Starting chemo Sept 05

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  • Calico
    Calico Member Posts: 1,108
    edited November 2009

    Gosh Tina,

    lots of prayers are coming for Naomi!!!

    Is a dermatologist 'good enough'? I always thought breast surgeon is better for a breast (even tissue only) biopsy.

    Cannot imagine what she is going through, or you Tina!

    I hate Cancer!!

    Liezel,

    I am so very sorry to hear of your loss! It is not easy at all at any time.

    I lost a baby girl at 19.5 weeks due to placenta deficiancy (sp?)

    Give your body and heart some time to heal, it might make it easier to conceive again.

    Susan,

    glad kiddo likes her job. Sorry about your situation, DH is on the brink of losing his job, he already went part time and supplemented with overtime hours to make it full time.

    I have an onc visit coming up and like clock work everything starts hurting ;) you know how it goes....sleepless too....grrrr.....and I hate Thanksgiving...will forever taste like Taxol!!!

    We had last minute plan changes and will go to a friends house. I might try cranberries with orange and brown sugar, read a nice receipe somewhere...need to find it.

  • txred9876
    txred9876 Member Posts: 392
    edited November 2009

    Keep the prayers coming.....whatever it is it appears to be shrinking on its own..... without any medication. Prayers can make wonderful things happen. She said it has shrunk from the size of a quarter to a little bigger then a dime.

    I am cautiously optomistic but have heard of strange things with inflammatory.(where it has come and gone then blows up big time).

     Tina

  • Calico
    Calico Member Posts: 1,108
    edited November 2009

    Tina,

    that's great news!!!!

    More prayers are coming Naomi's way!!!

  • foxxf
    foxxf Member Posts: 171
    edited November 2009

    Hi all,

     Back from my adventure in Sydney and doing o.k.

    Had my Op last Thurs all went well, they got nearly 3 liters out when they fully drained it. (wow) Ended up in ICU that night, apparently the pain meds affected me a little to well and I wasn't breathing properly. (falling asleep and forgetting to breathe) so they hugely reduced the dose and it all came good after that.

     From all accounts in the forums the procedure was to be a very painful one and it was't till it started to heal a little that it hurt like a son of a b***h. But the Drugs are my friends and have been helping me through it, they are soooo nice.....lol...  My feet are swollen and have a bit of a cough (also to be expected) but getting there slowly.

    While not all better yet I can tell already that when healed it should make a big difference. Yeah! Over all at this stage glad to have it done.

     Saw Onc yesterday and am starting back on chemo next Friday on a new drug (for me) Xeloda. haven't done my research yet but will let you know how i get on.

    thanks for all the wishes

    love

    Nicole

  • sholroyd
    sholroyd Member Posts: 288
    edited November 2009

    Hi all from rainy, cold Amington in Tamworth (UK) - matches my mood, especially when I read the posts.   Leizel, I am so so sorry for you; from your post you seem to have worked this out in your head and seem to be dealing with your loss, well on the surface you seem to be - remember you can rant and rave however much you like on this board - we hear you.

    Tina, I feel things will be OK for Naomi, really I do - can understand your worry for her though.  I can't get my head round all those miles you do on the bike - well done you - how's the weight loss doing?

    Susan, I am sorry you are getting dragged down with this dam recession - you are doing very clever stuff, what is this new programming language you are learning?  I tried this once, way above my head!    Glad your daughter is happy and well - I also feel my son and daughter come to visit the washing machine, oh and the fridge!

    Calico, I can relate to sleep problems - never seem to have got my sleep pattern back - very frustrating at times - I am one who can't manage so well on little sleep.

    The one post that seemed positive was from you Nicole, hopefully things will continue to improve for you and this new drug will kick ass some.   Thinking of you often.  Hi Leanne, how's it going?

    Well I am trying to get into the Christmas mood - the thought of writing Christmas cards and wrapping presents (once bought!!) is not filling me with Christmas cheer!  Looking forward to New Year in London with hubby.

    Well here's to some positive posts in the future
  • foxxf
    foxxf Member Posts: 171
    edited November 2009

    Leizel,

    Some how I missed your post last time I was on.

    Another thing this F*&%$# thing has taken from us. To say that I am sorry for your loss is not enough please feel our love each time you feel that warm summer sun.

    May the blessing of new life come to you soon....

    Love Nicole

  • foxxf
    foxxf Member Posts: 171
    edited November 2009

    Sorry Sandra No positive post yet!!

  • foxxf
    foxxf Member Posts: 171
    edited November 2009

    Bad news

     Saw Onc today, the tests I have had in-between chemo cycles have shown a change in the behaviour of the cancer.

