Is an excisional breast biopsy necessary?
Hi all,
I need some advice. I'm going to try to talk some people at cancercare too, but I thought you all might has some interesting insights. I'm 44 and had my first mammogram a month ago. Some microcalcifications were found, so they did a large core biopsy with a needle. Unpleasant, yes, but I'm recovering fairly well. I accidentally found out -- because a tech called me to schedule a consultant after -- that the results were not good. I tried to call my doctor, but she was hard to get a hold of, and then finally told me that I didn't have cancer, but that they found "atypical" cells. She said I needed to get an excisional breast biopsy with wire -- she didn't give me any options -- she just said, "this is what we're doing next". BTW, I have no health insurance, so all the testing is free, but I have very few options regarding second opinions, etc.
My question is: if they didn't find any cancer cells, just atypical cells, why should I get a painful, long, procedure that is going to permanently alter my breast? Couldn't I just get another mammogram in six months and see if there any changes?
Let me know if this the wrong place to bring this up.... Thanks.
Comments
-
My mom had a mammogram 6 months before she was diagnosed with stage 3B breast cancer and the only thing noted on the report were microcalcifications. I don't know enough to tell you if they are related or not. Our feeling always has been that the prior mammo missed something??? And the excisional biopsy may not permanently alter your breast depending on exactly how much and what they are removing. I would talk to another doctor if possible; however the doctor wants this out for some reason have her explain it to you until you understand. You are your best advocate!!! Doctors deal with this stuff everyday and sometimes need to be reminded that "you" are not a doctor. My mom once have a neurologist tell her (right before opening her skull to remove a tumor) don't worry this is not a big deal I do this all the time, her reply was; I don't!
-
I think the reason that an excisional biopsy is deemed the next step here is because sometimes cancer cells or a tumor may be hiding near cells that are found to be atypical. The core needle biopsy can only sample a small area. An excisional biopsy is needed to remove a piece of tissue so the whole thing can be dissected in the path lab.
I just had an excisional biopsy 3 months ago. I was urged to skip the core needle biopsy altogether by my breast surgeon and head right to the excisional. The surgeon explained that the core needle might not get the "bad" parts of my lump, and then I'd need the excisional afterwards anyway. Or, if my lump grew, I'd need another biopsy even if the core needle was negative. Also, my lump was quite large, so he said the core needle wouldn't be able to sample all parts of it. To me, this made sense, because I didn't want to end up with two procedures if I could just skip to the excisional which is the gold standard for diagnosis.
The excisional biopsy wasn't bad at all. It wasn't a long procedure--maybe one hour total but I think the actual biopsy only took 30 minutes and the rest was prep work. Personally, I don't think the excisional biopsy is any worse than the core needle biopsy, and in fact I would skip the core needle and head right to the excisional again so that I could avoid a second procedure, and also because you get anesthesia with the excisional, and none (except local) with the core needle.
I don't see it as permanently altering my breast. I have a small, one-inch scar that is barely noticeable. No distortions of the breast, and I have a small B cup, and my lump was 2 cm. and even more tissue than that was removed. I was actually surprised by how large a chunk they removed. And you would not be able to tell I had anything removed if it weren't for the scar, because there is no denting or any other changes. In fact, I will say that the excisional biopsy made things better for me because the lump that was removed was always hurting, so now that it's completely gone the pain is gone too, so I'm glad I had the excisional. I had no complications at all from the procedure. I went home after the surgery, took a short nap, and then was out with my husband that night for dinner, feeling completely fine.
-
I am glad I opted for an excisional biopsy. Embedded in a lump of tissue was a very tiny aggressive tumor. That tumor was surrounded by DCIS and that was surrounded by atypical cells.
A needle biopsy might have just found the atypical cells, and at the growth rate of the cancer, I probably would be dead by now from breast cancer as I would have probably been at least a stage 3 (probably 4) in less than 6 months.
-
I opted for an excisional biopsy...the core biopsies missed the canceer..
-
I had a fine needle aspiration biopsy first, which only showed atypical cells. That was painful enough -- my breast surgeon wanted to proceed to excisional biopsy, and I'm really glad she did. In my case, too, like Sassa's, the invasive tumor was surrounded by DCIS. And, like Kibbles, I did not find the procedure to be a very big deal.
