Any May 2009 Chemo Starters?
Comments
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The time zones are so strange..... When I am usually posting - noone except Zuzee is around...... another kiwi....... Then I come on, in my time zome and read all the posts..... and catch up. I have not been able to stay up this late since I started Chemo, so am really glad I am not that tired as I was in session 1. Also great to chat to those waking up and posting hehehe.
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Goodnight to all the May marvels, I am heading to bed....... 12.30 p.m and I think I am genuinely tired hehehe
I hope all of you have a wondeful day with minimal SE but for those of you that aren't that lucky......, just know I am sending my thoughts, prayers, and cyber hugs, your way......
Take care......
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LoriR - Swine flu was in the schools here too. I just made sure that my kids washed their hands when they came home and I too was very careful with the handwashing thing. It's kind of settled down here but "they" say that in the Fall it will probably come back and with a vengence. I say just do what you can to avoid places where the kids are (it seems to mostly hit children in my area) and sanitize. Other than that there isn't much you can do.
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Lassie11- What a great idea about the dry cereal! I bought some at the store to try that.
Westcoastgirl- You are just a few days behind me. I started AC on May 26th. Are you doing dose dense? I haven't lost any hair yet either. At all. My scalp was a little sore on Thursday but nothing since. My second treatment is Tuesday, so I guess it will start then. I'm ready with the wigs and hats.
Becky- I think the Pepcid really helped me. I just routinely take it twice a day now and it helps so much. I hope that it makes my nausea less after my next chemo. You better hang around here when you are done! I know what you mean though. I can only think about today. I haven't even thought about Taxol yet and I have 12 weekly treatments of it. Right now I am concentrating on AC. If all goes as planned, my last AC will be July 7th. Then I will think about Taxol. I won't need radiation, so Taxol will be the end of the road for me. I have counted it out on a calendar of course, but I only think about right now. So, after Tuesday I will be half done with AC!!
Love all the posts on the positive thoughts. I am trying to figure out why, but I don't really have any anger either. This is just something that happened to me. I'll deal and move on. I guess I figure everybody has trials. This is mine. I keep a journal on positive thoughts. That and prayer gets me through.
I know we should avoid sugar. I don't. Right now, my onc says I can have anything I want. Nothing is off limits. I'm an all things in moderation girl.
Sukiann- That's interesting about feeling good because your immune system is compromised. Let us know what your onc thinks. At any rate, I'm just glad you are feeling better!
Deb6563- Happy belated birthday!! You are just a little younger than me. I turned 47 in December. Sorry it was a bad SE day for you though. I wasn't nearly as upset about the weight loss as the chemo nurse was! Unfortunately, I gained most of it back the second week when the eating starts again. I am eating everything in sight. LOL Hope you are feeling better!
Geri- Hope you enjoyed the sunshine even if you were cleaning your windows! You are triple neg. Are you doing dose dense AC? You aren't getting the Neulasta shot? Just curious. I love to see how all of our treatments are alike and different.
Welcome LoriR and Hemen!!
AbuelaBorica- Yeah for you doing the Race For The Cure!
Titch- You are always such a wonderful breath of fresh air here! I love your positive thinking! Your event sounds wonderful. I am a big scrapbooker, so I would have loved the prize you won! Good for you!
I think I'm somewhat caught up! It's hot, hot, hot here in Central Texas so it's a pool day for me. I'm going to enjoy today and tomorrow before chemo week starts. Good week- bad week and good week is almost over unfortunately. Hugs to those who need it!
Mary
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Just dropping in to wish all May Marvels a great weekend and relatively free of any SE's!
Linda
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Also just dropping in to say hi to everyone, had my 2nd treatment on Wednesday and am just pretty out of it yet, if all goes like last time should start feeling better Monday.
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Texas Rose--Glad to hear your having a good week!!! I feel perfectly normal today. I didn't think I had any SE last week but now that I feel so good today I look back and I think I had a little chemo brain or something. Was kinda in slow motion, foggy I guess. Today My head seems so clear!
Iam tiple neg and Iam Stage 1, no nodes. I had a masectomy and my chemo is Taxorere/Cyctoxin 4 tx every 3 weeks. I asked my onc about geting it every week or every other week to hurry it along but my onc said that alot of women end up getting sick and he said this would be good enough for me. So Iam listening to him. Good Luck with your dose dense, you know all the tips and what to do. Plus they keep such a close eye on you and have a remedy for any side effects. You should be fine. You can always change if it's to much but you seem fine so far.
