Crazy Sexy Cancer in Seattle

libby

Hey all - A question about parking at Red Robin.  Does the restaurant have its own parking or do we park across the street in the pay lot?

Anonymous

I would think that you park under the viaduct across the street (which has meters). I don't think they have parking as they are on the water side. 

Susan

ginagina

Yep...that's what I did last time. Lots of spots under the viaduct....last time I got lucky. Fingers crossed I will get lucky again.There....just by saying that, I wont. Oh well. Looking forward to seeing you all tomorrow.

libby

OK, thanks for the responses.  See you all tomorrow - Gina guess you'll be easy to recognize, you'd better wear the pink wig, don't think I'd know you otherwise!!!

ginagina

That settles it. I will see you with my pink coif!

Vz_mom

Hi all.  just popping in to say hope everyone is doing ok.  may I crash the get-together this evening?

Jessica - I was on AC as well, and had much the same reaction you're describing.  appalling nausea and even a fair amount of pain.  it helped me to make sure I was bang on time with the anti-nausea meds, and if you don't feel like you're getting enough relief, tell your nurses.  the doctor can switch drugs around or add something to it.  I took Emend and two other drugs, a different one every two hours.  yup, I had a timer at my desk to remind me to take a pill.  I also found ginger snaps (with real ginger, not flavoring) to be helpful, and peppermint drops helped too.  for me, the third dose was hardest, and it was really important to make sure I had help around that time.  I followed the AC with Taxol, which was an absolute walk in the park.

on the off chance that anyone is still using a plastic bottle, here's a great reason to quit - Klean Kanteen has very pretty light pink bottles, and through the end of June, they'll donate $4 from every pink bottle sold to an organization called Breast Cancer Fund (never heard of it, but the more research the merrier).  home page is www.kleankanteen.com

be well.
Kalen

HeidiSue

HI Everyone,

I'm coming tonight to the Red Robin and can't wait to meet everyone.

Heidi

tkone

Hi Kalen

I'm sorry I didn't see this earlier, but hopefully not too late to say OF COURSE YOU CAN COME!!  I hope you make it and I am looking forward to seeing everyone.  I will try to get there a tad early and get a table.  I will put it under my name (Tracy) so it will be easy to find.

See everyone in a couple of hours!

swimfan

Hi all, hope you're having  a great time tonight! I unfortunately have been having some issues. Next time we meet I will once again be embracing the bald (and I still will not wear my wig!). The CMF was changed to Abraxane last week  and with the fatigue and cough issues I've been wiped out...in fact I haven't worked all week and had to let a sub give finals. I'm going to try to work Friday and our last day of school is Monday.

Can't wait to reconnect with y'all next time!

Anonymous

Robin - sorry you have been having some issues.  The end of school has been so draining for ME as a parent of younger kids so I can only imagin how you must feel as a teacher of high school kids.  I thought we were the last district to get out of school (which was today).

We missed you and the others who could not make it, but look forward to getting together again soon!

Susan

tkone

Hi All,

I had a great time tonight and am so glad that almost everyone was able to come!  Next time, we'll get everyone I hope.

I was telling a story tonight about my youngest daughter having no patience for loose teeth and instead of waiting for them to fall out, she just yanks them out as soon as they are even remotely loose.  I am including a picture of her here.  Now I ask you, have you ever seen such gorgeous teeth??  (This picture is from her in a play....she normally does not have yellow hair!)

tkone

Dang!  I can't get the picture to show.  I'll keep trying till I figure it out.  Shoot.  I can't figure it out.

tkone

Let's try this....

golfer779

Tracy ... Too cute !!!!



So if laughter truly is the best medicine, I feel fantastic after a night with my fellow "Crazy Cancer Survivor" friends !!!

Anonymous

Carol - I  totally agree - nothing better than laughing with friends who are fellow survivors and "get it".

Tracy - your daughter is beautiful - I can see she looks like you!

I had a wonderful time - we (boat people) made the ferry, which is a bonus.  I am sorry we departed in such a rush.  I think I could have stayed all night!

 Susan

TwillNW

I am so glad I was part of the gathering last night.  I'd never done anything like that before and had a few misgivings while driving there, but it was really amazing - I left with the sense that our breast cancer journeys are "different but the same".  I'll look forward to next time and yes, we need to rotate seats every 15 minutes or so!

Tricia  

jeanbean

Tracy-what a cutie pie! She does look just like you!

Last night was SO MUCH FUN!! I still felt a little giddy this morning about it. Thanks, Tracy, for thinking of it and for organizing.  Let's do it again soon!

Jean

golfer779

Tricia ... couldn't agree more .... musical chairs next time !!!

At work, but just got thinking a GREAT BIG WHOOOOOO-HOOOOOOOO needs to go out to Susan who should have completed numero 24 of 24 infusions today !!!!!  YOU DID IT GAL !!!!!

Anonymous

Tricia - I agree with the rotation of seating - great idea.

Carol - thank you - yes,  I am finally done with the infusions.  I still have to take the cytoxan for the rest of the week (until Thurs).  I brought the nurses a dozen Top Pot donuts yesterday morning to thank them, and I hope to never see them again!  It has been a long 24 weeks.

