Dealing with my Mother's diagnosis
Hello Everyone,
In January 2008 my mother was diagnosed with breast cancer. Apparently the tumor was rather large and she had a mastectomy in her right breast. She was then put on Arimidex and a week before this past Christmas we found out she has a small tumor on her pelvic bone. She was taken off Arimidex and has started monthly injections of Falsodex and if that does not work she will start chemo eventually. My mother is constanly worried and emotional and refuses to slow down. Actually she only does when she's having a side effects to her medication. It is so hard to talk to her because the poor thing is constantly nervous. I am so proud of her and all that she is overcoming but I am severely afraid that I won't have my mother with me in the near future. The doctors have all been optimistic but I am finding it her to be. I don't let her know how worried and scared I am. I can't have anything happen to her and it kills me to see her suffer and worry. I hate every minute of this and find myself having a short fuse with other people. She is the most wonderful person in my life. She has such a lively spirit but at the same time is the biggest worrier there is. I try to do as much as I can think of ways where she can relax herself but also keep her spirits up too. I'm not giving my mother a death sentence by any means, but I am so scared. I am a weak and sensitive person by nature so I think in any scary situation I tend to look at the negatives rather then the positives. I just want her to be able to enjoy things she is supposed to look forward to in the future and not have to constant worry about breast cancer. I am just so scared.
Comments
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Hi Slally,
I can tell by your post how truly scared and frazzled you are by all of this. My mom was diagnosed with a stage IV rare and aggressive type of breast cancer called Inflammatory Breast Cancer. She was so scared and so was I. The 1st thing I did was research and research and research! Not the best idea because there are some scary stats out there but a good thing because when the nurse didn't have her weekly herceptin on her schedule I knew it was missing and called her on it. You want to see a deer in headlights, lol.
Anyway, with that said, take a deep breath. You both are scared which is normal. Treat her normally....don't force her to slow down. If she has the energy to do whatever then let her do it. Her body will stop her if it needs to. It probably keeps her mind occupied from the worry. She is more than just cancer. She is your mom and before this she had hobbies and a life and was just mom......she still is and does, treat her as such. There may be will be a time when you need to worry but it sounds like it isn't now. Enjoy your mom and try not to worry so much. If the Dr. is optimistic there is no reason you shouldn't be.
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Hi there
My mom was dx 3 years ago. Prior to the dx, she had alot of energy and was always on the move. At 69 she was still going to the gym for exercise.
We were all scared when she was dx. After surgery she had 6 chemo treatments and then 6 weeks of radiation. Chemo definitely starting slowing her down by the second treatment. And it only got worse...as far as her energy. What I kept hearing from her was that she just couldn't believe that she couldn't do this or that because she was tired. But every week brought a glimmer of light and she would notice the slightest of difference. She knew it would take a long time to get back to where she was, but she always kept it in sight. A few months after her last chemo and still bald from treatment, she took a job working very close to home and a few hours a week.
She needed to have her life back and she needed to know she could do it. And she did. A year after treatment she knew she wasn't 100% and probably wouldn't be again, but she just couldn't sit still. My mom resumed her life and stepped back into the gym and started running around again researching geneology and anything else she was into. Three years after her dx, my mom is still working, going to the gym and has alot more energy then I thought she would.
It's normal to be scared and I think it's good your mom has alot of energy. It'll be an adjustment for her and frustrating to loose some of that, but it'll come back as her body heals. Be there for her and love her like you always have been. She'll get through it and your nerves will settle down when you see her working through the difficulties that come with recovery. You'll both be alright.
In my prayers.
Teresa
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Hello Jadai & TBird,
Thank you for your advice and help. I just want to be selfish and make it all disappear and have my mom as happy as can be. I HATE CANCER! She is my best friend and my mom and I'm just coming to terms with the fact that it is going to be a battle. Every time she has a doctor's appointment I get such a sick feeling and become extremely emotional with nerves. Its so hard. I sometimes get nevous because even though I don't want her to go through chemo I'm curious as to why they haven't started it yet. So many thoughts go through my mind. Even while I'm writing this post I can't explain how nervous I am. Hahahaha this sounds crazy but for the past month I sleep next to my mom! We make my dad sleep in the other room! I just want her around me all the time more then ever because I'm so afraid I won't have her in the near future. Its my weak personality that is causing me to think and act this way. I am very sensitive. But more importantly so is she. This is about her, not me. I am just finding it so hard. She is my beautiful mom and i'm so scared. All our mothers and loved ones are so strong. I am beginning to really see, and unfortunately because it happened to me is why I am seeing it, how scared so many people must be, how hard it is to deal, but how brave ALL women dealing with this are. You and your families are all in my prayers.
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Hello Again
You know the one thing that I really thinked helped me and my mom was that I didn't treat her that much different. I'm very close with my mom so I check in with her every morning and every evening anyway. And we see each other when we can. Of course I saw my mom alot more during dx, chemo and radiation. What me and my sister did do was to listen very carefully and watch very carefully. We listened to her tone and her words and would know if something was the slightest bit different from the day before. So we knew to ask questions directly or more casually. We could gently point things out to my mom and talk to her and she would talk to her doctor when "we" all felt necessary. We all trusted and counted on each other to simply just "be there".
