Hard to Breathe and Feel Alone

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  • Isabella4
    Isabella4 Member Posts: 2,166
    edited May 2009

    Stephanie, I am so sorry you find yourself in this situation.

    I really think it is time to blast your mother....surely she will have to listen and give you some love and hugs.

    I am sending a great big basket of hugs to you...thinking of you,

    Isabella.

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  • EWB
    EWB Member Posts: 2,927
    edited May 2009

    Stephanie

    I wish I could do more, but I offer gentle hugs and prayers.

    Elaine

                                                    

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  • hopenlove314
    hopenlove314 Member Posts: 3
    edited May 2009

    To all who have posted.

    I believe we can do more for Stephanie if we all work together!

    Yes let's 1st pray for her.

    2nd I think we should be proactive.

    Does anyone have  Stephanie's personal email or know her location?

    If so we could contact the hospital and ask them about hospice care, chaplains at the hospital or local churches.  Their maybe some one now on this forum that lives in the same community as Stephanie or nearby.  Maybe we can send her cards, flowers and be persistent in getting her an advocate.

    If you have any information about Stephanie's location maybe we can brainstorm a way to offer her more than our written support.

    Any further ideas?

    If people have them and are willing we can swap personal emails.

    Thanks and blessings to all!

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  • Alpal
    Alpal Member Posts: 1,785
    edited May 2009

    She has posted that she is getting treatments at Vanderbilt. So, I think she must live in the Nashville area. Glad you suggested this as I was thinking the same thing.

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  • TripleNeg
    TripleNeg Member Posts: 836
    edited May 2009

    in my moms defense she is really tired. she helps me alot. I understand her not wanting to wait with me in the ER with sick people all around. Shes good to me and my kids. I was denied chemo today. my counts are too low. I sort of guessed it turn out likr that. My son and i are going to watch the nba playoff games tonight and pile into my bed with appetizers and noise makers and have a good ole time. just like we have court side seats! i don't even know who's playing but i'm for who ever tyler's for. also  found out today that they fired the one vanderbilt employee that made my treatment visits doable. i hope they will hire her back and realize that she's a great asset to them and to their patients. i will share her story later. tired right now. God is able, stephanie

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  • kbugmom
    kbugmom Member Posts: 15,189
    edited May 2009

    Steph wish you live near me. I would be such a pest and drag you over here or I would be there at your place and you would be sick of me. Try to refocus on this moment not on how rough you may feel but on how good you can feel shortly. I find myself on the rough days really working hard to not having pity party which isn't helping.  God knows how many days we all have and we need to enjoy each day. I am praying you are pain free and for a healing.  Not saying life is easy but we arw here to cheer you up and to keep you battling on. So START GETTING FOCUSED AGAIN KICK THIS UNWANTED DISEASE. God bless.

    Susan

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  • saint
    saint Member Posts: 1,877
    edited May 2009

    HUGS Stephanie,

    This sux, but you have what you need to get thru it all---just dig deep; both inside yourself & in your family, community, church & friends.

    Like everyone else here-I wish Star Trek was real & they could beam us to your bedside.......

    Continued prayers for you & ALL you need. 

    Be well & stay strong

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  • Artemis
    Artemis Member Posts: 759
    edited May 2009

    (((Stephanie)))

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  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited May 2009

    Stephanie -- enjoy your courtside seats!

    (((hugs)))

    Ann

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  • konakat
    konakat Member Posts: 6,085
    edited May 2009

    Stephanie!  I'm glad you're back home!  Your evening with your son sounds like heaven on earth.  Enjoy the snuggle-fest and the game!  You sound like a great mom!!

    Big monster huge hugs for you!

    Elizabeth

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  • flash
    flash Member Posts: 1,685
    edited May 2009

    Hugs Stephanie.  Enjoy you're night home.

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  • wayover20
    wayover20 Member Posts: 445
    edited May 2009

    Wishing you comfort and rest. You have and continue to be a world of help to so many on this board so when you need us we are here. I just wish you were in Texas and I'd come over in a flash.

