Starting Chemo May 2008
Comments
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IM BACK!!
surgery was amazing. I was under for 9 1/2 hours. everything looks great. and the doc is really pleased. Ill be in the hospital until atleast tuesday. nothing but liquids for the first few days. the doc took out my port, radiation dot, and a little bit of a tummy tuck! Jean I hope your surgery goes as smooth as mine did. good luck monday!
gracie hang in there things should get better.
kristy i dont blame you i agree with rock sometimes you need family time. and family time is not extended time.
noelle sorry to hear about your basement. hopefully the clean up was painless.
Randy so glad your lungs are in much better place. glad to see you posting.
love to all of you, Roxi
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Hi, everybody,
Roxi, great to hear your surgery is over and everything "looks great"! I am pretty sure one reason why I declined recon was because of the length of the surgery (for DIEP etc.). They even took away your rad dot? But what if you wanted it for a memento??? (Probably not.)
angels, spring for the hard-side trailer. Really. I spent the first 20 years of my life tent-camping, and then tent trailer-camping, as part of a family that derided "sissies" who "camped" in travel trailers. ...That is, until one summer when we were tent-camping with my cousins, who had a trailer. Despite the teasing they took from my parents a day earlier, they were nice enough to make room for us--and make breakfast for us--in their trailer the next morning, when we woke up to a cold, hard rain.
My dh and I are the proud owners of a pickup camper (don't go that route) and a mid-sized travel trailer. The trailer is 20+ years old and has some rot problems, so we're in the market for another one. It's a good time to be shopping, 'cause the RV business tanked along with everything else this past year. IMHO, it was very good to be in a hard-side trailer 2 years ago, when we were staying in bear-infested campgrounds in Montana.
rock and Kristy, drop-ins and hangers-on can be such a nuisance. But, in a previous life, I often found myself on the other end, not getting invited to the get-togethers at someone's house after work, or not being told about the impromptu parties. It sure was lonely. Sometimes I would hint around until I finally snagged an invitation; but then I felt like an intruder, even when I knew everybody really well. So, I guess what I'm saying is, the person who you didn't intend to invite (or didn't invite at all) may be the most grateful and appreciative person there. OTOH, sometimes you just have to tell people to butt out. Kristy, it's too bad I'm not going to be in the area when you're at Gulf Shores--otherwise, I probably would be trying to arrange a rendezvous or invitation out of you, too! (Actually, fall and spring are my "beach" times. Summer in south Alabama is too darn hot for me.)
Kerry, post soon so we know how it went. Noelle, I hope you're drying out finally.
And ranD, dear woman--take slow, deep breaths with those new-and-improved lungs. Can't they offer you something for the dark places and the panic attacks? (We'll try as hard as we can, but I am out of practice at praying; and sometimes "better living through chemistry" is the only way to go.) Make room for us on Tuesday, 'cause we'll all be there right next to you.
Hugs...
otter
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ativan...but that really doesnt keep them away, just brings the heart rate lower and makes me think its working...I thinl i need something that prevents them from happeneing....only so many more early morning wake up s poor Bob can take!
thanks for giving me space....I am sorry I needed it...I think if you were all here we could figure out what triggers them and keep their asses out permentantly!
BTW, if one more person tells me (including dh) to find my happpy place and go there during the attack I will strip my clothes off and scream like a banshee. The problem with it is there is no happy place just a big dark place with sides that I try to climb out of by having dh and dd cool my body with washclothes, the onlu remedy that seems to work...I will take any suggestions....
love you all and woot wooot for the new boobies!
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Randie, I wish we could all be there with you in the wee hours with a whole bin full of cool wash cloths. Hugs, hugs and more hugs.
Ran the Detroit Race for the Cure this morning -- I finished as third survivor, but was disappointed to run almost a minute slower than last year, when I was in the middle of dose dense A/C with hgb in the low 11's. It was an unwelcome reminder of how much my body has been through. And I vacillated, same as last year, between feeling moved by the sea of faces and signs, weirded out/annoyed by the juvenile puns involving hooters and knockers and boobies, and just plain angry and sad.
