Are they "Guidelines" or actually "Standard of care?"

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Colette37
Colette37 Member Posts: 387
edited June 2014 in Advocacy

I have cited 2 stories about how Dr. are changing their opinions from being aggressive and stopping cancer when it is early to taking a wait and see approach with breast lumps.  These changes will directly affect the standard of care that normal people will get.  My direct experience is that I specifically asked for a mammogram at age 35 and was denied one...even after pointing out that my mother had breast cancer at a young age.  Now, at 37, I have been fighting for my life.  The cancer was originally IDC...and then after chemo and a 10 cm DCIS was left.  The mammogram showed a 9.5 cm tumor when I was first diagnosed and I have had many Dr. tell me that it would have definitely been seen 2 years ago at age 35 since it takes between 4 and 6+ years to get to the size that it was when it was removed.

Another example is that my Sister in law recently had her first mammogram done at the age of 40.  Well, a lump was found and from what I understand, they told her to wait and look at it again next year for any changes and did not suggest doing a biopsy.

Two totally different states..but the same common underlying response being given...and suspiciously exactly like the USPSTF's standard of care that they want to make permanent.

There may be some of those out there who want to be part of the herd and want to follow it as they go off of the cliff.  I am not one of them.  And I am fighting for all women and girls who are at risk for being ignored with these changes.  I refuse to call them "recommendations" since it is obvious that they go far beyond that.

I read the direct bill and it is far beyond a "health care bill"  I also have looked at the direct web page of the USPSTF and these actions are being implemented with health care.  There may be those who try to support the government and this panel, and it is your right to do.  But it is also my right to show people that there are real life experiences where the USPSTF standards are harming women and there will only be more people who are harmed to come.  If you look at the other standards for detecting cancers across the board is the same resounding theme..fewer routine testing of cancers.

Less routine testing of cancers in groups with the most dangerous kind of cancers = More people dying from cancer and late stage cancer rates.

For those people who are democrats..why is it wrong to stand against a bill that will do so much harm?  It isn't as if most of the women on this forum who are speaking out against this bill are being selfish (I have heard people who are fighting the health care bill called that on here) because 99% of us already HAVE the giant, red "C" on our forehead and do not have to worry about getting diagnosed with it.

Another point to be made:

The "health care" bill in the senate = extreme amount of power to the USPSTF

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Comments

  • ADK
    ADK Member Posts: 2,259
    edited November 2009

    I believe why we democrats are not speaking out against the health care bill is because we don't see the connection that you have made.  I do not agree that health care reform will give the USPSTF excessive power.  I do not agree that these recommendations are the beginning of rationing in the US of A.  I believe that these recommendations are short-sighted and I strongly believe that the release of these recommendations at this time is directly related to the health care debate even though these recommendations are not directly tied to the health care reform bills.  I am only speaking for myself but I hope I answered your question.

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    ADK...It is in the bill starting on page 17.

    I have experianced what a fresh GYN out of college does with these recommendations.  I was 35 and asked for a mammogram because my mother had breast cancer at a young age.  She said that I would need to wait till 40.  Now I am 37...what happened to me will happen to many others because of these changes.  They were started in 1984 and started to get power handed to them in 1998.

    I will agree with you that these changes are short sighted..but the USPSTF is directly wound up into the health care bill..the health care bill is supported via the USPSTF and uses the USPSTF for the acceptable standard of care. 

    There are a massive amounts of Dr. Oncologists, breast Dr, surgeons, and Medical Assosiations who are against these changes and agree that more people will be dying because of these changes.

  • LittleC
    LittleC Member Posts: 151
    edited November 2009
    Colette, no matter what you put infront of some people, no matter the documents you show as proof, you can show them the bill itself, they will remain sheep going off that cliff. Because they have to protect their political stance at all costs.  Even at the expence of precious life.  They do not know how to put that aside and just do what is right.
  • AnneW
    AnneW Member Posts: 4,050
    edited November 2009

    Colette,

    At what age do YOU think screening mammograms should begin for the general population? And what's your basis for that arbitrary number?

    Should we lower all screening ages? What about colonoscopy? It's currently age 50, and then every decade after that, but surely people develop and die from colon cancer in that time frame? Maybe yearly c-scopes could save more lives, regardless of how many negative biopsies and complications they can cause.

