Any May 2009 Chemo Starters?
Comments
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TexasRose--Just sent you a PM.
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Hi to all and Happy Memorial Day!
Just started my first TCH treatment last Thursday. I am currently in the BETH trial (though not randomnized to receive the Avastin - Shucks??)
It would be great to hear about how others receiving TCH are doing!
Day 1: Not the best 1st chemo visit. To my surprise I was supposed to be taking Decadron for the past few days to help curb the nausea - WHAT???? (This little tid bit of info was accidentally left out of the my previous 2 hour MD office visit). Thankfully the wonderful RN loaded me up with extra IV anti-nausea meds, Decadron refills and loads of apologies.
I settled into my chair and while watching Step Brothers on DVD and hanging out with my fabulous husband, my mouth felt like I was sucking on pennies, my heart occasionally raced, pressure built in my ears and I had the worst heartburn. Not bad for the 1st day of chemo.
It's now day 4 (post chemo) and I am so thankful for all the help from my Mom, Dad and husband. I've been sleeping ALOT hoping to get back to work this Wednesday. I'm open to "what I should expect next" as these are the side effects that I currently have: Diarrhea for the first 2 days, Loads of heartburn, Low grade Temps of 99.7, Hot flashes (getting Lurpon shots though), and Acne
The positives: no nausea, pretty good appetite, (as long as I don't smell any Bratwurst), catching up on some much needed rest and rallying with an amazing family!
Thanks for letting me post and I look forward to chatting!
Many Hugs,
Jenna
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cree4joan I am curious what made you decide not to return to chemo? Are you doing any other conventional treatments, such as radiation or other meds? I haven't made your decision.
those of you who have lost your hair - how long was it between starting to find loose strands, then more loose strands and having to cut off what's left? I am wondering how many days from now will be "the" day. Perhaps tomorrow morning's shower and hair wash will help me decide.
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Helen- Thank you so much for the PM. Just what I needed! I am very nervous and scared about tomorrow, but I know it will be okay. Like you said, we do what we have to do. You are in my prayers as well.
I hope everybody had a wonderful Memorial Day. Hugs and prayers for all!
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Thinking I might join this discussion...
I am going to get my Port inserted tomorrow and then start chemo (Taxotere) on June 1st. Have done Taxotere before (18 mths ago) and know I tolerate it quite well. I remember feeling very achy and having mouth sores, but it was much more tolerable than the sickness from FEC regime. I agree about keeping moving, I know daily walking (or shuffling on the bad days) helped me to get through treatments last time. And tea tree toothpaste helped soothe my mouth sores.
Had bad constipation and heartburn last round. Looking to prevent that more proactively this time.
Not looking forward to begining this all over again, but know it's what I have to do right now. Maybe I'll get some more creative work done during those sleepless nights from the dexamethasone!
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Lassie11
re the hair loss.
On Day 12, I woke up and brushed my hair, the brush was so full of hair, my hair was thinning all day. I kept brushing it out, as I was malting everywhere. I would put my hands thru my hair and it would just have strands of hair everywhere. My hair was past my shoulder, and quite wavy. It didn't come out in clumps at all.
I decided to shave my hair - No1, the wig lady advised leave abit of my hair on my head, today it is continuing to fall out, even though it is the shortest of hair. But at least it is not everywhere. I had my wig and was ready for the transistion, everyone thinks I have had a hair cut, it is only when I tell them it is a wig.
For me personally, I needed to see the hair fall out. I did that. I was emotionally prepared to lose my hair. To me, having hair or getting rid of my cancer. Hair is not that important. It will grow back.
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Hi deb6563
My mouth was very dry in the first week, and everything tasted like cardboard.
I rinsed with mouthwash, and used a sensitive toothpaste, with a very soft toothbrush. I have kept my mouth moist even though, everything tastes yuk. mainly drinking Apple juice and orange juice. I have been staying away from dairy products. My mouth never ulcerated and gums and everything are still Ok.
