Has anyone started a forum for Chemo in Dec 2008?

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  • swest
    swest Member Posts: 680
    edited October 2009

    Wonderful news Mandy!!!  I'm so happy for you!

  • havehope
    havehope Member Posts: 503
    edited October 2009

    Mandy

    Good news in the bad news (lung). Get well soon! 

  • EleanorJ
    EleanorJ Member Posts: 752
    edited October 2009

    Great news on the lung infection :)

    Well, tomorrow is my one year anniversary since dx. A year ago, I considered myself dead not knowing anything about cancer. So here am I a year later, happy & alive :) Surgery anniversary in 2 weeks. I guess this is the beginning of all those one year milestones for us. I have found myself very emotional entering October this year. Last week, I had to go out of town (a simple hour drive!) to run an errand and found myself driving back home right in front of THE spot when I got the call. I had gone shopping at the outlet with my MIL when hubby called to say my BS wanted to see me that day, my appt wasn't for another week. I knew it before she returned my call, why else would she want to see me NOW, 2 days past biopsy. Anyhow, I was driving, kids in the back seat and saw the outlet mall, I got all teary remember that moment so vividly. Phew, what a year it has been!

  • Texas357
    Texas357 Member Posts: 1,552
    edited October 2009

    Bet you never thought you'd be so happy to have an infection!!!!!

  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited October 2009

    Yep, I never thought I'd be thrilled to have a lung infection. But it sure beats the alternative. Thanks for the good wishes.

    Cebula: those anniversaries do pop out at us.  But the good news is that you are here and will celebrate many more of those anniversaries.  

    Have a nice day! 

  • horsercn
    horsercn Member Posts: 32
    edited October 2009

    I know how you feel....yesterday was my one year from dx.....I was very emotional all day.  The year has been a long one and I have learned some things I didn't really want to know.  November 4, 2008 was my surgery last year so my 1 year cancer free is coming up. This is Breast Cancer Awareness Month....ironic that so many of us were dx in October. 

    I'm praying for all of us and all the women and men who are just starting the journey to hell and back. 

    I started this discussion or what ever its called last year so I could talk to people and they would know what I was going through.  All of you have helped me so much this past year and I just wanted all of you to know how much you have been there for me.  If it weren't for this discussion board I don't know what I would have done.

     God Bless all of you

    Tricia 

  • colleen1960
    colleen1960 Member Posts: 226
    edited October 2009

    Just checking in to see how everyone is doing.  Can't hardly believe that it has been one year for most of us.  It all seems like a bad dream.  When i was first diagnosed, I would have the same dream for weeks.  I was diagnosed with cancer and it was horrible and then I would wake up and it was just a bad dream.  Well it was not a dream but I did make it through.  Had some hard times but it gets better all the time.  All of you have helped with kind words and advice.  It would of been difficult without having this thread and CMF thread to get help from people who were going thru the same things.  And for anyone who asked me what I got out of this.  I may of changed a little bit, but like everyone else said I was a good person before and maybe I am a little better now.  But the big thing is CANCER SUCKS!!!

    Have a great weekend,

    Colleen

  • Texas357
    Texas357 Member Posts: 1,552
    edited October 2009

    I had someone compare this "new normal" to giving birth to a "new life". Like one is all positive and this sucks, but she meant well when she said it.My mom can't figure out why all of her friends who have had cancer have recovered so quickly after rads finished but my side effects are still hanging on. Mom? Did it occur to you that not everyone is going to be so open about all the little things as a daughter is to her own mother????

    I'm still fighting the heavily watery eyes, skin that feels like pinpricks whenever I get slightly warm (nerve regeneration my onc. says); the roof of my mouth and the tip of my tongue have never regenerated nerves, and drumroll .... I'm about to lose 5 fingernails for the 4th time!!!

    Funny thing is: I'm extremely happy most of the time. I'm just glad to feel better than I have most of the last year.

  • EleanorJ
    EleanorJ Member Posts: 752
    edited October 2009

    Well Texas, I think we can honestly say that out of all of us, you probably had it the worst :( Not everyone's body reacts the same way. I had it rather easy. I hope those linguering SEs stop soon for you.

