**NEW** Starting Chemo March 2009
Comments
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Buddy - That's great news that the mass was not cancer, but it sounds like you've had a rough time. Hang in there.
bethr - Thanks for that link. I loved the expressions on the faces of the people watching - first confusion, then delight.
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Buddy: Great news that it isn't cancer but so sorry you are having such a hard time. I am not sure what happens when chemo is delayed. Hopefully someone chimes in or there may be a forum for that. Anyway we are glad to hear form you.
BethR: The video was great.
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Welcome back, Buddy!
If there's one thing I've learned from this BC journey, it's that things happen exactly as they are supposed to. I can only imagine how frustrating the delay in chemo is, but try to find the positive in it. There's a reason...
So glad to hear the mass was benign, but what an ordeal for you! Continued prayers your way for quick healing.
Big hugs,
Nadine
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Buddy,
We missed you so much. You had so many rooting on this board for you. I am sure that these cells grow slowly and the Docs will treat you fine. Don't worry. Get strong.
Yes I finished my 4th TC. A long day but all went well. I am too tired to thank all individually .My doctors office has Pom Poms and cheers for you when it is all over. I brought in a homemade cake for the staff and presents for some of the nice poeple at the office. Nothing big but nice cookies , notepads, pretty napkins etc all wrapped in cellophane. Looked real nice. This office works slow but they kiss you over and over. Very warm staff. They told me to come back and visit when I have ny doctors appts and say hello.
I will try the photos again.I seem to lost my touch. Not a good night to get frustrated.
The Nurse Practioner when I told her how the decatron makes me crash gave me some extra pills and told me to gradually wean myself off them.That should make days four and five better.
Hugs,
Francine
I almost see the light at the end of the tunnel.
Dx 9/12/2008, ILC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
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I can't get the photos of the women cheering.Maybe tomorrow.
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Buddy, glad you are back, glad it wasn't malignant, hang in there and take your time getting back on your feet.
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Hi ladies
Just home from having my first round of Taxotere (having completed 3 x FEC). Feeling ok so far. They gave me lots of dexamethasone by IV as no one had told me to take it prior. Gina - I kept thinking of you and what a horrible time you had with it. I had 3 nurses staring at me with hydrocortisone and an oxygen tank at the ready,making me not a little paranoid (!) but all went well. Will see how it goes tonight and tomorrow I guess. 2 more to go and then done end of June (time flies....).
Buddy - so glad the mass was not malignant but does sound like you've been through a terrible ordeal! I hope you are home and healing well.
Regarding the sex and periods talk (why does it always come down to those two things when girls get together! lol!). Sex? I wish! My boyfriend and I split up about the time I was diagnosed with Graves Disease (a year ago) and since then I've put on 40 lbs thanks to the medication for that. Then, came this little beast. Luv2Sing...I also have some pretty wild dreams, especially if I take an Ambien / Stilnox, but in the light of day the urge is supressed more through lack of opportunity and lack of motivation to create an opportunity. A distant friend asked me the other day when I was going to get back into the dating pool. I mean....what? Sure...I'm overweight, fluid-y, with one big boob and one little one, scars, patchy baldness, crabby....I am a catch!!! I still wear makeup every day (I have light eyes so need eyeliner, mascara etc for definition) but thats for me, not anyone else. I don't feel very feminine in this shape so it's a bit hard to turn on the sex kitten. Hopefully she'll come back before the end of the year and even more hopefully there'll be someone around to respond!
Meanwhile, my periods are still coming like clockwork 3 tx's in, despite the fact I opted out of any fertility saving measures. I'm 39 and have always been ambivalent about giving birth or perpetuating my genes so didn't want to add that pressure into the mix. As my friend Julia likes to say "You'll make someone a wonderful 2nd wife one of these days" so I'm looking forward to blending kids into my life any other way. There are lots of adopted people in my family be they kids, aunts who are not really aunts etc. My 'grandmother' died last year but she was really my third cousin. When my real grandmother died soon after it was quite confusing to explain. Everyone thinks I have 3 sisters although I actually only have 2. The 3rd is my sister's ex-flatmate but she comes to all our family dinners and even has tiffs with my Mum. The Italian kids who go to school with my sister's kids call my parents Nonna and Nonno. Even our pets are strays who never left!