    What about ovarian cancer, that sneakiest of all sneaky beasts? Wait. We don't have a screening test for that, really. Maybe all women with ovaries should get CA-125 blood tests beginning at age 20? (I know someone who got ovarian cancer at that age. A blood test could have "saved her life" perhaps?)

    When I started my screening mammos, I was really far too young to benefit from them. The general standard was to start them at 40, or if your mom had bc, then begin 10 years before her age when first diagnosed. So, I was 28. Breasts way too dense to pick up a cancer. Never even picked up the cancer I got at age 44, and we looked back on them all. Who knows at what stage that mass would have been seen by mammo alone. And on my second cancer, again, no mammo picked it up, just my fingers that knew my breasts well. Did mammos fail me? No, they're imperfect. And I had a legit reason to start screening, which was not withheld from me. I'm sorry for everyone who was failed by their medical provider. If you want a mammogram, you should be able to get one. But don't make everyone else feel like they have to, too.

    Members of bco have a vested interest in this discussion. Most people feel that because WE have bc, we're the experts. Well, we're not. We have personal experience, and we've done more reading than the general population, but we're hardly breast cancer experts. BUT--if you want to know more about the research process, how to be an advocate, how to read a research paper critically, then consider attending a program through NBCC called Project Lead. We're much more credible when we know the process and the facts, and don't rely on raw emotion.

    And really, I don't see how this divides up into democrat survivors vs republican survivors. That's just pushing buttons needlessly.

    Anne

  • TammyLou
    TammyLou Member Posts: 740
    edited November 2009

    I guess I must be the only person on the planet who thinks that it is possible that mammograms may not be the magic that we have been led to believe.

    tl 

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    AnneW..

    What would I suggest for the 'general' public regarding mammograms?  No, change in the age of 40, EXCEPT with women who have a sister, mother, or aunt who had breast cancer under 50...then automatically make it 35 for starting of the testing...unless of course, the mother, sister, aunt was younger than 45 when she had breast cancer...then I would say 10 years earlier than the diagnosis, and state that the insurance is responsible for the testing. And CONTINUE SBE yearly by the Dr. and monthly by the woman herself.  My basis for this number is the fact that breast cancer is one of the leading cause of death in young women and the cancer is more aggressive in the young women and the fact that the digital mammograms do not emit near as much radiation as the previous mammograms has.  I already gave an example of how the Dr. will do what the insurances want them to and give reasons as to why there should not be any mammograms done..

    Do you realize that this has NOTHING to do with the "Cost" of the mammogram?  They run about $150 to do.  The change of standards has direct reflect of breast cancer treatment. THAT is what this bill and the USPSTF is trying to prevent.  If they weren't then why have in the standard of care, for the Dr. to NOT teach SBE and to not even DO SBE?  SBE is where most women catch breast cancer, and this is usually at a later stage that the lump is felt.

    TammyLou...you may think that mammograms are not magic, but the big part that I have found with mammograms is the talent of the radiologist that is reading the film.  I had the first dr say I had a 1.7 cm tumor, and then the MRI say it was 3.5...and then the next Dr. say that it was between 5 and 6 cm.  THEN I went to a reputable hospital in Seattle and they said the lump was 9.5...this was all on the same films.  5 months later, after I had chemo (no IDC left) I had a 10 cm tumor of DCIS removed.

    And TammyLou, I do have a question for you.  Do you support the health care bill in the Senate right now and do you support ALL the changes that the USPSTF has made, including about the SBE?

  • otter
    otter Member Posts: 6,099
    edited November 2009

    Nope, Tammy... you're not the only person.  I think there are quite a few of us who don't trust mammograms as the be-all, end-all of screening methods.  I do think the USPSTF guidelines should have been accompanied by better editorializing by that task force, to acknowledge the background of the controversy and the social impact of the change.  But that didn't happen, so the news media and blogs and discussion boards have filled in that void.

