Starting Chemo February 2009?
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so, still haven't heard from my MD. That doesn't mean anything, right?? I keep thinking that he wants to talk to me about something bad... and is putting it off till tomorrow. <sigh> That's crazy, right?? He likely just was busy and didn't get a verbal rept, right?? Tomorrow the *official* report will be in the system... uggghhh... patience is not my thing....
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He didn't get your report Michele. He maybe having a nice evening with his wife, you know out to dinner and a movie. Hang in there sweetie, hang in there......
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Oh, Michele, it is my experience that if something is "wrong" you hear about it sooner rather than later. I would say he either hasn't heard himself yet, or there is nothing to comment on. Let us know as soon as you hear. I know how you are feeling - after I do blood work my heart freezes every time the phone rings in case it is my Dr. Yesterday my husbands rheumatologist called confirming an appointment, and when I saw the name on the phone I panicked for a second, before I remembered it was his doctor! I am getting nervous for my MRI on Saturday, and I know they don't even read the Breast MRI's until Fridays, so I will have over a week of waiting.....
So, I picked up my Zometa yesterday, it cost us $65, so not too bad. It is sitting here now waiting for the nurse to call and set up a time. A bit concerned of my reaction to it, I think people feel fluey for a couple of days afterwards. Still, worth it I think!
OK, Michele, keep us posted...
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a week!!! holy-sh!t, Kerry... I'd go nuts.
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Well, if isn't being read, i don't have to worry about it! And it is just a follow-up, hopefully the cells they are tracking have gone!
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clear PET!!!!
Today is his day off and he texted me 1st thing... Apparently, the radiologist didn't call him yesterday (because the PET was normal) and by the time he got around to calling the radiologist, he had already gone home... my onc was in a different office yesterday so things are confusing on tuesdays.
In any event, the next scans aren't 'till the 1st week of Dec. I'm MD-appt-free (except my jaw) 'till mid-Oct when I start the pre-op stuff for my other mastectomy. What will I do with the time???
Kerry~ if you don't mind my asking~ why didn't you have a bilat at your initial diagnosis if there was something worth watching on your other side? I didn't have one because I wasn't ready to make that decision... I can totally understand that feeling... Just wondering...
Thanks, everyone for holding my hand through all of this. I need to figure out better coping strategies. I look at all of ya'll out there and you seem so *normal*... Why can't I seem to move on???
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Wheehee Michele, wonderful news!!
If I could have a "do-over" I would have had a bilat. I guess we weren't really thinking that way, and my BS didn't suggest it - it is funny how much we didn't know back then! Anyhow, what happened was - they did the Breast MRI after Dx. They told me not to worry if I got a recall, as most people did. So, of course I did! There were two spots that showed up. I was given an ultrasound, the radiologist did it himself, and one was definitely a fibroandema (sp?). The other thing didn't even show up on the U/S or the Mammo. He said he would probably recommend we wait, redo the MRI in 6 months, see what was happening. But my BS said if I needed surgery to remove it, she wanted to do it all at the same time. So, I had an MRI guided biopsy, which was probably the worst experience of this whole jolly mess. Anyhow, it came back as atypical lobular something, which is not malignant, but can be a "marker" for cancer. Not related to the IDC at all. So, my BS thought that the Chemo would get rid of it, and this MRI is just checking that it has. Worse case scenario, it is still there, and they will want to remove it, if so then I get the boob off, which wouldn't worry me. So, I am trying not to stress too much, but of course i am now thinking "what if they find something else as well"....
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SEE, SEE, told you so !!! (in my best little kid voice) I am thrilled to pieces for you Michele. I think you are moving on. You may stress a lot when it's scan time BUT if you didn't I think I would worry more about you.
Alright Kerry they are not going to find anything but nice healthy breast tissue ((bighugs)).
I got my bra and my poofies. I am going to take my insurance company broke out of spite....lol... I was looking at some kind of foobies that are $2700 a piece and are made by taking impressions and my insurance company pays for them. I am ready for my the aching to stop but I did find something out about non-healing, herceptin and type of cancer. So I feel more confident in my decision.
I am feeling very light headed today which scares the crap out of me. It doesn't matter that it's my allergy season, my DH and son are sick....non of that matters I automatically go to the worst case senerio......... STINKS........Did I mention I HATE cancer????
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Michele, I'm so happy you get a break from doctors and tests for a while! I really can relate to the desire to just run away where we can pretent cancer never happened to us!
