Radiation with tissue expander
Has anyone out there had radiation with a tissue expander in them? If so could you please tell me of your experiences, like how many treatments you took and how it affected your skin or your expander. Thanks so much for sharing.
Comments
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Hi,
I also have been looking for this information. Hope we get some experiences
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Hello,
I was worried about this as well. I had 30 radiation treatments on my expander side, and I'm happy to say, everything healed great! I have not had my exchange yet, so maybe I'm speaking too soon, but my PS was very pleased when he looked at it 3 months post radiation, and he is VERY picky and warned me about radiation's possible effects. He thinks I'll be just fine to get my implant... I hope he's right!
Anyway, I had a very positive experience with radiation so just wanted to share -- best of luck to you both!
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I'm in the middle of rads, had 18 so far, with expander. So far so good.. knock on wood. I too was very worried about this and so was my PS. But we're hoping all will be good!
JacquelineG- When will you have your exchange?
Sue
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Its nice to hear some positive experiences because I have heard nothing but durogatory things. Like the skin is never the same again, deformation I havent heard anything positive. Its really nice of you to share your experiences, its a very scary thing to go through. Did you have to use anything for your skin, did it burn?, and if its not too personal how much did you get expanded to befor rads? and will they expand you anymore after rads? Thanks again ladies.
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I would like to hear about people's experiences. Any studies on this? I have not heard the negative experiences, but rather hear from the PS saying he'd rather it be done without the TE. Now I have one in and the radiologist recommended Rt. I feel like I am doing everything bass ackwards!
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I had my exchange and then rads 3 weeks later. Skin did well and healed fine. So far so good and no cc. (rads ended 3 months ago) Both ps and rad onc say my skin looks good!
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well my ps said to me it would be in my best interest to rad with the expander in and when finished radiation she could soften the skinsomewhat by removing some of the scar tissue when she does the exchange? anyone else heard this?
what amount of rad did everyone have?
thanks Carolyn
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I am hearing that a bit now. My PS wants me to get a second opinions. He is not happy with rads with a TE. The radiologist acted like it was a no brainer. I am SOOOOOO confused. I hope we can hear from more who have had this done.
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I will let you know. I'm scheduled to start 30 rad treatments on the right side May 26. Had BL Mast on April 2. Was hoping to avoid rads and chemo but clear margins could not be obtained on the right. I have heard both negative and positive. My PS was not thrilled but he said it can be done with good results, everyone is different. I will keep you posted.
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I had my bli. mastectomy with TE February 2008. When the path report came back, my margins were not good so I needed radiation. It was April when I found this out. My PS preferred to preform the exchange and then have me do the radiation but he was OK with me having radiation first. He said based on current research the end result was better when the exchange was first. I spoke with my radiation oncologist and he presented my case to the tumor board and radiation was recommended first but gave me the option. I decided to get second opinion from another radiation oncologist. She believed that I did not have the luxury to wait until after the exhange and the healing from that surgery and if I had complications it would be longer. So after much thought I had the radiation first. I had 33 treatments that ended the end of June 2008. I had my exhange Feb. 2009. So far, so good. The skin is tighter and there is a possibility it will be even tighter as time goes on. That side is also a different color. I am still deciding on nipples. My PS said he has not lost a nipple yet due to radiation.
Good luck and I hope everything works out for you.
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Okay. so I feel a bit better knowing others have had the rads with the tissue expander in. I suppose my PS will tell me if I need to have it deflated. Hope the rads don't do my little breast in! I was sort of getting used to it being perky! My 53 year old body definately sags a bit.
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well it seems that rads are being done more often now with tissue expanders when i was doing research about this I found that if your ps is not confident you should get a second opinion because it seems that some have had many cases and know what they are dealing with and other really dont. PS should be able to fix anything these days so lets hope this is true
LynnVa
glad to hear your ps is working with you and it seems that others are doing quite well with rads and expanders so I am sure you will have great results keep us posted with how you are doing with rads
2Twentyeigh
Good new's that we all need to hear that your treatment went well and so did the exchange did you get expanded any more after rads before your exchange? keep us updated on your progress did you use any creams?
