Has anyone started a forum for Chemo in Dec 2008?

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  • bobcat
    bobcat Member Posts: 681
    edited May 2009

    Firni - love and prayers to your friend.

  • colleen1960
    colleen1960 Member Posts: 226
    edited May 2009

    Firni:  So sorry to hear about your friend.  My thoughts and prayers are with her.  I just attended my best friends fathers funeral yesterday.  He was diagnosed at Easter with stage 4 pancreatic cancer and passed very quickly. 

    Feeling pretty well these days, although I have a slight pain in my neck, not sure if it is the way I slept or what.  Tylenol seems to work for a little bit, but then it comes back.  If it is still there on Monday, I will check with Dr.

    Hope everyone has a great weekend.

    Colleen

  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2009

    Firni, my heart goes out to your friend and her daughter. So unfair.

  • swest
    swest Member Posts: 680
    edited May 2009

    Firni - Please know that you and your friends are in my prayers.

  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited May 2009

    Firni: Your friend and her daughter are in my heart and prayers.  So are you.

    Mandy

  • Firni
    Firni Member Posts: 1,519
    edited May 2009

    thanks everyone for your prayers.  She is non-responsive now and at least in no pain.  

    I spent the day outside pulling weeds around in the yard.  Felt good.  I already have radishes, lettuce and garlic coming up in my garden. 

  • EleanorJ
    EleanorJ Member Posts: 752
    edited May 2009

    Ah Firni, so sorry to hear about your friend. Not sure what to tell you, I wouldn't know what to do either :( I bet it did feel good pulling those weeds out!

  • Firni
    Firni Member Posts: 1,519
    edited May 2009

    I know that quite a few of you are suffering from lymphedema.  I found a website that has diagrams for manual stimulation and drainage of the lymph system.  Head to toe.  Here is the website in case anyone wants it.  Even if you are going to therapy or having a spouse do the massage, it's nice to have the diagrams for a reminder of technique.   lymphedemaville.wordpress.com/page/2/

  • EleanorJ
    EleanorJ Member Posts: 752
    edited May 2009

    Thanks Firni, these are great.

  • Firni
    Firni Member Posts: 1,519
    edited May 2009

    As I was wandering around in the web today I came across a few lymph sites that touted the benefits of using a rebounder (mini trampoline) for lymph stimulation.  The low impact up and down motion opens and closes the lymph valves (which are one way valves).  So when the valves are open, the fluid drains.  You can read more on Starbounding.com.  This one is a rebounder website but it gives a great explanation and diagram on how rebounding helps lymphatic circulation.   Hmmm, I guess it's been kind of a boring Sunday.  But I've learned a lot.

  • EleanorJ
    EleanorJ Member Posts: 752
    edited May 2009

    Firni, glad you had a boring Sunday ;) I'm checking out that website right now. Do I wish I could find a cure for that!

  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2009

    I need to get a prescription from my doctor to start lymphedema therapy -- then I'll be jumping on those sites to see what's what. Thanks Firni.

    Third opthalmologist appointmet on Thursday. Hopefully I'll finally get rid of these watery eyes. It's a pain in the neck to be dabbing at them all day long, and to wake up with them swollen shut every morning.

  • Firni
    Firni Member Posts: 1,519
    edited May 2009

    I went to my podiatrist yesterday.  He said he's been seeing a lot of raised/curling toenails and swollen feet lately on people just coming off chemo.  Hmmmm.  Could it be the Taxanes????  I didn't think to ask if he knew what kind of chemo those people had.  Someone on another thread said that it takes a good 16 weeks to get the Taxotere out of your system, so I guess I'm only half way there.  Anyway, the podiatrist took the big toenail off my left foot.  He wants to see how it heals (he said chemo does weird things) and then will do at least the big toenail on the right foot and maybe two more nails.  Not happy to be losing toe nails but it will allow me to wear some of my shoes.  The swollen foot will keep me out of others.  He didn't think the swelling in my foot was lymphedema but still from the chemo from what he's seen in others.  He does want me to wear Ted hose until the swelling subsides.  I'll talk to my LE therapist about it tomorrow.

    Well, I'm off to see my PS so he can check my new foobies.  At least those seem to be behaving. 

  • colleen1960
    colleen1960 Member Posts: 226
    edited May 2009

    Firni - Chemo does do strange things to our bodies.  My sister had a toe fungus for years.  Nothing the drs. did helped until she was diagnosed with BC and under went chemo.  After finishing she noticed that her fungus was completely gone.  And it never came back.  I was going crazy with a pain in my neck for the last couple of days, but today it seems to be much better.  I believe that it had to be the way I slept.  I am still getting used to sleeping with my new foobie.  I just don't seem to get that comfortable at night.  Well good luck with your PS and I hope your toes heal quickly.

    Colleen

  • swest
    swest Member Posts: 680
    edited May 2009

    Good Afternoon Everyone! 

    I went yesterday to see my Onc. for my 1st quarter checkup.  He took blood but said he would not be running any other test since they tend to give false positives.  He said for me to see him should anything change.  I don't go back until the end of September.  YEA!!!!!

    I also went to my PS to get another fill.  This time my right pectoral muscle started to spasm.  That was weird!  It didn't hurt but just a strange feeling (of not being in control of my body).