I have also being having calcium vitamins and Omega 3 vitamins twice daily.
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Thanks everyone for your dry mouth and sores advice.
I am going back to work today. Isn't ironic that we have to spend our 'good" weeks working and our "bad" weeks at home in the bed while the sun is shining. I have always said I didn't want to use my "sick" days being sick, I would rather use them as vacation days when I feel great. Well, so much for that philosophy.
For all you ladies starting chemo today, my thoughts are with you.
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Welcome CatKC. Sorry you have to join us, but glad you found us.
Well, today is the day. It seems like it has been forever getting here. From finding the lump on 2/8 to diagnosis on 3/4 to surgery on 4/3- it has been a long and emotional road. This is the last part of this journey for me and should last about four months. I won't need radiation, so this is the last step. I am ready to get started so I can get finished. I just hate that I feel so good now. For the first time since the surgery, I am healing and I have my energy back. I feel really good and that is about to change. Oh well. We do what we have to do. I'm sure like everything else in this BC journey, the anticipation of chemo is worse than the reality. I keep kidding my nurse- everytime she mentions a possible SE to me, I tell her that I'm not going to have that. I have agreed to being tired and losing my hair, but I'm not going to have any of the rest. She just laughs and now when she mentions a SE to me she always says, "But you aren't going to have that." Then we both laugh.
You are all in my thoughts and prayers...today and everyday.
Hugs to everybody.
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TexasRose good luck today! I am meeting with the oncologist this afternoon to get specifics about when my first treatment of TC is going to happen. I feel like you in terms of the wait. Your dates are eerily similar to mine just a day or two off. At least now I know it was not just my case that took so long to get here. This is a very long process but we have to stay positive. I am hoping to walk on June 6 (Race for the Cure), pending on when I start chemo. I feel I have waited this long what is another 2 more weeks.
Stay positive even through the darkest hours! Sending you positive thoughts and prayers!
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First treatment done and dusted A/C. Not too painful, IV in hand. Wonderful nurses and given lots of nausea and emetic drugs. Coping so far, apart from the lack of sleep. Awake at 2 am!!! and it is now 6am in NZ. Maybe that was the small glass of wine I had but the Dr and nurses said to go for it. I wanted to tell you that my oncologist advises lavender Eau de toilette or oils as a form of making the brain forget the nausea feeling.Just spray it around you or sniff from a hanky. Think I will go to work today and wear one of my new hats with my own hair so that the public get used to me in colourful hats, scarves and wigs. Admit my biggest fear is loosing my hair but this seems to be a very common concern. I am going to have a few girlfriends over for a pink champagne party. Just hope I can taste delicious bubbles.Will post pictures when it is all figured out.
Pink ballon HUGS to you all. Susie
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Hi all,
First A/C treatment done also. As of right now, I feel okay. Will wait and see what SE rear their ugly little heads. My Onc. nurse told me to stay hydrated and suck ice so I texted my daughters that Chemo Days will now become "Water Ice Days". I
TEXAS ROSE: We'll be waiting to hear from you. Hope you're doing well.
SUSIE: Oh my gosh, I can understand about the lack of sleep. I didn't have a very good night's sleep the night before chemo either. Let's try to catch up tonight. I like the pink champagne idea, can we even have a glass of something while on chemo?
DEB: Hope your first day back to work went okay. You'll probably be tired when you get home. Listen to your body, and take a nap if you need to.
KATKC: During your first round, did you also so A/C? My onc nurse also mentioned tea tree toothpaste .
ABULEABORIC: Yes, I agree the waiting is very touch. I waited 1 month and 4 days between biopsy results and chemo (not that I was counting
) . Now that I started chemo, I believe that I am doing "something" to be on road to recovery! Yeah!
Titch: I, too, will keep your tips regarding mouth sores and dryness in mind. Thanks.