-
Hi,
I had a needle biopsy and they found a lot of aytpical cells, and I'm now headed for an excisional biopsy and lymph node sampling (I think the latter is because my lump, which is palpable, is in the breast tail nearer the armpit). I think it's pretty standard to go to wide excision after finding atypical cells from what I understand.
For you ladies who found the cancer after excisional (and only found atypical cells at the earlier biopsy), did any of you have palpable lumps? Did anyone have a lump in the breast tail?
For bluestocking, wish you all the best and that things turn out ok for you.
-
I have been diagnosed 3 different times with micro-calcifications in my breasts (both sides) without any palpable lump. My surgeon likes to do the least invasive procedure first, core biopsies, then if something suspicious is found (ADH) then he moves to the excision biopsy/lumpectomy. The first two times the core biopsy showed ADH (Atypical Ductal Hyperplasia cells), the last time it showed DCIS. My lumpectomies were no big deal, done as outpatient surgery, I was in the OR about 30-45 minutes each time.
Sheila
-
As the others have said, yes, an excisional biopsy is necessary. The atypical cells that were found in your needle biopsy are not a problem and don't need to be removed, but in about 20% - 25% of cases, atypical cells are found to be mixed in with some cancer cells. Since a needle biopsy only pulls up a few small samples, once atypical cells are found, the entire area that appears suspicious needs to be removed and all the suspicious breast tissue needs to be examined under a microscope, in order to ensure that nothing more serious than atypical cells are in there.
I'm one who fell into the 20% - 25% group. I had two areas of calcifications in my breast (and no palpable lump). A stereotactic biopsy of both areas showed only ADH (atypical ductal hyperplasia). Once I had the excisional biopsy, DCIS was found in both areas and in one of the areas, a small microinvasion of invasive cancer was also found.
Keep in mind that because this is a breast cancer discussion board, most of the women here who've faced a situation like yours are the ones who fell into the 20% - 25% group - we were diagnosed with BC. Most of the other women - the 75% - 80% who were found to having nothing more serious than atypical cells - don't stick around for long once they get the good news (kibbles, it's good that you are here!).
As the others have said, having an excisional biopsy really isn't a big deal. Yes, you will have a scar but it will fade in time. And with the discovery of atypical cells, what's more important is being absolutely sure that you don't have breast cancer, or if you do have BC, catching it as early as possible.
-
JC,
No one could feel my lump. My mammogram only recommended a 6 month follow up. Thank god my PCP insisted I go for a biopsy and my surgeon suggested the excisional biospy.
-
I am recovering now from an excisional biopsy on a mass that was not palpable (pretty deep in dense tissue) and was increasing in size. I first had a core needle biopsy at the end of April, and I have to say that I experienced more pain and bruising from that than from the excisional--both were performed by the same surgeon. Plus, I now have peace of mind, as I've received my pathology reports that the mass was benign. Had the results revealed cancer, I would have wanted to know that as well.
P.S. I'm checking in on this board from time to time because I have, according to my gynecologist, the worst case of fibrocystic condition she's ever seen, and so I'm screened regularly and am finding that I'm now receiving some sort of "call back" each 6 mos.
-
Thank you all so much for your thoughtful replies. I've really got a lot to think about. I met with the consultant at the free clinic today, and he wasn't helpful at all. He said I would definitely be left with a large scar and that my breast size would be changed. In fact, when I said I wanted a second opinion, I was given another woman's xrays (I almost left before checking them!) and had to return them to get my own. So right now I'm searching for a another breast cancer center for a second opinion. I'm thinking about trying NYU.
Thanks again!
-
Absolutley you need an open biopsy, needle biopsy does not always get enough tissue. You do not want to let any potential cancer grow another six months, or wait till it develops new calcifications on mammogram. I was diagnosed at age 45 with no family history, thank heavens my cancer was found early. I had an open biopsy before mastectomy, the scar from the biopsy was about 3/4 of an inch along the side of my aerola, and was not bad, my small breast did not change in size form the biopsy. The needle localization prior to biopsy is not fun, but you will survive. Good luck, hopefully you will not have cancer.