    I hope everyone is doing well (nails and all)!

    Sonia

  • Bold
    Bold Member Posts: 692
    edited May 2009

    Ferni: I am still swelling but it is get a little bit better. If I work out I have to do it early in the morning. I wish I had a good pair of compression stockings. You have to get measured and get a prescription. I just hope it goes away.

    I am still holding on to my fingernails with perma bond. Its still working. 16 weeks huh. I am only 5 down. Starting Rads next week. oh boy!

    Swest: Cool Not till Sept. Wow.

    Cubula: You sure look cute. I have no hair yet. Can not wait!!!!! Two more weeks and I should see something.

  • EleanorJ
    EleanorJ Member Posts: 752
    edited May 2009

    Thanks bold, you're so sweet ;) Good luck with radiations. I started my boost today, only 8 to go then I'll be done cancer tx!

  • swest
    swest Member Posts: 680
    edited May 2009

    Caroline - Yea!  I'll be cheering you on!!!  ONLY 8 more!!!!!!!!!!!!!!!!!!!!!!!!!

  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2009

    Today is rad #10 for me -- of 33 so I'm almost 1/3 of the way through. The TE is getting a little tight and sore, and I'm a little more tired, but that's about it.

    As for the taxotere side effects, I'm still waiting for the dry mouth to disappear. It's about 50% gone. Taste buds are about 60% returned. Dry skin is not showing a lot of improvement. I have an appointment with the opthalmologist tomorrow to open my tear ducts again.

    Still no hint of lashes or brows -- how long do those take?

  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2009

    Sort of off topic BUT I just unraveled a mystery ...

    5 years ago, I had a tumor removed from my parathyroid. Parathyroid tumors cause osteopenia but according to my surgeon (who is one of the leading experts on them), the condition is 100% reversible after the tumor is removed. He said all I needed was Calcium, Vitamin D and exercise.

    I did lots of weight-bearing exercise, took my supplements as directed, but my bones never fully recovered. Now I know why!

    I stumbled on a WebMD BC site, which said BC cells can actually increase the activity of bone degeneration. I don't understand how it works, but since my cancer was very slow growing -- everything now makes sense.

    Now that I'm killing the BC, maybe my bones will actually recover (as long as I steer clear of Aromatase Inhibitors that is).

  • lisasayers
    lisasayers Member Posts: 850
    edited May 2009

    Okay...so you all know about be and my zumba...back in October, shortly after I was diagnosed, the news crew came in and did a segment on us, called Games People play.  They didn't now about my diagnosis at the time.  Then this past April, we had a Zumbafest.  Thanks to my contact at the news station, she sent me copies of the clips and my son uploaded them to youtube....so if you want to see crazy me...in October...still hair and then in April...new hair growing back...check out these links!

    http://www.youtube.com/watch?v=ksmbXrmrUyE&feature=channel_page

    http://www.youtube.com/watch?v=n0FbG3uoSgw&feature=channel

    Make it a great day!

    Lisa

  • Bold
    Bold Member Posts: 692
    edited May 2009

    WOW lisa: You are sooooo blessed. I cried and laughed. You look great! I hope that life continues to hand you love and appreciation.

    Tex: My taste is not back completely either. GRRR. One other weird thing is that I can not drink like I use to. I had a 1 margarita last night and woke up with a head ache. Thats new. We are over the hard part though and thats unbelievably wonderful huh?

  • EleanorJ
    EleanorJ Member Posts: 752
    edited May 2009

    Wow Lisa, you don't have much longer to go before you're back to your regular hair lenght!

  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2009

    Lisa, you look great -- and what an awesome tribute!

  • swest
    swest Member Posts: 680
    edited May 2009
  • Firni
    Firni Member Posts: 1,519
    edited May 2009

    Pretty darn fantastic, Lisa.  Thanks for sharing with us!

  • bobcat
    bobcat Member Posts: 681
    edited May 2009

    Caroline - my hair looks like yours!!  I'm going to hit up my barber tomorrow for a neck shave and margin cleaning.  I've always worn my hair really short so I'm starting to look 'normal'. 

    Lisa - you are funny and amazing.

    I have my second nipple tattoo on Friday - the girls look good but still getting used to them.  Arimidex continues to cause problems and saw my MD yesterday.  He ordered blood work and also specialist because of the wrist pain.  I keep getting comments from friends and strangers - witnessing BC for our worlds is important.  We can do this!

  • lisasayers
    lisasayers Member Posts: 850
    edited May 2009

    Thanks ladies! 

    I keep my hair short too...I'm liking it really short...no fuss, no muss! LOL

     Sorry to hear about the arimidex problems bobcat!

  • EleanorJ
    EleanorJ Member Posts: 752
    edited May 2009

    I hope they can figure out the arimidex problem.

    I was thinking about getting my neck cleaned, but hubby says it might make it look more of a boy cut. I don't know. I usually have shoulder lenght hair. I have a LONG way to go before getting there! Still can't wait to be able to have a cute sassy cut.

  • Firni
    Firni Member Posts: 1,519
    edited May 2009

    At this point, I would be happy with a boy cut.  Still nothing.

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