Haven't had biopsy yet, but

Options
124»

Comments

  • desdemona222b
    desdemona222b Member Posts: 776
    edited November 2009
    LOL, Julia, you're nicer than I am.  I'd have to emphatically make people understand that it's CRUNCHY, not CHUNKY.  Laughing
  • Yazmin
    Yazmin Member Posts: 840
    edited November 2009

    cmharris:

    What a pity that you were unable to contain this outburst at the end of your intervention:

    "...OR you can stay on the alternatives thread where there are some whackos - oops did I say that? -  that will support any monkey's piss cure/treatment that a snake oil salesman sells them. Or believe that a day or two of eating organic veggies will make them feel as though they are on their way to a cure."

    Some of your points might actually have deserved to be part of an interesting debate. Unfortunately, you self-destroy without any help from any wacko.

  • cmharris59
    cmharris59 Member Posts: 496
    edited November 2009

    Yazmin,

    So sorry to disappoint, but I call them like i see them. I didn't self destruct at all. I am still here.  When the poster herself, posted saying that 2 days of eating organic food had her dancing around the room as though nothing was wrong with her and suggesting that she believed it. I find this absurd thinking that needs to be corrected. I have also perused the alt thread and found numerous credible posts, but the poster seems to veer toward the snake oil salesman on that forum. Just my opinion.

     Also, in defense of bluedasher and to question desdemona's doctor's educating her to identify cancerous lumps... desemona said...

    'A suspicious lump is going to be fixed rather than movable, lumpy and hard with no smoothness, and very asymmetrical.  My breast surgeon taught me that so I could tell myself if something is suspicious when I do a self-exam.  "  

    This is absolutely untrue!  My lump which was completely cancerous was movable, smooth and symmetrical. It is posts like this of false information that worry me. It is not that we need to be told... 

    "YOU DON'T KNOW WHAT YOU'RE TALKING ABOUT, MISSY!

    And people wonder why I think there are concerns that need to be addressed on this board regarding posting wrong and misleading information. Too many of our sisters are dying without us posting such trash that could result in a sister not getting the treatment that she needs and dying as a result.

    C

  • shokk
    shokk Member Posts: 1,763
    edited November 2009

    How in the heck did I miss this?..........hmmmm.................my Radiologist said she was 95% sure that it was cancer and set me up with a breast cancer surgeon before I ever left her office but at the moment she could not tell me anything else............now the question I have is how can you decide on your course of treatment if you don't know what kind of bc you have?...........isn't the biopsy for getting your pathology report....to find out what type of breast cancer you have.........to get set up for lymph nodes biopsy......to get body scans to check for bc showing up elsewhere......to get staged properly.........not really sure what the arguement is about whether a Radiologist can tell if a lump is cancer or not......who cares?.........the biopsy tells the doctors a whole lot more if it is just cancer or not.....Shokk

  • Yazmin
    Yazmin Member Posts: 840
    edited November 2009

    cmharris: At the last minute, I forgot to mention this: I don't know how old you were when you took this picture, but you look GORGEOUS.

  • cmharris59
    cmharris59 Member Posts: 496
    edited November 2009

    Oh Thank you so very very much Yazmin!!! This picture was taken at the time of my dx. I had been told that I would lose my hair. When I got home from wig shopping, I told my niece that I wanted some good pix of me in costume before my life changed forever.

    I was 48.

    C

  • desdemona222b
    desdemona222b Member Posts: 776
    edited November 2009

    cmharris -

    I already acknowledged that I gave the false impression that smooth lumps aren't to be worried about in that post above.  I did not do a good job of communicating.  This is the second time I've said that.  And the sentence stating that hollyann did not know what she was talking about was referring to her insistence that doctors can never tell ahead of biopsy that a mass is malignant.  I stand behind that statement.  And, my doctor DID describe very carefully to me what a "bad lump" feels like, even if restating that fact was a mistake.  The whole point of the message was this:  if a doctor is looking at abnormal films, an abnormal sonogram, AND is feeling a lump like I described they CAN diagnose cancer prior to biopsy.  I did not intentionally mislead anyone and if you look at my posting history you'll find that I usually post pretty accurate information.

    And btw, for the record, I am not an "altie".

    Shokk -

    Amen and amen! 

  • desdemona222b
    desdemona222b Member Posts: 776
    edited November 2009

    Now - I deleted the post.

  • desdemona222b
    desdemona222b Member Posts: 776
    edited November 2009

    Also, quite interesting that you do not take umbrage with such statements as, "IDC has no symptoms" but you're going to nail me on a post I already acknowledged was poorly written.