I heard last night that my freind who was maid of honor in our wedding passed away from cancer. We lost touch over the years and I don't know what kind she had. Cancer sucks!
Yesterday, strangely enough, I started having pain in the leg with the superficial vein clot in it. I had another ultrasound to rule out a deep clot (I don't have one) and saw my oncologist today. I am off tamoxifen until further notice. Onc wants to talk to a hematologist (blood doctor) to see what we should do. In the mean time, I am to take a baby aspirin daily to thin my blood a little bit.
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Cheryl, Are you still wearing your sexy tights?? They thought I had a clot in my jugular and did an ultrasound to rule it out. For a brief while, I was really worried about it!! Have they told you to walk, etc to try to prevent another one?
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I had been only wearing my TED hose at work. Doc did recommend I wear them during the day. I am pretty active already with my kickboxing and tai chi.
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Michele: Great, great, great news about your scans!! I am so happy to hear this news!
Jaimie: Sorry you have to go through this again, I'll be thinking about you tomorrow, and wish you a speedy recovery.
Kerry: great pic, I can't tell the difference either.....I need a swimsuit that is cut straight across....since my BS left my chest concave, it really shows easily if a shirt/suit is too low. I hate that.
I saw my onc yesterday.....my dizziness has improved, and the nausea is getting better, too, so she decided no MRI for now. If I get it again, then we will schedule it. She thinks there is some bug going around that is causing the symptoms, but I'm not convinced. I have felt sick and headachy the last few days, and woke up with a killer headache this morning, but have felt fine all evening. Jaimie, I agree with you, I HATE CANCER....don't want to have to worry about every little thing. would you guys push for an MRI?
She also referred me to a clot specialist to help me with my reconstruction decision (since they told me I would most likely get another PE).....there could be extra precautions I could take so that I can have the surgery. We'll see....
I have my first subbing job on Friday...I'm hoping the kids don't react weird to my short hair. It's a 5th grade class, so I am expecting someone to say something, lol, they can be pretty bold at that age.
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My niece Christina, pictured below, is a contestant in Miss Michigan this Friday. TOMORROW < THURSDAY> Please help us by going to the link below and voting for CHRISTINA BESH-Miss Plymouth-- for most photogenic, as it also helps her in the general contest...she is studying to be a Cardiologist and is entering to win a scholarship. Please pass along or post to your profile - your help would be greatly appreciated!!!! The vote is tomorrow Sept 17 THURSDAY ONLY. Thank you so much!
http://www.missmichiganusa.com/michigan_contestants.html
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Ya'll, I know I haven't kept up as well as I should, and I apologize. Those of you who have FB know I'm not dead, but I haven't taken the time to stop in here and be the friend I should to all of you who have been so good and so supportive to me. I'm sorry. Alot is going on at home and a lot of things are being sorted out at this point. To be honest, I haven't been able to put into words what has been going on with me. I should have trusted you to understand and help me through, but I'm kind of stubborn wench and don't like to admit things are as rough as they are...even with you all who understand better than anyone how hard this can be.
The good news is the hysterectomy+ooph is over and I feel great. Friday will be two weeks out and I have honestly never felt better in my life. It's not for everyone, but my fibroids, prolapsed uterus, ovarian cysts and strong history of LSIL paps (DESPITE BEING HPV NEGATIVE) really took their toll. I wish I'd done it years ago. Well, okay, maybe not before Monkey was born, haha, but still!
I'm going to try to get caught up this weekend, but believe it or not, Auntie A and I are thinking of going into business together. It just seems there are so many women like us--some have lost jobs because of cancer, some need to work from home in the first place, some have talents or crafts that they can't effectively market... we want to bring them all under one roof. A one stop shop for whatever you need...but independant contractors provide. Hopefully, many of you, Sue, Kristine, and others will benefit...we hope... It's worth a try.
So that's what's taking up my time, besides Monkey and Doctors and all the usual stuff. Again, I'm sorry I've been slacking. I think of you all every day, I just don't GET here every day. PLEASE if you have Facebook, add me! I'm Web Writer there and I would LOVE to be connected to each and every one of you!
All of that said, I'd like to introduce a "new" member to our Furies group. Marybe, like Apple, has been down this road before. However, she resisted chemo and only started on 2/18. She did it on her own, without us, but was active here anyway...she has only now found us and requested to be included. I assured her she was as welcome as any one of us because we are all in this together.