I didn't get THE "N" SHOT (that's what I call it now, Iam scared to death of IT!!) because my onc waits to see if and when you need it. I get my blood checked every week and they determine at that time if you need it. They waited 1 week after my first chemo to check my blood and see the nurse. My wbc count was within Normal/Low range. Next Wednesday they will check it again and if it is lower I probably will get it then which would be 1 week before my 2nd chemo. If it is still ok I won't get it. I asked the nurse and she said some people don't need it. I keep praying and eating protein etc to help my body recover on it's own. We'll see what happens. At least if I get IT it won't be right after chemo and then you have to deal with the SE and THE SHOT. So far I really love my oncologist. Plus he is letting me try the cold caps! I won't know if there working until 21 days. The inventor told me that if I still have my hair in 21 days then it is working. I'll let you know about that too.
Have a nice week-end and prayers for you for next week too!
P.S.--Have you got your camper ready to go yet? I want to clean mine this week and start going camping! Take Care--Geri
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Had my 2nd TCH treatment yesterday ... so far so good, just feeling tired and taking meds to ward off nausea. Had my neulasta shot this morning, so I won't be going back to the docs office for at least a week if everything goes well.
Hope everyone has a good weekend, and few to no S/E!
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Hi May Marvels. I've been busy (feeling so good) so trying to catch up on the posts. About positive attitude--I've had such a peace from day 1 knowing that all is going to be okay. Yes, this is not going to be fun but it's just a temporary situation--a big bump in our path of life. I've not experienced anger either and have used this time to inspire others as I take this journey. You are all so inspiring to me too. I like the funny stories, the encouragement you all share, etc. Last night, I atteneded the Relay for Life that was here in our town. I didn't realize it was happening until the last minute. There were 2 speakers that are both young and terminal yet so positive and said that they were not going to let cancer take their happiness so will go down happy!!! One was only 28 years old with pancreatic cancer. I am so thankful that since I had to have cancer that it is breast cancer and not some other type.
My hair is shedding but not coming out in clumps yet so not ready to shave it. I know it's coming soon. I'm on day 19 and thought that by now I would be in a wig, but hanging onto my hair. lol. It's quite thick and has been so healthy so maybe just taking it's time to let go. My 2nd treatment is on Tuesday--hoping that WBC's are not too low. Many of you have been talking about the loss and gain of weight. I last 5 lbs in the first week after my first treatment but have since gained it back. I've been so snack hungry and since raw fruits and vegs have been taken away from me (due to low WBC's), I'm not eating as healthy as before. also, my onc. said I could have sugar in moderation.
Hang in there May Marvels,,,,, we'll make it through this journey!!!!
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hello you wonderful May marvels.
It is a beautiful day in NZ today. The sun is shining (it is our winter here) and it been a wet and cold winter so far. My hubby has gone away so I home alone with my two daughters..... So I am gonna enjoy the day with them and get some vitamin D exposure. have a wonderful day ladies.....
take care....
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Oh just a tip..... don't leave your wigs where pets can access them...... even up high
My dog got my wig this morning, and whilst he didn't chew it or ruin it, he definitely seeked comfort with it, dog slobber everywhere, probably could smell me in it....... I am so thankful it is a Sunday here.... So I have washed it and drying it as we speak. I could not imagine finding a dog slobbered wig when I have to go to work that day. I tend to wear wig in public and hats at home. Not to sure if I am ready to go out in public with no wig heheh. But the dog won't have another opportunity on slobbering on it. I have learnt my lesson well...... hehehe
Huggles to you all
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Hi Girls
I lost my inter net connection for a couple of days. Well I had a hair cut and instead of saying 3 inches I said 6!! It is still hanging on, day 13 today. I keep reading Day 14 plus it starts falling off. I am feeling good, only SE is lack of sleep, but continuing to live life to the full. We had a cold, sunny weekend here so went to golf on Saturday, only managed to play 13 holes but I did walk all 18, gold star for me, haha, and a long walk on the beach today. Food tastes the same and no weight change either way. I haven't felt angry at all, my attitude is lets just get this over and done with and I am going to treat myself to a holiday in Fiji when it is all over. I have friends over for celebrations every week and we drink wine and laugh a lot. One of my friends told me on Friday that if anyone could do bald it was me because of the way I wore my hair!!!!!