Bye All - off to the water ice stand before the nausea sets in!
Janet
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Texas Rose, benisse, pantufus, and others-thinking of you all who had chemo today. Let us know how it went
Janet-I had to laugh so hard when trying to picture your wig flying off while riding in a convertible. thanks for the funny picture
Deb6563-Hope your first day back to work went well and yes, I'm glad it's my good week. Appetite almost normal and all else is good considering SE
However, I am now sitting in the hospital because I developed a blood clot right by my port. My arm started turning bluish, swelled up, and was painful in the shoulder area. Being Memorial Day, I had to go to ER and that is when they found the blood clot in the subclavin vein. It's not likely to dislodge so the drs think so I'm up and about. I don't feel bad so it's hard to be in the hospital. I am on a tummy shot to thin my blood and Coumadin. I will have to take Coumadin until my port is taken out which is going to be a long time since I will be taking herceptin. Oh, great--one more thing to worry about. They have a Coumadin outpatient clinc which happens to be in the same building as my chemo infusion clinic. I have to stay in the hospital for a few days as they regulate the dosage of Coumadin--to be sure my blood is thin enough but not too much. I had to talk to nutritionist about what I can and cannot eat for I can't have foods high in Vit. K which would make Coumadin ineffective. I asked about the raw fruits and vegs and she said I don't have to worry about it until or if my WBC's go down a certain number and then they'll let me know. I was to get my long hair chopped off today (the lady may come up to the hospital tomorrow afternoon to do my hair) and I am to have wigs styled on Thursday so I hope I am dismissed before thursday. I don't want to be unprepared for when my hair starts to fall out which might happen this weekend.
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Hi Kelly2, just got home from round #2. Just 2 more to go. Yay! Thank you so much for your good wishes, and my best to TexasRose, benisse and anyone else that I don't know about. Good attitude TexasRose and keep laughing! Kelly,it seems as though you are having a bit of a rough go. Hope the Coumadin does it's job and smashes that clot! Just be careful not to cut or bruise yourself. Don't shave with a razor and use a chain mail glove when cutting fruit,veggies or anything else for that matter. You can get one at any commercial restaurant supplier. They are surprisingly comfortable but wear a thin glove underneath anyway. Good Luck!
zuzeee and Janet22664, I am thinking of you as well. Remember to drink, drink, drink. Don't know about the Pink Champagne during chemo either but I hope you enjoy your bubbly! My dear friend expectmiracles came by for a visit while I was in the "chair" and I was so happy to see her. She has recently finished her chemo and came by for support and show me her peach fuzz. So glad to know first hand that it can be done and our hair will grow back!
AbuelaBoricua, henceforth, if you don't mind, I shall refer to you as ABrose. It's pretty hard to remember that Latin name with chemo brain. Good on you for walking in the Race For Cure. Keep up your good attitude as well and let us know how you are doing. Sorry if I have missed anyone but know that all of you are in my thoughts and prayers.
Nancy
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Pantufas I shall accept the name ABrose with honor since rose is the english translation of my mom's name Rosa which means Pink.
I wanted to walk so the DR said it would be OK to start the chemo on June 8 rather than May. I figured I waited this long I can wait 14 more days.
Pantufas, I hope you do well and get through the next few days with minimal discomfort.
Good luck to everyone else! You are in my thoughts and prayers!
Stay positive even through the darkest hours! Diana
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I did it and it went very well! No problems at all. I was starving when we left there so we went and ate. The chemo nurse said to try and eat something bland tonight, so we stopped at Cracker Barrel and I had chicken and dumplings. My ultimate comfort food anyway. No nausea so far. No side effects at all really except that I am very, very tired. Headed to bed. Silly me, I have a physical scheduled for tomorrow afternoon. What better way to follow up the first chemo than by putting my feet in the stirrups! Yea gads!! Funny, when I scheduled this I never thought I would be having chemo!!
