Any May 2009 Chemo Starters?

deb6563 · July 2009

okay I need to vent. My darling hubby just doesn't understand why all of this upsets me, I guess unless you put a woman's heart into a man, they will never understand how emotional we get.

First, I have a friend that is a 5 year Triple Negative Breast Cancer Survivor. She found out this week that her cancer is back. It is now in her back and her lungs. She went yesterday to get her port and will start chemo next week. She has been so dear to me during my surgery and chemo. She has supported me so much, and now she has to fight the battle again. I told hubby that with this happening with her, I wish now, I had opted for the mastectomy instead of the partial. He didn't understand why. If this can happen to her and others, it can happen to me. All of us triple negatives are going to have to fight this dreaded disease for the rest of our lives. There is no pill for us to take to block the hormone that is feeding our cancer, because THERE IS NO HORMONE FEEDING OUR CANCER. It is just a guessing game. Am I going through this emotional chemo fed roller coaster, just to do it all again in a few years? GIVE ME MY LIFE BACK ALREADY!!!!!

Second, My closest friend from childhood has deserted me. We were best friends from the time we were in 1st grade until I moved away 18 years ago. We have still kept in touch and visit as often as possible, but since she found out that I have breast cancer, nothing. notta. She e-mailed me and told me that she still loves me and thinks of me as her closest childhood friend and for me to keep her updated about what I am going through. E-MAILED me. She didn't even have the decency to call me. Since March, I have not heard one word from her. No phone call, no e-mail, no text messages, not even a "hi" on facebook. This really hurts because we were closer than sisters in high school and now she doesn't even care enough about me to see if I am going to live or die. I have sent her several e-mails and tried to call her twice. She won't even return the calls or the e-mails. Enough is enough and I refuse to try to contact her again.

okay, I feel better now that I got that off my chest.

{{{HUGS}}} to all of you. I know you won't desert me.

taj72 · July 2009

Hi guys! I haven't deserted you. I am out of the country on vacation with my family. I've been checking in on internet sporadically and keeping updated with everyone. Too many to catch up. Most of you seem to be finishing up on treatments. Congratulations to all of you who are wrapping it up. As you may remember, my mom will be doing this for awhile (27 weekly chemo rounds), so I'll be around for several more months.

But I really wanted to post something in response to Deb6563-I'm so sorry to hear about your friend whose cancer returned! My mom is triple negative so I understand the fear that lurks even after chemo is done. My greatest fear is that she will go through all of this chemo (which she didn't even want to do) only to have a reoccurrence just a few years down the road. I have a good girlfriend who is also Triple Neg who is now 3 years cancer free (fingers crossed for continued success). I have heard that if you can make it past the 5 year mark as a triple neg, the chances of reoccurrence are much less than the general cancer population. I'm also sorry for the childhood friend who has disappeared. You know there's a great email about friends for a reason, a season and a lifetime. Some friends come into our life for a reason and when that reason is over they drift away. Some friends come into our life for a season and then that time passes and they move on, only a rare few are for a lifetime. Unfortunately, maybe she was a season friend. It doesn't mean that what you shared during that season wasn't real or meaningful. It just means that she is not the support system you need for this journey, but you'll meet other friends who will help you pass through this. I wish you blessings and hugs as you go through this difficult journey! Peace!

benisse · July 2009

I wanted to mention that I will begin weekly Taxol on 7/28 for 12 weeks. So, not finished with chemo, but FAC is done at least.

Treatment 4 was on Tuesday and I have been nauseated and tired ever since.