Keep laughing girls and celebrate . My oncologist said to drink red wine, so enjoy.
Hugs to all Susie
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Hello to all
Blondie45 - I too have my second TC on Wednesday so we must be on the same schedule. Good luck to ya! half way done at that point
GMP - I also know what you mean about not realizing you were foggy until a couple of days after and then your clear. I had the same thing happen to me.
Titch - you made me laugh this morning about your dog - glad he didn't do any damage to your wig but I too have a dog and could totally see him doing the same thing.
Question - Has anyone been told to eliminate soy from their diet?
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I had to laugh at the dog too. My problem is my cats. I never in this world thought I would ever hear the words, "Put down my wig!" coming from my mouth, but my cats love mine too. You just gotta laugh...and hide the wig!
Susie- Welcome back!! I wondered where you were. I'm planning a vacation for after all this too. We are thinking either Puerto Rico or a Southern Caribbean cruise- or both since that is where the cruise leaves from! You have such a wonderful attitude!!
Lori- I haven't been told to eliminate soy, but I think that is a hormone positive thing. I know I have read somewhere about it here, but it didn't affect me so I haven't read much. I'm sure if you look around the site, you will find plenty of info about it.
Geri- We don't have the camper ready yet. I asked my hubby about it last weekend as I wanted to go camping, but he has been so busy he hasn't had time. My goal is to get it ready. I want to go camping!!
I can't believe how normal I have felt for the last couple of days. My only SE right now is lack of sleep and my nose just runs all the time. They told me that would happen. Guess my nose hairs are leaving. They are the only hairs that are falling out! Guess that will change after Tuesday's chemo #2.
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mom2twins- I love, love, love every other week when I don't have to go anywhere near that hospital!!
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Thanks Texas Rose - I have been reading labels and there is SOY ine EVERYTHING even margarine. If it needs to be eliminated entirely that is going to be TOUGH. I have an appt. with my onc on Tues so I planned on asking then. My onc. has a very strong accent so it is hard to have a conversation with him but we will try.
Like many of you I too am planning a vaca. when this is all done - funny we have to have something like this happen to make us realize that we need to live life a little more. I am planning a cruise in Oct. to Bermuda.
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Kelly2...I am injecting Fragmin, also known as Dalteparin, every day. I'm doing this because I have a port a cath. When I went through chemo 4 years ago and had a picc line, I developed blood clots, infection and had to be hospitalized for 3 or 4 days. So far, so good
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hrf--what is Fragmin? Is it a type of blood thinner? I'll have to check into that. I'm glad it's working out for you.
Well, ladies, today is Day 20 and my hair started really coming out in clumps so had dh shave it off so I'm joinng the rest of you baldies. It feels so funny not to have any hair. I'm experimenting with the scarves and hats, etc. It's hot here in Texas but my teenager sons really don't want me to run around bald.... I love the dog story and wigs. I have cats too and knew they would like the wigs so put them up high on a shelf where I don't think they will get to.
Planing a vacation sounds great. We had thought about going to Switzerland this year to celebrate our 30th anniversary so maybe, we'll just do it next year since I know we can't go this year. It will fun to look forward to these vacations. Have fun planning.......
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Hi titch and zuzeee!
I have sent you both a Private Message. Go to My Home at the top of page to retrieve it.
Glad to see you are both doing well...having a sense of humour and drinking wine really helps!!
hugs
jezza
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lovetheocean, I think that even though you will be going for radiation soon that you should still post on May Marvels,and that goes for all of us that started in May.Don't you think we should all stick together and let us know how you are doing and some of us that will be doing radiation would like to know what to expect. You can help us get through that also.There are so many wise woman on this post ,I really enjoy reading about all your experiences,meltdowns, which I had yesterday.I'm really not sure why I cried so hard,just had one of those why do I have to go through this.I have had a lot of bad things happen in my life,a lot of sadness,I just wonder why I keep having bad things happening to me.I really want to be happy go lucky me ,I can't wait for that day. I will have that day,I know I will.Thank you all for letting me get that off my chest.Take care to all of you that are not feeling well today, Hugs , Julie
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Hi Ladies,
I'm gearing up for round 2 of A/C tomorrow. I'm also getting ready for the fall out of the hair. It was a beautiful day in here in Eastern PA, so I went hiking with the family. Hubby wanted to ride in his convertible, I thought I might as well do it now, because I don't think I'll be able to in a wig! I was so afraid that clumps of hair would just come out and fly into my daughter's face while she sat in the back seat! Luckily, that didn't happen.