    So, we headed out to Trader Joe's yesterday to get this amazing marinated beef they have to grill. Picked up myself a homemade Chocolate Ganache Torte (from TJ as well) and a nice bottle of wine. I know right, charcoal & wine to celebrate a year past cancer dx! We had a great evening, played a Trouble with the kids, they were hyper from the chocolate, we were from the wine.. oops, we had fun screaming around the table. The small things in life :)

  • Texas357
    Texas357 Member Posts: 1,552
    edited October 2009

    WAAA!! I want a Trader Joe's to open near us! Houston is the 4th largest city in the U.S. and we don't have a Trade Joe's. I love that place!

  • Texas357
    Texas357 Member Posts: 1,552
    edited October 2009

    WAAA!! I want a Trader Joe's to open near us! Houston is the 4th largest city in the U.S. and we don't have a Trade Joe's. I love that place!

  • EleanorJ
    EleanorJ Member Posts: 752
    edited October 2009

    Yeah, we like Trader Joe's but honestly you still have to check what you buy there. I was looking for something sweet and still so many desserts had corn syrup in it. I think people tend to shop there thinking it's ALL better for you than regular grocery foods. We were happy to move back in TJ land last year, we missed it when we were in SC. Still a 45 min drive to get to though.

  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited October 2009

    Even at Whole Foods I have to check each and every ingredient.  I started doing that because I have a daughter who as a child had a life threatening allergic reaction to sodium metabisulfite, a preservative used in coconut and dried fruits as well as other things (she has since outgrown it, amazing as that seems).  I was always surprised to find that even in a place such as Whole Foods, you might find dried fruits that were preserved. I agree with Cebula that people go to these "healthy" markets thinking everything is good, but while everything is better than in an ordinary market, it is not all good.

    However, if you are craving coke, Whole Foods sells a coke made with sugar, not corn syrup.  I bought 4 bottles at one point when I wanted coke.  I still have 3 left but it is nice to know it is out there.

    Hugs to all.

    Mandy

  • havehope
    havehope Member Posts: 503
    edited October 2009
  • Firni
    Firni Member Posts: 1,519
    edited October 2009

    Hi Divas!!  I've been absent for a while.  Needed to be in a no cancer zone for awhile.

    Congrats, on infections, arthritis etc instead of mets.  BC sure has change our perspective on things.

    Texas, I still don't have eyebrows either.  The lashes on my left eye are about half way back and are looking good.  My right eye has lashes that are all bent and going every which way.  So, still no mascara for me.  I have one chemo ridge on each fingernail and then they will be back to normal.  The hair, well, 8 months now post chemo and I finally have about an inch.  The color is a nice medium brown except for the corners of my forehead. (no my head isn't actually square), those hair are blond.  Not white, but a really pretty golden blond.  So far my hair is still pretty straight but it is starting to wave a bit.  It almost looks on purpose.

    I have a job interview on Fri.  I don't know if I should tell them I spent the past year battling cancer or not.  I didn't work so there is that hole in my resume.  What do you all think? 

  • Bold
    Bold Member Posts: 692
    edited October 2009

    I would tell them if you present it in a way that it will benefit them. I.E. Your focus and determination. I would also allay any fears of your absenteeism. You treatments were successful and it is time to live your life with the verve and ambition that you have always embraced If there is anything that you have taken away from this is that we have a  responsibility to be and do the best we are capable of and to make each day counts. BLAH BLAH. You get my drift. I would disclose it rather than with hold it. I wish you all the luck and skill in the world. A little warning that you should move quickly on to other subjects as your victory over cancer does not define you. Remember to research the company and have the facts. Ferni if they have a brain in there heads and you want the job it is most likly yours!!!!!!!!