    The abraxane has stopped working with a cell count drop of just 3 points this time. During the 3 weeks I have had off to have my lung fixed the lumps in my chest have become noticably bigger.

    The cancer has become more aggressive and is spreading faster.

    Hopefully the Xeloda can contain the spread and slow it down. If not I may have 6 months, any case 2 years is optimistic.

    I have so much to think about and prepare for, thankyou all for being there.

    Love Nicole

  • sholroyd
    sholroyd Member Posts: 288
    edited November 2009

    Nicole, there are no words, not that I can print here anyway - we are here for you.

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited November 2009

    oh damn Nicole. This wasn't the news we were all hoping to hear. There are so many other drugs out there.... maybe they just haven't used the right one yet. --All my thoughts.

    *susan* 

  • foxxf
    foxxf Member Posts: 171
    edited December 2009

    Hi all,

     Well it's only been a short time on Xeloda but I am sure I am feeling a little better.  I even think the lump in my chest has decreased slightly. Nothing anyone else would notice but I notice it....

     We have had a productive session with a councilor and will be telling the kids about the more serious out look for this round of treatments when my Daughter returns from their School excursion to Canberra. (Capital of Australia) We wanted her to enjoy her trip away before we shared the news.

    I have a wonderfully supportive work environment, with my sick leave having been used up long ago the Catholic Education system has decided that I should do what I can and they will pay me on full wages anyway. So even if I only work 1 hour, the full 25 or none at all they are covering my wages till the end of the year. How amazing is that?? 

    I had my first day back in 3 weeks today and did paperwork for 3 hrs then came home and rested. It was great. They are also orgaising that through the super fund income protection insurance I can access a further 6 months wages at 75% pay with no obligation to do even 1 hrs work. 

    you never know where your blessings are going to come from.

    Love to you all

    Nicole

  • Liezel
    Liezel Member Posts: 192
    edited December 2009

    Dearest Nicole,

    My heart is breaking for you.....  I pray for you every day and will continue to do so.  I truly hope that the Xeloda will do the trick.  Good luck with the task of telling your kids...  It is going to be heart wrenching and I hope that you all will continue with the counselling afterwards. 

    I am so thankfull for your work that is so supportive.  You are right, our blessings sometimes come from unexpected places....  A question on your medical expenses - am I correct that Australia covers all medical expenses or do you need insurance?  All my best to you dear friend.  You have been such a huge support for me and all of us.....

    News from my side.  I was hoping to graduate myself to 1 x year, but onc phoned to ask why I have not been for my 6 month check up.  So I am going on 09 Dec.  And the nerves start....  I am generally well.  Just sad this week.  A friend passed of metastatic ovarian cancer yesterday (7 weeks from diagnosis), and another friend's mom who was dx with me went into hospice care.  And now with Nicole's news - needless to say - I am pissed off big time at this horrid beast!!!!

    I hope you are all well and looking after yourselves.  Moratorium on any bad news for the rest of the year now!!

  • leannem
    leannem Member Posts: 137
    edited December 2009

    Hello all

    Thanks firstly to Liezel for making sure I check in via her message on facebook. While I think of you all often I do not spend much time on here as it feels I am juggling the kids, chemo etc non stop!

    I am so upset/cranky/devastated about the latest developments in your health Nicole and am desperately hoping the Xeloda does wonders for you. There are a few women who I had previously met on ysc.org who had great results on it and I am praying it is the same for you. I am so pleased to hear your employer is being so fantastic. You hear so many negative stories about employers dealing with ill employees I am rapt they are doing everything they can to help. Please remember if you ever want to call or email me feel free. Even if it is rant and rave, cry or talk about the weather!

    Liezel So sorry about the loss of your baby and am glad you are working through it the best you can. Did you say if you were trying again? Sorry for the loss of your friend. Cancer just takes way too many and too much.

    Tina any more news on your daughter? Here's to hoping it is just a pesky rash! :-) But seriously, please keep us posted. 

     Susan and Sandra- A massive hello from down under and I hope your Christmas preparations are ticking along nicely!

    I will be having my 4th chemo on Friday. I feel dreadful that night and all day Saturday/Sunday and tend to start returning to normal Monday with my best being Wednesday and Thursday. It is totally exhausting not having anyone to help with the kids and I feel as though I have a heap of balls in the air that I am juggling and if I drop just one... But all in all I am feeling okay. I had all my hair cut off today which was weird. It was getting SO long :-(

    I will be sure to try and check in more regularly

    Love to you all

    xxx 

  • leannem
    leannem Member Posts: 137
    edited December 2009

    Hello all

    Thanks firstly to Liezel for making sure I check in via her message on facebook. While I think of you all often I do not spend much time on here as it feels I am juggling the kids, chemo etc non stop!