Anyway, for the ladies who DO still want their own rugrats there is always hope! My sister was told she would never have kids after her first cancer treatments in 1993 (she was 26 and a new bride). She and her husband were devestated. She was told she was in early menopause at 29. At 30, she was sick with gastric flu when the Dr did a pregnancy test for kicks. That was my nephew Harrison, now 12 and in his first year of High School. He's an athlete and just started his own gardening business. 13 months later...more gastric flu...that was my niece Laura, now 11 going on 17 and in her last year of primary school. She's nearly as tall as me and smart to the point where she will either win a Nobel prize or start a billion dollar ponzi scheme. The docs could never explain how my sister overcame her 'infertility'. She even made the papers and TV as a 'miracle mum'. Now this was before all the preservation techniques they offer today so I think if the little' uns are meant to be here, they will find a way...;->
R xo
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Hey Francine! Woohoo! R xo
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Buddy - Prayers and Well wishes for your recovery.
Francine - Congrats on the last.
Everyone Else - Have a great SE minimal/free week.
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Buddy: Glad your home, I am sorry you had to go through so much. I wish you a speedy recovery. Don't forget to deep breathe and cough like the nurses taught you.
Francine: Yeah! Woo-hoo!
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Buddy!
Great news that it wasn't cancer - what a relief. Sorry though you are having such a hard time. Sending hugs your way
(((HUGS)))
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Well, I did my 3rd treatment yesterday so I am 'halfway' through the chemo treatments now and will continue on with the herceptin for the year. I didn't have a severe reaction to the taxotere this time like the last 2 times either. I think they finally have that under control for me in my pre-meds. More benadryl and steroid and a slower dose of the tax. It was an all day long process again with bloodwork, talking with the doctor and then the treatments.
take care everyone!
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Francine: Soooo happy for you. Congratulations and I would love to see the celebration photos.
Christy: Halfway done....that's fantastic!
Have a good day everyone.
Beth P
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Hi Princesses,
If we've talked about this before, then I have forgotten - haha - I blame everything on chemo these days!
I swear I "heard" my onc say that I wasn't supposed to floss during treatment. I have been studiously NOT flossing every night. Did I dream that? What are y'all doing?
I also wonder what is your opinion about "chemicals" - like for hair re-growth? And I'm going to a beach wedding next weekend - was toying with the idea of a spray tan just to treat myself, but is that a bad thing to do right now? I'm so afraid of doing something "wrong" or exposing my body to "bad" chemicals.
Any ideas?
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Chick717:\
I was told to floss I could floss lightly because if the platelets are low it can cause bleeding. As far as a spray tan goes I don't know what they use for chemicals. I would get the ingredients details and ask your onco or nurse to be on the safe side. A beach wedding sounds lovely!
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Gina and Luv2sing: Haven't heard from you in a while....hope you are both doing better.
Take Care
Beth P
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Hi there - again, I feel like I've been MIA. I've been reading everyone's posts, but haven't had time to sit and write. Pickle - thanks for the poke!
I am SOOOO glad to see you back at home Buddy. Rest and heal. Everyone is right about the chemo. Don't stress about that, it will be fine. Sydney Rachel - I like your take on things! Tracy - never heard anything about flossing (or not too)...just suggested to use a super soft tooth brush. As for spray tanner....check out the Make-up hints thread on this site. Those gals seem to know A LOT and probably have some recommendations and do's/donts. Melbourne Rachel...like the lube tip! I have never heard of Pjur, but just googled it and found it on drugstore.com. Mother nature isn't sure what she wants me to do. I have had my period...but way off schedule. Unlike the old days (every 28 days, lasting 5-6), she now comes and goes. Starts anywhere between 25-30 days. Just 1 or 2 days. Stops for a day or two AND then COMES BACK for another 5-7!! And the cramps are awful. What I remember them being like when I was a teenager. Might be the beginning of the end. Who knows.