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited November 2009

    My surgeon knew it was cancer when he saw my films.  He was comparing them to ones from 3 years prior after an earlier biopsy and showed me what was going on between the two. He also pointed out that the new area was different from the old biopsy area where the little clips were left in as a marker.  He didn't say cancer .. but he and the nurse knew.  I was the one with my head buried.  I was at the breast center of my local hospital.  The unknowns were size and type and node status .. although they estimated it was bigger than it actually was.  Then I had a biopsy and I received the biopsy results the next day.  All the particulars came after my lumpectomy and SNB. 

    Hugs Julia and everybody!

    Bren

  • dlb823
    dlb823 Member Posts: 9,430
    edited November 2009

    desdemona ~ Your "altie" reference made me think about what that means to me, which is obviously quite different from what it means to those who wish to view it as something weird or separate, and I just thought I'd share...

    Analytical, Learning, Thinking, Inquisitive, Examining.

    In other words, to me it just means that I am open to figuring out through sharing research and experience what main stream medicine may not know enough about to teach me or incorporate into my treatment.   

    Just trying to offer insight and bridge a gap about something I wish wasn't so stereotyped and misunderstood, especially here, where we are all fighting the same battle.    Deanna

  • cmharris59
    cmharris59 Member Posts: 496
    edited November 2009

    I did not take umbrage with the post that IDC has no symptoms because for years it may not have any symptoms.  There is a large concensus that believe, that many cancers can live in your body for years before detection.  Therefore prior to detection they had no symptoms.There are also those women out there that their IDC had not been dxed until after a biopsy has determined that they have IDC as well as DCIS. 

    I actually hated to post in this thread at all, but I felt that your post was the most damaging.  If someone suspects that cancer has no symptoms then they will likely be checked more regularly.  If however, they feel a lump like mine and believed your post, then the outcome could be tragic. After all, mine was a very "bad lump". Again, I find myself getting very concerned over the credibility of these doctors.

    And BTW for the record, I am only against snake oil salesmen and the true whackos that post in the Altie thread not all of those posters. And yes, there are some of those posing as concerned naturalists.  I have never suggested that you were one.  In fact, I am sure if everyone actually read my post they would not have  taken offense at my reference to whackos unless perhaps they identified with whackos.  As the old adage says... if the shoe fits...

    As to whether a biopsy is really necessary, this is how it was explained to me. Although, all of my initial appts and screenings suggested that I had cancer none of the doctors said anything definitive, unless you count the post-it note from my radiologist. (yes, I reported him and filed a grievance). My BS said it was because without a biopsy they have no real evidence only circumstantial. Especially since microcalcifications are not automatically cancer and lumps can be well.. b9.

  • dlb823
    dlb823 Member Posts: 9,430
    edited November 2009

    cm ~ My post was intended to be general.  The earlier comment you made about wackos was actually kind of amusing.  I have no interest in beating a dead horse, but when I see anyone broadbrushing alternative medicine (not that you did) as foolish or something not to be associated with, it upsets me because I think there is much they probably don't understand, and so many things we can do in addition to traditional tx to help ourselves.  And I also know that a quick peek at an alternative thread can be very misleading because some of the supplements do sound kind of out there until you know more about them.  But we are absolutely in agreement that snake oil salesmen and health product spammers are disgraceful, especially when they make unsubstantiated claims to people with serious health conditions.  But the rest of us are all fighting the same battle, and I think love and support should come before whatever makes our tx choices different.  There are women on these boards with whom I've disagreed on various things.  But in every case, their point of view has caused me to rethink my own, which is good. Sometimes its changed my thinking, other times it's made my original beliefs even stronger.  But I think differences are good, as long as they're presented respectfully and with a caring heart.  Otherwise, we'd never grow and learn but just all be little cookie cutter patients.   JMHO...   Deanna

  • desdemona222b
    desdemona222b Member Posts: 776
    edited November 2009

    Talk about beating a dead horse, cmharris.  And then your buddy Athena, after numerous announcements about her departure and going through about five different screen names in a week, is on the "reboot" forum saying she still doesn't know "what's going on" with the "Crunchypoodlemama/Desdemona/Nico" thing except maybe it is a "good cop/bad cop thing."  Don't think you need to mourn her loss just yet as she seems to have a compulsion to post long diatribes, announcing she is leaving, then coming back and doing the same thing all over again.

    And don't bother concerning yourself with my doctor or Crunchy's doctor, please.  It's very touching but I am alive and well after being diagnosed by these so-called incompetent doctors with DCIS in late 2001.

  • desdemona222b
    desdemona222b Member Posts: 776
    edited November 2009

    dlb -

    I meant no offense, it's just that cmharris started lambasting me in the same breath she was attacking the "wackos."

  • desdemona222b
    desdemona222b Member Posts: 776
    edited November 2009

    Also, in defense of bluedasher and to question desdemona's doctor's educating her to identify cancerous lumps... desemona said...

