Any May 2009 Chemo Starters?

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  • LRM216
    LRM216 Member Posts: 2,115
    edited April 2009

    Hi to all:  I had my first AC today (1 of 4) and used my new port, which I really have hated since it was put in - it hurts), but was sure glad I had it.  I am getting to like it now.  Had it put in two days ago so it's still bruised and sore, but had no pain as they used it for labs, and then the adriamycin (for 15 minutes - a hand push) and then the Cytoxin (for a 1/2 hour done by drip).  Two other bags were infused prior to the AC, one was dexameth a something and the other ALonzi.  i took the Emend prior to getting there.  All went well - no bad reactions to anything and it's now 7 p.m. and still going good.  Mild headache at this point.  Held ice chips in mouth during the Adriamycin drip and no metallic taste.  Did it work?  I dunno - either did the onc nurse, but she said what the heck - try it.  Tomorrow - the real test - the Neulasta shot (ugh!)  I will take claritan before leaving the house for it and then tylenol for the rest of the day and claritan the next two days.  Geez - for someone who never took any pills - I am beginning to feel like a rocket scientist with all the pill taking assortments I now have!  Wish me luck - as I do for all of you.

    Linda

    P.S. Hope I'm not back on the boards at 4:30 a.m. wishing to die!!!!

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  • TN36
    TN36 Member Posts: 16
    edited May 2009

    TexasRose

    I am participating in the trial too. The one thing to remember about a port. The person drawing blood from it or accessing it, must be a trained person. I know this b/c I am a RN and I am one that can do this. I have been called down to the ER to access several ports during my days or nursing. I would love to have you as a friend on face book. You can look me up Shelley Algren, OHIO.

    I am starting chemo May 11, when do you start? I see you are trip neg too.

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  • TN36
    TN36 Member Posts: 16
    edited May 2009

    Hi LRM216

    What is the purpose to take CLARITAN for the neulasta shot? I haven't heard of this b4. Could you please share. And I am praying for you to continue with no chemo effects. I will be trying the emend too. I noticed you are trip neg too.

    SHELL

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  • LRM216
    LRM216 Member Posts: 2,115
    edited May 2009

    Hi TN - I was under the impression that if one took Tylenol all day for three days, it would help with all the side effects of the Nuelasta shot (according to my onc as well).  But as I read on and on, most of the gals either used their pain meds after the Neulasta shot, or many used Claritan before the shot with either advil or tylenol and Claritan for the second day after and the third and swore by it.  What the heck - obviously just the Tylenol doesn't seem to do it for a lot of us, so I am going to try the Claritan.  Also, another tip I picked up was to put the ice chips in your mouth at the beginning  of the Adriamycin push (if that's your drug) and I truly did not get the metallic taste everyone talks about.  Good luck.

    Linda 

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  • luvtheocean
    luvtheocean Member Posts: 87
    edited May 2009

    Looks like we are all going with something a little different for the wig!  I LOVE IT!  We may as well try something new and/or 'be someone else' in the middle of all this crap!  I'm curious Mimi, what do you have in your chemo bag?  I go Wednesday for my first round also of A/C and was thinking I should pack a bag.  All I have come up with is plenty of crushed ice, bottled water, cards, and a magazine, maybe my journal.  Anyone want to share what they have taken or are planning to take??

    GOOD LUCK MIMI and let me know how it goes!

    Becky

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  • TexasRose
    TexasRose Member Posts: 740
    edited May 2009

    Good morning!

    Linda- Thanks for sharing your experience. I'm glad to hear it went well for you with minimal side effects so far. Hope it stays that way!! The clinical trial nurse went over every possible side effect and what I could do to try and head them off and she told me about Claritan and Aleve. I'm planning on stocking up! I'm also planning on the ice chips during the infusion. What the heck? It can't hurt!

    Shell- How exactly do they access the port? No one has used mine yet so I have no clue how it's going to be. It hurt a lot for about two weeks after surgery. Thank God it finally calmed down and I barely know it's there now. I was dreading having it in after those first two weeks! I will send you a friend request on Facebook. Thanks! I don't know exactly when I am going to start chemo. They sent me home with the trial info and told me to study it over the weekend, make my decision on whether I want to participate or not or let them know Monday. I will need to get a MUGA scan. I've had the other tests already. I am four weeks out from surgery today and they would prefer I be six to eight weeks out, so it will probably be sometime in the next two weeks.

    My chemo will not be dose dense. I hope that my onc is right about that. He said he doesn't believe there is enough evidence to support that it works any better than the classical dose. That makes me a little nervous. Are all the other triple negs here doing dose dense?