    I am in near-total agreement with the points AnneW made in her post.  I, too, do not think the release of the USPSTF guidelines was politically motivated.  The timing was awful, but the review and updating of preventive-care guidelines takes place continuously.  Although the members of the task force who were responsible for the BC screening guidelines were appointed under a previous administration, appointments to committees like this are rarely influenced by traditional conservative vs. liberal political leanings.  Even if they were, there would be no way to "vet" the candidates for the committee, to be sure they had conservative, as opposed to liberal, opinions on the wide variety of topics the panel considers each year.

    The timer had gone off for the BC screening guidelines -- the USPSTF had not reviewed their guidelines since 2002; so a review was overdue.  (Other agencies work on a 5-year cycle).

    As for whether the USPSTF recommendations are now the "standard-of-care" for BC screening:  NO, they are not.  They are simply recommendations, released by a government-sponsored review panel that analyzed clinical research results.  Physicians' groups and professional organizations (NCCN, ASCO, ACOG, etc.) establish their own standards of care, based on consensus of the organizations or their leadership.  An example is the recent revision in the guidelines for cervical cancer screening:  http://www.acog.org/departments/dept_notice.cfm?recno=20&bulletin=5021

    Or, are the gynecologists and obstetricians conspiring to deny care to women and shorten their lives, too?

    otter 

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    AnneW..The reason why there is a difference in Democrat/Republican is because most of the democrats refuse to look at the health care bill with an open mind and automatically bring in that people are attacking Democrats, when it is not so.  I am against the health care bill/USPSTF, not the Democrats.  I am against the health care bill because it has nothing to do with health care, and everything with denying care...I have shown examples of how this is happening as we speak. 

    Never said I was a breast cancer expert...but my breast surgeon IS and when the Dr. stand as a whole...verses a few here and there who don't...and who are against the changes, THAT catches my attention.  It should catch the attention of every BC survivor out there that the USPSTF changes are not positive by any means.

    What I find the most ironic is how people question how we can say that this will kill women and think that we are just attacking the changes... When in reality this information came directly from the USPSTF itself.  The USPSTF states that there will be something like a 3% death rate..yet a Danish study states it as much as 9%.

    What I would like to know, is how you can stand behind a bill that will KNOWINGLY be killing fellow breast cancer victims?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    What is so wrong with keeping the standards AS IS - UNTIL someone manufactures a proven-safe, cost effective, accurate diagnostic machine! HELLO! What am I missing?

    If some of you want to wait until 50 - PLEEEEASE feel free to do so! I promise...I won't beg you to get a mammogram before then. Really, I  won't and nobody else will either! And guess what? Your Dr is not going to hold a gun to your head and force you have one done at 40! GEESH...

    But instead...those who agree with the latest guideline recommendations think that EVERY WOMAN IN THE WHOLE FRICKIN' COUNTRY should simply shrug their shoulders and follow the herd! Talk about selfish!

    It's the same clan who think that due to 15% of the population (supposedly) being uninsured, THE WHOLE FRICKIN' COUNTRY should submit to Universal Death Care. WHAT am I missing!

    AGAIN - I ask you most dearest Government aka: Control Freaks...extend Medicaid to the 15%. Isn't that what Medicaid IS ALL ABOUT! It was designed for those who cannot afford health care. Seems like a no brainer to me.

    BUT NOOOOOOOOOOOOOOOOOOO...that would be too easy. That would make way TOO much sense. BIG government - LITTLE BRAINS!

    I've made reference to private sector companies in the past and I will again. If a successful, private sector company had a problem affecting 15% of their employees, would they OVERHAUL the ENTIRE company...NO - they would put on their thinking caps, work tirelessly, and create a solution to help the 15%.

    -----------------------------------------------------------

    Collette - I could not agree with you more! And yes...high risk young women should be able to choose when they would like to have a mammo done. Is that really asking TOO MUCH! Gawd...help me!

    -----------------------------------------------------------

    And BTW...when it comes to my body, I do consider myself an EXPERT. No one knows my body better than I do. I found my bc and it was verified by mammo. Every woman who thinks independently, should have the right to choose what's best for themselves. The government needs to keep their laws off of my body.

  • lewing
    lewing Member Posts: 1,288
    edited November 2009

    LauraGTO wrote:

    But instead...those who agree with the latest guideline recommendations think that EVERY WOMAN IN THE WHOLE FRICKIN' COUNTRY should simply shrug their shoulders and follow the herd! Talk about selfish!

