Crazy Sexy Cancer in Seattle
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Hello everyone, I've been down and out for a bit. So much going on! The sun is out which always makes me feel better. Just finished my last round of Chemo on Thursday but have been out of it. 4 rounds enough for me, it got harder to bounce back each time.
Welcome to all the new gals, this is a good place to be. So much news I can't keep up with it all. My poor brain is still fuzzy, hoping tomorrow is a bit better. I'm not doing the race but am still planning on the 17th. I might need details again as I keep writing stuff down then putting it who knows where???
Susan thanx for the congrats. I meet my RT Onc on the 8th so I'll find out then what goes on. I'm routing that your next 3 go by quickly.
Madge thanks for the tip on hypochondria, at least I know I'm not going nuts. This time it seems like the se's just hit me right away, next day. It was like ok, I know it's your last chemo so out you go with a bang!
Tracy good luck with the surgery! Almost done you must be feeling so relieved that the end is closer and closer.
Jean, I am sending all my positive vibes to you and your mother and by this afternoon you both have peace of mind.
Well, brain shut down coming on again, time to go drool in front of terrible daytime tv or maybe sit out side in the shade for a bit.
Big hugs to all..............
T
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Tina: congrats on your last tx!!!!
Jean-Bean: definitely sent (and sending) positive vibes for your mom!!!
Tracy: good luck with surgery on Friday.Whoo Hooo! I can't wait to be taking that next step...but will soon enough (hopefully by Sept). good luck!
Kalen- yep. Dandelion. Perfect description. I can't tell how long mine is, but long enough to tickle my head if I am running through the house!
HeidiSue: Everyone loves Dr Rinn...your in good hands. I see Dr Kaplan and absolutely adore him (wish I could adopt him). Have to say everyone at Swedish is great. All the nurses. Everyone. Haven't come across anyone in a cranky/bad mood yet. How are you doing with CMF? Weekly? 2 weeks on/two weeks off? I am 2 weeks on/2 weeks off. Dont want to say another word about that schedule...cause everytime I do, I jinx it.
Speaking of delays - I was just told on another thread that strawberries are really good for helping bringing up low WBC. I know it has absoultely nothing to do with this seattle thread, but I thought "hey another good reason to eat strawberries!"
All: Who is going on Sunday? Susan? Carol? JeanBean? Libby? I am bringing my roommate from grad school and possibly my daughter. Today she was interested. We'll see what she says Sunday morning.
AND what is with all the new bc.org content on these pages? I thought it was advertising at first.
Sorry about all the !!!! I crashed all day today and now it seems I am wide awake. Oh well.
Tomorrow is supposed to be another beautiful day! yeah
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Holy smokes ... Been out of the loop for a couple of days and its gotten crazy with chat. I am definitely "walking" Sunday. I am bringing my son as well. For those on the Kitsap Pen. Any idea what ferry your catching? On my BB right now will do some PM-ing tonight with my cel number.
Hugs around sister friends !!! -
Holy smokes ... Been out of the loop for a couple of days and its gotten crazy with chat. I am definitely "walking" Sunday. I am bringing my son as well. For those on the Kitsap Pen. Any idea what ferry your catching? On my BB right now will do some PM-ing tonight with my cel number.
Hugs around sister friends !!! -
Hmmm, looks like a 7:05 boat to me!
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Good luck to everyone who is doing the Race for the Cure this weekend. Wish I could join you but most likely will be down for the count this whole weekend. I hate surgeries. I really do and am hoping this is the last and final one-EVER!
Enjoy the sunshine today ladies.
Tracy
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Hey, can I get the details for the outing on June 17? I'd like to post it on the Community Get-together's thread here. I only found you because someone pointed me in this direction. Any reason not to do that?
I'll probably decide on Sunday's race at the last minute. Can I PM someone to get a phone number to see where you all are meeting. I've started running again, but not very far, so I would likely just show up to watch the festivities.
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Tina -- Congrats on your last chemo!!! Way to go girl!!!
Jean Bean -- Hope your mom's appointment went well, I'll be thinking of her and you...
Enjoy the warm evening all!
Peggy
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Thanks for the positive thoughts everyone! My mom's biopsy was quick and uneventful--we'll get the results friday.
Carol, yes, we'll be on the 7:05 boat. I PM'ed you with my cell phone number and where my team from work will be meeting.
Libby and Gina--I'll PM you with my cell number also and hope to meet both of you.
Tracy--best of luck with your LAST surgery. sorry we won't see you at the Race but hopefully on the 17th.
