Ontario Get Together

12357

Comments

  • lassie11
    lassie11 Member Posts: 1,500
    edited August 2009

    Bangs!? Kerry,  you are so far ahead of me! All I want is enough hair not to have to wear my wig anymore - and I expect to be ready to take it off with a fairly small amount of hair.  One thing about all of this is that I discovered that the sticking out ears gene didn't come from me (unless it was recessive) - my ears are tidily close to my head - and I never noticed that before!

    · Share on FacebookShare on Twitter
  • KerryMac
    KerryMac Member Posts: 3,529
    edited August 2009

    Leslie, you are lucky. Mine stick out! I look frighteningly like my dad.....

    As for going topless, I found the first week hard, but i just got too hot with the wig. Really, in this weather, you must be melting.  I was fairly lightly covered when i ditched the wig, i was still doing Rads though, and seeing people every day with less hair than me! Made me feel quite hirsute is comparison.

    · Share on FacebookShare on Twitter
  • pip57
    pip57 Member Posts: 12,401
    edited August 2009

    Don't worry ladies.  Soon enough you will be paying a hair dresser to trim those locks!

    Edited to add - You'll also have to start plucking those chin hairs and trimming the nose hairs too! 

    · Share on FacebookShare on Twitter
  • lassie11
    lassie11 Member Posts: 1,500
    edited August 2009

    oh PIP - there are parts of the clock I would like to turn forward - not too far, don't want to miss some of the good stuff happening in the next few weeks. The part where my hair is back would be good. I think there is some delicious irony in the reality that while I have no hair, I am saving quite a bit of money on haircuts. The wig was mostly covered by my extended health care. And my hairdresser sent me some flowers!

    · Share on FacebookShare on Twitter
  • pip57
    pip57 Member Posts: 12,401
    edited August 2009

    Nice hairdresser!  See, she knows your hair will be back soon and she wants to keep you as a customer!  On the bright side, it is summer.  I lost my hair then too.  I was always thankful that I didn't go through the baldness during the winter months.

    · Share on FacebookShare on Twitter
  • hrf
    hrf Member Posts: 3,225
    edited August 2009

    I start Arimidex today. Does this mean that I will be permanently bald but that I'll develop facial hair???? Yikes!!!!! I didn't sign up for a sex change .....

    · Share on FacebookShare on Twitter
  • KerryMac
    KerryMac Member Posts: 3,529
    edited August 2009

    Let me know how the Arimidex goes, i am seeing my Onc Friday for my first prescription......

    · Share on FacebookShare on Twitter
  • hrf
    hrf Member Posts: 3,225
    edited August 2009

    I will definitely let you know. Be prepared as it is expensive....costs $524 for 3 months as opposed to Tamoxifen which was $49 for 3 months. Thank goodness I have a health plan that will cover this. I also want to talk to my onc about bone strength while I am taking it....I have left a message for her to call me.

    · Share on FacebookShare on Twitter
  • KerryMac
    KerryMac Member Posts: 3,529
    edited August 2009

    OMG, that price. Wow. We still have to pay 10% I think, with our insurance. It better work, is all i am saying.....

    · Share on FacebookShare on Twitter
  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited August 2009

    I just looked at my Femara receipt -- $653 for 100 tablets.  Fortunately my supplemental insurance covers it -- whew!!!

    · Share on FacebookShare on Twitter
  • kily
    kily Member Posts: 15
    edited August 2009

    Thank you for posting these great pictures.  My thoughts were with you all.  Hope next time I might be able to join you.  Is anyone doing the CIBC run for the cure?  I have signed up and am fund raising with my Breast Cancer Love Song.  If any one of you would like to purchase a copy please let me know.  To have a listen go to www.myspace/kathytmcnally.com .  I wish you all Blessings and Good Health.

    · Share on FacebookShare on Twitter
  • kily
    kily Member Posts: 15
    edited August 2009
    SORRY GIRLS THE CORRECT MY SPACE IS  www.myspace/kathytmcnally
    · Share on FacebookShare on Twitter
  • gigigigi
    gigigigi Member Posts: 20
    edited August 2009

    I have been pulling my bangs hoping that it will grow faster that way.  Thanks for the nice pics, Kerry.

    · Share on FacebookShare on Twitter
  • KerryMac
    KerryMac Member Posts: 3,529
    edited August 2009

    Gigi - I will try that!! I am thinking Santa might bring me some for Xmas...!

    · Share on FacebookShare on Twitter
  • sherry35
    sherry35 Member Posts: 409
    edited August 2009

    hi girls, just a note about drugs.  I started on arimadex and had such terrible joint pain I was scared that I had bone mets.  I also had emotional side effects. It was weird though because I didn't know that joint pain was a side effect.  We switched to Femara about 1 1/2 months ago and woo hoo no more pain and can sleep through the night.!!!!!! This makes me very happy.

    Today is day 6 of rads and so far so good.  Take care all.