Someone mentioned dreams? Mine have been soo weird. I used to dream a lot (growing up, in my 20's and 30's). I think I stopped dreaming (or remembering them) when I started to have kids (probably an indication I wasn't getting enough sleep). But they are back now and they are wacky. Last night's dream included me hiding behind a wall smoking a cigarette!! No offense intended, but I haven't done that since a drunkin' night in college 20 years ago. Worse, I think I could smell the cigarrette smoke. I am soooo sensitive to smells right now...that woke me up with a bolt this morning. Gha!!!!
Now, much belated celebratory cheer for everyone who has finished chemo: Tracy, Jan, Francine
Hopefully this wont cause epilepsy! I will take it down in a couple of days.
And a little something extra for Jan (we know you love for margaritas and blinky-blinky)
Those chillies kind of worry me! Hope everyone is kicking SEs. Rest and heal.
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Hi All,
I had my first Taxol TX today. Everything went smoothly. I got Benydryl, Kytril, Steroids, and Tagament in my premeds, the the Taxol. The nurse started it slow and checked blood pressure every 15 minutes. I wasw sleeping on and off the whole time due to the Benydryl. I have a slight headache and am still alittle sleepy...but feel much better than after AC.
I get Neulasta shot tomorrow. We will see how things go in a couple of days. I'll keep you all up to date because I know how comforting it is to see how other people are experiencing the TX's.
Glad to hear Buddy's ovaries were clear! Rest up and come back when you feel up to it. I don't thing a delay will hurt. I was told TX was given in cycles to hit each phase of the cell's life (rest, division, and something else) I'm sure your ONC will schedule things and all will be fine!
Take care ladies,
Chris
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My onc told me that I could floss as well, just lightly though and brush with a soft toothbrush.
Hope everyone is doing well.
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hi All, congrats to those who are departing the chemo train. I will stay on for a couple more stops. I just got home from tx 4- went smoothly, no reactions, I even slept a little thanks to the benedryl. On the way out I got to meet ccbaby who was there getting her Neulasta shot after her treatment yesterday. It was really cool to meet someone I met here in "real life"!
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My Onc said no flossing. However, since my 4 front teeth top & bottom aren't super tight against each other, I have been gently flossing those every couple of days. The molars get flossed when I feel like something may be caught.
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Congrats to all who are finished/about to finish. I am on the chemo wagon until September, so will be hanging out here for quite a while yet!
Buddy so glad you are back on the boards. You are in my thoughts.
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It was so great to meet you today too, Alyad! Sorry that you will have to wait a couple of extra days past the 3 weeks til next treatment.
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Buddy......glad to "see" you again...thanks for updating us and congrats on being benign!
Bunny..........where are you? I hope all is OK and you, too will check in to tell us you have been resting up!
Dayla.....Congrats on #4! Patti and I were just talking about how we can't wait for next week for our last chemo session.....weird looking forward to chemo. I think we all get to this point at the end of this train ride......I am not looking back as soon as I get out of that chair for the last time. I will get my nuelasta, fluids, and procrit BUT that is it. I am going to a birthday party day 3 and plan on resuming my life immediately. Of course I have to be on tamoxifen but I will take one day at a time with that, too.
sakura (Rachel)......we won't leave you behind.....we will be there with you to cheer you on until September!
Wishing all very few SE's and a wonderful rest of the week. It has been gloomy rainy here all week and our next nice day won't be till Sunday.
hugs
Diane
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Hello all, Its been awhile since I posted. I am having my 3rd AC this Friday. I have beenn feeling really good. I hope the 3rd is better than the first two. I felt a small bump on my stomach, the Dr. wants me to have a cat scan--nervous.
I just hope its nothing, the nurse said it feels like scar tissue. Hope everyone is doing great!!!