Nancy, Susie and benisse- glad yours went well too!!
Kelly- keep us posted. I hope the Coumadin gets you back on track!
Hugs to all!! And thanks for the private messages! They mean so much to me!!
Rest up ladies and drink that water!!
Light's out for me now!
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Hi,
Has anyone's nail changed colors? Mine have started to turn black, but no pain. I had my first infusion on May 1st, I will have my third on this Friday.
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Ladies- Chemo #2 today at 11:45. I DON'T WANNA!!!!!!!!!!!
(that is my whining toddler phrase.) I just dread it so much! Days 3 and 4 were my worst last time so I am assuming it will be the same this time and I just got a handle on the breakthrough nausea.............now I get to do it again. BUT, after today I'm 1/2 way there baby!! Woot Woot! I'm just about to loose all the stubble on my head finally, those darn things hurt and get stuck in every cap I have but one. Piece of advise I read on here somewhere but ' follow was to get a silk or satin pillow case before you shave your head.......my advise is to follow that advise.......I had a few nights of ouchie sleep before I bought one and it helped so much! I put some conditioner on my scalp in the shower yesterday and then slathered my nubby head with some lotion.....several came out YEAH but it did soothe the noodle, so keep that in mind.
zuzeee and Janet22664- My doc said that alcohol in moderation was fine but to be aware that if it usually takes you 4 to b tipsy it will only take 2! She was right! Gonna save me alot of money this summer at the lake!
Mimi50 - I had hear that was a SE, but so far so good. What are your chemo drugs?
TexasRose- So glad you can through well.............hang on sista, just rest alot when you feel tired. YOu are a brave soul going to CB right after chemo! I am so impressed. It took me 2 weeks to go in a restaurant, the smells just made me sooooo sick.
Pantufas- Congrats on completion of #2....I'm right behind you. Half way has to feel like an accomplishment right??
Ok ladies, off to the shower and to get some stuff done before I go.
BIG HUGS TO ALL
Becky
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Hi again ladies..... hope you are all having a wonderful day....
Kelly2 - Big Hugs to you, and I hope you escape from hospital soon.
TexasRose, Janet and Zuzee and anyone I may have missed - Great to hear your first treatments went OK. I hope the night goes well for you.
Zuzee - For the first week, I was waking every morning at 3.30 am and staying awake till morning. I sort of thought it was because I was going to bed earlier than normal. I didn't even think that could possibly be a side effect. But I have read online, it is common side effect for the anti nausea drug - dexamethasone. The second week, I have been sleeping all night though.... and seem to be back into my normal bed habits.
Mimi I have had no change in nails yet, but I am only on Day 15, you started before me. I have been having calcium tablets anyway just cause I try to prevent the aches and pains for bones.
I really appreciate this thread, it is nice to meet those going through Chemo at the same time as me. The support and advice everyone shares is just amazing, so thank you for being here. Our experiences (including the side effects) whilst undertaking treatment will differ but it is nice that we can talk about the things that do work for us, so others can at least try them and hopefully make the experience more comfortable for them.
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Titch, Have you started shedding your hair yet,mine started on day 14 and today my Mom and I are going to look for wigs.I went back to work after being off for a month and a half.Had some problems with my lumpectomy healing and wanted to see how my side effects would be from chemo.Haven't been to bad.But go back June 1st for my second dose.Not looking forward to it but I know what to expect and when to expect it now.Thanks to all of you for all the information and experiences and feeling that you have shared with us all. No one knows what to expect,because the Dr. doesn't really goes into detail of what you will experience and when to expect it to happen.You ladies are the best support group that anyone could have that is going through breast cancer .Thank you from the bottom of my heart,Hugs to all of you. Julie
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pantufas-I never have heard of chain mail glove but i will check it out--thanks for the advice. I will be careful for I sure don't want to cut myself with being on coumadin plus my platelet count could go down due to chemo.