    * * * * *

    What the recommended guidelines actually say about screening is that women age 40-49 should talk things over with their doctor and do whatever they believe to be right for them.

    In other words, what the guidelines say is EXACTLY what you seem to be recommending in your post.  (Except they say it with fewer capital letters and exclamation points.)

     . . .

    As far as health care reform is concerned: you say you would support the extension of Medicaid/Medicare (you keep switching back and forth between the two programs in various posts, so I'm not exactly sure which you really mean) to all?  An expansion of Medicaid is actually part of both the House and Senate bills.  "Medicare for all" has also been proposed, but (unfortunately, in my opinion) has not gone anywhere.  You do realize, though, that this would basically replicate the Canadian-style "single payer" system? 

    Maybe that's something we can agree on!  (Along with the idea that government should keep its laws off our bodies.  Smile)

    (OMG, that's the first time I've ever used one of those emoticons in a post!)

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    Laura, I agree it is selfish for women to shrug and think that it is acceptable for insurances to not cover mammograms or any BC testing before 50..What I don't think many realize is that the bill in the Senate right now will make this LAW that insurances will not have  to cover it.  Dr. will do what the insurances suggest is the route to go.  This has been shown time and time again.  Look at Group Death..Oh, I mean Group Health (who the government is wanting to fashion after..BOs opinion, not my words.)  I was part of this group when there were no other options for me.  It took them SIX months to do a swab on my sons lip to find out that it was a cold sore and to give him something to break the cycle.  This was when he was 4 years old and he had a 4 months old brother.  They originally said that he had impetigo and to keep him away from the baby...this went on for 6 months and do you know what psychological impact that it made between the two? 

    I don't think that many people understand that this will affect ALL health care..not just the governmental care...and ALL Insurances.  There will not be ONE person that this bill will not affect...and it will affect our children most of all.  I will make  sure that my children know that I fought against these changes and this bill...I really can't bring myself to call it a "health care" bill any longer, because it is the furthest thing away from it..especially when the group that they are using admits that people will be dying because of the changes that this bill supports.

    I also, agree that we are, our own best Doctors when we are talking about our bodies..as in knowing when something is wrong with our bodies.  We may not know exactly what it is, but I knew I needed to have the lump checked out and force them to give me a mammogram.

    What I don't understand is that why "NOW" is not getting into this BS.  It most certainly will be killing women..I guess it does not have the same emotional response as abortion.

    Happy Thanksgiving!

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    lewing...Then they went back and changed their website because ORIGINALLY they just had:"The USPSTF recommends against routine screening mammography in women aged 40 to 49 years."

    And now they added: "The decision to start regular, biennial screening mammography before the age of 50 years should be an individual one and take patient context into account, including the patient's values regarding specific benefits and harms.
    Grade: C recommendation."

    They still have: "# The USPSTF recommends against teaching breast self-examination (BSE).
    Grade: D recommendation.
    # The USPSTF concludes that the current evidence is insufficient to assess the additional benefits and harms of clinical breast examination (CBE) beyond screening mammography in women 40 years or older.
    Grade: I Statement.
    # The USPSTF concludes that the current evidence is insufficient to assess the additional benefits and harms of either digital mammography or magnetic resonance imaging (MRI) instead of film mammography as screening modalities for breast cancer.
    Grade: I Statement."

    In their supporting studies they state: "Initiating biennial screening at age 40 years (vs. 50 years) reduced mortality by an additional 3% (range, 1% to 6%"

    The above comes directly from their site. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    lewing wrote:

    "...recommended guidelines actually say about screening is that women age 40-49 should talk things over with their doctor and do whatever they believe to be right for them"