Hope you all have a good night's rest.

benisse · July 2009

Deb6563

It is good to put a face to your posts. Sorry that you're experiencing some rough times. This battle can be brutal at times. I hope that venting here where we all get it is some comfort. Take care of yourself!

debbie6122 · July 2009

Hello May Marvels, It is two days since #3 chemo went to have wbc draw today since it was 70,000 and they were worried it was still high but a lot lower only 12,ooo so was happy and it was high enough i didnt need a shot horray!! feeling lousy today all the SE every one else is getting too, have read the last couple of pages and sorry i dont feel good enough to say to much, but did want to respond to ANJI111- Iam so sorry that you are having such a bad time, it seems like things wont get better, but they will, there is a light at the end of the tunnell, and dont feel bad about venting here, if you read the posts we all do that haha! (((hugs))) Echoslave- wow, and i thought i was brave by taking off my wig and or hat in public, YOu go girl!!! I dont know much about the b-fib, but i pray for you ! Deb6563-IAm so very, very sorry about your friend who got her b/c back, and then also losing a friend who abandoned you, you may never know why, somtimes people dont know what to say or do, and somtimes they feel like it hits to close to home and it scares them as if they will get it to just by knowing us, i have found out who my true friends are since being dx, it hurts regardless.,Even though im not triple neg, and my dd was, and is 2 years out i hope that they find a pill to, but i have talked to alot of gals who are 6,7 years out trip neg and no recurrounce, and woman who took the pill and got it back, but it still is on your mind no matter what they can do and we will always have that in the back of our minds, it soooooo scary i know, im trying to comfort you but it probably didnt come out right, (chemo brain) byt lots of hugs to you(((((((((hugsssssssss)))))))))) TAz- I hope your mom is feeling ok, i think about you and your family often, glad your enjoying your vacation, loved the poem- Hope every one is getting thru there chemos and has minamal SE, hugsssssssss to all

luvtheocean · July 2009

Marvels-

I cannot believe what I posted last night! Could I have used maybe a couple more superlatives? So sorry for anyone I may have offended! I was trying to catch up a bit and it was tx day and I was sooooo angry that I lost my whole post.

There are some awful things going on with a few of you that are just not fair.....I feel so badly for you and wanted you to know that I hope you can find some strength and further courage to help you get through this. It sucks enough to have B/C without having to have additional bad things come creeping in.

I am hopefully off to sleep, just took my sleeping pill and xanax in hopes to counteract the stupid steroid crap! I hate taking those. At least my onc told me I could cut in half this time.

Sorry for not being more specific but I just couldn't stand to type another long one to loose it on day 2............Hugs to all!

Becky

LoriR · July 2009

ok - I have to join so many other of you - just typed a big long post and lost it! %&%$#! won't try to recapp but I do have a couple of questions if anyone has any insight

1. I actually had a lot of rib pian in the same side as my BC before I was dx - it still hurts - anyone know if I should be worried. I was thinking that since I had no node involement I didn't need to worry about Mets - now I am wondering...

2. mouth sores - so far I haven't had any but yesterday my gums started to hurt really bad on one side - what are the mouth sores like - I expected them to be more like a cold sore.

blondie45 · July 2009

I have mostly been a reader of posts as usually too tired and exhausted to respond but love all the advice, ideas, tips I get from this group.

deb6563-Very sorry about your friend's recurrence after 5 years. Also sorry about your friend just leaving you hanging. As one previous poster said I really think some of them do not know what to say. I know I have really found out who my true friends are already throughout this and I try to concentrate on those that are there for me right now. Oh also I think your hubby and mine are brothers. My husband's life seems so busy with all he is involved in and I just finally had to tell him that I really did not choose to have my life almost stop right now and wished he would realize that and slow his down a little for me. He has just always been someone that willl drop anything here at home when any of his friends needs anything. I realize after me doing everything in the house as far as cleaning, etc for the past 30 years that he just doesn't look for what needs to be done.

Hope everyone else is doing as well as they can at this point and congrats to those that are done with their chemo or close to it. I am just going to be starting my 12 weeks of Taxol next Wednesday.

Dawn

lassie11 · July 2009

I'm curious. And forgetful. Who was it who was using an icecap to prevent hair loss? Did it prevent hair loss? or did it delay it? And if it worked, why didn't we all do that?

gmp300 · July 2009

Lassie11-Hello there. I am the one using the Cold Caps. I found out about them by doing my own research. My onc tried them 10 years ago and said they didn't work back them. but these are made from a different inventor and are different from the ones from 10 years ago. Then I kept reading about ice mits and ice chips and figured there is somthing about ice!

