lymphedema caused from radiation?

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Sunflower64
Sunflower64 Member Posts: 166
edited June 2014 in Lymphedema

i've had 10 lymph nodes removed and i worry about lymphedema.  i will starting radiation and wanted to know if anyone got lymphedema from radiation?

thanks,

diane

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  • sisterinspirit
    sisterinspirit Member Posts: 204
    edited October 2009

    Diane,

    I am so sorry you find yourself having to worry about lymphedema.  In my case, and I think in many others, no one quite wants to take responsibility for whether surgery or radiation causes lymphedema.  There will be others along shortly that are much more knowledgeable than me, but I recommend that you take a look at the http://www.stepup-speakout.org/ website that has been put together by a wonderful group of people.  Since you have had lymph nodes removed and are about to start radiation you are at risk of developing lymphedema.  I've heard figures that about 30% of people develop LE, which means about 70% don't.  As a preventative measure,  I recommend that you get in touch with a LANA certified lymphedema therapist as soon as possible so they can do a base assessment, take measurements, and edcuate you on preventative measures you can take right now to reduce your risk of developing LE.  Should you develop LE, your therapist can teach you manual lymph drainage and other techniques that will help keep it under control.  Preventative measures and early intervention are key.

    Hope you will let us know how you are doing.  You'll find a lot of support and good advice from people on these boards who have gone through similar treatment.

     Best wishes,

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  • kira66715
    kira66715 Member Posts: 4,681
    edited October 2009

    Diane, radiation is a risk factor for lymphedema, it's less if the fields don't include the nodes. But, it is JUST a risk factor, and the odds are always in your favor, that you won't develop lymphedema.

    Deb gave great advice, to see a lymphedema therapist, get evaluated and get some guidance.

    I actually work in a radiation oncology facility right now, and lymphedema is written as a possible risk on our consent forms. The rad onc is adamant that while you're going through radiation and the breast is red, and there's increased blood flow to the area, to be especially careful.

    With IMRT and careful planning, they should be able to avoid the axillary nodes, if that's appropriate for your situation--be sure and ask them--because each case is planned for the individual.

    Radiation is a long haul, and take care of yourself, and be gentle to the arm, and know that the odds are always in your favor.

    Kira 

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