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Hi ladies. I have my 4th and final AC tomorrow, then in two weeks it's on to a whole new set of unknowns as I switch to weekly Taxol for 12 rounds. Since round 3 of the AC was a bit tougher for me than the first two in terms of fatigue and just generally feeling like crap for a longer period of time, I'm not looking forward to this one, but it's nice to know that it's the last of the AC. From what I'm told and have read, though Taxol comes with a whole new list of side effects and issues, the fatigue is not supposed to be as bad as what the Adriamycin does to you. Has anyone here made the transition from AC to Taxol?
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"Photo of the nurses with the pom poms. Next week I get the full celebration.I was told this today when went to get my neulasta shot.
Hi all,
How can I thank so many of you who gave me congratulations. It was a very strange nine weeks as it seemed to go so fast and slow at the same time. I remember talking with you all about loosing our hair. Who could imagine such a thing. Now we have a whole group of women with no hair. Remember MOB with her Mohawk, Gina with her brother and expecially Gina with her Sydney and her pink wig too. WE have been through so much together. Yes some of us are still on this journey but I am sure all feel that having a board like this to come to and chat about whatever we want helps us get thru this crap.
Buddy and your good news certainly made us feel so good. You were thought of on a daily basis by so many of us.
Wow Alyad actually met another board member CCBaby in real life. How does that feel. LOl.
I have tried to tell others what a great support this board has been for me.
I have two more regular oncologist visits in the next two weeks and then we will discuss..tamoxifin,Arimidex, femare etc. I go for a bone density test next week to get a baseline.I have also made two appt's with Plastic Surgeons for latismus Flap surgery to replace my breast which had three surgeries on it.
Then I guess I will go back to the Breast Surgeon who tell me how to preserve the breast I still have. I guess this journey will not be over so soon.
I do have hair question. I now have sort of white fuzz on my head. Should I shave it off in a while and hope that real hair will begin to grow on my head. Any ideas?
Gina...I just loved your celebration for us.
Ricki13- Such great family stories. Keep them coming...
Sakura..Yes we will be here to support you. We are going nowhere. In September your spring will be coming and our fall will be coming.
Once again..my love to all of you for listening. I sound a little Maudelin but I am going no where.
Hugs...to all.
Francine
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Francine! I love your attitude! You are right the support from this board is amazing!!! I am so happy for you! Stay on your side of the finish line and cheer us on!!!
Allayd and ccbaby! How great to meet a live person!
buddy! Keep talking to us it's so wonderful yo have you back!
ginagina! Love your celebration!
Good luck to all having tx! Dawn
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Once again, I'm finally caught up with posts ..... whew!
So glad Buddy is better and healing. Keep it up.
Hair - I go everywhere bald. I put a hat on outside just to protect head from the sun. Otherwise, my attitude is "if you don't want to see my bald head, then just look away".
Sex - Desire, or lack of it, doesn't matter. No partner.
Periods - Post-menopausal for 7 years .... yippee!!
Now for my update .... Took a few days off and did nothing but rest. Laid around the house in my pj's from Friday noon til Monday morning. TX this week was moved up to Monday, so got that done, then back to the couch. Felt really, really good yesterday all day.
Onco is worried that Herceptin is beginning to affect heart. She usually gets an echocardiogram every 3 months, but she's sending me for another after only 6 weeks. Blood pressure is "managed" but high for me, pulse rate is running high and short of breath. So I also have to see a pulmonologist on Friday.
I'm one of those people that is VERY aware of what's happening in my body, since my stroke several years ago. So I'm keeping check on BP and heart rate, and keeping all dr's informed. After last week's TX, BP was extremely high. Thought I was going to have to call EMS, but I finally got it down to acceptable levels.
So basically, I'm just resting as much as possible. Work has been great ..... my schedule has been adjusted so I don't have to work late any more and if I get too tired, I'm allowed to go home early.
Bunny
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Well bc officially "runs" in my family. My mom had a lump biopsyed last week and it came back ILC. She meets with an oncologist on the 28th. Prior to my diagnosis, we knew of no one in the family that had bc. This stuff sucks!
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