I was freaking out about loosing my hair when I decided to get chemo, I prayed about a way to keep my hair and I read some sites on here of a few (only a few) gals who were trying them. I still keep in touch with them. I went on the Penguin cold Cap site and read about them and it sounded promising and is very commonly used in the UK. I was skeptical so I then I called The American Cancer foundation and asked if there were any trials In Michigan on them. They said yes at a hospital here in Michigan and I called there and talked to a doctor who did the trials. She has been studying them for 3 years now. she talked to me for a long time and told me that I should keep 90% of my hair being on the Taxotere/Cytoxin regimen. It worked very well with that. She is doing more trials and is trying to get it FDA approved for a nationl trial. Then more hospitals and clinics will have them at their facilities.

After talking to her I was encouraged and the inventor of the cold caps called me and I Fed Ex them to me in time for my chemo. Iam doing them on my own and I rent them by the month. I Just had my #3rd tx yesterday and I still have all of my hair. I lost strands but no clumps. You can't even tell I thinned a little. Each treatment is it's own so I still have to get thru the next 3 weeks and One more tx to say for sure how it went but so far it is great success for me. You only wear them during your tx and for 3 hours after. You change the caps every 1/2 hr. It is a bit of a hassle but will be well worth it if I save my hair when I finish my chemo by the end of the month. Then I will be more confident to tell more women about it because I can say for sure it worked on me but as all things there is no gaurantee. Other chemo's may not have as good as a result such as Adryminicin. They save their hair and have full coverage but it may thin out alot more. 25-50%. They are trying longer than 3 hours after infusion for some other harsher drugs and it seems to be working. It takes longer for the liver to process some other drugs.

Iam hopeful that it will take off here in the United States as more trials are being done and more facilities have them. Frank (the inventor) just put freezers in 6 different clinics and hospitals here in Michigan and is coming back in 2 months to put in more. If no one has them in your area you can rent them on your own. There factory is in California. Frank lives in the UK -London.

I wish everyone doing chemo had known about them and could decide if they wanted to try it. I did try to let some know but didn't get much response. I think it is so new here in the states that alot are skeptical, even the doctors. Hopefully soon it will be out there for all.

Keeping my hair has kept the sting out of going thru chemo because when I look in the mirror I don't look sick and I feel like myself. I never told many people what I have been going thru and most of them don't even know that I had bc, masectomy (Iam going thru expansion now and have some foobs!) and chemo (have my hair) I just act myself and life goes on. When I have my bad days I stay home. If I ever needed chemo again I would do the cold caps for sure!! I thank God everyday for answering my prayers.

Sorry you didn't know about them sooner but I just started using them myself and didn't know if they would work either. Hopefully we can spread the word to the new chemo starters. Hope your feling well and God Bless--Geri

cs34 · July 2009

deb6563 - i am so sorry about your friend. there's just no words...

i might be a tad biased about the friend thing because i've experienced that myself so for me, i feel that BS...why do they get to "run away?" we don't. we're front and center day after day, minute by minute. so, i get upset and then like blondie45 said, focus on the ones who ARE there. they deserve our good energy.

of course most don't know what to say. I don't even know what to say to comfort you about your friend and i live it. but, darnit...i'm here. i'd listen and be here for whatever would help. so not knowing what to say? Ya, none of us really do but it doesn't excuse the running away behavior. it can excuse what people SAY but not their actions.

i learned when my father died (11 years ago) that people will shock you for the best and the worst during bad times. it's not about us...it's about them and i actually pity them because life (as we all know) can throw some funky things at you and they obviously couldn't walk 1/2 a mile in our shoes.

can i ask a question? what is the over all consensus about taxol? i start it in August and just learned that i'll be on a lot of steroids (yaay, can't wait) and that reactions to it can be immediate. what??? what the heck does THAT mean? i'm going to blow up in my chemo chair?????

lemonjello · July 2009

My last infusion went smoothly, with the neulasta shot, and all, i just went shopping afterwards and then home to rest. The next four days were hard. I had lots of pain, felt sickly, weak, and just today feel well enough to get on the computer. I am diabetic, so the diabetes enters into some of the complexities and difficulties. Insulin and chemo do not mix well. I had such high blood sugars from the steroids and the use of excess insulin makes you feel like yuk. But with the air conditioning on, plenty of water, boy am i sick of water, and eating pretty ok, rest and puppies nestling close by, it begins a downward journey to the end of it all. Thank the Lord. I am so glad its nearly over. I hope we never have to do this again.

