Stage II Forum
Comments
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Wow LEAH great trip to be able to take! What a milestone. When I asked my onc about prognosis he said with a wry smile- "Don't stop paying your taxes yet!" And that was sweet to hear. Best, Valerie
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Nena thanks for sharing your story........
I feel like this thread is my own little breast cancer support meeting that I never got to attend. We are all gathered around in this circle sharing what is bothering us today. Yes we share Early Stage Breast Cancer......but we have so many questions....feelings.....we need to cry.....we need to laugh!
I so wanted to attend a group meeting.....but the time was from 4pm to 5pm......give me a break! I also wanted to find a exercise swim class at the YMCA that had classes for women recovering from surgery..........but........ON NO.........no such class. So I did everything by myself trying to find my way back to the old me. This site became my FRIEND.....I could read, share, laugh, and cry my heart out.
I wish the medical establishment cared more about us after the treatments are over. I never once had anyone reach out to me after surgery or during chemo. I find that a horrible way to treat a patient dealing with cancer. I guess I will have to do some volunteering once my grandchildren get a little older.
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Athena-Lioness - you are so right! I felt just fine before this nonsense. Had a trip to the UK planned, was looking forward to all sorts of things in life and then wham! Somebody I don't know saw something I couldn't see or feel on a mammogram and then there goes the best part of a year recovering from the treatment. Yes, all the health care providers have been excellent and since I am in Canada, relatively worry free. Nevertheless, it certainly is counter intuitive at best.
It has come to the point where I was delighted to wait at the car dealership for some work on my car. After that waiting, no one was going to poke me, undress me or put poisons in me. They just wanted my money.
What an excellent thing that you have finally had an appointment that makes you feel better rather than worse.
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I'll pop my head in here too and wave hi! I haven't been staged yet but I can't imagine I'll be anything but 2a or 2b. I haven't got my surgical pathology report back yet and surgery was the 21st - what's up with that? But, my sentinal nodes were clean so unless they found vascular or chest wall invasion, I should be TWO!
London, I loved your comments about not feeling bad about our lifestyles. I got cancer. I don't blame myelf. I have always eaten pretty healthy. As a kid I used to scream at my mom for feeding me lunch meat full of nitrites. Did she want me to get cancer, or what???? When in doubt, blame mom. LOL, but I never sad no to the bacon.
I like my microwbrew beer and have 2 a day with my husband. Sometimes on a weekend, I'll have three. I don't think that's excessive and I don't intend to change the things I enjoy - I've always believed all things in moderation and I intend to keep to that plan.
Including my cancer. Stage 2 sounds like cancer in moderation to me, so I'll take it.
If the path report comes up any different, I guess I'll have to delete this post.
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Lassie and Athena-I know what you mean about the Dr. visits. I have gotten to the point where I just assume that an appointment will come with pain. Somebody will be coming at me with a needle is almost a guarantee. I did chemo without a port so I guess part of that is my fault for agreeing that I could do without but I have thought that it is not right that we get this illness and then get tortured for a year (or more). Guess that is why none of my doctors had any problems giving Xanax. Maybe they needed a few too. Great to hear you feel a little better Athena.
Leah-Have a wonderful trip and hopefully wherever here in the States you are going is WARM:)
Rumoret-thanks for starting this thread. I thought about a support group too but couldn't really find one. This is a great alternative.
CoolBreeze-hope you end up with cancer in mod. No post deleting necessary...grab a microbrew and tell us how you are feeling. I am also of the POV that we did not do anything to cause our cancer. I asked my onc (and BS,PS, everyone) if I did anything to cause this and my onc, who is YOUNGER than me said maybe it was the big old microwaves we got in the '80's and I said no it had to be my Atari game system.....too much Pong and Pacman playing as a kid!
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Stopping in to say great idea for a thread...love it! I'll also be adding to my favourites!