I love the idea of a vacation! At first I said after I hit the 3-year mark I'd go on a great trip, but maybe one year is a better idea. I better start thinking about where to go.
TEXASROSE: Good luck. I think we're on the same schedule. I feel pretty well too. It's ironic to think that treatment of this disease is going to cause more pain and discomfort than the disease itself! Crazy huh?
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Hi May Marvels,
Just checking in. This round took longer to bounce back from, but I am starting to feel better. I wore my wig for the first time today to church. I felt like everyone was looking at me to see how I looked in a wig. I am going to stick with scarves and hats except for church. The scarves are so much cooler here in the hot, humid south.
I read somewhere that there is a cruise once a year that is designated just to breast cancer survivors. It was not very expensive either. I will try to find that info and maybe all of us could take a cruise together and celebrate our one year cancervesiry.
Going back to work tomorrow. At least I have two A/C's down and two to go. Then on to Taxol. I, too, think we should all stay together under this post during radiation, we started together and we should finish together.
Janet and TexasRose - I will be thinking of you tomorrow. Check in when you feel like it.
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I agree we should stick together thru radiation too
Deb6563 I would love to hear more about the BC curise.
Jabl1252 - I kinda had a meltdown weekend too - did you happen to notice it is a full moon weekend. I work in HR so I am firm believer that the full moon makes people crazy. Also no women should have to shave their head on the same day they get their period. Needless to say the emotions were a little out of whack!!
TexasRose and Janet - good luck to you too tomorrow
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I think we should all stick together too. I'm not having rads, but I will still be around.
Julie- Hugs to you. I'm sorry you've had a rough time of it. I hope things get better soon.
Janet- Wishing you well with round 2. I go for labs tomorrow, but my chemo isn't until Tuesday. We are close, but you are one day ahead of me. I hear ya on the treatment being worse than the disease (at least for me). I didn't feel sick a day from the cancer. I didn't feel bad at all until chemo started! I refuse to call myself sick because I'm not sick! Just think though- we are almost half done with AC!! Are you doing Taxol also? I have 12 weekly Taxol and then I am done...well depending on which arm of the trial I'm on.
Deb- Sorry this round was harder. I keep hearing the SE are cumulative, so I don't know what to expect this week. Hoping it's no harder than week one, but I guess we will see. Take it easy going back to work tomorrow.
What do y'all eat right after chemo? After the first treatment, I was starving. Someone had told me to not eat anything I liked because I was never going to want to eat it again. I didn't really get that and I was so hungry, so hubby and I went to one of our favorite places and got one of our favorite dishes. Now, when I think about that meal I feel very nauseous. I'm not sure I will ever eat it again. Makes me sad that it was ruined for me. I know I will be hungry on Tuesday when I get done, but I don't know what to eat. Hubby told me to go eat something I don't like since I'm not going to want it again anyway. Did anybody else have that happen? I feel more prepared for this go round. I'm stocked up on things I might want to eat including Ensure if I don't want to eat anything.
I'll be thinking of you tomorrow Janet.
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TEXASROSE: I believe the reason that people say to not eat anything you enjoy is ...if you have that metallic or cardboard taste in your mouth, it might ruin your enjoyment of the same food in the future. I didn't have such a bad taste in my mouth, so nothing was ruined for me. I did eat lightly as to avoid being nauseous, but I wasn't really that sick with the first treatment. My onc. nurse said to stay away from spice food to avoid being queasy. (Although, I kind of forgot that and made a big pot of chili to have in the freezer this week for the family!) Other then that, no restrictions.
How's your hair situation? Anything happening yet?