LRM216 · July 2009

All May Marvels - an not writing this to scare anyone, but if it happened to me out of the blue, with no other health probs other than my cancer - then it can happen to anyone. Years before my cancer, around period time, hot summer days, etc. I would occasionally experience slight swelling in my feet and sometimes ankles. By the next morning, it was always gone. Have experienced that only slightly during my chemo treatments, sometimes slight swelling the day after the infusions, and then it was gone. However, had my first taxol yesterday (thrus) and noticed Weds. a.m. at work that I had no ankle bones showing and tops of feet were puffy. Thought this was quite odd, as I sit all day at a desk, and this was early a.m.

By the time I was ready for bed, my left ankle and foot was twice the size of the right - this has never occurred before - any swelling was even on both sides. Went for my Taxol and showed the onc - of course, next day right ankle was fine, but left still a bit swollen so she saw that and sent me to chemo anyway but had me go right to vascular surgeons office after chemo for a scan of legs. I have had no pain whatsoever, no "hot spot" on calf, nothing, but vascular found a dvt - blod clot in deep vein of calf caused by my AC chemo. The swelling was my only sympton. I now have to take 7 shots in my tummy (which I have to do myself) and am on coumadin for the next 3 months at which time they will scan again to see if it's completely gone. Until then I have to go 2x's a week for finger pricks for RB counts.

Long story short - any swelling of feet, ankles, mention at once to onc - don't assume all is ok.

Linda

nancypat · July 2009

This is good advise. I recently was hospitalized after my second round of T/C. My feet, ankles and lower legs looked unrecognizable as human. I had a heparin shot in my tummy every day for 30 days even after my legs went down as I was pretty imobile. Glad to say, I have ankles and feet again and no more blood clots. As LRM216 said, keep an eye out girls.

Nancy

deb6563 · July 2009

Hi May Marvels,

I'm feeling much better tonight. Thanks for all the kind words. Sorry that I can't address everyone individually but I am waiting on pizza to be delivered and I just don't have the time to post a long reply only to have cyberspace claim it Smile I agree with the person that said we have friends for a reason, a season, or a lifetime (or something like that) but you know after 40 years of friendship, you kinda think that is a lifetime friend.

Someone else asked about mouth sores. When I am getting the horrible mouth sores, my mouth and tongue usually start to "tingle" the day before, the when I wake up, my mouth feels like it has a film all over it and everything I put in my mouth makes it feel like it is on fire. The sores, that can look like an ulcer or a blister, start showing up later in the day. Hope that helps.

Have a great weekend everyone, I may not check back in until Sunday night or Monday. I am planning on spending the day shopping with my daughter tomorrow.

{{{{HUGS}}}}

jabl1252 · July 2009

Deb6563, Sorry to hear about you friend having her cancer coming back and your best friend deserting you at this time.I think all of us can relate to how you feel. People that have not gone through having cancer are scared to death to say the wrong thing to you and really don't know how to support you.I think if you have a positive attitude and relate that to people around you ,then they find it easier to talk to you.I work with some pretty understanding co-workers that talk to me quite often about my cancer.I try to be cheerful around them and it puts them at ease to be around me and ask me questions about how I am doing. Take care everyone, I go for number 4 next Monday,then have two more after that with radiation following and a year of Herceptin.Can't wait to put this all behind me. Hugs to you all. Julie

Titch · July 2009

Hi all, a quick visit again, I hope you are all well

Huggles to you all.

debbie6122 · July 2009

Hello May Marvels. i dont think i ever seen this this thread this slow, which means we are all feeling like shi.....t i know i have been, tonight is the first time i felt even talking let alone reading or typing, had my 3rd infusion on tuesday and i crashed on friday morning, starting to feel a little decent, not looking forward to this week when typically 7-10 days after infusion my counts go down or way up, maybe this will be different!!!