Jean
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So, I too will be on the 7:05 ferry on Sunday - going to the race. I will have to register online or there - and I guess pick up our shirts there are well. My husband and kids will be with me and I think we will do one of the co-ed walks.....I will PM my cell phone number to Libby, Gina, Carol and Jean - should be an inspiring event!
My thoughts are also with Jean and her mom - hoping for b9!
Susan
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Ginagina I'm glad to hear you've had good experiences at Swedish. I started out at Virginia Mason but am happier at Swedish. Someone I work with goes to Dr Kaplan and was just telling me how much they love him. The regimen I'm on is po Cytoxan daily and once a week infusion of Methotrexate and 5FU. So far so good but I've only had one infusion so far. I don't have a port and am wondering how my veins will hold up with weekly infusions for 6 months. My oncologist seems to feel it won't be a problem.
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Hi all,
Libby-Sure you can post our get together on the other thread. We will be getting together on June 17th at 6:00pm at Red Robin on Pier 55 in Seattle.
Tina-congrats girl! Take a deep breath and pat yourself on the back....You did it!
I have had a tough day today. I have a good friend who was diagnosed with oral cancer about two months before I was diagnosed. He went in today for 12 hour surgery for a local recurrence. They had to rebuild his jaw, remove 4 teeth and take bones, muscles, tissue etc from his leg to replace the jaw. He has two kids who are the same age as my kids and he is an all around great guy. Though I am glad that the surgery went well, I'm having one of those-"I f**ing HATE cancer!!" days.
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Thanks to those who have welcomed me to the Seattle threads.
Tracy, I believe you said Dr Rinn is your Dr. too. I'm so glad I found her. What drugs were you on? Are you having your surgery at Swedish? I'm an anesthesiologist and do a lot of anesthesia for breast reductions. It's one of the surgeries I enjoy because the patients are usually looking forward to the results as opposed to some surgeries, like removing gall bladders!
That sounds like a very tough operation your friend is going through. I think I might be older than most on this thread (56) but I am shocked by how many people I know in my age group with cancer.
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Hi HeidiSue
Yes, I love Dr. Rinn. I did Taxotere and Cytoxin-4 rounds. I finished last September and then did my radiation at Valley.
I am having my surgery at Swedish with Dr. Miles on Friday at 7:30. I would love to meet you if you are there!
Maybe you know my cousin who is an anesthesiologist there as well....Craig Johnston?
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HeidiSue and tkone and ginagina -- the Dr. Rinn Club I think!
Dr. Rinn is my doc too and I also really like her. My surgeon is Dr. Hanson; I had a port put in a week ago, my veins are small, they tell me, and it is easier for infusions and blood withdrawals, tho I didn't want to have it done. But these lovely ladies on this thread helped make the anticipation easier w/ their/your comments. Actually the surgery itself was not as scary as I thought. HeidiSue, I just turned 52 so we are very close to the same age. I, too, am shocked b/c 50 seems so young, I always associated this disease w/ women in their 60's and 70's.
Are you still working through all this? I am on T/C x 6 and have completed 2 thus far. I get chemo every 3 weeks. I'm glad to hear you like Swedish b/c it was a real quandry deciding where to go for treatment.
Tkone: how fast did your hair grow back after T/C? You finished in Sept. so when did you have a "do" you could work with? I saw your pic on your blog, cute!
So many questions, sorry! Aprilgirl11 is used to them by now! It's so helpful having a group that so knowledgeable.
Peggy
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Thanks all for the congrats on my chemo graduation! The last one was a BEAR! Still has me sideways a bit, not to mention that lousy NeuBASTARD (neulasta) shot. But Cytoxin/Taxotere are in the past! Yay! Now phase II in which they nuke me! LOL.
Heidi if you are unsure on your port talk to the Onc nurses. My Oncologist didn't think I needed a port for 4 rounds of chemo every 3 weeks but when I spoke to the nurses they have a different way of looking at it. Based on what they explained to me I decidided to get a port placed after my first round. It's in my arm. Even though I had great veins infusions can be hard on them. I am glad I had it placed my infusions went faster compared to it going into my vein, blood draws were easier etc. When I brought it up to my oncologist he just laughed and said it was better to talk to the source, we write the scripts, the nurses hang the bags, find the veins, they are the experts. So just a thought to consider.
Tracy best of luck on your surgery! I'll be thinking of you. I am thinking of your friend as well and sending him my best wishes!
Peggy and Heidi, I'm turning 50 in Sept and when I started all this back in January I too thought bc was for the older ladies. Since then I have met a 25 year old with Stage 2 IDC, multiple women in their 30's and some a few years younger than myself. The face of cancer has changed, it is not for older gals anymore. The days of doctor's telling women you're ok till 40 for a mammogram unless you have history need to be over. I have history and still was told you're good till 40 even after a biopsy in my early thirties. Doctor's telling patients they are too young for bc need to be over as well. If I do nothing else as a result of this, it would be to find a way to change this thinking. How I will do it I don't know yet but I'll figure something out.