    Why do you feel the need to "defend" bluedasher when absolutely NOBODY has objected to her post?

    Oh, and your "concern" about the competence of my doctor is very touching, but he saved my life in late 2001, so don't bother.

  • bluedasher
    bluedasher Member Posts: 1,203
    edited November 2009

    I didn't feel in need of any defense. Desdemona graciously accepted my point.

  • desdemona222b
    desdemona222b Member Posts: 776
    edited November 2009

    I'm convinced this is more about baiting me than defending you, bluedasher.  Wink

  • Yazmin
    Yazmin Member Posts: 840
    edited November 2009

    Please correct me if I am wrong: I believe one of the rules of this forum is to NOT refer to practicing physicians by name?

  • cmharris59
    cmharris59 Member Posts: 496
    edited November 2009

    Desdemona,

    Baiting you? There, you are quite wrong. I think you are taking my posts too personally. I have never suggested that you, or anyone in particular, was an altie other than Crunchy. Nor have I grouped you with any whackos. Perhaps it is the  "if the shoe fits..." Do you feel guilty or too representative of that term? Nevermind.

    As to your doctor being so credible, I certainly hope that doesn't stop you from correcting his mistakes with his patients. Just because all of my doctors are credible doesn't mean that they are perfect. I have "called them out on the carpet" to prevent other women from being misled or mistreated. Please re-read my posts.

    I have merely made it a practice of mine from day 1, to call it as I see it, especially if I see misleading or "dangerous" information. Day One being my first dx, when I became adamant regarding barbaric surgical procedures. I have also tried to look at many of these threads with an analytical and objective eye. I am actually glad that Deanna saw the amusement intended in my post about whackos.  I am not the flaming angry type.

    C

  • desdemona222b
    desdemona222b Member Posts: 776
    edited November 2009

    Baiting you? There, you are quite wrong. I think you are taking my posts too personally. I have never suggested that you, or anyone in particular, was an altie other than Crunchy. Nor have I grouped you with any whackos. Perhaps it is the  "if the shoe fits..." Do you feel guilty or too representative of that term? Nevermind.

    I rest my case.

  • Katyb
    Katyb Member Posts: 18
    edited November 2009

    Crunchy, have you had your biopsy yet or is it still pending? I missed what day it was supposed to be scheduled. After reading throught this topic I am curious.

  • Yazmin
    Yazmin Member Posts: 840
    edited November 2009
    And still talking about wackos: perhaps everybody is slightly wacko (according to everybody else). I mean: I have received absolute wacko Private Messages from "non-alties."   Did not respond, but happy they don't know where my house is.....Wink which made those messages amuzing to a certain degree.
  • bluedasher
    bluedasher Member Posts: 1,203
    edited November 2009

    Katy, she had her biopsy and it found DCIS.

  • Katyb
    Katyb Member Posts: 18
    edited November 2009

    Oh no. That is too bad, I was hoping she was overreacting and she would not have to go through this. Thank you, bluedasher, for the information.

    Crunchy, so sorry hon to hear of your diagnosis. It will all be alright and you will get through it all. The first thing we all try to do is panic but you need to stay calm and work with your dr to find the best treatment. I must admit I do not know anything at all about DCIS so I can't give any advice.

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited November 2009

    Hi, Katy - sorry I didn't see your question but thank you to bluedasher for answering for me!

    Oh no. That is too bad, I was hoping she was overreacting and she would not have to go through this. Thank you, bluedasher, for the information.

    Crunchy, so sorry hon to hear of your diagnosis. It will all be alright and you will get through it all. The first thing we all try to do is panic but you need to stay calm and work with your dr to find the best treatment. I must admit I do not know anything at all about DCIS so I can't give any advice.

    Thank you... I'm actually doing very well and am SO relieved that it's DCIS... my doctors all had me convinced (I guess because THEY were all convinced) that this was much worse. (When a doctor tells you that if you conceive a child right now, you'll probably die before you give birth, and puts that in your chart, things like that can sound pretty serious!) Thank you for the well wishes... so many people here have been so helpful and I'm learning a ton by reading the posts on the DCIS forum. Thank you again!!
  • K-Lo
    K-Lo Member Posts: 2,743
    edited August 2011

    How did yall deal with repeater- posters who change screen id's?  Our good women here are putting loads of energy into asnwering at least one person who sounds very scared but is obviously double, maybe triple- posting in different identities.  Changed her scenario at least once.

    The beauty here is the honesty.  We may contradcit ourselvse, but every moemnt is real.

  • K-Lo
    K-Lo Member Posts: 2,743
    edited August 2011

    Deleted because I decided to live in the present!

Categories