    · Share on FacebookShare on Twitter
  • hrf
    hrf Member Posts: 3,225
    edited August 2009

    Sherry, glad to hear the rads are going well. It will go by quickly. I took my first arimadex last night but I know it will take a wile for se to kick in. I've started back on fish oil and glucosamine/chondroiten/msn ... hope they help to control possible joint pain.

    · Share on FacebookShare on Twitter
  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited August 2009

    Bangs!  Ah, the slowest to grow!  I had my last tx just over a year ago and it wasn't until about Feb. of this year that I actually had some forehead coverage!  And to think I used to have to trim my bangs about every two weeks pre-chemo  ---  those were the days!  Kerry, hope you get your Christmas wish - be a good girl now!!!

    Hugs, Linda

    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Toronto based Ladies!

     Just got a flyer in the mail about some education sessions being hosted by Sunnybrook. If you are going, do you want to meet for coffee before or after?
    The Topics and Dates are:

    Healthy Lifestyle Choices- Latest evidence on diet and physical activity Sept 16

    Odette Cancer Oncologist Sept 23

    I'm Still Here..... and so is my Hair Sept 30

    All I want for Christmas is..... enough hair to keep me warm.....

    Jacqui

    · Share on FacebookShare on Twitter
  • hrf
    hrf Member Posts: 3,225
    edited August 2009

    Hi Jacqui......the program sound very interesting. I would definitely like to go. Is registration required? ....and meeting for coffee is a great idea....I'm in. 

    I want enough hair so I don't have to wear a wig any more.

    Helen

    · Share on FacebookShare on Twitter
  • sherry35
    sherry35 Member Posts: 409
    edited August 2009

    Jacqui,

    This sounds great.  I don't live in Toronto, but am staying at the "Lodge" for out of towners and having my treatments at Sunnybrook.  If they are during the week when I'm here I would be interested. As well as meeting for coffee etc. LOL

    Sherry

    · Share on FacebookShare on Twitter
  • jc268
    jc268 Member Posts: 33
    edited August 2009

    Oh shoot! Sorry I missed this. Hopefully there will be another Ontario get together. I would love to be there!

    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    OK Sherry and Helen

    We can meet at 6pm at the Starbucks at Leslie and York Mills.  I will post more information closer to the date.  No registration required but seating is limited so I think we should get there 20-30 min early?  Starts at 7:30.

    · Share on FacebookShare on Twitter
  • hrf
    hrf Member Posts: 3,225
    edited August 2009

    Jacquie, I saw the flyer when I was at Wellspring yesterday. I am definitely going to attend the first 2 programs. I'm trying to picture where there is a Starbucks at Leslie/York Mills. I know there are 2 Second Cups in the area......where is the Starbucks? I agree with you about the timing.

    · Share on FacebookShare on Twitter
  • mumito
    mumito Member Posts: 4,562
    edited August 2009

    Helen  how are you doing with your treatments? Or are you finished chemo?

    · Share on FacebookShare on Twitter
  • mumito
    mumito Member Posts: 4,562
    edited August 2009

    Barbe we are waiting for wedding photos.

    · Share on FacebookShare on Twitter
  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2009

    I can't get my small camera's disk to open on my computer, just my Nikon one and my Nikon one doesn't have any wedding stuff on it! I just got a new hard drive in my computer while I was gone so I'm trying not to panic. I'm going to work on it while I'm off on Friday......

    · Share on FacebookShare on Twitter
  • hrf
    hrf Member Posts: 3,225
    edited August 2009
    mumayan, yes I'm finished chemo and just finished rads last week. I started the Arimidex last week and so far so good ... am keeping my fingers crossed that se's not too bad. I still  have some neuropathy in my feet and my hair is taking its time growing back ... seems to still be asleep. And the chemo weight is not coming off despite exercise and careful eating!!! Engagment party for my son in 10 days and nothing fits me and don't want to shop to fit this larger sized body. Am planning on going back to work in October - will start part time and see how it goes. Hope everyone on this site is feeling well.  .... yes Barbe, we want to see photos of wedding!!!!
    · Share on FacebookShare on Twitter
  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited August 2009

    Helen, congrats on finishing rads and good luck with Arimidex!

    I had neuropathy in fingers and feet following taxotere and started taking L-Glutamine (500 mgs).  It really helped a lot.  Might work for you too.  (It wasn't painful but darn it, I kept dropping things -- that's when I started asking around about what would help).

    · Share on FacebookShare on Twitter
  • hrf
    hrf Member Posts: 3,225
    edited August 2009

    Linda, where did you purchase L-Glutamine? I am not familiar with it so don't know where to look. Thanks for the advice.

    · Share on FacebookShare on Twitter
  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited August 2009
    I purchased it at Nutrition House, one of the healthfood chains.  But I think Shoppers and Loblaws may be carrying it now.  Also, check out www.well.ca, an online drugstore (based in Guelph).  Prices are usually less and no delivery charge.Laughing
    · Share on FacebookShare on Twitter

Categories