Jrgolomb
Well it sound like the outcome is good for us with all these postings so your perky breast should be just fine..lol
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My PS did all my fills prior to the radiation. The last fill was a little challenging because he put double what he usually put in at one time for me. He said that once radiation started it would upset the measurements and calculations that the radiation oncologist and his team did. He did not want to fill after radiation because of the tender tissue.
My radiation oncologist gave me cream to put on my skin beginning with the first treatment. I don't remember the name but it had vitamins like E and C. I put it on after each treatment and at night. I used and still use a very mild moisturing soap - handmade by a company in NC that my sister introduced me to - Pretty Baby Soaps. My PS after my exchange told me to use 100% pure cocoa butter. I have been 2 times/day. It is pretty greasy! I saw my radiation oncologist this week and he said my skin was dry!!! He said keep putting on the lotion.
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Let's keep this convo going!
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YA lets keep this thred at the top
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Hi, I have a saline implant/expander in and have just started six weeks of radiation. My PS was unhappy when she heard I had to have Rads, but didn't say much. She wants to see me three months after the Rads are completed, which'll be around September '09.
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yeah, my PS is unhappy as well. He actually encouraged me to get a second opinion. Yikes, doesn't that throw "ya" into a mix of confusion????? I have a scheduled day to go for my simulation and tatoos.....but that can easily be changed if another radiologist disagrees with reco to radiate.
Call me---VERY CONFUSED
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PrincessKauai59 so you have a expander in and did your ps fill you up or did they just leave it as is? what are your cc,s?
jrgolomb well it seems they are not happy but being a ps you think they could fix us up if needed? this is all very confusing but i spoke with two different rad onc and they both said the outcome of patients they have seen have been okay the skin is just not the same then the ps will say something different like infection skin breakdown and cant expand the skin after rads but i have read post of people who have been expander after rads so who really knows what is going on i even went to my dermatologist and he explained to me that as we age our skin thins and once you get rad our skin thins alot faster then normal but what all that means i really don't know. I just don't get it why cant they grow our skin?
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Carolynn--yup, what you said pretty much sums it up. I guess i just don't want to have to deal with the skin infection issue. Smart of you to go to the dermatologist. Yeah, why can't they grow our skin?
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My rad onc was pretty adamant about the exchange being done before rads and my PS reluctantly agreed. The reasoning was that my TE had a big metal port that could have caused the radiation to scatter and cause much more skin damage. I will be halfway through rads (28 treatments) tomorrow and my implant is fine and I have no skin problems so far. It seems like every situation is different and doctor's don't always agree.
Bonnie
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bump
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How is everyone doing with the rads and expander? Its been about a week or so since we started this thread. Has there been any skin changes? How are you girls feeling? Stay strong.
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Mikkspencer---I start rads probably next week. The PS said the issue is in dealing with the scar tissue because of the TE and the contraction of the muscle. I am worried sick, but then again, I don't want to get the beast back.
How are you?
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jrgolomb my ps said after rads they can scrap some of the scar tissue away when then do the exchange but i didn't hear anything about the muscle what happens?
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I think the muscle is what contracts and may be a part of what causes the scar tissue? Or has scar tissue? At any rate, we won't know until I halfway thru the rads. I start next Tuesday. good luck all and I will definately keep posting on this thread
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I'm one rad away from being DONE! My expander is doing good... my skin feels a little tighter, and I do get a little bit of a twinge on the upper portion, but that's about it. Now let's hope it stays that way! I'll see my PS in about 2 months.
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That is such good news. Thank you and I hope mine will turn out as well.
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Hi susan13 T.hat is great new's. So how much did they expand you to before rad how much cc's ?
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Bumping up.
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I have had 16 tx with expander on right side. So far I have had no problems. Both my rad onc and my ps felt that I should be alright with this. My last fill was way back in Dec. and I am not huge just perky. I have felt some tightening but nothing uncomfortable. No other se's and I am halfway done. Hope it stays this way. My ps plans on doing exchange sometime in the fall and lifting Miss Lefty to match foobular Miss Righty. Whoo Hoo!!!!!!
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