-
I had a needle biopsy that revealed atypical cells (mine were classified as LCIS), and these cells like to hang out with cancer cells. I had an excisional biopsy (also called lumpectomy) two weeks later. Ductual carcinoma (DCIS) was found as well as a very small 4mm invasive. It was caught very early (stage 1) and is very treatable. I'm glad my docs wanted to be aggressive and pursue it.
Yes, the excisional/lumpectomy is worth it! I'm 47. I'm a barely-B and I have a 1-1/2 inch scar (about 5cm was taken out) from the lumpectomy but my boob really isn't distorted. Now I know I have bc and I can get rid of it. I'm having a mastectomy with reconstruction.
I believe health/life trumps vanity every time!
Lee
-
I agree with the others that it's important to have the surgical biopsy. My mammogram showed microcalcifications, I had a stereotactic needle biopsy and the result was "atypical" cells. They referred me to a breast surgeon who did an excisional biopsy to be sure it was only atypical cells. Unfortunately, the path report came back stating that I had 5-6 tumors (all quite small) of ILC. She told me this type of cancer is hard to find, and it normally doesn't show up on mammograms or the needle biopsies. I'm so glad I had the excisional biopsy and the cancer was caught early. Like Beesie said, most women who post here are the smaller pecentage group who have been diagnosed with BC. Regarding the procedure, the needle biopsy was so much worse for me -- laying on my stomach for almost two hours with my necked cranked is not my idea of a fun time (not that any of these procedures or treatments are fun). The surgical biopsy was much easier because I was under anesthesia and my recovery was just a few days. My scar was small and there wasn't really a noticeable difference in the shape of my breast. Good luck and hope you find a decent doc for your second opinion.
-
Hi....
I had microcalcifications show up on my mammo.
I had an ultrasound right after that showed nothing...and then had a sterotactic biopsy that showed ADH - atypical ductal hyperplasia..aka abnormal cells...
Sooo..off I went to an excisional biopsy..they found 2 tiny tumours of IDC...1mm and 4mm grade 1....and then DCIS.
I am glad that they kept digging! My nodes were negative and I just had radiation and tamoxifin...had I maybe waited a little longer.....my situation could have been different...meaning,,,those little buggers could have spread to my nodes and I would have had chemo......
The exicisional biopsy was easy to get thru. They basically knock you out, you wake up and it is done...very little pain for me. I had surgery at noon and was at home by about 5:30 chatting in the chat room here!
My advice tho...get a really goooooood supportive sports bra!!!
Hugs and be strong - and hoping for b9 results!
Kosh
-
Thank you for posting!! I'm about to have this procedure and I made the mistake of doing an image search of "lumpectomy" as well as excisional biopsy and I almost threw up!! I'm grateful to you and the other ladies who have posted, as it is helping to settle me down a bit.
-
I appreciated your humorous reply...just wanted to clarify that a neurologist does NOT do surgery..we just diagnose and treat wiith medications or referrral to a neurosurgeon who does the actual cutting.
But you are exactl right...doctors need reminding that this is all new to us!
I just had a core needle biopsy (8 gauge!!) and it WAS a big deal. Large amount of internal bleeding, bruising and pain up to a week later. Yes it showed atypia and now I am gettting an excision scheduled...5 cm (2 inches). Under genral anesthetic this time. I have low platelets (mild bleeding disorder) and ANY surgery is a big deal for me. But I will do it. Surgeon mentioned using Tamoxifen also, but everything I have read it is used for pre-menopausal women and at age 63 I had menopause over 8 years ago.
My best to everyone on these sites. Health care providers make the "worst" patients for two reasons. We know everything that can go wrong and surgeons just expect that we know what is going on. We don't!
-
yes, You should have the biopsy. I had atypical cells also, and when the doctor did the incision biopsy it turned out my breast was full of cancer...I never had a lump, and had a normal ultrasound and mammogram.
Doctors have their reasons when the word atypical comes up.
Stay strong. And sure, a place that mixes up records soulds like a place to avoid!
-
Helenokekai re tamoxifen... of all the "estrogen buster" drugs, it's the only one that can be used by pre-menopausal women. You post meno women have additional choices, but tamoxifen is often used for post menopausal women too.