Plus, I aggravated my plantar fasciitis and have been limping around since the race.
On the plus side, my green beans are sprouting, my tomato plants are all in, and I have all the dill and cilantro and arugula I would ever want sprouting from all the plants that went to seed last year from the plants that went to seed the year before. Sometimes being a lazy gardener pays off.
Roxi, good to know that you're up and posting already!
Linda
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Hi Everyone,
Well the shite kind of hit the fan- I basically decided I would just go somewhere else and I even explained to the sister in law that I really wanted the down time and alone time and that it was really hard for me to vacation with the brother in law and girlfriend because of the ever present alcohol- I have a realy issue with get toegthers where beer/wine is being consumed openly in the presence of numerous small children. I made a comment about having had to cancel all our vacation time last summer and that I really felt like I needed this trip to be R&R- we will be seeing my older brother who lives there but I rarely see him (unlike the inlaws who live an hour away and call or text message dh daily)- she asked me in a slightly sarcastic tone why I had to cancel our vacation last summer. I said chemo?
Anyway no one understands including dh and now I am the bad guy- dh says he will tell them to stay away while we are there (not what I wanted)- I suggested we just request that get together meals/times be dry but noone will agree to that either so who knows what we will do- I was thinking San Antonio and Great Wolf Lodge sounded like a nice alternative although my brother in Mobile would be completely disappointed!
Otter- dd may want to visit UAD and Samford in the Fall so we might make a trip there sometime.
I made a pesto today out of carrot tops (not enough basil yet and I read how good carrot tops were for you) with toasted walnuts, parmesan, garlic and olive oil- it is really good. I used it as a dip and also as a spread on a corn tortilla with cheese and fresh shredded carrots and cucumbers. I may try a parsley pesto after this one- my parsley is going crazy and is ahead of the basil- basil loves heat so in a few more weeks I will be overrun with basil and make regular pesto and marinara if the tomatoes come in!
Off to watch the College World Series in softball- thanks for listening everyone- the people here think I am crazy for feeling this way!
Kristy
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Hey Kristy - I know how you feel. Rant all you want because others just don't understand. We are going to Myrtle Beach in 2 weeks, stopping first at my brother's at Ft. Bragg. He has been on a temporary assignment in Washington DC since Feb and his return time keeps getting postponed. He should get back the Monday before we all show up on Friday and go to SC on Saturday. My SIL made a comment on FB about trying to get ready for houseguests, trying to get stuff done without my brother there blah, blah, blah. I sent her an email saying we would be glad to stay at a hotel if that would help and we would be glad to do whatever shopping needed to be done so she wouldn't have to. She didn't want us to do that and the whole beach thing was her idea (remember we are going to celebrate completing MY treatment last year) but now she would like to have some time with my brother and not all 9 of us being together all of the time. So even if you get invited, you aren't always made to feel welcome. We are breaking the trip up into 3 days, each about 5 hours of driving. We went to Gatlinburg two years ago and after we got home I ended up in the ER because I couldn't move. All of the driving killed my back. I don't want that so we are doing shorter legs of the trip. Today my mom asked if I thought I would be up for all of this. I should have said no, but everyone had to make the plans last year before I even started radiation. I like to sleep in, what can I say? She suggested that I try to wean myself from the sleeping or the trip might not be fun. Yes, I still get tired when I shop or do anything for a long time. They just don't seem to get it and no this probably isn't the celebratory vacation I would have picked. My brother is going to give my mom a "suggested itinerary" just to give her something to focus on or she will be going crazy not know what we are doing.
Thanks for giving me the opportunity to rant. My children are very excited about going to the ocean. We've only been one other time and it was to Gulf Shores about 8 years ago. We may just distance ourselves and do what we want to do.
Roxi - so glad your surgery went well. I can't imagine being under for so long. You all are so brave who venture back under the knife. I'm so proud of you, too.