There was a strong sense of relief for my mom just knowing she didn't have to go it alone. She knew we would be there at any time of day or night for any reason. It worked and we all coped together and cryed together. Cancer does suck big time and like you, I hated that my mom got the dx. But that part is behind us and she is vibrant, healthy and cancer free today. Through your journey there is hope. You and your mom will get through this as difficult as it seems. You can do it.
Teresa
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Wow Teresa,
Your experience sounds exactly like mine. My sister and I go to everything with my mom and we pay attention and stay on top of stuff. It was funny, because my 1st thought after reading slally's post was her mom needs to be treated normally. My sister and I treat my mom quite normally. I do call her daily but other than that nothing in our relationship has changed. Slally, I think our moms tend to feed off of our energy. For example, I know that my mom watches my facial expressions when we are talking to the Dr. (she doesn't quite understand all of the terms, etc) and no matter what he says I have a positive look on my face and I nod my head approvingly. I know that if I am stressed and worried she will be stressed and worried. So, as hard as it is for you, try and put a little normalcy back in your life, I think it will help both you and your dear mom.
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Dear Sially,
I know where you are coming from.My beloved partner Val passed away in Sept(she was already advanced at diagnosis) and even though I've been a hospital nurse for 29 years,I would be a nervous wreck when an appointment to see the onc was nearing.So much so that her mom would go with her-she didn't want me to because I was so nervous.I too berated myself for being"weak",and felt very guilty that I was a nurse but couldn't go to her appointments with her.Val understood,saying it was OK,that I did lots of other things for her and that I wasn't weak,just sensitive.Please don't think of yourself as weak.You say you are sensitive,and I think that makes it a little harder on you.Please try to concentrate on your strengths-a good and loving heart is obviously one of them.We all have things that we do well,and things that are more of a challenge.I found prayer to be helpful-just giving it to God and asking for strength to get through the day-one day at a time.Your mom knows how much you love her,and that will help get her through. Laura -
Jadai
I agree with you how are mothers feed off our energy. My mom totally watches mine and others facial expressions. The poor thing is so nervous she is constanly watching others to see how they react. She cries to the nurses at her oncologist's office everytime she goes becasue she so nervous. When we found out in December that her cancer had spread I was in shock. I thought she was going for a regular check-up but apparently her doctor called her to tell her that he wanted tests done because her blood work came back with different results. She hides things and its hard to get her to talk. The problem is i'm so scared to find out. I'm trying to pretend that things are fine but then i'm having thought of her being gone in the future. I really feel like things will be fine but there is always that chance they wont.
Feeval,
I am so sorry to hear about the loss of your partner Val. You aren't week. You were just upset to see the person you love being sick and worrying about what was happening to her. That doesn't make you weak. It shows how much you loved her and continue to love her through memories.Some people are weaker then others in these situations. Being a nurse is a wonderful profession which you should be proud of. Being a nurse however does not stop you from having feelings however, especially for those you love. I believe your strong. You know what? You are being strong for me right now.
Even though I am a ball of nerves on a daily basis, I am learning to accept it. I am reflecting on how wonderful of a mother I have. From the day I was born I never received so much love from anybody but her ( and dad too!) I am just so scared she's going to be taken from me. I want her to enjoy the things she has to look forward too, like grandchildren, trips she should take, and her children getting married.
Our loved ones who are going through this, are so courageous. God Bless them all.
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Boy, I can totally relate dreading the visit with oncologist!Mom's bc liver mets were discovered last december, during laparascopic gallbladder removal; onc ordered PET scan because she was also having more bone pain - so the visit was scheduled for 1/22 to discuss results/treatment. So when we got a call that the doctor wasn't feeling well and the visit was rescheduled to 2/5, I was....relieved, because, already knowing the jist of what the doctor will say, I didn't want to actually HEAR it...What I started doing is, since I have a medical POA for mom and have a great relationship with her doctor, is I have him call me first, usually a few days before an appointment - this way, if/when the news is bad, I am not hit with it right in front of mom, and if I need to cry, I'll cry in private and have time to process the information and put a ''fighting face on - i am a firm believe in 'if mind goes, body will follow'.
Anyway,the key thing here, I think, is to take care of yourself - your mom feeds off your energy/disposition, so maintaining as much normalcy as possible for her is single most important thing you can do. My mom still works 6 days a week and goes to the gym 3 times a week, and we go to the movies, fight about grandkids and how I should be eating soup every day and not drink too much coffee:), and discuss her condition when she's in treatment/goes to the doctor - that's not denial, that's normalcy for her and myself.
Ok, Lana, off the soap box now...lol
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slally, you said so much of what is on my mind right now, it's weird... i feel the same way you do. my mom is my best friend too and she is also a major worrier. she was just diagnosed 3 days ago and i am so scared for every doctor's appointment that i feel sick to my stomach. i feel like ill never stop crying... i wish we could make cancer disappear
i am thinking of you and if you ever want to talk let me know
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