I think about all of you ladies every day and wonder how you are doing, i have gotton to where i feel and know you all and yet we really dont, but we do have a special bond and i dont know what i would do with out any of you, if you can let us know how you all are Kiss

Huggles back to you titch

sweet dreams debbie

LRM216 · July 2009

Think you hit the nail on the head, Deb. I know I feel like shi$. Had my first Taxol on Thurs. and boy, by Saturday, it hit! Although it's not ugly, ugly like the Neulasta pain, I am still in tons of bone pain and achiness beyond belief. I have some hydrocodone I've been taking and it helps just a bit, and at least makes me tired enough to sleep a little. If this is the first Taxol, Jeez - I really dread the next 3. It's Sunday a.m. now and I was hoping I would feel better, but it appears to be the same. I feel burning like feeling in my colon, but the hydrocodone may be constipating me as well. Now I have that to worry about too. Got to get working on that as I hate when that happens. No queasiness or ugly taste like on the AC buy I truly feel as if I have been hit by a train. Have to go back to onc in a.m. before work for another finger prick as my clotting factor is still low since they found this dang small blood clot in calf. If I still feel like this in a.m., no way can I make it to work. I wish all a speed recovery from any se's they might also be having.

Hugs to all,

Linda

LoriR · July 2009

Hello All May Marvels

I agree that we all must be on the "down slide" of chemo. and not too active. If any of you are like me, I have gotten to the point where I have figured most things out how to deal with all the SE and am ready to - Just get it over with already. For those of you who are done with chemo - let us know how things are going. - Give us a hair growth update - and let us know how rads are or when you start? something for us to look forward to.

PauldingMom · July 2009

I'm a member of the "Starting Chemo in July" squad and have a question for some of you more experienced ladies. It's that dang Neulasta shot!! I started with some minor bone pain that evening after the shot, the next day my skull/jaw felt like I had been hit in the head with a cinder block.I was taking OTC pain relivier at no avail what so ever. Finally called the doc. and called in some Darvocit (Sp) and still no releive. So they doubled it. That kicked the pain's butt. But now I am worried about the next time I get the shot. Anyone know a preventive way to stop the pain???

luvtheocean · July 2009

Hi ladies.......yep we are all in agreement! On the back end of SE's, day 5 after final A/C and feel like a heaping pile of dog crap! Trying to get motivated to move, but am just EXHAUSTED. Going to go for a car ride with hubby in a little bit just to get out for a while. My 16 yr old son went back to FL with my BFF so it is sssuuuuppppeeeerrrrr quiet here.

When I saw my onc for my last tx I mentioned the stubble I had growing on the ole noodle. She said not to get excited that it would still fall out in a week or so after last tx. My rad-onc said by the time I get thru my 25 tx of rad that I would have some hair so that is all I know. I won't start rads until Aug because they want to give my body a full recovery from this last A/C before they start frying my boob! Well, the 2/3 of a boob.........lol.

Hugs to All! Feel better Marvels......we can...........eventually!

LRM216 · July 2009

Paulding Mom - all I can tell you is that my final Neulasta shot, after my 4th AC was the absolute worse one I had. It was totally disgusting painwise and I honestly thought something went very wrong, but onc said that could happen. My other previous 2 were a bit uncomfortable but bearable. I took Claritan (not Claritan-D) on the day of the shot and an aleve and continued each day thereafter for three more days. It helps a lot of us, but I can't guarantee it. It will not hurt you to try it though. Good luck.

Linda

TexasRose · July 2009

Another pile of dog poop here. I am on day 6 after my last DD AC. Thursday and Friday I did my usual sleep fest. Yesterday, I was very nauseous. Today, more nausea. And the feeling that my arms are weighted down. Does anybody else get that? Sometimes I feel like my arms weigh a ton. I can hardly pick them up. I have that awful taste in my mouth. I know I need to keep food in my stomach, but it's hard when nothing has any taste or tastes awful. And the last two days I have had to use the stool softeners. Ouch!!!! Are we having fun yet ladies?!