    Becky- I have been thinking about packing a bag too. I just have no clue what I will put in it! I guess books and magazines are a good start. Definitely my hand held Yahtzee! I go nowhere that involves waiting without that!! I'll have to add some games to my iPhone I guess. Anything to pass the time. I will always have someone with me though. Either my husband, my sister or my mom. They have been so awesome about not letting me go through any of this alone. One of them is always with me and I appreciate that so much!  

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  • lassie11
    lassie11 Member Posts: 1,500
    edited May 2009

    Hi all - the MUGA was not really a problem except that it took a long time. There were three steps and some waiting between each of them. And then I went back to the hospital later the same day on the advice of the community care nurse who was on the phone on another matter. There is some numbness/tingling on my forearm below the PICC line. After yet some more waiting, I learned that was probably because the Dr who installed the PICC line hit a nerve doing so, it is like bruising the nerve and it is a not-to-worry item. That last bit is all I really needed,

    Meanwhile - I hadn't thought of it as a chemo bag - but on Monday when I go for the first one, I will bring a bag with lunch (because the nurse there said it would be a long day with all of the people I need to see), a good book, maybe my baby laptop with the bridge game in it and - an MP3 player that my daughter got and set up for me with two novels she knew I would like already to hear. The windows in the room where the deed is done look out on the bay here which is most peaceful. Aside from the entertainment, I will bring the little planner that I was given specifically for this  - it has all the necessary phone numbers and other numbers, dates of what happened when and a place for questions I want to ask near each visit. I put the questions in as they come to me and might even remember to look at it to ask the questions!

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  • camazur
    camazur Member Posts: 70
    edited May 2009

    Hello Ladies.  Am I too late to jump on this train?  I had my first infusion yesterday, April 30.  This is my second time doing chemo.  My signature is from my first dx.  14 months later I had my 2nd dx.  First time I had a lumpectomy and 6 rounds of TAC and radiation.  This time I had a double mast, no recon, and am getting Xeloda by pills and Navelbine by port.  I was 2 days from getting my port out when my mammo disclosed suspicious areas.  So I get to use it again!

    There is a website I'd like to mention that will send you a box of hats for free.  Its called heavenlyhats.com.

    I have a chocolate wrapper on my fridge that says,"If they can do it, you know you can."  It got me through my first chemo with my January Jewels, and I will keep it up as we go through this journey together.  Strength in numbers!  Glad to meet you all.  (That there are so many of us is so sad.)  Let's kick some cancer ass!

    Maz 

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  • Sukiann
    Sukiann Member Posts: 310
    edited May 2009

    Welcome Camazur.  Thanks for the website.  I'll check it out.  Love the saying on your fridge!

    Going for lab tests on monday for blood counts.  I hope I don't need the neulasta shot but at least I know about he claritan.  Love all this great tips.

    I packed a chemo bag, I had food, lots of water, magazines, books in it.  I didn't really use it because I was so busy talking, then recovering from my anaphalytic shock, then sleeping from the benadryl.  Good to have by my side just in case I got bored.  Of course you can always watch the daytime tv they have on!

    Lassie, can you explain MUGA - is it a clinical trial?  Sorry, I looked back at the posts but couldn't find an explanation.  Maybe it's chemo brain?  One treatment and I'm already mentally challenged!

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  • lemonjello
    lemonjello Member Posts: 75
    edited May 2009

    Starting Monday, one infusion every three weeks of T/C for three months.  My onco score didn't help much...my nagging fears about my grade 3 and the time that lapsed between my excisional biopsy and my lumpectomy....eight weeks...made me nervous.  I found my lump the day before Thanksgiving 2008, biopsied Jan 22, lumpectomy Mar 21, onco test April 7, results April 24, that's a lot of time for cancer cells to microinvade my bloodstream.  I chose to do the chemo...i must be nuts...but truth be told, i was never happy to skip the chemo...it nagged at me to do it.  Going shopping for my chemo prep list and will be busy loading my mp3 player tonight for listening while the drip goes in.  I hope we accomplish what we set out to do.  At least i have beautiful flowers to look at during the ride home.  It's Spring here in Western New York state, and it's pretty to look at.

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  • Burkiworks
    Burkiworks Member Posts: 18
    edited May 2009

    Hey girls,

    Had my first of four Taxotere chemos yesterday. Get them every three weeks. Taxol I finished up end of December didn't keep the old stinker at bay, so I'm back to it, ugh! But, I am always hopeful for an extension of life...I have too many art projects left to do and much writing, haha.

    My symtoms post chemo were light, thankfully. Slight headache, shakiness from the steroid Decadron, slight nausea, very tired (slept most of the day and all night last night, thank you very much!). Feeling kinda dizzy and spacey, but maybe that's just normal, haha.

