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Lynette
Lynette Member Posts: 167

I've had 4 operations in total (lumpectomy, cavitectomy, axillary node removal and drainage of a haematoma), 6 rounds of chemo, and 20 rads. I finished my final rads last month. Now I feel relieved it's all over but scared - no actually, petrified that it might come back in one form or another as a lump or as a tumor somewhere else. I keep thinking what if there are stray cells that escaped or I'm just prone to getting it again if I got it once before. I know that according to adjuvant online my chances aren't too bad, but there is still a chance it could come back. Sorry to waffle on but I'm up half the night worrying and it's affecting my moods as I'm now often irritable (might be the tamoxifen perhaps). Do some women never have a recurrence? I need to hear from some or be reassured. I know I should feel lucky that it's 'all out' but I can't stop myself feeling hopeless about the future. Thanks in advance.

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  • flash
    flash Member Posts: 1,685
    edited May 2009

    What you are going through is a very typical reaction.  Everyone has those fears to some degree.  You've done the things to prevent it the best you can.  One image that might help was your chemo was "pac man" running around in your body and has eaten up those stray cancer cells. 

     If you are finding trouble sleeping and dealing with it, you might talk to a professinoal such as someone in the mental health field or maybe a clergyman for their advice.  I know I do see a professional and take antidepressants along with something for sleep.  I am the fourth generation in my family.  However, I also know that my grandmother lived into the 90's, and my mom has now gone 20 years since diagnosis.  No one knows the future.  NO ONE.  as best you can, you have to try to appreciate smelling the roses.

    good luck to you.

  • amsky
    amsky Member Posts: 35
    edited May 2009

    I am sorry to hear that you are feeling that way.  I think most of us have felt insecure about our future at one time or another.  I am three and a half years out and do not think of occurrance every minute of every day.  In fact, I hardly worry about it at all.  It no longer keeps me up at night.  I just go through stages every once in awhile where I wonder about an ache or pain.  I have found this only happens when I am really tired, sick, or stressed, but not very often.  No one in life is certain of their time on earth and I think we have to realize that we can't choose our time, just accept it when it arrives and don't be afraid.  I am just saying that because I wasted a lot of months after diagnosis worrying and had to find a way to rationalize it.  Your body has been through a lot and it will take a while longer to adjust to the mental and physical stress you have been through.  You will feel better after your body refreshes itself from all of the trauma.  When that happens, you will have a better outlook on things.  One thing that also helped me was celexa.  Once I began taking that, I didn't have so many physical and mental complaints.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2009

    lynette--my mom had ILC  22 years ago--lumpectomy, radiation, ALND, tamoxifen--and has never had a recurrence. So it can and does happen!

    Anne

  • brcagrl
    brcagrl Member Posts: 7
    edited May 2009

    Boy, do I relate to this! End of treatment anxiety isn't unusual.Although not everyone experiences this, many of us have. Welcome to the world of post traumatic stress!

    Up until now, you've been concentrating on just getting through the treatment process. Once it's over, you have time to think and there's an adjustment to be made. You were seeing docs regularly during treatment then suddenly it's "see you in 3 or 6 months" and the jitters begin.

     The good news is that this won't last forever. You're still raw and on top of that your hormones are being whacked by Tamoxifen. This is when a kindred, supportive community is so helpful.

     I strongly encourage you to talk to your doc about the lack of sleep because I had this issue and being able to sleep is absolutely key to your sense of well being, not to mention your immune system .Once I had that issue tackled things began to improve.

     Are you in a walking group or any kind of exercise group?  The data is massive on how beneficial this is to recovery and regaining a sense of health. I really encourage you to try walking with a friend or a supportive group.You don't have to train for a triathelon, just try to get a routine going  for walking, swimming, biking or whatever works for you. It's counter intuitive but you'll actually gain more energy and increased activity can help with the hot flashes and sleep issues.

     There's a great book by Musa Mayer titled "After Breast Cancer" that's well worth reading. It covers lots of the issues we face when first out of treatment. It's not a large book and very easily read. You'll relate to many of the comments and scenarios in the book.

     Sweet dreams!

  • lexislove
    lexislove Member Posts: 2,645
    edited May 2009

    Well...

    I as well can relate. I actually thought as some time went by my mood would have gotten better. It didn't. I finished rads June 2008, and January 2009, I was still not sleeping and up worrying if it was gonna come back.

    Then one January day I saw my GP for a non cancer related issue. She entered the room and simply asked, "how are you doing?" Well...that was it. The tears started flowing, she was passing me kleenex ect. I told her all my feelings and fears. She then told me that I was suffering and she was worried. She told me that I didn't have to be going through all that.

    She recommended Effexor XR, I started a low dose 75mg and it has done wonders.I sleep now, I don't obsess about BC, I'm not scared that it will come back because I know it won't...lol

    Bottome line...I wish I had taken it a lot sooner. An anti depressant may or may not help you. I tried the sleeping pills before the Effexor, sure at night I slept but during the day I was a basket case.

    Hugs...we have allll been there.

    S. aka -> non - profit Effexor spokeswoman

  • Lynette
    Lynette Member Posts: 167
    edited May 2009

    Thank you all so much for your replies. Your support is fantastic. My breast care nurse has put me in contact with the psychological medicine department at my cancer hospital. They run a course of sessions for people who've been through the treatment and feel anxious. They suggest ways of coping. I've tried antidepressants before when I was first diagnosed but I couldn't cope with the side effects. The sleeping tablets made me feel worse. Today I had a good day but yesterday was a really bad day for me. I hope my mental state will improve and I'll have more 'good' days or I shall go mad!! Thank you again from the bottom of my heart and best wishes to you all.

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