PauldingMom- Welcome. I can't help you with the Neulasta shot problems. I was one of the lucky ones who didn't have any issues with it. Hopefully someone else can help. Did you try the Claritin and Aleve?

Linda- you don't have me looking forward to Taxol at all!

I am trying to look forward to my long weekend at the coast next weekend. It's hard to get excited when you feel like this. I don't know what clothes to take with me. The unaboober beach look is not all that attractive. Way too hot here for wigs.

Hugs and prayers to all!

AbuelaBoricua · July 2009

PauldingMom- Welcome to May Marvels!!! I can relate to the skull and jaw pain after the neulasta shot. I use Tylenol Arthritis and the Claritin, and a bag of ice on my head every 20 minutes. This tends to dull the pain and make it tolerable. I mostly feel it the 2 day after the shot and then it goes away. Make sure you take the pain reliever every 8 hrs or how many it hrs the one you are using it recommends. Try to do this even at night. I hope this helps! Good luck!

To everyone else I hope you are having a great weekend and getting some rest! Lots of hugs, Innocent Diana.

anji111 · July 2009

Good morning everyone (it sounds good, anyway...)

I feel pretty much the same as everyone here. Sucks to be us! I can't honestly figure out which of the drugs it is that makes me feel the worst. TCH and Neulasta all seem to be pretty nasty. Although I have tolerated them pretty well except the first time. The doctor said I was in shock! And then with the low blood counts. Feeling quite sickly this time and I have a 3 1/2 hour drive today - not looking forward to it. I am going to stay with a cousin who lives an hour outside the city so I can be in the city for 8:30 am. Rads consult. All this for a 1/2 hour visit?! My 16 year old daughter got her learners a while back so I guess she could drive a bit. I'm not sure I'm up to the stress of it!

Becky, I can't remember if you started your rads yet. I hope it's not too awful. I finally got my friend to buzz my hair a while back. I should try and post a picture - or maybe not - it's pretty scary. I haven't been able to wear my wigs. One's too big and one feels weird. So I've been wearing some cute hats my daughter has. I don't know what I'm going to do when it's -40 !

Hey Nancy, I hope you're feeling good. Are those stairs getting any easier? Hope so.

My husband was in Ohio the other week and goes down to Texas regularly. It would be fun to meet up with some of you (if I am ever well enough to travel again!) There is light at the end of the tunnel - right?

Wishing you all better days ahead. Take care. Anji x

gmp300 · July 2009

Hello May Marvels--Glad to see some of us coming around! Some of us that are feeling like a pile of dog poop don't feel much like coming on the computer and the ones who are feeling good are probably busy during the weekend, hopefully having fun.

Iam on day 4 after my 3rd tx and starting to feel like poop myself! My mind wants to do but my body says no! When I sit outside all I see is yard work and it gets me nervous so Iam going to try to get in the campground next week to veg and relax just to get away.

Pauldingmom and AbuelsBoricua-sorry for your pain with the Neulast shots. I have not needed to get one yet and have been very lucky. It scares me to death some of the stories I hear. But it seems that the claritan and aleve work so Iam ready if I ever need it!

Texas Rose- Sorry you feel like poop too! And the taste is awful- I have it to and I keep trying to fight it with ice etc but it's not working as well. Your right it is hard to eat when nothing taste good and then if I don't eat I get naseau. Vicious cycle! Watermelon and pinapple taste good! I never had the arm pain but Iam on TC and your on AC. Hope your feeling better soon!

luvtheocean-Congratulations on being done with your final freegin chemo!! Can't wait till I'm done! I had rads 13 yrs ago and it wasn't bad for me. More of a hassle going everyday! Good Luck!

LoriR- Hope your Climbing back Up the Slide after chemo soon!!

LRM216-Sorry you feel so bad also. I really feel bad for you with the Se. Your in my thoughts and prayers.