I know you all feel the same way, that's what makes our group so special.
I love you all. I keep you close in heart and prayer at all times. And it is good to know you've got my back too. No matter what.
XOXOXOXOXOX
Web
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By the way, I told MaryB and I want to ask it of you all too..I'd like to revise our Furies Membership List. I won't leave anyone out who didn't stay, but I'd like to expand the "stats" on the rest of us. It's not about chemo anymore. Most of us have gotten through that part, the rest soon will...many have done rads, some have done the ooph, many have moved on to AI's or Tamox...I'd like to include in our by-lines what happened next for us. That way anyone coming behind us can easily identify a similar diagnosis, but also treatment plan. I know that was critical to me in the beginning...I followed Otter like I was her SHADOW it was so close to mine! But it was only because her group had updated the stats that I knew...
What do you all think?
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Webbie I think that idea sounds awesome. You know we love you and while we miss your updates we take what we can get.
I am off to surgery. I am letting them use my port for the first time for surgery. I am going to be under IV sedation which is always interesting with me. I don't forget things and I talk like chatty Cathy (hell I do that anyhow). Anyhow I will check in later today. -
Webbie - that is a great idea!
Jaimie - good luck today! Keep us updated.
Judy - hope it goes great tomorrow. I love your new photo. I should update mine. I don't know if I would push for an MRI, you know if something nasty is there you will know about it soon enough. My sister had some virus recently, got very dizzy and nauseous, it lingered for a few weeks. I would give it a week, see if you start feeling better. A week won't make any difference to anything. I second everyone on the stress, I don't get a twinge without thinking "is this it." Do you think that anxiety lessens with time, or is this it for us now?? Grrrr.
Anyhow, hope a good day is had by all. Jaimie, waiting to hear all went well....
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Judy, I tend to be a testing junkie so *I* personally would ask for an MRI. With that said, all of this testing has resulted in lots of anxiety and countless sleepless nights so I'm not sure that I have made the right decision regarding testing/scans.
Webbie, CALL ME! I will drive across the bridge so that we can *do* lunch with the little ones!!! Just name your weekend!!! (Sundays tend to be better than Saturdays now that soccer season is in full swing.)
Jaimie, Thinking of you today. I'm so sorry that you are in for another foobie procedure. Life ain't fair.
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So, getting my Zometa at 7:30 this evening. Fingers crossed it all goes well, and she can find a vein! LOL!
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Bye, bye foobies ....but wait I have them but instead of being in my bdy they are now in a bag.... No joke my PS gave them too me ...lol... My chest hurts and every culture under the sun has been done. .My ps thinks there was a problem with a material like alloderm called stratice. She thinks that was the problem all along. I can take the bandages off tomorrow but I am in no hurry. The great thing with this surgery is that I have no memory of it. On my way to healing ....I am hoping for a January restart date.
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jamie.. you could make a piece of artwork out of those foobies. what are they made of?
webbie - you are so organized and michele i'll talk at you later.
lots of things have been going on with me musically - i also know more about facebook and how it works..
to be continued
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To vote for my niece, she's in the Miss Michigan contest for Most Photogenic....website is not accessible at this time but we can EMAIL to missmichiganusaphotogenic@gmail.com and put in Subject line: CHRISTINA BESH MISS PLYMOUTH USA
THANKS FOR YOUR HELP!!! One day voting today only!
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I voted, Judy! Good luck to Christina!
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Jamie ~ Thanks for offering to flash me with your NOLA boobies; I'd love to see them! I'm glad you're getting your computer fixed for free.
KerryMac ~ I'm not sure how the Herceptin's going. I had some nausea the first time, but my onc wasn't convinced it was the Herceptin's fault. I had Herceptin this week, and since then I've had vertigo which I've never had in my life so it has the be the big H, right?! Onc told me to use an OTC antihistamine; that's helping, and I feel MUCH better.
You're right about your swimsuit, Kerry; can't tell you're missing a boobie at all! Good luck with starting Zometa.
Michele ~ HURRAH for clear PET!!!
Cheryl ~ I'm so sorry about your friend's death. Yes, cancer sucks big time. I hope you get that blood clot straightened out soon.
Webbie ~ Good to see you! So glad the surgery went well. I think it's a great idea to update our stats in the OP.
Jamie ~ lol @ your "boobs in a bag" or maybe that should be "bag o' boobs". Anyway, I'm glad those things are out and you can start healing.