TexasRose-glad your first chemo went well and I hope you continue to feel okay. I heard of a lady who would go eat pizza after her chemos. lol. I ate lunch while having chemo since it as during lunchtime. In fact, they provide sandwiches and soup if we went them. I saw people eating hamburgers while taking chemo. Hope your physical went well today.
I agree with Jabl1252 that is the best support group. I don't have a support group here in my town so this is fantastic for I love the encouragement, advice, and tips. By the way, I am still in the hospital and may have to stay until Sat. I am hoping the beautician comes up today to cut my hair. I will probably miss my wig styling appt. which is on Thursday. that is what happnes when I wait until the last minute. Oh, well..it will get done when it gets done.
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Kelly2, I hope you are able to leave the hospital soon! Everyone else who just had a session, I hope you are feeling better.
Stay positive even through the darkest hours! Diana
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Hello all - I have to report that the worse side effect for me so far - only early day 3 is not sleeping. Only 3 hours sleep a night. As Titch pointed out it is a SE of taking Dexametasone (corticostroid). Just jumped out of bed to read the important info sheet and see I can drop it after Day 3. yipee. I need to sleep to carry on working. I hate to think of the mistakes I could be making due to a fuzzy brain.
luvtheocean Thanks for that tip on wine. I only had 1 and 1/2 glasses and my cheeks are on fire.!! My chemo nurse told me that one of her patients opened a $150 bottle of wine and it tasted like vinegar, that would save a lot of money. Thanks for advice re pillow and head/hair problem.
My fellow travellers i hope you are all smiling and laughing every day at something .
Wishing you all a pink bubble day. Susie
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zuzeee
Are you taking the steroids by mouth for 3 days after your treatment? Just wondering as they only gave me steroids in the IV the day of treatment. I had my first treatment 1 week ago today and only had 1 night where I could not sleep but still got about at least 6 to 7 hours that night.
They gave me a prescription for lorazepam to help combat the nausea and I take that if I can as that usually helps me sleep no matter what, not sure if they would consider giving you a prescription for that or if you have ever tried it.
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I have chemo brain and I can't keep up with you all!!!! Ok, here goes:
Texasrose, glad chemo went well today, I hope you don't have ANY side effects
Luvtheocean - sorry you had to go to 2nd chemo today. I felt the same way on the evening before my second. I had a poor me moment then snapped out of it.Kelly2 - hope that clot dissolves soon!
Zuzee - I wake up in the middle of the night too and even if I'm exhausted I have a hard time falling asleep. Have you tried ambien?
Titch - sorry about the hair. You've officially joined the bald club with the rest of us!
Mimi - no nail changes yet and I've completed 2 rounds. I'm on taxatore and cytoxin.
Pantufas - round 2 down (I'm on your schedule I think) good for you!
ABRose - I'll be thinking of you when you walk on June 6th! I'm sure you'll be thinking about of us here in cyberspace.
Janet - hope you have minimal SEs. Water and ice are a must. I really believe that the amounts of water I drank the day of and the first few days after helped with the SEs.
Ok, I know I missed some of you. Sorry, I have MAJOR chemo brain! Funny story, yesterday was trying to put my groceries into the trunk of my car. I bought ice because I was not going to be home for many hours and I didn't want my perishable to go bad. I was having a REALLY hard time getting this big bag of ice into separate plastic bags so I could keep all my groceries cold. Anyway, I must have been there for over 10 minutes trying to do this. Stuff was on the ground and more groceries were in my carriage. This old lady came over to me and asked me if she could help. I let her help me and then she said in kind of a slow, sweet voice,"and what is your name?" I think she thought I was mentally challenged (well, in some ways I am). I almost answered her back in a mentally challenged voice "My name is Susan, what is yours?" but I resisted and just answered her normally. I then went on to another store and when I came out I couldn't find my car. I walked around the parking lot like an idiot looking for it for about 10 minutes or so and finally found it. People were probably looking at me saying "look at the poor bald lady (I had a baseball cap on) looking for her car". Should we help her? I swear it was at an all time worst yesterday. Chemo brain is so for real!!! Hope you all got a good laugh at my expense!