    Are you for real! Good gawd! Most women have better things to do than sit and have a cheery ol' chat/beg session with her Dr. Perhaps Drs. can start serving tea in the examining rooms. "Hello, Mrs. Smith, don't you look lovely today!...I understand you would like a mammo at the ripe ol' age of 40. Sit down my dear, let's have a cup of tea and talk this over. Mrs. Smith, do you realize how dangerous a mammo at your age is? Why, Mrs. Smith, why would you possibly think you need one? If you feel a lump, it's probably just your imagination. After all, it's very rare in a woman as young as you. Mrs. Smith, trust the latest reports. Don't read any news reports and stay away from those news stations on the television. And, by golly, don't listen to all the hog wash about women who had mammos in their 40's and tumors were found. And don't forget to keep those wandering fingers off of your breasts. (Three clicks of the Dr's tongue as he waves his pointer finger left and right) I certainly don't want you to waste your precious time my dear, doing something that won't even save your life. There, there, Mrs. Smith, don't cry...have another sip of tea, my dear. But please sip it on your way out. NURSE BRING IN THE NEXT PATIENT!"

    OMG - Women shouldn't HAVE TO "talk it over" with their doctors! Dr's are being told to not waste their time talking and explaining BSE's. And you think they're going to "talk it over" about mammos or anything that's not explicit in the reform! Dr's will be afraid they will be penalized if they prescribe TOO many mammos before 50. And then all the women in this country who want a mammo at 40 will HAVE TO BEG, or fake some breast pain or cry and threaten suicide! Drs. won't have the time to "talk it over"...they will have to double their patient volume just to pay their medical office rent.

    ----------------------------------------------------------

    lewing wrote: 

    "In other words, what the guidelines say is EXACTLY what you seem to be recommending in your post."  

    That is totally incorrect! I posted: "they should keep the standards AS IS - UNTIL someone manufactures a proven-safe, cost effective, accurate diagnostic machine!" HELLO! You must not have read this slooooowly and caaaaaarefully.

    ------------------------------------------------------------------

    lewing wrote: 

    "(Except they say it with fewer capital letters and exclamation points.)"  

    Now, now, now...sarcasm will get you no where. Remember...smarty had a party and NOBODY came!

    Perhaps they should use capital letters and exclamation points, it would show a mere hint of passion in what they're recommending. Instead, they are about as passionate as a pile of boulders. But you and many others are falling head over heels into it. Better be careful about what you wish for.

    ---------------------------------------------------------------

    Written in the New York Times:  

    The net cost of the coverage provisions would be growing at a rate of more than 8 percent per year in nominal terms between 2017 and 2019; we would anticipate a similar trend in the subsequent decade.

    This is devastating. The plan was sold as a way to bend the cost curve, to reduce the rate of health care cost growth. Instead, the cost of the plan to the federal budget would rise by 8 percent a year, and there wouldn't be anything close to offsetting revenues to pay for it.

    This is a loud trumpet for all health care reformers. Start over. Get serious about costs. We can either pass this kind of reform and bankrupt the country or we can pass another kind of reform.

    Women with young children and grandchildren and nieces and nephews, etc...my heart goes out to you and them! They had better start saving their pennies now! Their financial future in this country is already mortgaged...just wait until then.

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    Laura, you do make a good point about how much time the Dr. has to go over everything that will be requested now to "Prove" that a woman between 40 and 50 "needs" a mammogram..God forbid a woman under 40 (like ME) would request one...you may have to sacrifice your first born to get it!  Let alone for paying for it out of pocket!

    What will they do for the lumps that are then found on a mammogram in women under 50?  Once you start getting into biopsies it starts getting expensive...And if you ARE diagnosed with cancer, that is even that much more!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Colette -

    "What will they do for the lumps that are then found on a mammogram in women under 50?"

    They will amend the Death Care Bill, add an "E" catogory - stating that no woman under the age of 60 shall be allowed a biopsy.

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    Laura...I would laugh, if I didn't think that this is closer to the truth than they are telling us...

  • LeggyJ
    LeggyJ Member Posts: 726
    edited November 2009

    Who is going to pay for all this?  Well, those of us who still have a job, will be dumped into the socialized medicine ghetto, and then we and our employers will be taxed out of business. Everything you buy, and use like your utilities, will be taxed.  It all trickles down, nothing is free, including your freedom.  Kiss it goodbye, if this health care reform bill passes the senate.

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    LeggyJ...You are exactly right..Who is going to pay for this?  If Social Security and Medicare and Medicaid (I get them messed up all the time, but they are both in the same shape and will be affected by this bill the same) are going broke NOW, what will the be after this bill?