Marybe ~ Welcome to the Fabulous Furies!Furies ~ I got measured today for a lymphedema sleeve. It's for prevention only since I don't have LE and, please God, I hope I don't get it. I'm not *quite* as terrified of it now that I've learned how to do the massage and the bandage wrap...just in case.
Hugs to all,
Artemis -
scanxiety... assumptive madness, mitochondria, hypochondria.. what are some other names for the undeserved tension and anxiety we must feel for the rest of our lives?
i was talking with my 12 yr. old son. he's the comedienne with the lightning quick, creative spark, and the repertoire of expressions, mimicries and theatrical flairs who is convinced he has stage fright. 'Mom.. you have no idea. I ALWAYS throw up when I'm in front of a crowd'... it's true. When he serves Mass, he throws up afterwards.
i was talking with his music/drama teacher and told her he had stage fright. She said 'nonsense - you must train yourself out of it - tell them at every chance he gets, to talk, orate, pontificate, act or sing.. when he is in front of a crowd. He's gonna have to work on it because he's the star of the upcoming play.
somewhere in that advice is a lesson for us.
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Hey gang!! It's been ages--sorry. check it out--new pic of my hair. rads are done as of 8/12. Hope everyone is doing OK
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gcpommom I just cast a vote for your niece or at least I think I did....sent email as you said to do and just wrote that I would like to cast my vote for Christina and signed my name...think that will work. Is she from Plymouth? I was born in Northville, Mich......are you familiar with it?
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Jamie, I have one in a little plastic jar. In the beginning I had two, a small one on top of a larger one...it was to give a more natural look. Anyway, the small one slipped once when the dog gave a hard jerk on the leash when we were out walking and I could actually push it around...sometimes it would be almost over to the middle. This really didn't bother me, but I later developed bumps all along the incision line so they said they had to reopen the incision and find out what was going on. The polyeurothane covering on the implant that was supposed to help it stay in place and was to dissolve for some reason did not disolve on me and I had an allergic reaction to it. They removed the irritated tissue and took out the small implant which really looks pretty large to me. It's silicone and sort of like a very squishy nerf ball or something. Don't know why I keep it, but I do.......it's in the hall closet with my towels and linens and sundry items. The larger one they cleaned the covering off of and replaced after weighing it and making sure it wasn't leaking.
Artemis, I have a sleeve and wear it when I fly or do any lifting, working in the garden, etc. I don't have LE and don't want it.
Thank you for adding me to the Feb list, Webbie. I just hope I don't have to be added to another one soon, but am afraid that is where I am going to be....but for now I am enjoying my break very much.
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Marybe: thanks so much for voting.....I am proud of my niece, she is quite bright and has a great future ahead of her! I grew up in Canton, and now live in Garden City. I have been to Northville many times, it's a beautiful area....used to go to the ice cream shop downtown, can't remember the name of it....was it a Cloverdales??? What did you and your new? onc decide about the Taxol? I'm assuming since you're 'enjoying your break' that you decided against it? Is your neuropathy improving? I hope so : )
Artemis: Thank you, too, for voting for my niece. She is at the hotel now, the pagaent starts tomorrow....I'll let you guys know how she does.
Bethie: wow, you look great....lots of hair now! Do you have a bigger pic? How are your classes going?
Jaimie: I hope you recover and heal quickly.....I will be looking into recon around the same time as you...in January. I guess since you paid for the implants, it's only fair you get to keep them, lol.
Cheryl: I'm sorry about your friend, that sucks....how is your leg doing is it any better? It's good they keep a close eye on it.
Tomorrow is my first day subbing.....am a bit nervous. I will be at my kids' old school, I know everyone there, but haven't seen them lately. It's crazy to think that my oldest DD started at that school 18 years ago...and I've had a kid there every year since (until this year). I am concerned about the lack of hair--I keep thinking that if I want the district to hire me, the less they know the better...not sure what to do
I have been feeling better today...no more dizziness...no nausea, no headache, so maybe it was just a bug. Now if I could just get rid of these aches and pains, I'll be in business!
Off to bed now
Hugs
Judy
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Marybe: Actually, now that I think about it, my niece (who lives in Plymouth), well her dad and his family grew up in Northville, too.....they lived right near the State Police station (and that little "hospital") off of 7 Mile Road, on Maxwell....Besh is the last name, does it sound familiar?
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