    Pat

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  • luv2travel
    luv2travel Member Posts: 8
    edited May 2009

    Stephanie

    Just remember that we are never really alone.  God promises us that He will never leave us or forsake us.  Prayers and Hugs.....Lydia

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  • Maire67
    Maire67 Member Posts: 768
    edited July 2010

    '

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  • EWB
    EWB Member Posts: 2,927
    edited May 2009

    Just checking in to see how you're feeling. Hope things are better. You are in my prayers.

    Elaine

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  • Isabella4
    Isabella4 Member Posts: 2,166
    edited May 2009

    Stephanie, checking in to see how you are today.....

    Isabella.

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  • Artemis
    Artemis Member Posts: 759
    edited May 2009

    You are much on my mind, Stephanie.  I'm praying for you and your family. *hugs*

    Artemis

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  • She
    She Member Posts: 503
    edited May 2009

    {{{Stephanie}}}  dear girl you are indeed very loved here.  You're in my Prayers, for comfort, peace and to be free of pain.  I know I live far from you, but you can phone me any time of the day or night and I will be there for you.  I PM'd you my number.  {{{Gentle Hugs}}} Blu

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  • saint
    saint Member Posts: 1,877
    edited May 2009

    Still praying.....

    candle still burning......

    love still flowing from tons of folks straight to you!

    FEEL IT!

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  • cmb35
    cmb35 Member Posts: 1,106
    edited May 2009

    Stephanie,

    I'm sending you peace, love and positive energy. Hope you had a fabulous night with your boy.

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  • makingway
    makingway Member Posts: 799
    edited May 2009

    I'm so sorry you are having to deal with all this sadness. I feel as alone as you do. I see the "couples" in the hospital and I feel sorry for myself, that I don't have someone with me to share this burden. Sometimes though, I think it might be better this way. I don't have to worry about hurting somebody or someone sticking around because of pity. I haven't even told my Mom. She'd probably just send me a card. Some people just don't have the capacity for kindness or consideration.

    I pray you have no pain. I really hope things turn around for you and you find some peace.

    And, remember Stephanie, you are never alone. We are all here for you. We understand like nobody else can.

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  • heatherpalmerton
    heatherpalmerton Member Posts: 2,247
    edited May 2009

    Stephanie, sending you many hugs and support. Heather

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  • scath
    scath Member Posts: 17
    edited May 2009

    I am going through the same syptoms so you are not alone. Breathing is getting harder, hydration is important but hard to force. I have been back and forth to the hospital for a variety of serious problems but if we are both able to make a post, we are still here!

    Do not feel alone, perhaps you and I can take the journey together. I am here for you!

    Scath

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  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited May 2009

    Stephanie, my husband was not a hugger.  I had to ask.  So since this began, I gave HIM a hug and thanked him for helping.  Got to be a habit and now he hugs me......!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2009

    Stephanie, hope you had a good day today.  Makingway and Scath, I also wish you peace in knowing you are not alone.  We are all here for one another.

    Steph, please let us know how you are doing.

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  • lovinmomma
    lovinmomma Member Posts: 1,879
    edited May 2009

    Steph. i am so sorry.

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  • elliem1207
    elliem1207 Member Posts: 1,583
    edited May 2009

    Stephanie,

    hope your team won and you are feeling better. Sending you gentle (( hugs)).

    ellie

    xx

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  • Godsgal
    Godsgal Member Posts: 203
    edited May 2009

    Oh Stephanie,

    I am soooo very sorry to hear this.. I am praying for you my sister.. Stay strong...trust GOd and know that he loves you..

    Hattie

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  • 5graces
    5graces Member Posts: 99
    edited May 2009

    God bless you sweet Stephanie.

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  • sushanna1
    sushanna1 Member Posts: 764
    edited May 2009

    Stefanie--Thinking of you.

    Sue

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