  • BonnieK
    BonnieK Member Posts: 655
    edited October 2009

    Hi everyone,

    I haven't been here for awhile and wanted to stop in and say hello.  It's so good to catch up on your posts!  My dx anniversary was September 15 and my surgery date will be Oct. 21, so I'm right in the "zone" with everyone else on this thread.  Arimidex and arthritis give me lots of aches and pains, but Celebrex is good for those and they aren't cancer-related!  I do have capsular contracture and the PS is recommending another surgery if vitamin E and Trental don't help in a couple of months.  I've had more problems with reconstruction than most of the other treatments combined.  The capsular contracture feels just like the TE did -- NOT good.  Congrats to all of us celebrating our 1 year anniversaries!!  --Bonnie   

  • EleanorJ
    EleanorJ Member Posts: 752
    edited October 2009

    Firni Good luck on the job interview. I agree with bold, plus if you land on a very conservative man that likes woman with long hair, then it would explain it :)

    I finally started treatment for my lymphedema. Right now, have left foot (which I knew about for a while now) and chest/left breast LE (probably from the lovely radiations!). Left forearm also *slightly* bigger, nothing to worry about, but definately something to keep an eye on. Going through the process of getting this amazing lymphedema pump. I tried it at my therapist office yesterday and after tx, my chest had reduced about an inch! I was impressed since the pump I got last year for my foot never did much. Insurance should pay for it 100% :) She's also ordering me those toe caps, can't wait to get those and an arm sleeve in case I fly one day, some chest stuff. She's having fun shopping for me ;) Still have some therapy left for my coccyx & herniated disks, but that's feeling MUCH better. Phew.. In between both places, I have 5 appts per week these days!

    Settling on the new house on Friday and painting for 2 weeks!

  • EleanorJ
    EleanorJ Member Posts: 752
    edited October 2009

    Well, it just occured to me that if I have chest/breast lymphedema, I should get my boob squished next week for my mammo! Just called my BS and we'll see if she agrees to the MRI due to my swelling concerns. Really don't want a mammo, they hurt :( Plus, I never got a breast MRI last year so it would give me extra peace of mind.

  • Firni
    Firni Member Posts: 1,519
    edited October 2009

    Caroline, you have a very valid point.  If we aren't supposed to have our BP taken in a lymphedema arm, why would you squish your breast with the same condition?  I sure hope you get all your swelling issues under control.  I think the pumps are great.  However, my LE therapist doesn't believe in them.  My PCP and Physiatrist both suggested one for me tho.  I'll check with my PCP in a couple weeks.  I know my ins. pays for that.  The swelling in my thumb has never gone down and even with the toe cap, I still have problems with my foot on some days.  I'm glad to hear that you're feeling better otherwise.

    Bonnie,  I'm so sorry you're back to feeling like you have TEs again.  How miserable. 

    I had another revision surgery on 10-8.  I went to a different surgeon this time.  Now I'm much happier with the size, position and softness of my new foobs.  I was taped into a surgical bra for a week.  It was so tight I have bruises on my ribs.  I had that taken off this morning and I'm so much more comfy now.

     I got a letter from my onc. office today saying that as of 1-1-10, they won't be taking my insurance any more.  GRRRRR.  Now I have to find a new onc.  I will be able to see my onc once more in Dec.  Hopefully he can recommend someone. 

    Thank you all for your input regarding my upcoming job interview.  I've decided to not bring up cancer  tomorrow.  If I get called back for a second, I'll most likely tell them.  The job is the Marketing and Leasing director at a senior living community. Mostly lots of walking around and talking and sitting and talking.  No lifting or anything strenuous.  You know those older people don't even walk at a very brisk clip!  I'll let ya'll know how it goes.

  • swest
    swest Member Posts: 680
    edited October 2009
    Good luck tomorrow Firni!!!!!!! Smile
  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 1,585
    edited October 2009

    Show them your stuff Firni!!!! In sisterhood, xo

  • Texas357
    Texas357 Member Posts: 1,552
    edited October 2009

    Good luck tomorrow Firni! And Caroline good point about the mammo. Even though I've had a double, my BS says he wants to order one every 2 years to watch for skin mets. Does anyone else still see their BS? I expected that I wouldn't see him after I saw him the week after surgery but he says once a year at least.

  • swest
    swest Member Posts: 680
    edited October 2009

    Texas - I have not seen my BS since I healed from my MX.  I'm coming up on my 1 year and have not heard from his office.  I don't think I am to see him unless something comes up.  I thought my onc. was the one watching me for the long term....???

