Sign the Petition Against the new Mammography Guidelines

Options
1…910121415…55

Comments

  • cka0706
    cka0706 Member Posts: 70
    edited November 2009

    Diagnosed at 55 -- I found the lump and went for a mammo which confirmed (my MD couldn't feel the lump). I'm so glad I learned BSE. Had 3 tumors removed (2 cm, the other 2 were smaller). No family history, no other risk factors.

    · Share on FacebookShare on Twitter
  • mawhinney
    mawhinney Member Posts: 1,377
    edited November 2009

    Pat Arenson - Found my tumor through breast self-exam. Mammogram confirmed the cancerous tumor (IBC) and found a 2nd tumor.  Mastectomey 6/08.  Early detection and treatment saved my life!

    · Share on FacebookShare on Twitter
  • sheri47
    sheri47 Member Posts: 115
    edited November 2009

    sheri dx idc 47 mammo found it. saddens me to think how many women are going to be lost with this change.

    · Share on FacebookShare on Twitter
  • JulieK_11_30_07
    JulieK_11_30_07 Member Posts: 260
    edited November 2009

    Julie Knutson diagnosed on November 30, 2007, at age 37. IDC - Stage IIb, Grade 3 - Triple Negative. Found lump - confirmed by mammogram.

    I'm appalled by these new recommendations!! Too many women - much younger than 50 - are having to deal with the diagnosis and treatment of this horrible disease!!

    · Share on FacebookShare on Twitter
  • Odalys
    Odalys Member Posts: 2,103
    edited November 2009

    Here is the link to today's interview http://abcnews.go.com/GMA/

    Thank you Dr. Weiss for doing such a good job today at voicing our concerns.  

    · Share on FacebookShare on Twitter
  • aspen
    aspen Member Posts: 102
    edited November 2009

    Rita H. Dx.on left at age 42 with DCIS by mammo.; dx.with Infiltrating lobular CA at age 48 found by SBE on rt confirmed by mammo; dx.on left at age 49 with DCIS and Infiltrating ductal CA by mammo. NO FAMILY HISTORY at that time.   What if I had waited for the mammo. until I was 50- ? three different tumors, three different places??????   But no more mammos for me now- bilateral mastectomies at age 49.

    · Share on FacebookShare on Twitter
  • leese
    leese Member Posts: 1
    edited November 2009

    Lisa Kupper

    Diagnosed at 45. Two primary tumors.... one invasive ductal, one lobular. 

    · Share on FacebookShare on Twitter
  • purplehaze66
    purplehaze66 Member Posts: 136
    edited November 2009

    Michele S diagnosed at 39...NO FAMILY HISTORY multifocal dcis sateg 2b 3 nodes + left mastectomy 11/05  followed by  6 TAC chemo, 51/2 weeks radiation. right prophy mast 2/09  Mammo confirmed what I felt......if I waited until I was 50, I could be dead......

    · Share on FacebookShare on Twitter
  • MJROPER27
    MJROPER27 Member Posts: 1
    edited November 2009

    Both of my younger sisters are dead with breast cancer (52 & 56). I have friends who were diagnosed from ages 35 to 47 who would be dead today if they had not had mamograms. Why would the USPTF want to see so many die? Once again are we being dictated to by greed mongers?

    · Share on FacebookShare on Twitter
  • shabby6485
    shabby6485 Member Posts: 679
    edited November 2009

    A good friend was just diagnosed with Triple Neg. BC at age 29.

    My mother was diagnosed with BC in her early 30's.

    I was diagnosed with atypical lobular hyperplasia via mammogram- age 44. 