    I agree with you that nothing is free.  And this bill has EVERYTHING to do with the USPSTF guideline changes and the politics of mammograms as well as our freedoms.

  • Leia
    Leia Member Posts: 265
    edited November 2009

    I'm with Leggy and Colette. Who is going to pay? 

    These congressional bills purport to cover 30 to 45Mmm more people but at less cost. And here, one disease comes up, no "automatic" mammograms for women 40-49, but instead, decide between you and your doctor, all hell breaks looks. We can't Have That!  Mammograms for Everyone! It's your Right. Or, something. 

    And so this will be at less cost? No, it won't. These health care bills, will bankrupt the US.

    A mammogram caught my 2cm IDC, ER+/PR+, HER- cancer.  When I was 52. Although, actually, I really had the cancer 4 years earlier, when I had a false negative biopsy. It took 4 years to grow to 2cm. Which is less than 1 inch, BTW. 

    Yet, the real problem that I see with all of these earlier mammograms, especially the digital ones, they just find the tiniest of cancers. Like a 2mm DCIS. And then, they just treat the hell out of it. And the women, all go along. They even have, mastectomies. When it would never have even been a problem.

    And this all costs, $$$$. 

    I just read a "Letter to the Editor"  in my local newspaper, today. Against the new guidelines. Signed by all of the Breast Cancer Treatment Centers in Seattle. 

    Of course, they're against the new guidelines. The current guidelines guarantee 2mm DCIS women having Whole Breast Radiation, for $45,000. Feeds their bottom line. 

    I didn't have any radiation for my 2cm IDC. Blew it off. 3.5 years later, no cancer recurrence. I still have my breasts. Blew off all of that other shit, too, the Tamoxifen. 

    I don't know why women just don't listen, to themselves.  

  • iodine
    iodine Member Posts: 4,289
    edited November 2009

    Ok, just had to add my 2 cents.  I don't think the bills from congress or senate will be passed as is.  A huge amount of change is going to be necessary to provide pork to each voter and his/her state.  Then, the other aspects of the bill will change untill you will not recognize it.

    And then: the bill won't really go into effect for a couple of years, and hopfully will be clear enough to pass.

    Then: the next 10 years will be taken up tweeking the bill for the mistakes and errors it has caused..

    Know why they don't just extend Medicaid?  So few docs accept it.  In Tn we have Tenncare.  Only the 3-4 docs employed by the hospital accept it.  My docs office quit taking new Medicare pts. a couple of years ago. 

    And, truly, where do you think all these new primary care docs will come from?  Yeah, maybe the gov't will help with some small amount of their huge student loans, but that is still very little incentive for a doc to choose primary care. 

    Anyway, just my 2 cents.  I'm not opposed to the bill.  I have no idea what's in it and I imagine few do.  Just hope they get more right than wrong.

  • TammyLou
    TammyLou Member Posts: 740
    edited November 2009

    I guess what I'm confused about is this:

     IF 50% (or so) of women under age 50 have breasts that are too dense to be properly mammogrammed and 30% (or so) of women over age 50 have breasts that are too dense to be properly mammogrammed...why are we mammogramming THEM?

    I am looking for a better tool.  I don't want to use the same old tool that doesn't work...or at least didn't work for me.

     I have a BEAUTIFUL mammogram.  Diagnostic!  According to it, I don't have cancer and I have NEVER had cancer...taken with my Stage 3C cancer wrapped around my chest wall.

    I didn't have a lump.  I had excrutiating pain in my shoulder and went to the doctor and told him emphatically that I think I tore my rotator cuff! 

    That wasn't it...not by a long shot.

    tl 

  • TammyLou
    TammyLou Member Posts: 740
    edited November 2009

    P.S.  I agree with the crap about "discussing with your doctor"...most of my doctors have about 2 minutes with me and they call that a "medium long" visit.

    Cow patties.

    tl 

  • TammyLou
    TammyLou Member Posts: 740
    edited November 2009

    When I read articles like this, I am very confused...exactly what are the facts?

    tl

     Won't let me paste.