     As some others have said, this is doable. After all, I'm not ready for the alternative yet, are you?

     Hang in there, girls. The oncology department normally gets the best nurses and they are truly caring and gentle. Mine have all be the sweetest.

     Love you all and pulling for you.

     Hugs,

    Joanne B.

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  • Burkiworks
    Burkiworks Member Posts: 18
    edited May 2009

    Sukiann, so sorry to hear of your calamity on chemo day. It must have scared you silly! Here's hoping they have a handle on getting that Benedryl in sooner and it does the trick, without the other problemes.

    Hang in there, sweetie.

    Hugs,

    Joanne B.

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  • lassie11
    lassie11 Member Posts: 1,500
    edited May 2009

    Sukiann - MUGA stands for something that has to do with testing the heart. It involves injecting radioactive stuff, the nurse does something about blood coming and going (I close my eyes and stay still) and then lying on two different things while pictures are taken. I assume it is to set a base line prior to chemo. 

    My chemo start date got moved ahead a week. They want me to  have a CAT scan before it starts which would have been this Mon; the CAT scan will be Wed. and they wanted me to start on Thurs. but I want to be sure to be well for a family wedding on Sat. and asked to defer til Mon.  They said yes! I am quite pleased as I no longer feel obliged to be well right after the first chemo and can feel however I feel.

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  • LRM216
    LRM216 Member Posts: 2,115
    edited May 2009

    Oops!  Tn, I meant to say aleve - not advil, with the Claritan.

    Linda

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  • Mimi50
    Mimi50 Member Posts: 13
    edited May 2009

    Hi Everyone,

    Well I had my first treatment and it went well.  The port is such a live safer.  Before I left, I put goops of the EMLA cream on it.  I only felt pressure, but no pain when they began the IV.  The Avistan made be relax and I slept through almost all of the treatment  (I did have a chemo bag with lots of things to do, but I did not use it). After returning home, I took the anti-nauseau medice prescribed to me.  My nurse told me to take on schedule for three days to avoid it.  She also told me to use the senekot for about threes days as well, because the A/C will cause diaharia.   I fell pretty good right now, sleepy, but that's it.  Let see how the next few days go.  I have job interview on the 8th of May so I do want to be past the bad stuff by then.

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  • deb6563
    deb6563 Member Posts: 179
    edited May 2009

    I had to go in for bloodwork today and my onc was in the hall and I asked her about the tylenol/claritin after nulasta.  She said she did not know about it, but assured me that it wouldn't hurt to try it.  She also told me that she had read post on this website and knows that I will get lots of good info on here.

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  • ajlive
    ajlive Member Posts: 134
    edited May 2009
    Hello everyone.  Do you mind if I join your group?  I was all set to start radiation treatments this coming Monday then had an appointment today with my medical oncologist and he wants me to have 4 treatments of chemo before I start radiation. Cry  I wasn't happy to hear that but guess he knows what is best.  He scheduled me to have my first chemo by IV on the 14th of this month with the rest 3 weeks apart.  He also scheduled me for a bone scan on the 5th. 
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  • lassie11
    lassie11 Member Posts: 1,500
    edited May 2009

    Hi ajlive - you are more than welcome here! Although I expect all of us would rather be elsewhere, if we have to do this, it is much better with others. I know what you mean about trusting the oncologist.  What are the choices? Get ready for all sorts of tests. My experience is that the phone rings and it is one more test to be done.All for good reasons, no doubt.

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  • sherrilynne
    sherrilynne Member Posts: 65
    edited May 2009

    Hi Ladies, I got my port on Thursday this week, was at the hospital at 11:00 a.m. and left at 6:00 p.m. had a lot of nausea at hospital and sick at home too.  I think they forgot the nausea medicine this time in my IV.  I have learned ladies from my mom ask every question, it's our health and we are paying for it, so ask so we know and write it down.  The hospital looked like a movie with all the mask for Swine Flu.  My first fushion was today Friday the day after I got the port.  The port is very sore and the nurse had to push on it pretty hard to find the place to insert the needle.  I learned through all this that the port is under the skin and that is why they spray the area or put cremes on the area to deaden it before they stick you with a needle.  I had two different medicine bags 1 hour each of treatment and then 1 bag of fluids.  They also had me take three little pills she said they were steriods before treatment.  They put me on Warafin also because of the port so you don't get blood clots, and I also took the anti-nausea medicine too.  I have taken so much medicine today my body is probably saying whats going on.  Anyway, it was not as bad as I thought.  The only thing is my doctor told me I was having 4 mths of treatments every 3 weeks with 1 week off which would have been 12 treatments.  I found out today that I'm having 4 mths of treatment yes, but only 1 time every 3 weeks --- that's a total of 4 treatments.  She said it's the same amount of treatment but only in 4.   That is great especially for work, but I wish he would have told me he changed the treatment schedule because I sincerely doubt I would have had the port for a total of 4 treatments.  That would have been 2 sticks per arm.  Now after all this I have to have the port taken out and it's surgery.  Oh well, my mom said you already have it so maybe it's for the best.  She's right I don't need something else to worry about and I only need good thoughts through this process.   But still I wouldn't have had the port,.....as you can see I'm still dealing with it.  I am so glad to get through the first one, and only 3 more to go and then Rads.   I know we can do this!!!!  I go and pick up my wig tomorrow.  Every once in a while my stomach feels funny and my ankles are hurting but really no symptoms yet to say.  I'm praying they just skip on by.  It's great hearing from everyone and their experience.   Everyone have a happy Saturday & Sunday!!!!! 