-
What stage were u when diagnoaed
-
Thanks so much to everyone who posted replies to this. My mammo showed scattered micro calcs which led to a core needle biopsy last week, which lead to a recommendation for the excisional. I was concerned because my breasts are small and, since there is no lump, I have no idea what they are supposed to be taking out or how much tissue will be removed and I didn't want to be disfigured and risk nerve damage if I don't have to. The calcs were benign but the rest reads like a laundry list of breast diseases that can either be benign, precancerous or found in conjunction with bc: atypical lobular hyperplasia, columnar cell change, focal sclerosing adenosis, ductal dilatation and stromal fibrosis.
After reading all of these posts I feel a little bit better about the procedure itself although not better about the possible outcome. My mom is end stage IDC mets and only has a few months left.
-
Without my excisional biopsy, I never would have known I had LCIS. Long story short I now have a choice to decrease my risk of developing invasive breast cancer.
-
Here's my story (so far). I'm off to for a surgical consult in just a few moments. How I ended up here is still a blur. I had my second mammogram ever a few weeks ago (I'm 45), followed by an ultrasound to look closer at my right breast. I have fibrocystic breast condition in both and had been noticing the cysts in the right breast seemed maybe larger and definitely more tender in the past few months. I believe the tissue is changing because I went off the birth control pill a little over a year ago, after almost 20 years of on-again off-again use. Plus I'm peri-menopausal. The radiologist recommended a core needle biopsy at that time for a category 4 suspicious lesion about 1.5 cm, definitely palpable, adjacent to the cysts. After doing some research on the internet I felt perhaps waiting for a reimage in 6 months would be a not completely crazy idea. I'm a super-healthy eater, I exercise, no history of BC on either side of the family, no smoking, etc... So I put off the initial biopsy until my OB-GYN persuaded me to have it done. Went Monday for the results and they were "benign, but discordant" meaning that the type of tissue they got is not the type they would expect from the mass' image. I'm really not sure how they could take 5 ultrasound-guided core samples and completely miss a 1.5 cm area, but that is exactly what they think happened. So now I am preparing to hear that I will need an excisional biopsy. The bright side is that the cysts have been very tender and it's hard to wear a bra all day long (they are on the underside of my breast) so I can have them removed. I plan to ask if they can just remove the cysts from my left breast as well before we go down this road again. I am keeping positive thoughts that it's not BC, but even if it is I know I will have support from wonderful people like you all. And yes, bluestocking, you should definitely have the procedure
Hope to have good news to report at a later date.
-
hi
Today I had a exicsional biopsy after 2 mamo's and one ultrasound which calcification followed by a stereotactic biopsy which resulted ALH. I just turned 52. I read that risk of been in 20-25% pool for LCIS gets lesser with increased in age number? any thoughts. Ofcourse im scared.
-
Hi all,
I too have found myself to have be in the position of having a mammogram finding a couple "lumps". One was a small cluster of 3-1cm lumps and 1 4cm lump. I had the needle biopsy (however, they really only referred to it as a draining of the fluid in the lumps at first). The 3-1 cm lumps seemed to drain as expected but the 4 cm would not, which then took me to the "taking a piece of the lump" for testing step. I don't recall the doctor or techs. using alof of the terms I am reading on these posts. This has me concerned even more as I am really not sure what is going on.
I am going to a surgeon consult this evening and based on what I have read here I will have several extra questions if certain thigns are not mentioned. What other "surprises" did any of you find out through your experience that I should maybe address?
Have any of you gone through the exicsional biopsy more than once? Should my worries of getting cancer be greatly diminished or just slightly? After reading crystalphm post where during the procedure she had a breast was full of cancer, I have my worries as I would think any of us would. My paternal grandmother is the only occurance of BC in my family, that I am aware of, which I am hoping is a blessing in my favor.
Also, I don't have my annual exam with my gyn. for another month. But, during the course of my mammogram and procedures this past week, I would think she has been updated on my situation. Right? Am I wrong to think I should've been contacted by her to review my situation or ask me if I have any questions by now?