RanD - it is so nice to hear from you. Just come here whenever YOU want - no pressure from us. We are always with you. I wish I was closer so that I could really help.
Linda - great job at the race. The important thing is, your body did make it through the race despite all it has been through. I hope your foot settles down.
Angels - happy camper shopping. That sounds like fun. I loved Otter's advice. Almost had me buying one.
I hope everyone else is having a lovely weekend. Hugs to you all - Julie
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Good Morning All !!!!!
Roxi-great to hear from you and hope that you are recovering well and pain free! I agree with Julie-you all are brave for doing the recon, I just can't think about it right now.
Randie-I, too, wish I was closer to you--I have a history of anxiety/panic attacks and they can be horrible--others just don't seem to get it--one Thanksgiving, I filled the kitchen sink with cold water, added ice cubes and stuck my head in it--DH thought I was crazy, but it worked. I have taken Xanax twice a day for several years and it has helped a lot. Not much help, I know. I think about you everyday.
Kristy--stick to your guns! I understand about the alcohol, not a good thing with children around-some of my family members just don't know when to stop. I could use a vacation right now. We are hoping to go to Indiana for my family reunion in July-the major stressor is so many people that I want to see (friends), but not enough time to see them all.
Angels-camping sounds like fun! We haven't been since our youngest DD was a baby. (So, that makes it 25 years ago--ugh!~)
Otter-I know what you mean about being the one who isn't invited......feels good to know that I am not the only one.
Linda-I admire you just for being able to run in the race! I couldn't do it!
Finally going back to work on Monday--will have to work nights for awhile--not what I want but it is more money. Been having a lot of pain in my right hip and left shoulder--probably the Tamox, although the hip was hurting before I started it. I go to see the new onc on June 10 and will talk to her about it.
Still have houseguests, but I am hanging in there. DH is upset because DD was on the computer while I was doing dishes, so he put a password on his computer, in an attempt to keep her off of it so much--but she figured it out--she knew the answer to his password hint question!! So, it will all be changed again.
It is a beautiful day here in southern KY! Hope everyone else is having a beautiful day!!
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Oh, people. I am sorry. Sorry, too, if anything I said made things worse. Though I still think telling people tactfully what we need is a good idea. KristyAnn, Julie: HOW FRUSTRATING. HOW FRUSTRATING. Sorry, I am over-identifying again. It just reminds me of all the times I was stuck -- not only doing something I wasn't keen to do BUT! Insult to injury!!! Was expected to act as if I was HAPPY ABOUT IT. grrrrrrr. (Remember when my friend insisted on visiting me during chemo even after I specifically told her not to and then was hurt because I wasn't too thrilled with her presence 2 days after my infusion? At one point, she observed that my underpants were hanging out of my jeans. I was so wiped out that I responded blandly, "Yeah, I know. I like them this way.")
Randie -- lurk, don't lurk. Check in, don't check in. You do whatever you need to do and we will support you 100 percent. Even if comes to naked banshee-like screaming. (Frankly, I enjoy nothing more than a good rant. Especially when it is creatively worded and heartfelt!)
Julie -- I was 20 before I saw the ocean for the first time. Your post touched my midwestern, land-locked heartstrings!
My big sister just told me her ovaries are coming out on Tuesday. My little sister has more surgery on Thursday (or is it Friday). They waited to tell me until I was "over" mine. Sigh. I know they'll be okay but I hate it like hell that it is even happening. Can't help but feel I infected them with all of this.
Ott -- I am in complete agreement about the importance of including folks/making room for people at the table. That's part of why I don't want this woman around. She makes other people feel crummy by invariably saying things like "I have NEVER had a problem with MY weight. Then again, I exercise a lot" .. to a friend who is struggling to accept herself. I want her one-upmanship out of my home. We have a nice "safe space" going and she is making us self-conscious about what we say because we don't want her to weigh in or judge.)
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Oh, wonderful women.....
I have only read this one page so I have to go back and catch up on how many, I don't know. Thank you to everyone for the cards and postcards and cd...