    · Share on FacebookShare on Twitter
  • Ozzi
    Ozzi Member Posts: 80
    edited November 2009

    Diagnosed by mammography at 42 in 2000- 2 cm IDC -  4 AC 4 Taxol - Tamoxifen for 3.5 year currently on Aromasin.  Couldn't feel a thing. . . . . nor could the Nurse Practioner (specialty breast exams).  Tumor appeared as 3 small calcifications on film and was only diagnosed by looking at the prior 2 year's films compared to the new film.  I no longer believe there is anything such as an unnecessary biopsy.  Every life counts - EVERY LIFE.  Are they really suggesting that we sacrifice the lives of the few that will be diagnosed by mammography to save the majority that will not be diagnosed the anxiety of a false positive and/or an unnecessary biopsy?  WOMEN are stronger than that. All women must communicate that we will not sacrifice our sister, mothers and daughters.   Fran Izzo

    · Share on FacebookShare on Twitter
  • activern
    activern Member Posts: 409
    edited February 2010
    Age 42 - Stage 1 found on Mammo; 12 years later IBC found by self confirmed with testing.  What is going on in the heads of the Preventive Task Force?  Point is I had to diligently monitor because of first diagnosis and BRCA2 abnormal gene.
    · Share on FacebookShare on Twitter
  • activern
    activern Member Posts: 409
    edited February 2010
    10 steps backward
    · Share on FacebookShare on Twitter
  • Ozzi
    Ozzi Member Posts: 80
    edited November 2009

    just wanted to add - in memory of my friend Doris Foyt . . . . . . her oncologist at Sloan told her to use Dr. Susan Love's book as a door stop.  . . . . . . . . . . . I agree now.  THIS CANNOT STAND!

     Fran Izzo

    · Share on FacebookShare on Twitter
  • PSK07
    PSK07 Member Posts: 781
    edited November 2009

    Pam K

    Dx with DCIS in August 2007 at age 46. Lesion detected with mammogram: lumpectomy, radiation, tamoxifen

    Dx with LCIS in August 2008 at age 47. Lesion detected during prior year's MRI and Ultrasound (see August 2007) had enough change in current year mammogram to warrant surgical removal. LCIS confirmed with lumpectomy.

    My mom had IDC (mod rad mx, chemo) when she was 62 - we've been told that because her BC was post-menopausal, it wouldn't raise our risk levels - more a fluke than a family history. She had yearly mammos, it was found with clinical breast exam.

    What is an acceptable risk of loss of life?  If we have the tools, use them!  I'd rather risk a false positive and 'anxious feelings' for a few days than the risk of not finding anything until its progression. Until they can pin point, without a shadow of a doubt, whose Stage 0 DCIS will progress to invasive, it's not overtreatment.

    · Share on FacebookShare on Twitter
  • mittmott
    mittmott Member Posts: 409
    edited November 2009

    Randi N. diagnosed LCIS age 39

                                  IDC age 42

                                 DCIS/ microinvasion age 49

    All 3 times before age 50.    No history of breast cancer in my family.

    BracI/Brac2 negative.............Tamoxifin, Lumpectomy/Rads, Bilateral Mast.

    · Share on FacebookShare on Twitter
  • LindaLou53
    LindaLou53 Member Posts: 929
    edited November 2009

    Linda M. -Current age 56 - No prior history of breast cancer in family. BRCA Negative.

    1. First screening mammogram at age 39 detected microcalcifications - biopsy benign.
    2. Annual diagnostic mammograms until age 47 when a non-palpable stage II IDC was detected by mammogram at same location of earlier microcalcifications and successfully treated.
    3. 6 Month diagnostic mammograms until age 52 when a 5cm Stage IIIC ILC new primary was NOT detected by mammogram, but found ONLY on clinical palpation breast exam. 

    Mammograms may not be perfect in detecting all breast cancers, but they are the best tool we currently have for detecting early stage breast cancers.  To deny these exams to women under the age of 50 is ludicrous!  We need better tools of detection for sure, but do NOT take away the only tool we have before it can be replaced with an improved and more reliable method!

    If the USPTF is truly about PREVENTION and PRESERVATION of LIVES, then why are they not researching the effectiveness of breast MRI for improved detection rates?   Could it possibly be that the underlying goal is not to preserve lives.....but to preserve the CASH$$? 

    · Share on FacebookShare on Twitter
  • Artemis
    Artemis Member Posts: 759
    edited November 2009

    Artemis, dx age 46 through BSE.  No family history, non-smoker, no BCP, breastfed, gave birth before age 25 = not at risk.