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Count me in, too....As a Stage 2, some of us have the dreaded "lymph node involvement" and this is a great place to be with each other with similiar diagnosis! I am also both her2 AND estrogen positive..I guess if I am going to do this C thing, then I go all out! lol
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Hello,
I've had the surgeries to remove it, the diagnosis for treatment, chemo to kill it and radiation to burn what chemo didnt kill. I've paid my dues and am a member of the Stage II forum.
Hugs to all the Stage II ladies. I'm pulling up my chair to join the circle. It's great to have our own little place on the board.
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Can I join? Thursday I go for my "routine" 6 month mammo and echocardiogram. All of my tx are finished. It is a year and a half since I was dx at the ripe old age of 62 and 3 weeks before my only son's wedding. Am I the only er/pr neg and her positive... so far? Hugs and Blessings for all, Nancy
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This thread is wonder!!!!ful, thank you so much for starting it. Yes, I am a stage 2b, bi-lateral breast cancer survivor. I will be 5 years out next week. I have never felt better. Looking forward to living my life to the fullest and on the humorous side of this, people are so much nicer to me when they find out I have had cancer, especially when I am chairing such committee and I need help. Ha, ha!! As the wonderful Stephanie who just recently died, said, God is able and He will use us in a mighty way. God bless you, all!!!!! Kathy
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Hi Kathy,
A 5 year survivor!! That is awesome and inspiring.
Just a thought, could we have a topic of the day/week, to get the momentum going? I'm all out of ideas at the moment, my brain is still sleeping this morning. Anyone have something on their mind they'd like to get off their chest? (no pun intended!!) LOL
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Topic of the day/week....good idea
Does anyone else find themselves checking for lumps and bumps on a daily basis? I find I wake up and check my neck/groin/armpits etc. Crap...enough already. I want to get through a whole day and not think about it.
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I check for lumps/bumps everyday also. However on my right breast where I had the surgeries, I cant tell if the lump/bump is scar tissue or something else. This is something I'll discuss with my surgeon during the next visit.
I'm also a bit confused about the location of the node they removed that was positive. I just assumed it was from the armpit area. My rad onc said they were radiating on my upper chest due to the positive node. The redness from radiation is up near my neck, collarbone area. Something else I'll need to discuss with the surgeon as I did not ask questions in the beginning.
This whole experience has been one big learning process for me. It's great to have other women to talk to who are going through or have gone through the same thing!!
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I never thought I would be so obsessed with my body....lol
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Jean - it sounds as if you had the same radiation that I did. The explanation I got is that the lymph nodes are like a tree. The "invvolved" node is gone - the radiation is up a branch higher in case any of those little suckers escaped up higher in the lymph node system. As far as I can tell, everything since surgery has beeen "just in case".
I never check for lumps. Both times I had breast cancer, the lump was found by a routine mammogram and was not palpable - not even by the surgeon who knew what he was looking for. So I just don't worry about it til the next mammogram or MRI or CAT scan or whatever test is next.
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Good Morning Ladies. My name is Sheila. I have been reading your posts every day and how much I can relate to your stories.
Until to this day anything happens in my body right away I connect with BC.
I had a lumpectomy twice ( no clear margin the first time ) chemo, Herceptin for 52 weeks, radiation. port was put in and taken out 18 months later.
I see my Oncologist every 4 months and still my anxiety level goes high.
Tomorrow is the 4 month check up. I can say this the first time didn't drive myself crazy because I really feel I belong somewhere and I can express my fears with you BC sisters who can understand and do not tell me <Everything is behind you now>
I hate that expression but I guess people mean well.
Rumoret thanks for opening this thread.
Hugs to everybody.
Sheila
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Hi Sisters............I am now in my Group Therapy Class with all of you.
I have to share an experience I had the other day when my husband and I went out for an early dinner and drink in a small country diner/bar he stops at when riding his Harley.
Anyway...we are sitting at the bar and enjoying ourselves like we use to before breast cancer entered our lives. Behind the bar was a mirrored wall......so throughout the evening I could catch a glimpse of both of us enjoying each others company. Later that evening I found myself looking in the mirror and thinking how I WAS FEELING LIKE THE OLD ME and was actually having FUN!