Ok enough soapbox, go out and enjoy this amazing day!
xxo
Tina
Well
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Tracy, I don't work at Swedish, I work at Valley. I live in Seattle so it was easier for me to go to Swedish for my tx. Swedish has a HUGE group of anesthesiologists. I haven't run across your cousin.
Madge, yes I think I'm still working through this. I was diagnosed last November so you would think I had come to terms with it by now but I still get anxious now and then. I did it an unusual way, radiation tx, then chemo. I wasn't expecting to do chemo so it took me a while to accept the chemo recommendation. I'm feeling pretty positive now though.
I just went on the John Bastyr website and am thinking of adding some complementary/alternative med to my tx. Also want to sign up for Qi Gong classes. Has anyone done that?
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I hope you are all out enjoying the sun!
I did not get a port - even with 24 infusions and 24 blood draws....I have good veins, and my doctor doesn't order ports for CMF. Some of the nurses would argue that point, but for me it was not an issue.
HeidiSue - I did go to Seattle Wellness Center and saw Heidi Lucas who is a naturopathic doctor. I did this after diagnosis, while I was waiting for surgery etc. She prescribed a lot of supplements but I am not to take them during chemo or radition. I will probably go back some time this summer. She did do some basic blood tests and found that I was low on vitamin D. I have not heard about Qi Gong.
Tina - I agree - it seems like so many of us are now diagnosed young. I keep hearing of young women in their 30's which is scary. Most of the people waiting for infusions at SCCA seem to be older but my goodness there are a lot of us. At 44 I thouht I was young, and my docs all acted like I was on the young side, but of course they have seem it all.
Tracy, I am so sorry to hear about your friend. That sounds like a very hard surgery. I hope he comes through this fine.
I need to go water the garden! Hope all is well for everyone!
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Hi all,
Here are a couple of responses...Peggy, I finished chemo on September 9 2008. I did radiation immediately after that and then went to Hawaii in November for vacation. I had worn wigs for work and hats or nothing at home the whole time, but when I was in Hawaii, I just didn't want to wear a wig or even a scarf. I wore a baseball hat the entire time I was there. When I came home, I just couldn't go back to wearing the wig. I went commando for a group of friends around the first of December and since none of their eyes popped our of their heads, decided to go for it at work. I bought a couple of cute hats to wear to the office so people could get used to the idea. I wore those for about a week and that was the end of it. So I guess about mid December was when I truly had enough to go topless. It is very freeing after having to cover your head for so long.
With all due respect to everyone who was diagnosed older, I was diagnosed at 43 and thought that people weren't diagnosed until they were in their mid-50's so I guess we all think that whatever age we are diagnosed at is too young! I say we are all too young! Interesting too that of all the Seattle people (as far as I know) none of us are BRCA1 or BRCA2 carriers so none of us should have thought we were at risk.
Cancer sucks doesn't it??
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Tracy - you are so right - this at any age is too young and cancer does SUCK! I don't know why my font is so huge - I promise I am not yelling! It is interesting that none of us are brac carriers.....never thought I was at risk for this. Heart disease, yes. I will be thinking of you on Friday and wish you a speedy recovery!
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Tracy, you've been in my thoughts ... hoping that your friend's surgery was successful and that his recovery (although sounds like it will be tough) goes smoothly. I as well have a very close family friend that was diagnosed with tongue cancer about 6 months after me. Although no cancer is a walk in the park ... seems like the oral/tongue cancers are particularly tricky. I feel for your concern.
Here's to getting your "finishing touches" done, and soon it will be time to put that big exclamation point at the end of an incredible journey !!! Look forward to seeing you again on the 17th.
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Funny you mention going bald Tracy, I am at the point where I don't want to wear a wig, the scarves are getting annoying and I just want to be topless. I haven't gotten to going to the supermarket without being covered but it's only a matter of time. I do like the baseball cap thing, I think I'll go dig some out of a closet. Although I'm done with chemo, I think I'm going to keep shaving my head for a little while longer, I'm kind of liking it, it's so easy!
Cancer sucks, it's a punk and we are all too young for this. But we'll beat it and grow old. For me when I get old I'm going back to my evil ways, drugs, sex and rock and roll again!
Sleep well everyone.
Tina
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Tracy--you are right, cancer sucks the big one!! I'm sorry to hear about your friend. Although I miss my breast I'm glad that I had cancer in a relatively disposable part of my body. I hope he comes through it OK.