I have often had the fear of getting BC and 15 years ago I had a fatty cyst that went away on it's own, so when this came up last week, I was shocked yet not surprised. My emotions are on a roller coaster daily due to the fear of the unknown. I am 48 years old but very nieve on the topic (what is LCIS and DCIS) and not sure where to get my information from. The internet can be helpful yet harmful. Any words of wisdom or questions I should ask, any of you can provide would be greatly appreciated.
-
First of all oneL, I sent you a private message. You should post this in the "Not diagnsoed but worried area" and start a new thread.
It is always scary when we have a lump or something on a mammo that is not normal. As for the difference between LCIS and DCIS, there are threads with those exact names here to look through as well as lots of information in the other areas of BCO, not here in the discussion boards area.
As a quick primer, LCIS is Lobular Carcinoma In Situ and is considered a pre-cancerous condition with a higher chance of developing BC in the future. DCIS is Ductal Carcinom in Situ is considered Stage 0 cancer. It is confined to the ducts ony and is considered a little bit more serious than LCIS. If left untreated, this often results in invasive breast cancer or IDC. Please look at the areas that explain all of this here in Breast Cancer.org. They have excellent things to help you to understand. Look at the top of the page next to where it says Log in and go to Breast Cancer.org and there is a ton you can read there.
. Hoping that answers your questions. As for the lump and what is going on, only a biopsy can answer that question. Sometimes they don't send your films and reports to your doctor unless they have the doctor on file as the one to send the report to.
Best to you!
-
Blessus 26, ALH is scary, but does not always result in BC. This is an old thread and you and the poster above should post in the area that most matches your concerns!
-
Thank you for all your info. So now that I am at the excisional bx stage i feel a little bit more comfortable. But funny how all women who have atypical cells they get results as breast ca?? It seems like a bit of a monopoly, or a money making scam. If peop walking around who never had a mammo or bx never get diagnosed with ca but are probably living to 89 and never know!! So the people who get treated have to go thru all the torture, for atypical cells? What if we have atypical cells in our leg, toe, intestine but you never know?? So I have to ask what is the percentage of peop, after an excisional biopsy done, end up having breast cancer? Probably more than less. I think they will keep digging until something is found. Does anyone know the ratio of atypical cells being benign or malignant? I am a nurse too but i am very skeptical about the health system right now.
-
I don't know the ratio re: atypical cells to cancer. I only know of ladies with atypical cells on these board. Strangely last year I became friends with another lady with "only" ALH on these board. We both thought it was not that big of a deal. I decided to do the PBMX, and in the final path an unseen IDC was found in an area away from the the known ALH. Also they found more unseen ALH in the same breast. My friend also ended up with invasive cancer in an area not associated with the known ALH. The scary thing about ALH is that it is a marker for BC in both breasts. Also I think breast density has a lot to do with when screening is going to pick up the cancer. The more dense the breast the less likely screening is going to pick it up very early.
-
Michele, the answer to your question is 20%. Approx. 20% of women who have a needle biopsy that shows ADH or ALH are found to have breast cancer in the excisional biopsy pathology.
If you read this board - or any other breast cancer discussion board - it will look like the percentage is closer to 100%. That's because it's mostly people who are diagnosed with breast cancer who tend to stick around on these boards. I've been here for 7 years and I've seen lots of women who've had excisional biopsies end up with nothing more than the original diagnosis of ADH or ALH. Most of those women leave the board and don't continue to post here.
Risk of upgrade of atypical ductal hyperplasia after stereotactic breast biopsy: effects of number of foci and complete removal of calcifications. "...One pathologist performed a blinded review of the results of procedures performed to assess for calcifications and confirmed ADH in 101 cases with subsequent surgical excision....Upgrade to malignancy occurred in 20 (19.8%) of the 101 cases."
Frequency and Upgrade Rates of Atypical Ductal Hyperplasia Diagnosed at Stereotactic Vacuum-Assisted Breast Biopsy "One hundred forty-one of 991 (14.2%) lesions yielded a diagnosis of ADH at 9- or 11-gauge stereotactic vacuum-assisted breast biopsy. Upgrade to ductal carcinoma in situ or invasive carcinoma occurred in 26 of 123 (21.1%) patients."
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team