Janet
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Janet, I didn't have the metallic taste either so no food was ruined for me that I ate that first week or so after treatment. This was the meal that I had right after treatment. Like on the way home from the hospital. No nausea yet. No metallic taste. It was weird. When I think about eating it now, I get very nauseous. Strange.
I haven't lost a hair yet. Not on my head. Not on my legs or arms. Nowhere! I shaved my legs the other day and I have stubble coming up. I have very, very thick hair though. It won't go down without a fight! LOL I'm sure it will change after Tuesday, but for now- still have all my hair. My scalp got sore last Thursday morning for a couple of hours and then that went away and nothing since. Have you lost any yet?
Mary
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Hi everyone, I also started chemo in May. I am doing DD ACX4 every other week followed by 12 weekly Taxol. Then radiation and hormone therapy for 5 years - yea :{ I am having the second AC this Thursday and I'm feeling a bit nervous about SE. My aunt did chemo with the same oncologist about 6 years ago and she has SE horror stories. My first round went great, very few SE although I notice that I loose my cool with my kids more often now.
had a bi-lateral mastectomy in mid-April and a power port implanted in mid May, no reconstruction yet - possibly next year.
My 9 y/o son is looking forward to my impending baldness and my 11 y/o daughter has gone through my hats and scarfs to let me know which ones I can where when she is with me in public. I'm thinking of wearing a combo of her least favorite to the end of the school year picnic - she'll love it.
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Hi all
Well tonite I have had my red wine, purley medicinal , yeah right!!! This is kiwi beer ad in NZ. All I can say is you girls in the USA are going to learn aout us KIWI girls in NZ.
We can fix anything on a number 8 wire fence!!?? Keep smiling , my hair is falling out every where and the wig is nor yet in sight. have to go to Waikato hospital tomorrow to meet my Dr radiologist . I hear he has a great sense of humour, I will need to if I have none in morning!!!!
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Hi everyone
Just a vvery quick drop in today. Just worked a 10 hour day and feeling very tired, so gonna sit back and watch telly with the hubby.
Have a wonderful day tomorrow you May Marvels..... thoughts are with each of you.
Titch aka Tania
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Hi May Marvels,
I have to go to chemo this morning. I DON'T WANT TO GO!!!!!!! Well, I have to so that's that. Isn't is awful to feel good and know that you are going to come home and feel like crap???? I almost had a breakdown last night (ok, I had a mini one). My hubby is away on a business trip and my kids are home with me trying to get their homework done - yes, they waited until the last minute to do it as usual. Our computer isn't working - the one that has Word on it. I called my husband and he told me to "just download word on the laptop and then download the drivers for the printer". Sure, no problem. Nothing worked so the kids had to go to the neighbor's house to do their homework. I am going to have a terrible week if the computer doesn't get fixed. I feel like I am all alone even though I really know that I'm not. Ever feel like that? My hubby is so busy with work that he's just not around a lot and I have to do everything. Sometimes I just snap - well, I noticed it's usually the day before chemo when I work myself up. It will all get better after I go today and get so exhausted that I can't think about anything anyway.
Ok, on to the fun stuff!
Zuzee - had red wine last night too. I think it helped!
Titch - get some well deserved sleep!
ladbham - good luck with the 11 yr old daughter. I have a 15 yr old and they are brutal when it comes to fashion and the embarasment factor!
Texasrose - any hair fall out today?
Deb6563 - I wear my wig to church too. Most of the time I wear a baseball cap. When I do wear my wig everyone loves it. Almost to the point that I feel like my real hair wasn't as attractive as my wig. Everyone gushes over it. It's almost embarassing!
LoriR - probably had a meltdown yesterday because of the full moon. That explains it!
Kelly2 - go to Switzerland. Although I've never been there my husband has several time for work and it's his favorite place on the planet. Said it is amazing.
Janet22664 - Good luck today. I right there with ya! I wish we could go to the beach together instead of chemo.
Mom2twins - any side effects from the nuelasta? I am sooooo scared of that thing. I've become obsessed with avoiding it. Haven't had it yet (after 2 rounds) but after this third one I'll probably have to get it "they" said. Yikes!!
I know I've missed some of you but I have to get my kids to school (so they can come home with homework they can't do on our computer!). Love to ALL of you. Looking forward to getting home and checking in with all of you.
xoxo Sukiann
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