Radiation or Masectomy? How do I choose?

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MAGA922
MAGA922 Member Posts: 7

I am a 69 year old female with ILC, LCIS and DCIS in right breast.   Had first surgery one month ago and second last week. Pathology indicates presence of cancer still.  Fortunately, it is still Stage I.  Given a choice today to do whole breast radiation and chemo or masectomy and chemo.  How I sensibly evaluate and choose one over the other?  Thanks for any advice!

Marie

Comments

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited July 2009

    Marie,

    It's generally wise to operate until the tissue removed reveals "clean margins": tissue free of any cancer or precancer involvement by at least 2 mm. Sometimes this is not technically feasible, such as when the cancer is next to the chest wall.

    Radiation is effective in killing cancer cells, but usually is given when the bulk of invasive cancer is gone. 

    Cosmetic views are important too. Will a third lumpectomy take more and still leave enough breast so that it suits your looks? 

    Lastly, your surgeon should review local recurrence risk with you: most indicate if a recurrence occurs, your outcome is as good as if a mastectomy (then done) was done initially. But every once in a while, a recurrence results in a more aggressive character or a positive node(s). 

    So, lot's to consider. You may wish to get a second opinion to review it all again with a different oncologist.

    Sorry you've had a time of it. Please push for solid answers until your heart and mind are content.

    My best to you,

    Tender

  • GramE
    GramE Member Posts: 5,056
    edited July 2009

    I did dose dense chemo and it zapped my tumor.   Lumpectomy got 1 mm clear margins, so I had re excision to get the full 2 mm clear.   After long discussions, prayers, research and weighing all the options left, I opted OUT of radiation.   A mastectomy is still a possibility for me, but for now I am not doing anything besides my last Herceptin ( for Her 2 +++ ) tomorrow.    

    I found that the information, research, and discussions all focused on younger women -- I am 63 years old.   Quality of life versus quantity of life is what I looked at.   The many side effects of radiation did not make sense to me.   My surgeon said it took 62 yrs to get BC, which is older than most.  And I already have brachial plexopathy on my dominant, BC side for the past 25 years from a car wreck.   

  • biscuit
    biscuit Member Posts: 42
    edited August 2009

    I have been in the same boat for the last 3 months - I have LCIS and ADH - first seen as just calcs that resulted in biopsy.  Lumpectomy- Surgery for the ADH resulted in finding  DCIS, lobular - three excisions and 2 tumors found unexpectedly - 2mm and 4 mm,node neg.  They had just been going for the calc removal and came up with tiny cancers.  I was all set for rads after the first surgery and tumor - and even still, after the second.  But then on my final mamo prior to rad - there were still more calcs remaining - and now everyone is all over the place about what i should do - mx or rads.  The rads camp says, just go for it and if later you need an mx, you'll do it then - the mx camp says, how will you make a mx decision down the road, if your mamo still shows uncertain calcs - that we cant be sure of without removing them - either yet another lumpectomy or a mx.  After a summer to think about it - i am going for a mx - because, i just won't be able to know how to evaluate future mamos that show calcs - I am wondering if i am hoping for more tumors to be found in the mx breast when they test it??  Would the rads have killed off any tumors that may be remaining??  Could I have saved my breast and had no negative consequences because it is a non aggressive tumor??  Who knows?

  • arby
    arby Member Posts: 126
    edited September 2009

    Let's see, do I just share my experience and wonder if it would fit your situation?  I did lumpectomy with good margins and  33 rads for a stage 1 DCIS and very small invasive component.  I had a recurrence and the 1st thing the oncologist asked was why i hadn't removed the breast in 07?  Not a very helpful question now; but no one told me to.  The standard of care was used.  but failed me.  The masectonmy was no picnic but I don't want another recurrence.  I'm to start chemo, followed by herceptin soon.  if you're really unsure, get a second opion for the path report and then recommended treatment.  that's what I've done this time.  Best to you in weighing decisions. arby 

  • dash
    dash Member Posts: 766
    edited September 2009

    Looking back, for me, the choice was relatively...not easy, but maybe more clear cut. My cancer was on the left side and with a strong family history of early heart disease and a strong personal history of pneumonia, I wanted to avoid rads, was urged to consider the potential problems by my doctors if I chose rads. I also wanted to minimize local recurrence risk as much as I could by getting rid of as much breast tissue as possible. For several other reasons that were very important to me, I chose a double mast.

    In my case, I was fortunate in my choices as the original area included 3 tumors(tho tiny) along with DCIS, and the pathologist said the entire breast was literally peppered with DCIS(unknown to all of us before mastectomy) and the other, supposed healthy breast had a large amount of ADH.

    It's not easy and I wish you peace in your choice. Weigh your pros and cons along with your own risk or lack of risk factors, then quiet your mind and let your logic and your instincts guide you.

  • mgk63
    mgk63 Member Posts: 4
    edited September 2009

    Hi Marie, Well I am 63 now and  13 years ago I,  due to age and not wisdom, elected a mastectomy of the left breast as this was the only involement at the time, and would not take chemo, instead just tomoxifin.  Now after 5 reoccurences, two rounds of radiation, a hysterectomy, many many pet, mri, ct and bone scans, and multiple hormone therapies, by the grace of God and 10 grandchildren later, I am here. However now the disease has metastisized into the pelvic and hip bones. I found last week after 3 mths on Xeloda (chemo) I am beginning IV chemo next Tues. indeffinitely.  Had I known my future and listened to the wise advise of three onco. I would of had chemo up front after the mastectomy and of course taken tomoxafin also.  Rad was not optional as I had the full breast removed. I also had 1 of 21 lymph nodes removed that was milignant.  So dear one, go for the gusto, Fight Hard, don't worry about the removal of the entire breast or the chemo, life is way toooooooooooo precious, as we all know.  God bless & guideyou.

    My prayers will be with you, Marlene

  • TammyLou
    TammyLou Member Posts: 740
    edited October 2009

    Okay...well the (young) lady from left field wants to know what the pathology of the cancer is.

     Generally, IF the cancer is ER+, then I'm "voting" for lumpectomy (with or without rads...you make the call...based on what your onc says.)  IF the cosmetic outcome is projected to be poor, the mastectomy may leave you looking better (but keep in mind that the nerves are cut...so you will be Mrs. Doubtfire for the rest of your life.)

     IF the cancer is ER-, then I'm voting for the mastectomy (with placement of an expander).  And, I might go as far as to say bi-lateral.

    In your particular case...multiple types of bc with unclear margins x2, I'm voting for the mastectomy with follow-on rads (particularly if your onc recommends it.)

     I would also do my best to get breast MRI...check the "good" boobie, too before making another surgical decision.

     Radiation does carry its own set of risks.  However, if the cancer is not extensive, you will probably take a limited dose.

    Say YES to chemo.  Maybe a couple of shots of Taxotere ("insurance" policy.) 

    Follow on tamoxifen for ER+ will help reduce risk. 

    As Marlene aptly puts it...there are no guarantees.

    Speaking as a person who did the "full metal jacket" (at my young age), I am well aware that breast cancer is a formidable disease.

    What we do is the best we can.

    tl 

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