started. and we can offer you some real hope. My own diagnosis was over seven years ago, and I bet your pathology will turn out to be very similar to mine. Stick with us, we are a knowledgeable, hopeful bunch of women. You might find your oncologist is not very optimistic--many of us have found that to be the case--but we are, and we are living proof it pays to be optimistic. As Kerry Mac once wrote, "Yep, nobody ever dropped dead from breast cancer."
Looking forward to seeing your journey evolve and seeing you in a far better place than you are right now. (I remember those times well...)
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Girls...thank you thankyou thankyou for your wonderful replies...you are all so amazing! Please know that you are helping very much with your positive outlooks and good reports.
I feel really weak and scared this morning...the battle is in the mind!
I know i have to have a positive attitude, but its hard to find it right now. I am getting out a bit more and now my arm is more mobile, I can drive again. Walked along the beach yesterday wondering whether I would be walking it this time next year....still crying a lot with such a sadness. I believe in God, I speak out His Words, I pray yet I feel in such a lonely dark valley...this surely is what is meant by the shadow of the valley of death. But, these dark thoughts do pass (thank God). I am due to see my own GP this afternoon and will share what I am feeling. I am not sure of what questions I should be asking right now. One is about my apprehension of when I begin the chemo. I live alone (my sons live away...one in Australia) and my friend who is staying with me and helping after my op won`t be able to be with me after the chemo starts and from what I have heard/read, I am wondering if I can cope on my own? What do you think?
Anyway, thank you each and every one for your loving help. may you be richly blessed. BTW...I forgot to add that the consultant told me there was a 1 inch clear margin which I assume is good???
Love and hugs xxxx
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Merry ~ I'm going to "bump" (move to the top of the first page) a thread called "Success Stories". When I have those downer days I always read this. We all need reminders that many have survived and thrived for years and SO CAN WE!
Wishing you the very best.
Nico
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An inch is a good thing. It's one day at a time and good news will start coming.
Susan
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Merry - don't feel you need to "be positive" either. I hated people telling me that when i was first diagnosed - you just can't be yet. But, keep moving forward, and the hope will come.
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Merry-where youa re now is the worst spot. Ask your doc about a therapist they can recommend. And as you go through this ask them for your er and pr status as well as HR status.
Also, if you call the American Cancer Society they can pair you up with someone in your stage as well support groups. I have a very similar diagnosis to you-and I remember when I was firs diagnosed thinking I would rather die in a car accident. I was so depressed and praying got me nowhere-I could not here nor feel God. I do now though and I am getting through it. I am also prego so I can do it-you can to. I am sorry you don't have someone-you will need someone. Do you belong to a church? You need to get support from neighbors or friends and you will need a chemo partner atleast for the first few sessions.
Always ask you doc for the positives. And make sure you surround yourself with postivie people. When you can't pay ask others to do so for you.
You can do this.... We are all here for you....
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Merry - Sometimes being positive is the last thing you want or want to hear from someone, it's okay to be angry, confused, upset and sad. It's easier for other people if they see us being positive - but you need to work through these emotions. As you may have seen from reading different post there are days that some of the women, myself included are feeling on top of the world and days when it's hard to see past the gloom, but getting support from these boards, church or a support group with people who understand will help.
You CAN do this - you will be walking along the beach next year thinking this wasn't as hard as you thought......................
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