Recovery and Activity

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MI_Runner
MI_Runner Member Posts: 46
edited June 2014 in Working on Your Fitness

Hi everyone,

I'm having a bilateral mastectomy on Monday, and was wondering - for those of you who had surgery, how long afterwards were you able to start moving again?  As you can tell from my handle, I'm a runner, but what I'm really worried about it just getting up and walking around, walking my dog, etc.  I really have a hard time sitting still and activity is such a large part of my life (I'm an exercise physiologist, for crying out loud) that I can't really grasp having to spend days and days on the couch.  What were your experiences?

Comments

  • achen2iron
    achen2iron Member Posts: 64
    edited May 2009

    I am with you on the activity level. From what I've heard about mastectomy without recon. is that you are back at it pretty quick. Like a week. I had a lumpectomy w/snb on a Thurs. and was skiing Sunday, running Monday. I did wind up with a seroma at the node biopsy site but I only had to have it drained once. I think you should be able to walk right away If you have a dog that doesn't yank on the leash it should be no problem. I'm 2.5 weeks post op TRAM and am planning on starting a workout program on Mon. 1/2 hr. cardio + strength (not core) hopefully it's not too much but I'm tired of not exercising. Good luck. 

  • MI_Runner
    MI_Runner Member Posts: 46
    edited May 2009

    Thanks, achen2iron.  I feel like I should be able to bounce back pretty quickly because my fitness is pretty high at this point, but I haven't had surgery before and really don't know what to expect.  My dog is pretty good and wears a gentle leader when we run - I'll have her wear that for walking, too.  She normally walks without it but is an absolute angel with it on - we call it her artificial brain.  The more I can move around the better, so your post is encouraging.

  • pshelton
    pshelton Member Posts: 140
    edited May 2009

    Hi MI Runner,

    I'm just over 3 weeks out post bilat mastectomy with tissue expanders.  I was up and moving about with 2 people assist within hours of surgery.  I also work out on a regular basis, gym, cycling, hiking, walking (can't run due to achilles tendonitis, peroneal tendonitis, and plantar fasciaitis).  By that night I could get up and move about a little with one person assist but starting post op day 1 I was under my own power.  I am still very sore and do range of motion and started that post op day one.  With expanders you won't be running for quite a while because those pockets have to heal so listen to your sugeons on that.  Walking is fine though and I've been doing that, no upper body weights but I can do lower body weights and stretch, stretch, stretch.  I'm on 5 lb lifting restriction for upper body.  As far as conditioning you'll bounce right back because you are at a higher level of fitness but don't push yourself, its a long recovery time and healing.  Good luck and keep us updated here, Paula 

    ps: I'm an exercise physiologist too : ) ...I sent my dog to live with my sister while recovering, she's good and only 24 lbs but strong and there was no way I could walk her on a leash right now, she pulls sometimes... 

  • Angel10
    Angel10 Member Posts: 682
    edited May 2009

    Hi All!  I am 3 weeks post bilateral mastectomy with TE, no axillary dissection (negative SN but 15 additional nodes were taken.)  I did have lymphatic invation and am a stage11A. Yet I still am in a fair amount of physical distress, particularly when walking. I can not walk at my  regular pace and the very first time I tried to walk I had to stop as I was in a good deal of chest pain and shortness of breath.  It ameliorated upon stopping but has become a concern for me and keeps me walking very slowly.  My surgeon thought it might be due to pectoral muscle spasms, and the addition of Valium as a muscle relaxant has helped.  But as I said I am 3 weeks out, still quite uncomfortable and anxious to get back on the Lifecycle that I used to ride for 30 minutes 2 or 3 times a week...but am scared silly to try that!

    Is this normal?  I don't want to get dependant on the Valium but it helps me and has allowed me to sleep through the night which had not been possible the first 2 weeks...and I am beginning to get impatient with the lack of activity I can do.  I don't suppose there is a "norm" for beginning to exercise again...but any advice would be helpful.  And does anyway know how long Valium could safely be used? I am on a low dose of Dilaudid and Tylenol as well.