Randie, I wish I could give you a hug and a...I don't know; just the feeling of solidarity that I know we all want to give you. What you're going through (and I don't know it all because I've been gone), is probably like what I have been doing, and why I haven't been here. Been in a Dark Place. Xanax is good. Cancer sucks.
Camping sounds good and reminds me of my daddy. Rock, sorry about your sisters...what a shame and it is NOT your fault and your conscious (sp?) mind knows this but your heart...that's another matter, as it always is.
Otter, I'd invite you anywhere, anytime, any place or moment...but you probably wouldn't want to be seen with me....
family vacations with the accompanying stress...when you've been to hell and almost...but not quite...back...NOT priceless.
Kristy. Hold the ground. Remember the Alamo. If ever this is a time for YOU, it is now. I know how much you love dh, but must we take a shovel to his...knees, maybe?? Kidding, kidding.
I know there is more I want to say, about marathons (I shudder) and stuff, but I'll try to do better when I've gone back and read more (and taken notes!!!).
Plus, I must share the horrors of my husband's rainy week off from work when he re-set up our home wireless network (a job that would pre-double-chemobrain have been mine, and taught me new words when I thought I'd heard them all by now), grandson's broken arm and babysitting with them and the younger sib (fun but exhausting), trying to conceal the fact that I KNOW the feckker is back, and finally finding that yes, it's back in both the nodes and now, the spine...but just a small spot, so don't think I've given up!
I WILL make it back to Facebook someday. It's just hard sounding cheery when...well, you aren't...as I know everyone knows. But, of course, as everyone tells us, we MUST keep a POSITIVE ATTITUDE!!!!!!!!!!!!!!!!!!!!!
Attitude, HO........................
love to you all,
eyes
i know i'm tired when i have so much trouble with my spelling...or is that double chemobrain?
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Ahem. May I have your attention, please? Otter has an important announcement.
From this day forward, no one can require a single one of us to go to our "happy" place; and no one can require any of us to "keep a positive attitude."
Like the "clean plate" rule, and the "wear new underwear to the doctor's office" rule, the "don't worry--be happy" rules are hereby suspended. Forever... or until each of us, personally and individually, wants ours reinstated.
On a related issue: Henceforth, none of us will be expected to be hospitable to relatives, particularly the unrelated kind, who have elected to accompany us on our vacations even though we did not invite them. Similarly, people who decide to visit us when we least want or need them shall suffer our moodiness, neglect, or indecencies, without advance notice or apology.
I do wish we had something better than Ativan or cold washcloths as a remedy. We need a cloaking device that we can don to protect us from the darkness and the toxic people.
I am sending big hugs to all of you, but especially to ranD and EyesOTex, who need extra help right now. The word "sucky" just isn't strong enough to describe what's happening to you.
And hugs to Kristy, Gracie and rock, who are dealing with space invaders. Julie, your story has reminded me to be extra-careful about what I post on FB...
Oh, and eyes--so, you think maybe I wouldn't want to be seen with you? Hah. Hon (you'll recognize that as a term of endearment here in the South), I would be so proud to be seen with you. Any of you. Any time, any place. But only if you want me there, of course!
otter
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amen
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Amen is right! Otter, you have a such a wonderful way with words!
RanD and Eyes - know that we love you and are here for you. Our prayers go out to you both!
Roxi - Thanks for the note, I was excited to read that things went so well. My surgery is tomorrow at 7:30 am, expected to last 3 hours. My only option was to go the implant route, because they would not take the fat off my a$$ and use it for my breasts ;-) My surgery is same day and I will be out of work for a week, lots of time to catch up on the boards.
Linda - I share your frustration with running. I know that I ran better during Taxol. My body took a bad hit with the radiation.
I have to get some rest - up at 4:45am tomorrow.
Love you all!
Jean
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Jean - You're probably asleep, but I'm sending you good thoughts anyway.
Roxi - Glad to hear you're home and wow! 91/2 hours?!?