    I am so upset/cranky/devastated about the latest developments in your health Nicole and am desperately hoping the Xeloda does wonders for you. There are a few women who I had previously met on ysc.org who had great results on it and I am praying it is the same for you. I am so pleased to hear your employer is being so fantastic. You hear so many negative stories about employers dealing with ill employees I am rapt they are doing everything they can to help. Please remember if you ever want to call or email me feel free. Even if it is rant and rave, cry or talk about the weather!

    Liezel So sorry about the loss of your baby and am glad you are working through it the best you can. Did you say if you were trying again? Sorry for the loss of your friend. Cancer just takes way too many and too much.

    Tina any more news on your daughter? Here's to hoping it is just a pesky rash! :-) But seriously, please keep us posted. 

     Susan and Sandra- A massive hello from down under and I hope your Christmas preparations are ticking along nicely!

    I will be having my 4th chemo on Friday. I feel dreadful that night and all day Saturday/Sunday and tend to start returning to normal Monday with my best being Wednesday and Thursday. It is totally exhausting not having anyone to help with the kids and I feel as though I have a heap of balls in the air that I am juggling and if I drop just one... But all in all I am feeling okay. I had all my hair cut off today which was weird. It was getting SO long :-(

    I will be sure to try and check in more regularly

    Love to you all

    xxx 

  • Pegk
    Pegk Member Posts: 389
    edited December 2009

    Greetings from New York

    I, too, thank you Liezel for encouraging me to check in at BC.org. I've been trying to keep BC at the bottom of my concerns but it breaks my heart to know that it is still rearing its ugly head all over.

    Nicole, I'm praying for you. Miracles do happen and Leanne's words are encouraging. I'm glad to see that you have the support of your employer.

    Liezel, I'm so sorry to hear your news. You'll get through your next check up fine. I'm still on 6 mo visits as well. Next one in May.

    Leanne, I hope your treatments aren't too difficult. I enjoy seeing how your boys have grown, but I can tell they are a handful.

    Tina, I hope there's good news from Naomi. At least you know that therash will be investigated fully and not ignored. You've done a great job educating women over the last couple of years.

    Anybody up for a September Sister candle vigil for some prayer and positive energy to send around the world. Looking at the calender I was thinking the weekend of Dec. 19th and 20th right before the solstice. From what I remember: Saturday afternoon in Colorado and Texas, dusk in Boston and NY, night in UK and South Africa and Sunday morning in Australia.

    Love, Peggy 

  • Calico
    Calico Member Posts: 1,108
    edited December 2009

    Peggy,

    good to see you, I am in for the prayer vigil!!!!

    Leann,

    sorry to see that you are going through this alone!!!

    Liezel,

    thinking of you when you go to see your onc, I am suppose to go to but thinking of postponing....so scary!!!

    Nicole,

    I thought I posted yesterday, must not have gone through.

    I was wondering about platinum based like Carboplatin or Ixempra, I heard Xeloda is great in a Combo!!! Praying for you!!!!

    Tina,

    how is your daughter???

    Hope everyone else out there is okay, time to check in again, it is December!

    Not much new here otherwise.

    Love to all of you!!

  • sholroyd
    sholroyd Member Posts: 288
    edited December 2009

    I am up for the September Sister candle vigil - so strong lost time.

  • marg1
    marg1 Member Posts: 73
    edited December 2009

    Hello Lovely Ladies

    I am sorry I have been away for so long.  I have spent the last few hours catching up on all the post. Thank you to Liezel for alerting me to check in from facebook.  I am glad I did.  

    Nicole and Leann, sorry to hear about both of you fighting this dreadful disease.  You both are strong women and we must never give up the fight.  My heart aches for both of you and know that I am praying for you.

    Peg - count me in for Dec 19 and 20 for Sept sister candle vigil.

    Tina I hope all is well with your daughter. 

    Sandra - Glad to know that you are well.

    Susan - Hello again.

    As for me, I am well into 4 1/2 years, got nipples 2 weeks ago and will have them tatooed next month.  They sure are perky.  I have lost 42 lbs. Dealing with a cheating husband. Otherwise - managing whatever life has to throw at us. 

    Marg

  • txred9876
    txred9876 Member Posts: 392
    edited December 2009

    I started writing a note several times over the last few weeks but we have been so busy .....

     First off...Naomi's spot is getting smaller but is not gone yet. She sees her doctor soon.

