confused about ibc can some explain?

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Jalmom09
Jalmom09 Member Posts: 61
edited June 2014 in IBC (Inflammatory Breast Cancer)

ok so is ibc a totally separate bc or is it always dx with another type like idc or ilc? Is it common with ibc to be dx another form then ibc? I had an excisional bx, I specefically asked the nurse before surgery to make sure ibc was ruled out. She told me that the excisional bx would test for all types of cancer. My dx was fibroadenoma. My doctor removed the lump and the area around it. So the amount removed was quite a bit. At my post op he said I would be surprised about how much he actually took. I know most of you have probably read my other post about being freaked out by the gathering of skin over the excision site and the not so round anymore areola...I'm just trying to figure out where to go from here if anywhere at all. Do I go back to the surgeon and deman another form of bx? Again I do not have any redness or rash or pain...well that's a lie...I have occasionally gotten a sharp pain ( a handful of times) but my understanding is that everyones symptoms are differant. 

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  • Caseysmom
    Caseysmom Member Posts: 507
    edited November 2009

    Jalmom09:

    IBC is totally a separate bc, however there are some that will be dx with another form of bc and then get dx with IBC.  Yes not everyone has the symptoms that are listed for IBC.  I had what looked like dermitits.  No swollen lymph nodes ect.....

    I would get a second opinion or have them send you pathology slides out to a university or large medical center such as the Mayo Clinic.

    Laura

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  • Faith316
    Faith316 Member Posts: 2,431
    edited November 2009

    I am one of the people who was dx with another form of cancer (IDC) and then later IBC, but most IBC diagnoses are the primary dx. 

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  • ibcRN
    ibcRN Member Posts: 5
    edited November 2009

    IBC is a clinical diagnosis based on the visual symptoms present and the information given by the patient.  The symptoms typically develop and worsen quickly rather than over a longer period of time.  A biopsy of the skin (punch bx) is typically done to check for cancer cells or tumor emboli in the dermal lymphatics.  Usually 2-3 punch bx are done in areas where there are visual changes in the skin.  A surgical biopsy can help diagnose cancer but at this time IBC is considered a clinical diagnosis made by the surgeon.  Some pathologists will report that a biopsy is suspicious for IBC but tumor cells in the skin and lymphatics can also occurr in locally advanced breast cancer (LABC).  The timing of symptoms and progression help determine if this is IBC or LABC.  This is why it is hard to get an adequate diagnosis.

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