  • havehope
    havehope Member Posts: 503
    edited October 2009

    Firmi, good luck! I would not tell about bc unless they ask.  

    My BS said he wants to see me every 6 mo the first 2 years and then once a year. I am planning to have thermoscan once a year. My onc wants to see me every 6 months for the next 3 years. 

    Anybody had a PET scan done at the 1 year anniversary? I don't know if I should have one or not?

    Have a good weekend! 

  • swest
    swest Member Posts: 680
    edited October 2009

    Firni - How did it go with your interview?  We are waiting on pins and needles!

  • Texas357
    Texas357 Member Posts: 1,552
    edited October 2009

    Can't stop crying. The eye doctor who put in the stints is a jerk. I've had nothing but problems with him and his staff. So I self-referred myself to a specialist in Taxotere-related eye problems down at MD Anderson Cancer Center.

    The only problem: they need my records from the jerky eye doctor I've been seeing and they aren't sending them!!!!

    The eye doctor is part of a group that has several offices, and the medical records office is downtown but my chart is at an office closer to where I live. Somehow I wasn't surprised when they told me they can't fax my records unless they have my chart downtown so I'm just going to have to wait until someone can transport it.

    This is an eye surgeon who, among other things, required me to find another doctor to order the chest x-ray and EKG for the surgery HE was doing; never came to see me before the surgery or talk to my husband afterward, and FORGOT to get insurance authorization so he can remove the friggen stints. Meanwhile, he's trying to strong arm me into another surgery that only he does.

    When there's ice in the center of the earth maybe.  But in the meantime, they are throwing a major roadblock into my getting help elsewhere. My eyes have been watering nonstop since April -- I go through a box of tissues a week easily -- and I'm at the breaking point.

  • swest
    swest Member Posts: 680
    edited October 2009

    Hang in there Texas!  Can you go and get the records so you don't have to rely on them?  I would do what ever I could to get into MD Anderson now!  You are a fighter!  I know you're tired of this mess but maybe this new Dr. can help!

    ((((((HUGS)))))

  • havehope
    havehope Member Posts: 503
    edited October 2009

    Be strong Texas! You can do this. Wish you all the best!

    xoxo

  • Firni
    Firni Member Posts: 1,519
    edited October 2009

    Texas, how absolutely ridiculous.  You should report that man to the AMA or something.  I'm sure there is a reporting agency that you can complain to.  Maybe all you need to do is threaten to report and they'll let you pick up your file.  Do you have any attorney friends who can write a threatening letter for you?  Or just call the office and ask if you have to sue them to get your records?  I just hope you can get this all straightened out and they guy at MD Anderson can fix your eyes.  You're smart not to do any more with the quacky guy.

    I haven't seen my BS since my MX.  I do all my follow up with Onc every 6 months and PS.  Plus I see Gyn and PCP every year.  That's someone looking at me at least once every 3 months.   Why would BS need to keep seeing us?  Co-pays?   Texas, why mammos after a bi lat MX?  What does your BS think a mammo would see?  You have no breast tissue left.  If your onc does a physical exam he should find anything growing.  As would would your gyn.  It would make more sense to have an US or MRI that will also look at nodes and tissue under the breast area.  A mammo won't do that.  Does your BS get a commission on mammos that he refers?

    My interview went ok today.  He said he got 66 resumes and is interviewing 17 people.  After he's see all 17, he'll pick the ones he likes and call them back for a second interview with the board.  The place is a non-profit so the money isn't as good as I was used to, but it's more than I'm getting now.  He didn't ask why I left my last place of employment and he didn't ask what I've been doing the past year so I didn't offer any info either.  Anyway, he's hoping to have the new person start the first week of Nov or so.  In the mean time, I'm going to keep looking.  I don't think I'd be happy too long with the pay as my DH income is unreliable.  He has a small cabinet shop and sometimes there's work and sometimes there just isn't.  In any event, the interview was good experience as I've not really interacted on a professional level with any one for over a year. 

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