So I turned to my husband and was beginning to express with delight how NORMAL I was feeling since being diagnosed with breast cancer.... when I immediately started to tear up at saying BREAST CANCER. I looked at my husband with tears pooling in my eyes...and I silently shook my head signaling to him that I was pulling it together. I never could get the sentence out and he never asked what was wrong........we both knew without saying a word.
I'm just like a wounded soldier dealing with Post Traumatic Stress after coming home from war. You never know what sight, smell, sound, or familiar feeling might turn me into a weeping soul......my heart is still in healing mode. I guess this will be my NEW NORMAL.......and it will require some life adjustments so this beast can stop stealing my limelight.
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Leslie,
Thank you for that explanation, it makes sense to me now. My rad onc is a very nice man and I am grateful he reviewed my case thoroughly and gave me the radiation he felt was required. You say you had bc two times? How many years apart were you diagnosed?
Hi Sheila, welcome!! Good luck at your check up tomorrow, let us know how it goes!
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I like the idea of TOPICS per week.
Question to all Stage II sisters: If this thread gets really long and we are on a different topic each week......will our New Stage II sisters who find this site feel comfortable just posting in the middle of this Weeks Topic?
That would be my only concern.....that is why I would like to see breastcancer.org actually give us our own FORUM so we could post different threads by Stage II sisters. Other than that..........I like the idea of weekly topics.
Love You All,
Terry
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I agree...own forum!
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Hi, all!!! Thanks Jean for congratulating me on my 5 year anniversary! That was so nice!!!! Even though I had a bi-lateral mastectomy and no reconstruction, I still check for lumps along my chest wall, just habit I guess. I would love to have our own Stage II forum. thanks!!! Kathy
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Hi Rumoret,
If we get an officical Stage II Forum, that would be great. If not, I am happy posting here. Thank you for starting this forum topic!!
Hugs to All!
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You guys make me feel like a freak.
I don't check for lumps, and I'm not worried about recurrance. Maybe it's my ADD, or perhaps it's pure stupidity, or maybe it's because I'm still a cancer newbie - but thinking into the future isn't something I do very well. I just am sure that once this year long nastiness is over (chemo, herceptin, reconstruction) I'll be back to normal and moving on and not thinking about cancer again. Maybe I'm wrong.
It's not that I never worry - I've always worried about my children - but never about me.
Something must be wrong with me.
But, I really love the idea of being five years out and people doing stuff for you because you had cancer, lol!!
How do you let the news slip?
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CoolBreeze, no need to feel like a freak. You're still in the middle of treatment (as I seem to remember from other posts of yours). I know I didn't start the constant check for lumps thing until afterwards, and I think a lot of the ladies are the same.
Just mildly FREAKING OUT right now at the thought of the mammo and u/s on Thursday (first since dx).
Leah
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Dear Cool Breeze, I definitely tell people about my cancer because I want them to know that it is not a death sentence. I know so many people that have been just diagnosed. They all need that reassurance that they will be around to see their children grow up and have grandchildren as well. I tell them it is a gliche in the road that they can handle.Hope and Faith are everything. It's what us going. God bless you, Kathy
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Yes, I'm still pretty early in treatment. I have had a mastectomy and have not started chemo yet. I see my onc on the 9th so I expect I'll start soon after. I guess the lump checking will come later.
Right now, I'm a LOT more worried about a friend who also has cancer than I am about my own.
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What do we need to do exactly to get our own forum? Our needs in Stage 2 are different than 1. It is important every person that comes here to learn, vent or just read has a place to "fit in"...Let me know if there is anything we need to do....:)
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If you pm Melissa and ask her, I'm sure she would be amenable to starting up a Stage I - II thread. There's one for everyone else...
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Ladies if anyone is feeling uncomfortable that I'm not stage 2, I leave the thread.
I PM ed couple of people about this they said they had no problem. What I see sometimes its only the size made you stage 2.
Sheila
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Sheila...don't be silly!! You are welcome here always! There are never two stories alike and we all can learn from one another...ie you are HER2 and Estrogen Positive (just like me!)
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