HeidiSue--I have never done Qi Gong but my brother has done some. I believe it is based on re-balancing your body's energy (your Qi). It may be good supportive care during chemo. Please don't apologize about still coming to terms with this all--I think it is a lifelong process and very up and down.
Susan--thank you so much for the beautiful basil plant!! My mother had already put some in a stir-fry by the time I got home from work. I guess that's one (small) benefit of having to go to Seattle every week--you get to go to Trader Joe's!
Tina--that's right, we WILL grow old with this. One of my patients yesterday was a 90 year old survivor; that made me very hopeful.
I see Dr. Paige (Plastic Surgeon) at VM next week--has anyone heard anything about him or seen him?
Hope to see some of you at the Race. my co-worker team got beanie hats with propellers on top (because our team is "Jean's Beans") --what a hoot!
hugs all around,
Jean
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I can't believe it--my mother has breast cancer too!!!! We're like breast cancer twins--same side, similar pathology. I'm optimistic she'll be able to have a lumpectomy but first have to get her MRI set up. we'll probably go to SCCA/UW since that is where she has been getting her liver cancer treated. Susan, thanks for your surgeon and onco info. anyone else go to SCCA? (Carol?) I just told my mom--she has stayed really calm and just said "what a bother!" Indeed. Now she's making chicken soup.
Jean
Susan--no, my mother never took HRT. Her only risk factor is me.
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I am so sorry - the only small comfort is that you for sure know what she is going thru, and what to expect. I am hoping her oncotype score will be low like yours was. Damn - that is all I can say.
She is right - WHAT A BOTHER. That is a great attitude. PM Carol - I think her surgeon was Dr. Byrd or Bird at UW, but I don't know for sure.
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JeanBean-I am so sorry about your mom, but the chicken soup thing makes me giggle! Good for her for letting it be just a small bump in the road.
Surgery tomorrow ladies. If someone could arrange for the weather to be crappy that would help out a lot! Then I don't feel like I'm missing something.
I just keep telling myself "this is my silver lining....".
Catch up with you all in a few days. I'll be laying on the couch, hopefully feeling good enough to catch up on some movies
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Tracy - I think the weather heard you. All of the sudden it got darker and windy - reminds me of my younger days in chicago.....
I will be thinking of you tomorrow. I know the surgery will be fine, and you will be so happy!
S
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Tracy--I think the gray skies are a sign that you will have a quick and smooth recovery! Will be thinking of you today.
Susan--yes, we know what to expect, what to do, who to see so that is taking away a lot of the anxiety. I know she'll get through this.
Heidi Sue--I forgot to mention I'm from Minnesota too! Grew up in Mpls and went to med school, residency there. what part are you from?
Jean
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Hi Everyone! So much happening amongst all of you!
Tracy I'll be sending positive thoughts your way today. Looks like the weather is giving you at least a crummier day. Good Luck. After surgery, better living through chemistry!
Regarding the discussion about going out bald, one of the nurses I work with has come to work bald since the beginning and we have all loved it, including the patients. She holds her head up high and it seems to make her eyes look more intense and beautiful (even without eyelashes) now that you can see them better.
Jean and Susan thanks for the comments about Qi Gong. I think I'll look into that. I'm feeling like a need to add some alternative therapies that doen't involve toxic chemicals to my treatment! Maybe I will look into seeing Heidi Lucas, did you like her Susan?
Jean - I grew up in Seattle, but my mother's parents were from Minneapolis (Norwegians) and my husband's family is from Evelyth. There sure are a lot of transplanted midwesterners here. What kind of doctor are you? It sounds like you live on Bainbridge Island, do you practice there? I'm sorry to hear about your mom. How old is she? My friend goes to SCCA and loves it.
Well I had my 2nd chemo (CMF) yesterday, and again, things went really well with no symptoms to speak of. Is anyone trying ginger for nausea? I've been chopping up fresh ginger, putting it in a capsule and taking it every morning. Seems to help.
Have a good weekend everyone!
Heidi
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Hi all,
Jean I am so sorry about your Mom, but I agree what a great attitude. I remember when they told me my dx I looked at my husband and said "I don't have time for this shit"! LOL! Please let me know if there is anything I can do.
Tracy this is late and you are probably in the middle of it all now but best wishes to you. You will come through this beautifully! And the weather cooperated!
I would also like to ask that you remember a collegue of mine from our Paris office who lost her fight with cancer. Her name is Myriam Ugeux-Gerault and she was 38. If you have a moment today please keep a thought for her and a vow that we fight on.
Have a wonderful day.
Tina
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