     Many, many thanks!

  • pshelton
    pshelton Member Posts: 140
    edited May 2009

    Angel, 

    Take the meds as recommended, you'll improve.  If your in a lot of pain you won't be able to move like you should and the healing process slows down.  One of the first things I learned in nursing school was to control the pain in a patient.  Your not going to be pain free but have them manage your pain to a level you can tolerate.  I was right there week three and I am now week 4 and doing better.  Every week you should see some level of improvement.  I would stay away from the lifecycle though, you would be putting pressure on your upper body if your leaning on the handlebars, walking is great and will get your stamina back up.  If you can't go far do 3 or 4 short walks a day and build on distance not speed.  I'm an exercise physiologist and an nurse which means I know what I should be doing and can really beat myself up when I not doing it!  : )

    Paula

    ps: I also had a bilateral mastectomy and tissue expanders.  Are your drains out?  They were the largest source of my pain and they just came out a week ago... 

  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2009

    I had a single, with tissue expander, and was feeling great within a week or two. In 3 weeks I was using my home weight machine.

  • Angel10
    Angel10 Member Posts: 682
    edited May 2009

    Thanks for your response, Paula...it is both helpful and encouraging! 

    I originally had 4 drains but have only 1 left which I hope to have removed this Thursday. I feel like a "woose" (SP?) for complaining about pain...but darn it...if I don't need to be in pain...

     One other comment is that on the side with the cancer I noticed the pain in the inside of my arm has been radiating down more rather than less now adown to the crook of my elbow.  I did not have pain that far down the arm at first, and I did not have an axillary dissection.  The 15 nodes they took out must have come from the breast, not the armpit. I am wondering why I am now getting this tightness and difficulty in straightening out that arm.  Is this worth mentioning to my surgeon?

    Thanks again!

  • Angel10
    Angel10 Member Posts: 682
    edited May 2009

    OK...now I am jealous...:)  Good for you!

  • pshelton
    pshelton Member Posts: 140
    edited May 2009
    Definitely mention it to the surgeon, some days my arm is stiffer than others so I slowly do range of motion several times during the day to get it as close to what my other arm can do.  I had 3 nodes removed from my arm pit so it does try to stay really tight.  My surgeon told me to start doing range of motion the same day as my bilateral.  I think that is surgeon's preference though because some say not to move your arm above your head so ask yours and see what he/she prefers. PaulaSmile
  • AnneW
    AnneW Member Posts: 4,050
    edited May 2009

    Agel10, you may need a good physical therapist to help you with the arm.

    You had tht many nodes in the breast?? Are you sure they just didn't access the axillary nodes from the breast incision somehow? Your discomfort is typical of an axillary dissection. There generally aren't that many mammary nodes. But, I could be wrong, as anyone could have a little different anatomy...

    Anyway, if there's a PT in your area who works with a lot of bc recovery, consider that resource as a good one.

    Anne

  • Angel10
    Angel10 Member Posts: 682
    edited May 2009

    Well that is the beauty of this site...now I went back and reread my pathology report and it does indicate that 12 axillary nodes were taken, but because I do not have an incision under the armpit, I thought they must have come from the breast area because I thought all axillary node dissections would require the armpit incision!  My Sentinel node came back negative, but the cancer was larger and poorly differentiated, so I guess that is why they took more axillary nodes....And  I was not told to do nor were exercises discussed upon discharge, so I a concerned about the thoroughness of that process. Today when I mentioned the radiating arm pain and stiffness to my recon doc, I was told it was expected and to watch for edema....

    I had my 3rd pump up infusion today on top of this.  I asked and got more Valium.  The surgeon could actually see my chexst/pec? muscles spasms occurring even before my infusion.  Not a pleasant day, but I am sure tomorrow will be better.....

    Thanks ladies...I am beginning to feel I am learning more here than from my docs....and I went to a reputable institution!  Thanks for your time and input!

    Bless you all!