    Says that

    Doctor Berry and his collegues found absolutely no difference in the death rates among women given mammograms no different from women not given mammograms (in a study of 150,000 women...singling out those who eventually developed cancer.) 

     Title of article:

    Mammography detected cancers both good and bad news    Healthfacts September 2005

    tl 

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    TammyLou..I agree with you it is confusing..So, I go back to the original information which is directly from the USPSTF's own website about the number of death rates that they admit will happen...I also look at the bill, although, you are correct that they will tweek it so they have the maximum amount of pork and other things that are not related...

    I guess, that is why I am so against the bill...because it is BS to begin with and will only be more so.  Do I think that there needs to be REAL reform?  Yes, but this bill and the USPSTF is not it.

    Take care.

  • AnneW
    AnneW Member Posts: 4,050
    edited November 2009

    Colette wrote: What I would like to know, is how you can stand behind a bill that will KNOWINGLY be killing fellow breast cancer victims?

    I just happen to think that health insurance reform (which should be the title, not health care reform) will actually save lives, because more women will be able to get basic screening and biopsies, etc that those of us with good insurance take for granted.

    Our health care is woefully rationed as it is right now.

    Anne

  • TammyLou
    TammyLou Member Posts: 740
    edited November 2009

    I'm not KNOWINGLY standing behind anything.

    I'm asking a question.

     "75% of American Women strongly disagree with the panel recommendations".  Why?

    ( I would cite the source but this website won't let me.) 

    Why do you disagree?

     What are the facts?

    I follow that I'm supposed to be mad about something.  What is it? 

    The proponents of the recommendation to reduce annual screening essentially are saying that we seem to be looking for a needle in a haystack.  

    Mammograms are not an effective screening tool for young women. 

    Why do you want a screening mammogram that is not doing its' job? 

    75% of American women polled think that they should have annual mammograms.

    Why do they want this tool that isn't working?

    If it were a drug that wasn't working...wasn't reducing our mortality rate...we would probably throw it out.

    Why are mammograms different? 

    tl 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    TammyLou - Haven't you read over and over again here, that mammos DID work for many women! The BIG GOVERNMENT/CONTROL FREAKS need to prove that they can effectively "run" the existing government controlled agencies before they TAKE OVER our nation's health care. Not to mention dictating that women shouldn't do BSE's and not have mammos until 50. Since when is the practice of rewarding bad behavior acceptable.

    It's really very plain and simple: keep the standards AS IS - UNTIL someone manufactures a proven-safe, cost effective, accurate diagnostic machine! HELLO!

    If some of you want to wait until 50 - PLEEEEASE feel free to do so! I promise...I won't beg you to get a mammogram before then. Really, I won't and nobody else will either! And guess what? Your Dr is not going to hold a gun to your head and force you have one done at 40! GEESH...

  • TammyLou
    TammyLou Member Posts: 740
    edited November 2009

    I've read that mammograms did detect early stage cancers in many women.

    What I haven't seen is any indication that there is a survival benefit.

    tl 

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    TammyLou..You are right, they didn't detect early stage cancers in dense breast tissue that young women have...that is the OLD mammogram machines didn't.  The new digital mammograms DO detect cancer.  The task force based their changes on 20 year old technology...not todays.  It is on their web site what they used.

  • dreaming
    dreaming Member Posts: 473
    edited November 2009

    I learned that my survival depends many times of being aggressive with my medical team, if they do not work with me I fire them! Thanks to my attitude I am still alive, no cancer history,not a high risk person,no lumps, I demanded a biopsy, it was positive, wanted a mastectomy, during the surgery a second invasive cancer was found. If I would accepted the word of the doctors, I would have beeb long dead and not 16 years from diagnosis. I do not accept"Guidelines" or Standard of Care.

    I made sure my daughter had a mastectomy at 25 as a baseline.

    Make sure I get mammograms from both breasts[one is reconstructed] ,microcalcification were found behind the mastectomy site.

    I am important to me and my loved ones, to the medical team I am a patient,no matter how close we are.

    When it comes to medical care/Insurance the mighty dollar counts, when I am refused am specific test, I ask for a letter explaining the reasons and if I get ill because of a denial, this would be clearly the culprit with the Insurance,etc

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