Otter - Space invaders...lol...don't we shoot them? I distinctly remember shooting space invaders when I was younger.
Rock - Maybe a good hint for the "intruder" would be to sing that song when she starts. loudly and off-key: "Anything you can do, I can do BETTER! I can do ANYTHING better than you!"
Randie - When we're done with Jean on Monday, we'll be right with you on Tuesday. Breathe, breathe. And the very definition of "panic attack" means that there is NO happy place, fergawdsakes! Remind them that if you had a happy place to go to, you probably wouldn't be having one!! Sheesh. And I agree with the others - try Xanax.
Dana - Hey girl! I still have chemobrain issues, too. I think we should start adding extra words to the "Cancer sucks" phrase, because that just doesn't seem to cover it anymore. How about "Cancer definitely sucks " or "Cancer sucks royally". That's closer.
Speaking of...Kelly (5 y.o.) and I were driving home yesterday and passed a "Relay for Life" event (and then I was upset that I forgot about it!). She asked me what it was and wanted to know if they had bounce houses (lol). So I told her it was for people, like me, who had had cancer. And she says: "I hate it when I have cancer." Yup, pretty much.
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Unfortunately the "I'm better than you" is hereditary in my dad's family and the gene gets passed down. I try my very very best to not let it take over but my 2 sisters is a whole different story. Both of them have to be the right one all the time and will argue with you till you pass out. My best story is such..... now mind you I have built, by myself the last 5 computers we have had. Occasionally had to ask a question or two along the way, but otherwise all me from scratch. I was talking to my younger sister's husband about computers (she was not in the room at the time) and he was asking which components are good out right now.. yada yada. She walks in the room and announces that I don't know what I am talking about that he should talk to her friends..... cause they went to college. Nevermind I've been to college twice so far, for 2 different subjects. If you say the sky is blue she will even argue on that one. I stopped talking to her years ago because of this. If she is in the room I might say one or two things but that is it. This is also the sister who refuses to get a checkup at the doctor. Keeps saying "I can't afford the copay" my answer to that was..... "so you can afford to pay for multiple surgeries and $10,000 treatments instead?" sigh*... I digress...
Whew! I musta needed a bitch session this morning LOL.
Roxi~ so how ya feeling girl? Kerry??? doing ok?? Jean~you are most likely in surgery right now. good luck little one. I'm in the corner watching over you!!!
XXXOOOOO to all!
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Positive attitude? Fuck that noise! Been there, done that and the tshirt still looks like shite with only one boob!
Got my first Haircut... an almost mohawk.. just keeping the curls. I look in the mirror and see old lady hair, people look at me and say i look "cute" as a young thinkin 42 year old I am not interested in either.
Love to all. Mary, glad your boobs are ok... Kerry... thinking of you.. Jeano! good luck babe.. we will all go running together one day.
Lots to say, not enough time. The next big festival is this weekend... and my 20th college reunion in Vermont... smooches!!
xoN
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Hi Everyone,
Hoping all the surgery girls and their girls are doing well and are in a perky place LOL. Things have calmed a bit at home- still dont know the vacation plans for everyone but I really do feel better having spoken up for myself and putting the cards on the table so to speak- beats the heck out of me having to keep on going with what everyone else wants! I really dont think it is selfish to ask for and get what you want - especially when part of the vacation celebration is a celebration that last year is over and that I survived at least two very critical medical situations during my chemo and radiation treatment (neutropenia and systemic staph)!
My garden is very happy- so far I ve gone two weeks and had lunch everyday from my garden (with the exception of the croutons and salad dressing). Made pesto this weekend with the carrot tops- used a regular pesto recipe - and it is really good. Apparently the carrot tops are very healthy and since mine are home grown with no chemicals- that makes it even better!
Happy June to all- college girl turns 19 this month and we have a pair of tickets to the Rascal Flatts concert to celebrate that- only two tickets so it is a real treat for Mom on this one!