  • Cheri2
    Cheri2 Member Posts: 285
    edited May 2009

    I hated taking valium too!!!  I eventually cut back to taking the hospital does of aleve (2 in the am...2 in the pm) and that helped a lot- even if I didn't feel that much pain upon waking I would still take them - so it would get into my system and then I could get off of the heavy stuff..

    I had a bilateral with TE and am 8 weeks post op...I am not sure if I was more depressed about not being active or about my surgery in the beginning and I have gained weight.  But today I walked 5 miles.  I started walking a little 4 weeks post op (like 1/2 mile) and worked my way up- little by little.  

    You will get there it just takes a while!!  And I do nothing on saline injection day or the next day and I do take pain pills on those days! 

  • libby
    libby Member Posts: 165
    edited May 2009

    Hi MI Runner - You should be about 1-2 weeks out by now.

    Your diagnosis, surgery and fitness level sound like mine - although I would say I am a slow runner.  I was training for my first half marathon when I was diagnosed and went in to surgery in good shape.  I started walking about 1 week out - I was a little short of breath and realized I was already losing my endurance.  I still had my drains in and when I went in to the surgeon's office I was told that even walking could increase the fluids in the drains, so I stopped - just continued my arm and shoulder stretching.  Once the drains were removed, I developed seromas on both sides and once again the only thing I was told could help decrease those fluids was to limit my activity.  At 6 weeks I started walking again - I have just a small seroma still on one side.  It has been frustrating because exercise and running helps me feel better usually and to have had to limit that has been difficult.  It also sent me to food for my endorphins which is not helpful.  All in all it is a small sacrifice though, especially when I consider what others go through, but I do look forward to getting my life back. 

  • MI_Runner
    MI_Runner Member Posts: 46
    edited May 2009

    Hi again everyone.

    Angel10 - looks like you got some good advice! I hope you are feeling better now.

    Libby - sorry to hear you had so much trouble returning to activity!  Having all that fluid build-up when you wanted to get going must have been so frustrating.

    I've been fortunate.  I was able to start walking a little bit at a time on Wednesday 5/13 (bilateral mx 5/11) and by Sunday I was able to go to the zoo and walk around there for a couple of hours.  It was great - such a beautiful spring day. 

    Monday I had my post-op appointment with my surgeon.  He removed the drains (I had been getting ~10cc/8-12 hrs for a few days) and told me I'm healing beautifully.  At the end of the appointment I asked if there were any exercise restrictions.  He said I could do whatever I felt up to doing, even running.  I feel good, so yesterday (Tuesday) I tried doing an easy run/walk.   I was running 8-9 min miles on easy training runs before surgery and did 1 min run/1 min walk x 11 on Tuesday, to wind up with 2 miles at an 11 min pace.  HUGE step back but I expected that, and it felt great to run again. I felt a little soreness where my drains were. I wore a soft sports bra to give a little compression, but it wasn't very tight since I bought it for my B cups.  I purchashed a smaller one today and am going to see if that helps tomorrow.  Today I just walked for 45 minutes with the dog.

    I'm getting there!  It felt so great to be out in the sun, plodding along.  Exercise really works wonders, mentally.  Also, I'm positive that the level of fitness I had going in is responsible for this quick recovery.  

  • MI_Runner
    MI_Runner Member Posts: 46
    edited May 2009

    pshelton - how cool that you're an exercise physiologist, too!  I'm actually in graduate school right now, working on my PhD, but worked in the field (clinical and research) for 3 years right after my masters.  I would have been so sad to send my dog away - she's my buddy.  I have a 60lb border collie/pointer mix.  She's insanely strong when she wants a squirrel and has a ton of energy, but she's my little girl....Fortunately my BF is here with me, and he takes care of her, too.  Here's a picture - I can never resist the opportunity to show her off

    Kona

  • Cheri2
    Cheri2 Member Posts: 285
    edited May 2009

    Angel10- I wrote you in an above post but forgot to put your name on it!  And BTW I had stiffness too and the Physical Therapy did wonders for it!

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