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Sukiann, I will definitely think of all of you on June 6th. My plan is to write your names on a card and bring it with me to the walk, so you to can walk with me. I hope everyone is feeling better tonight.
Stay positive even through the darkest hours! Diana
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Sukiann- LOLOLOL I actually did! Thank you I needed that and can totally commiserate (obviously cant spell either) THANK GOD they got my IV on the first stick today. Almost didnt get to have my tx bcoz my BP was thru the ROOF..........why they asked? SERIOUSL?Y!?!? I cant imagine why my BP would be up, maybe becoz the las time i was here your RN with NO personality stuck me where I told her it wouldnt work and blew a vein and then proceded to dig when she found one......maybe becoz I am having CHEMO TODAY?!?! I don't know what to be stressed about..............Sorry girls, been in rare form for the last few days, stressing and anticipating for the Poison Injection #2, so I am now officially half done with injections! Yeah!
Sorry,,,,,,I am wiped and would love to address everyone but honestly I am so flippin tired and weak I am going to lay back down and close my laptop..........I hope everyone sleeps well tonight with NO SE's....wouldn't that be wonderful???
HUGS to All!
Becky
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Hello lovely ladies of May,
I had FAC 2 yesterday (Tuesday). It went just fine. I was told last time that when my port is being accessed I should remind them that a 1 inch (instead of the usual 1/2 inch) needle should be used. I forgot to mention that, so I had to get jabbed twice.
I am anemic but it wasn't enough to keep me from chemo. I don't eat red meat except for the night before chemo, so I'm not really surprised about that. The oncologist gave me a list of iron rich foods to try to resolve the problem...many items were vegetarian which is sort of my preference. My WBC was fine, so the neupogen shot will not be needed. Lines and waits were than the first time. I think that was because there were more patients than normal due to those who were scheduled for Memorial Day coming on Tuesday instead. There were a couple of issues with my pump beeping and not delivering the drugs. I was at the hospital for more than 6 hours.
Today I was far less tired than day 2 of last round. That may be because with DH out of town, I've got lots more on my plate. I'll probably just collapse when he gets home late tonight.
I read with great interest every post and so appreciate the information, support and encouragement. I am thinking of all of you who are struggling with SE's and complications.
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Hello Everyone-- I haven't posted on this thread yet but have been reading everybody's posts. I just wasn't sure if I should start here or start a June thread since Iam starting so late in the month. I decided to start here since my chemo is tomorrow ( May 28th). Iam excited to start and to get it over with! Iam done reading and ready to post! Thanks to everyone with all there advice and sharing all of your ups and downs, you would never get that info anywhere else! I feel Iam as prepared as ever will be and I have a postive outlook. I am also excited about trying the Penguin Cold Caps. If they work that willl be such big news. They are now putting freezers and caps in 6 hospitals and clinics in Michigan, There must be something to it. I will let you know.
For now I wish everyone pleasant dreams and quick Healing--Geri
Dx 3/23/2009, ILC, <1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- -
Well Ladies, wish me well. I am embarking on my second A/C tomorrow a.m. and am petrified that I will have a repeat of the first. Although my se's were tolerable after the first, my one week labs put me in neutropenia - then a fever - then cellulitis in my cancer breast and then the hospital for almost 5 days. I am clean of infection now (after 10 days of early a.m. antibiotic infusions and 10 days of oral Cipro) but still wonder if I will have a repeat. I pray I do not. Will start a new antibiotic on second day for 14 days in the hope that if I do go neutropenic again, at least I won't have another infection. Will post more after the chemo (I am 2 weeks off schedule with it to boot!). Hugs to all -
Linda
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