Kristy
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Hey all! I am just stopping by to let you know that I am back home. I am sore, but the drugs are helping me along. According to the doc, the surgery went well and it was only 3 hours long. Just a bunch of napping going on. Thanks for keeping me company at the hospital today!
Jen - Thanks for the card, your timing was perfect!
Noelle - You make me laugh and I am looking forward to running with you some day.
Kristy - Aaarrggghh! Good for you for voicing your opinion with your vacation ***your vacation****
Drugs and a nap - I will check in later.
Prayers to all!
Jean
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Hey, Jean, glad to see you're up and around ... and down and napping. I was going to say something earlier about it being a good thing that they didn't take part of your butt for your recon. You need all that for running!
Hugs...
otter
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Women,
I am reading, reading, reading. RanD, I send you all of my love. Period. The end. My suggestion is that you keep feeling ALL of your feelings and that you panic when you have to panic until it's gone. No way stuffing this...it's probably more than a year's worth of panic and it is probably screaming to get out so your body can heal again. Panic sucks and it is overwhelming. I pray that each attack is easier and that they go away and that you do whatever you need to do to help calm yourself....whatever it takes. You have people around you who love you. They will continue to love you no matter what. The only thing you owe to anyone is that you are true to yourself and your feelings. You have come back from hell and they are trying to pull you back in...that is terrifying. We are holding your hand so just know that you will not be pulled back in...we are all here holding you and your hand will not be able to slip away because even if it slips, one of us has your other hand; one of us has you around the waist; one of us is holding you under your arms; one of us has your other foot. You can panic all you want but we will not allow them to pull you back in. We are here and we are strong and you can do whatever you need to do...we've got you. We love you.
Our Race for the Cure is this week. Go to the West Seattle Blog and scroll down for a story on Adam and me westseattleblog.com....it's under Komen and just a couple of stories down. Adam is third in the state in fundraising and we both have a TV interview tomorrow. We've raised more than 5,000 together and the race is Sunday. Our team is third in the whole race in terms of fund raising. We are pleased.
Noelle, we are in Burlington for the 4th of July and in Montreal on the 2nd and 3rd...need some recs as to what to do...want to come party on the 4th? Want to do Montreal on the 2nd or 3rd?
Boundaries, women, boundaries. Get out the *&^%ing shovels and USE them. If not, send them to me and I'll smack them on the heads...each and every one. To all the new boobies, the very breast to each of you. Love you all and that's it for now.
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Hey gals! A quick check..MUCH more later. I came home today (Tuesday) and am feeling magic. This is the BEST thing I could have done for myself and I could not be happier.
Noelle..you say it best, and if I wasn't a chaplain, I would wear a t shirt that says: 'Cancer? Fuck that noise.' I will never, ever think of cancer as anything but 'that fecker cancer', and I will never, ever reconcile with what it has cost each of us (new boobs or no new boobs). Dana and RanD..especially you. XXXX More tomorrow.
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Jean - Glad you checked in, now rest.
Eddie - Adam is amazing. It was very touching to see the video and read the letter. Wow.
Busy week - kids are having trouble going to sleep because it's still light out, even past 8:30!
Kerry! - You posted while I was posting! I'm so glad you're happy with your decision - I remember how agonizing it was.
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Oh all three have checked in! I'm so happy to see you guys are doing well! If I can get my weight down a bit I might just reconsider the whole recon thing...... as long as I get the tummy tuck to go with it.
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So happy that the surgeries are histories. (My big sister had surgery this morning. Little one is scheduled for Friday.)
"The very breast..." (good one, eddie. And if there is a video of the interviews...?!!!)
Eyes -- Hearing from you MADE MY FRIGGING DAY. Imagine that you appeared in the doorway to my office and I vault across my desk and hurl myself at you and give you a rib-crushing hug. Because that is how it felt to see your name. (spot of mets? f*cking hell.)
The guy I had the crush on? It blew up in my face in a craptacular way. Of the many things he called me, one of them was "angry." Yeah, that sounds about right. I'll own that one.
F*CK CANCER RIGHTEOUSLY.