Madge24 - thank you for the gift!  Very thoughtful!  I don't feel great, so have to skip a Bat Mitzvah which I am disappointed at skipping as I have never attended one.  Oh well - at least I am done with chemo.  I know I will feel better later today.

Susan

libby

It was so great to meet all of you, it was a fun night out.  Glad I got up and walked around or I could have missed the whole evening and sat by myself at another table.  Gina, hope you are doing OK with your latest chemo - not too many days left, YAY! 

 Heidi, we missed you.  Hope you just changed your mind, and didn't get lost.  See you next time?

I have TE placement coming up on Tuesday.  Looking forward to having a shape again, but not the process to get there.   

Madge24

Ladies,

I had a blast with everyone at Red Robin!  Thanks to all for sharing so openly and being so supportive.  Had my 3rd T/C go round Friday; am half way done.  Have a great weekend all.

Tracy, thanks for planning the great evening out!  And to all, sorry we scooted out so fast to catch the boat!  I'd lost complete track of time.

Peg

footprintsangel

Hi Ladies, I am back, Missed all the caring people and the

love that is shared here. I am fighting to get help with my medical

and might change to Multi Care, Nurses are never the same.

work all three clinic at lease once a week. All my old nurse are going other

places cause the cut back patient compassion, I had low iron and other count were

lower then they should be and Dr did nothing, I told him about weigh lost and

not hungry, He is more interested in that. I guess I dont understand That clinic since they

changed. What would you Do? Thanks Debbie

cheers247

Hi Peg, I am seeing the neurologist because I have been having some strange s/s since chemo started; visual changes, forgetfulness, doing things in the wrong order, balance problems, etc. I'm having some testing this week.  I'll keep you posted.  Thanks for the support!!!  Much Love, Jessica

Madge24

Cheers247,

Good luck with the neurologist, keep us posted.  I had to have my eyes checked a couple of times for an eye condition.  Take care of yourself and let us know how you are doing.

Tracy, Hope your healing continues to go well, been thinking about you!

I'm on my worst day after chemo but it hasn't been too bad.  Watched junk tv today and lounged around mostly.

Take care all.

Peg

Anonymous

Jessica - hope the neuro appt was good and uneventful. 

Madge24 - Junk TV - OMG - I watched it Saturday as I felt lousy from chemo.   Has anyone here watched  the Bravo show Housewives of New Jersey.  That show is crazy!  I loved every minute of it in a sick way.  Regardless, hope you are feeling well today.  Half way thru, right?

Hope all is well with everyone else!

Susan

golfer779

Shucks my Bainbridge Island friends ... hoping tomorrow has you both feeling a bit better.   So Susan, two or three day's left of those lovely blue pills ?????!!!!!!

Anonymous

Carol - thank you and yes, I feel fine now.  I do have a few more days of cytoxan....but that is okay with me - I am done with the infusions!!!!!!   When will my hair start growing in (the hair that thinned)?  I see my onc. on Wednesday.

I just read that women that go in to menopause rapidly (they mentioned women who go in to menpause due to chemo) have higher rates of heart disease and plaque build up.  GREAT!!!!!!  I had not heard that, but it is good to know as heart disease is in my family.  

The sun is shining - hope you all are feeling fine today!

Susan

golfer779

Susan, shucks ... hadn't read/heard about the heart disease, although I guess I do know that Femara can cause a raise in cholesteral (ie heart problems).  Had a baseline done last Oct ... never have had great readings so I'll be watching it.  

I have the hunch that you have already had some of your new hairs growing in ... heck I don't think mine has ever gotten back to the texture I used to have.   My gf (whom does my hair) reminded me that I have alot more grey coming in which is a different texture than my old stuff.   The "catch 22" of this growing older gig ... I'll take it !!!!!!

tkone

Hi Ladies,

We are heading to Kahneeta (Central Oregeon) for a nice long 5 day weekend and I am definitely looking forward to finding some sunshine.  My PS tells me that I can't get into the pool though as not all of my scars from surgery are completely closed up.  I'm crabby about having to wear the dang compression bra the entire time when it is going to be in the 90's the whole time we are there, but that's OK.  Still happy with the new and improved "girls".

I have not been able to do much walking/training for the 3 day Walk since my surgery and am in a little bit of a panic that I have to start over completely.  On a good note though, I am less than 150.00 from my fundraising goal.  I am sending out reminder letters today, so thought I would include the link here as well in case any of you know anyone who would like to donate but hasn't. 

Hope you all have a great weekend!

http://www.the3day.org/site/TR/Walk/SeattleEvent?px=2282716&pg=personal&fr_id=1300

jeanbean

Tracy--have a wonderful time on your trip and thanks for doing the 3-day (and thank you to everybody that is doing it--Carol, any anybody else?). best of luck staying cool in that bra. The "Girls" looked great at the get-together!!"

 Peg--that is so funny you mentioned that show! A friend of my sister's that is recovering from mastectomy mentioned it in her last "update" email. I think the show is very therapeutic for me--I don't think of breast cancer at all when I watch it!!

Susan--If it's not one thing it's another!! I guess we're all thankful we have to worry about heart disease and not death from an early age from cancer. Your hair still looks fabulous through all this. What did Ellis say today?

 My BRCA 1 and 2 were negative. My sisters are breathing a collective sigh of relief