    · Share on FacebookShare on Twitter
  • pitanga
    pitanga Member Posts: 596
    edited November 2009

    On behalf of our dearly beloved sister, Heidi_Ho, who was diagnosed Stage IV at age 43 in March of this year and died barely six months later.

    Heidi, can you hear the clapping?

    · Share on FacebookShare on Twitter
  • uuyrwds
    uuyrwds Member Posts: 4
    edited November 2009

    This is absolutely ridiculous.  I might have been dead by 50.  I'm lucky my annual mammo caught it at stage 1 when I was 49.  Do they not realize how many women will die by the age of 50 and how agressive early bc can be, especially at a young age?

    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Robin McRath  42 @ diagnosis. Stage 1 IDC. No nodes. Mass had likely been growing for 5 years. 

    No immediate family history of breast cancer. 

    Had I NOT had a mammogram when I did, I would have been dead if I had waited until I was 50. 

    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Marybe  W. Brunner   My breast cancer was discovered with a mammogram when I was 40 years old.  Because of the location, It was too deep to be felt.

    · Share on FacebookShare on Twitter
  • diana50
    diana50 Member Posts: 2,134
    edited November 2009

    diana....age 49. found my lump on self exam.

    already stage III with 10 pos nodes. even one more year would have been too late.

    no risk factors....only dense breasts which i find out AFTER the Dx.

    · Share on FacebookShare on Twitter
  • clrzink
    clrzink Member Posts: 7
    edited November 2009

    Charlene Zink - diagnosed at age 51 with mammogram

    · Share on FacebookShare on Twitter
  • jader
    jader Member Posts: 223
    edited November 2009

    Age 42, yearly mammos from age 40.

    · Share on FacebookShare on Twitter
  • seizetheday
    seizetheday Member Posts: 16
    edited November 2009

    This news is outrageous!

    Felt lump on a Friday.  Diagnosed on Wed before Thanksgiving 11/26/08.  Bilateral Mast. w/reconstruction 12/08.  IDC, ER+, PR+, HER2-, stage 1, grade 2, SNB-clear nodes, oncotypeDX 27, 4x TC chemo,

    No close family history (not what guidelines consider risk), healthy eater, only "risks" are that I never gave birth (adopted) and that I am a woman.

    Age 44.

    Know of other in 30's.  One who just turned 40.  

    So many motherless young children in previous generations why are we taking a step backwards.

    · Share on FacebookShare on Twitter
  • Marsha56
    Marsha56 Member Posts: 86
    edited November 2009
    I was told at 39 that my insurance would not pay for my mammography.I did. Stage3 IDC 17 ++ nodes 9cm tumor. That was 13 years ago. If I would not have paid for this I would be dead and never see both of my daughters gradtude on the Dean's list, college was so amzing watching them grow into WOMEN and mothers........ We need to fight for these guidelines to stay in place..I have lost many friends from this BEAST and many little girls grow up without their mommy.....
    · Share on FacebookShare on Twitter
  • CristinBriger
    CristinBriger Member Posts: 1
    edited November 2009

    I was age 49 when diagnosed I was absolutely sure something was wrong against the judgment of two doctors that had screened my mammography and ultrasound. This was discovered by self examination. The third doctor a oncologist took one look at the mammogram film and scheduled surgery. A mammogram and self examination saved my life. No history.

    Do not be seduced by those that propose these  recommendations that will lose lives. The idea of a government recommendation/opinion may be taken into consideration if we are forced into the Health Care Reform bill I personally do not want a committee deciding if a mammogram or any other form of preventative medicine practiced is a not "recommended policy". PLEASE SHOUT EARLY DETECTION SAVES LIVES

    · Share on FacebookShare on Twitter
  • cancerviking
    cancerviking Member Posts: 46
    edited November 2009

    Pam S.-- age 41-- 1.7 cm IDC TNBC found in a routine screening mammogram

    · Share on FacebookShare on Twitter
  • still-me
    still-me Member Posts: 34
    edited November 2009

    Teri Price- Diagnosed at 43. 

    · Share on FacebookShare on Twitter

Categories