clinical trial with herceptin

wwgoddess
wwgoddess Member Posts: 19
edited June 2014 in Managing Side Effects of Breast Cancer and Its Treatment

I am supposed to decide if I want to be in a clinical study where they do 2 doses of Herceptin with early stage cancer to see if it is beneficial in prevention of further cancer?  Any one have thoughts about this.  Since my cancer is stage 1 they will first test the sample and then decide if I am candidate.  Do I want to experience any of those side effects.

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  • vhqh
    vhqh Member Posts: 535
    edited May 2009

    I would do it.  I have been on Herceptin since December 2007 and the side effects have been minimal to non existant.

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  • wwgoddess
    wwgoddess Member Posts: 19
    edited May 2009

    Thanks for the info

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  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2009

    I did Hercep for 1 year, I doubt you would even know you had it. Mary

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  • Linda181
    Linda181 Member Posts: 4
    edited June 2009

    wwgoddess,

    I'm curious to know if you were accepted in to the clinical trial?  I agreed to have a tissue sample tested for HER2neu, and it came back positive.  I have agreed to participate in the clinical trial, but am uncertain as to what I am in for.........what are they looking for regarding medical history?

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  • wwgoddess
    wwgoddess Member Posts: 19
    edited June 2009

    Linda,  I ended up testing neg for the HER so I did not have to make the decision for the clinical trial.  The trial would have included two doses of Hercepton at the beginning and then mid to end of radiation.   Hope it goes well for you , I think they follow you for about 10 years to see if it makes a difference in early stage of DSIC.   Did you have radiation or are you on meds. 

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  • Linda181
    Linda181 Member Posts: 4
    edited July 2009

    I have an appointment next week with radiation oncology to discuss rad therapy.  I'm hoping to get in to the clinal trial group that receives the herceptin.  My only concern is that everyone is very vague about potential out-of-pocket costs. 

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