    Nicole - my heart goes out to you.....my special riding partner!! (from the mamma jamma - in fact I still have the piece of paper in my holder on my bike....so you really have been helping me up MANY hills). Here is to strengh....

    I can do all things through him who strengthens me.

    -Philippians 4:13 

    Beloved, I pray that all may go well with you and that you may be in good health, as it goes well with your soul.

    -3 John 2

    And those who know your name put their trust in you,
    for you, O Lord, have not forsaken those who seek you.

    -Psalm 9:10

    Leanne

    Here is something I would like to share with you:

    do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.

    -Philippians 4:6-7 

    I am also up for a candle light vigil.

    Love tina

  • Pegk
    Pegk Member Posts: 389
    edited December 2009

    Beautiful words Tina.

    My holiday news is that my regular job has just about vanished. I'm only working one day this week, so I'm trying to do more free lancing. Mixed blessing. The loss of income hurts, but it's a great way to set priorities. I don't mind not going to a place that was causing stress and it's a good time to have free time.

    You are all in my prayers.

    I'll try to check back more often.

    Love, Peggy 

  • sholroyd
    sholroyd Member Posts: 288
    edited December 2009

    Hey Marg, great to hear from you - hope in amongst your problems (cheating xxxxxx) I hope you are still enjoying (and making money) from your photography?

    Peg - hopefully less income will not be too traumatic and you can start to enjoy Peg time - I would like to stop working (although enjoying it at the moment) but I can't see it happening (unless forced).  Wish me luck for tomorrow evening as I am being ovserved teaching, but you know what!!!!  What the heck - does it matter - there are more important issues as we all know that ticking dam boxes!  I will not be doing anything different except for having to full in 'posh' lesson plans - grhhhhh.

     My candles are ready.

  • Calico
    Calico Member Posts: 1,108
    edited December 2009

    Bumping this up

    are we on for prayers and positive energy? :)

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited December 2009

    Anytime.

    We are expecting tons of snow this weekend. The shovels are ready.

    My Mom has determined that she can no longer manage hosting Christmas. With my Dad's deteriorating mental health, the full time job and life in general, she realized that she simply couldn't manage. So with less than 10 days notice, I am hosting Christmas. I have bought a tree, starting buying the stocking gifts, but can't come up with the dinner menu. What I know is that, she will never host Christmas again, and I will host for the foreseeable future.

    Otherwise, the kid still loves her job! Heck, she has a job. She still visits regularly- in fact, every week she moves in for about 24 hours. She does laundry, enjoys a few meals and tells me all about her life.

    Too tired to write more. Be well, my September sisters....

    *susan* 

  • sholroyd
    sholroyd Member Posts: 288
    edited December 2009

    Sounds great Susan - enjoy the hosting ;-)  LoL

     I will be lighting a candle tonight at 9.00 pm UK time especially for Nicole and Leanne but will also say all our names.

  • Pegk
    Pegk Member Posts: 389
    edited December 2009

    Dateline: New York, Saturday morning

    Susan is right. We're expecting lots of snow moving up the East coast. I've got a candle that I will light later this afternoon, but I am thinking about my September Sisters  already. I cherish the support and encouragement that you've given me through the years and appreciate that you've shared your lives with me in good times and bad.

    I'll check back later.

    Love,

    Peggy 

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited December 2009

    Ack. Candles were all used for Thanksgiving dinner. I will be lighting my oil lamps. [No snow yet.]

  • sholroyd
    sholroyd Member Posts: 288
    edited December 2009

    It is snowing (lightly) here in the UK.

    My Daughter is leaving UK on Boxing Day to travel to Canada - Whistler and Vancouver and then onto Seattle - anyone in any of these areas?  She will be back home after about 3 weeks to earn some more pennies.

    My large white candle is lit and has been burning for a couple of hours now - strong vibes going around the world.

     Meeting up with my two brothers and their families tomorrow - traditional get-together where will pay a visit to our mum and dad's resting place and then meet up for Sunday lunch together in a local pub.

    Speak soon. xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited December 2009

    oil lamp is glowing.

  • Calico
    Calico Member Posts: 1,108
    edited December 2009

    I thought about all of you when I woke up this morning, knowing that we unite mentally.

    I could not be on the computer though due to family gettogether. I am having a candle lit now in peace and time to reflect and sent prayers to all of you!

  • lynellb123
    lynellb123 Member Posts: 69
    edited December 2009

    I haven't been on the site for a while but I will be lighting a candle & saying prayers for all my Septemeber sisters. So sad to hear about so many problems....

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