Debbie6122- Hang in there and keep those wbc up, (but not to high!)

Titch- Happy for you that you have been doing so well and staying so busy--Keep it up!

jabl1252- Good Luck on #4! Take Care

deb6563- Hope you had a nice time shopping with your dd. My dd's birthday is coming up and that's all she want's to do!

LRM216 and pantufas- thank you for the warning on the blood clots. It is good to know what to watch out for.

lemonjello--Congratulations on your last tx! Sorry the Se didn't go so well but at least it's over!! Yeah! Your right Praise the Lord! Good Luck!

benisse-Hope your feeling better now. Glad your done with the FAC. Good Luck on the Taxol.

Everyone else sending warm thoughts and prayers your way! Geri

deb6563 · July 2009

Hi May Marvels,

I know everyone is feeling like dog poop. I did also this time last week. But keep your chin up, because on Friday of this week I was feelilng great. It is probably part psychological because I know I am finished with A/C and I don't have to dread going in this Tuesday for that "red devil". I had a great day yesterday, even though I had to come home and take a 2 hour nap after shopping with my dd.

I start Taxol on Friday and I hope I don't have all the problems that Linda did. My onc told me to try the Aleve and Claritin for the Taxol. She said she had never heard of using it after the neulasta, but since it worked, it wouldn't hurt to try it with the Taxol.

Paulding Mom- sorry you had so much pain after the neulasta, but try taking a Claritin for 3 mornings starting the day you get the shot. Take Aleve along with it and take Aleve at night also. I had no pain whatsoever with my shots. I am originally from Rockmart. It is fun to see people on here from "back home" even though I wish you didn't have to join us.

zuzeee · July 2009

Hi Marvels

I have been absent and having fun!!! 3 days after chemo. I played golf on sat morning in light showers of rain and received a cell message from new bf, saying come to dinner. To keep you amused the details were how do roast a chicken? so I did end up cooking!!!!, roast chicken and veges. New Zealand had a really bad rainstorm and high winds come thru on sat afternoon and nite so I ended up staying at his place. It is a half hour drive down the road and we were meant to be playing in a golf tournament in Hamilton on Sunday, an hours drive from his house. Thankfully he decided not to play on Sunday as it was cold and drizzly plus the storm had kept us awake on & off all night. I slept in my pink cotton hat which thankfully stayed on all night, was scary at times!!!!! Better than the wig and far more comfortable but at least I now know that he is aware the hair has gone!!! and he seemed to cope okay. My friends can't believe that I am dating a new man, but if I have learnt one thing from this experience it is that life is to be lived and i am going to have fun whilst it lasts. Being triple negative is scary and I know waiting for the next clear scans for 3 years is going to be mind boggling but Girls I am going to enjoy my life. So sorry to hear that Debs you have lost a friend. I am amazed at how may new ones I have found here and how wonderful we all are. We are strong and we will win.

Monday morning here now so time to get up, let the dogs run. I have to tell you our calving season has begun we have 3 in the pens. Only 393 to come!!!! I do live on a dairy farm and normally at this time of the year I help feed our calves which i love doing but will not do this year. Too hard physically and it is in dirty conditions.

If anyone know how to upload photos onto this page can you please pm me and I will attach a photo of our calves. It is a new season and Spring and new life is on its way.

May you all have a wonderful day. Pantufus you are amazing and please stay here with us for the trip.

Lots of pink hugs to all

Susie

lassie11 · July 2009

Tomorrow is chemo #4 (boo) which means 2/3 done for me (yay). It will be the first time with Taxotere and Herceptin after three times with a triple combination called FEC (the names are too long to stay in my chemo head). I am delighted to be getting closer to done and hoping that the things I read are close to true and maybe the side effects will be a bit less.

Kind of disappointed to hear that my hair stubble might not be the start of something good. Oh well, there are hats I still haven't worn. Mostly, since summer has decided only to visit Ontario and not stay for any length of time, my wig has been OK out of the house.

Congratulations Susie for such a positive attititude and finding a new man (he sounds like a keeper) at this point in life.

Any May 2009 Chemo Starters?

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