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I'm so glad to see everyone posting. It really shows how strong you are to come here so soon after surgery. Now just take it easy and let us take care of you. Anyone need anything? RanD we are with you today. Can you feel us there? Eyes, how about you?
Rock - I know we can spread out and be with your sisters, also. There is enough love to go around. Hoping all goes well there. Sorry to hear about Mr. Crush. Do we need to do a "Mr. Crash" with the shovels? Just let us know.
I love coming here and reading what I expect to hear from each of you. Everyone knows just the right thing to say.
We have a warm humid day today. We went to the pool yesterday and I did okay in the sun. We are expecting rain today and the rest of the week. Starting to make vacation lists and will make the best of it, no matter who is there.
Love and hugs to all - Julie
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Eddie, I can't believe it - we're going to miss each other in Montreal by just days. Tres, tres frustrating. We'll be there June 27, then back on July 5-6. (In between we're cycling - gulp, please don't let this turn out to be a huge mistake! - to Quebec City, spending a couple of days there, and taking the train back.) This was the vacation I wanted to take last year, but didn't, for obvious reasons.
Is it weird to be beside myself with excitement for Mary, Jean and Kerry's new girls? Well, I am. It's like three friends having newborns in the space of a week: I want to come visit, check them out, bring little presents, whatever.
Hugs,
Linda
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Rock~ prayers for both sisters. Sorry about the crush, there are many stepping stones on the way to your final destiny. Some good, some cracked. :O)
I have had the urge to cycle again like I did as a teen. I wanted to be a crosscountry-er. But as life has it, that didn't turn out. I keep seeing people bike by and wish I had the energy to go again. Right now I am focusing on losing weight and hopefully if I can keep that up and lose enough... biking will be next. So far after just shy of a week I am down 7 pounds :O)
Am I weird wondering what the new twins feel like???? Are they close to feeling real?? to you, not to others....
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Question~ ladies who are still on herceptin or on tamoxifin... when you go out in the sun does your skin turn very red and with temperature change does it itch really bad? On the good side I think we may be getting the better part of my HF under control....for the most part
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I'm glad all of the recons went well and everyone seems to be home and happily recovering! I think I've decided to forego recon. At least that is my current decision.
I got to see Eddie this morning on the news and it was totally an accident, as I didn't know she would be on. She looks MAHVELOUS and Adam is an amazing young man. Hard to believe he is only in 6th grade!
Jen - I was going to ask the same question regarding the sun but just didn't do it. I'm on Arimidex though (and no Herceptin). We've had a glorious week of warmth and sunshine here and I've spent a little time outside on the back deck. The places that have been in direct contact with the sun break out in red bumps and are itchy. Its driving me crazy. Today I put some solarcaine on hoping to relieve the itch. So two knees and one thigh (from crossed legs...lol) and one arm have broken out from the direct sun. I was blaming Arimidex but now I'm thinking perhaps not?
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I was on Herceptin until the end of April and now on Femara-no issues with sun and itching for me!
I made a quart of homemade dill pickles this afternoon- I actually bought a small bad of cukes at the local farmers market and used my home grown dill- they are sun pickles so now they stay outside for 4-5 days. Im trying this as an experiment before my own cukes are in- if the family likes them I will make a batch in a gallon jug when I am overrun with cucumbers. They look really pretty in the jar with the fresh dill sprigs and garlic- I really hope they are good- pickles all winter from homemade cukes and homemade dill!
Rock- when do you go back to NYC?
Hope everyone is having a good week!
Kristy
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Hey Adrienne,
How many times can you ask your friend to watch your kid on TV? Still, glad you popped in. He's an articulate little guy and doing a good job. He's up over $5,000 and happy. I dropped femara for a new AI and it seems much better. I have shingles again, but caught them right away so it's a NON-issue. Love you all. Whooped from all the activities around here but know that I am reading all the time.
Linda, WHAT a bummer to miss you in Montreal....Noelle? Hope everyone is well. A friend had a mastectomy yesterday and she is home and doing well today.
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