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  • Modray1481
    Modray1481 Member Posts: 4
    edited May 2009

    Hi Everyone,

    Well, I had my first treatment of ACT yesterday afternoon and so far feeling good.  I've stuck with taking my anti-naseau meds on schedule to stay on top of it -- also doing mouthwash of baking soda/sale mix to avoid mouthsores, or hoping anyway.

    My family and friends threw me a hat and scarf party earlier in the week and I'm all set with some wonderful hats and scarfs, plus a great blanket my kids made for me to bring with me to Chemo, and my sister got me a bag to bring with all sorts of things, games and word puzzles, books, snacks, water, lotion, chapstick.  My daughter and niece came with and we played games and laughed alot the whole time -- it went by fast!  Thanks to my wonderful company!!

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  • LRM216
    LRM216 Member Posts: 2,115
    edited May 2009

    Hi to all - just checking in to say hi and keep you posted.  It is day three since my A/C and one day after my Neulasta shot.  Although I have been fine, I think I overdid it on making sure I did not get constipated.  Did feel like I couldn't go well enough, so I took more Ducolax and two more Colace and then had spasms where I could not get off the toilet, so I think I went to far the other way.  Did need to take a compazine about 3 a.m., not sure if I was nauseous from the chemo or from all the loose bowel problems, but it went away.  Have so many pills for nauseau, i'm not sure how the heck to take them!  I have Zofran also.  Did take 1 immodium this a.m..  If I take a sip of water, it was coming right out.  I think the immodium is working.  NO PAIN whatsoever from the Neulasta shot.  Don't know if that's due to the Claritan and Aleve, but I feel just fine bone-wise.  Will keep taking that until tomorrow.  Feeling better now, no spasms of nausea and I think the immodium is kicking in.  Tonight, I'll probably be constipated again!!  Have a wonderful day to all of you.

    Hugs,

    Linda

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  • shadow38
    shadow38 Member Posts: 76
    edited May 2009

    Lots of great information here, ladies!  Thanks so much for the info on Claritan and Aleve.  I'm definitely giving that a try! 

    Thanks for the info on the combination of Dulcolax and Colace too, Linda.  I won't make that mistake thanks to you!! 

    I'm having a hard time with my prescriptions because of the way our prescription coverage is written.  It's really annoying and not something I need to deal with right now.  If I have to pay for the medication, then I will.  Whatever it takes.

    Thus far, they've given me scripts for the steriod I'll need the night before and morning of my tx, as well as scripts for Compazine and Zofran, although my prescription plan would only allow for 13 Zofran with one refill (then I need to mail away for it if I need it).  I can't figure out if that's going to be enough since I go for treatment every week for the Taxol and Herceptin with Carboplatin added in every 3rd week.  I guess I'll find out soon enough.  I go on Wednesday for my first treatment.  How often do you need to take the Zofran to keep the nausea at bay?

    I also have a script for 1 mg of Xanax since we found out the hard way that I can't take Ambien.  It made me crazy.  Kept me up all night and I was extremely jittery.  Apparently, the one of the additives in Ambien is similar to what is used in Decongestants and I can't take Decongestants for the same reason.  Weird, huh?   

    Don't know about you guys, but I'm really nervous right now.  I think the anticipation may be worse than the actual treatment.  My nerves are completely shot and I'm more boo-hooey than I was when I was first diagnosed!  I didn't think that was possible!!   

    Thanks to everyone for sharing their journey and providing great tips and information!  I hope we all get thru this with as few SE's as possible. 

    (((HUGS TO ALL)))

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  • anji111
    anji111 Member Posts: 65
    edited May 2009

    I am feeling just like you shadow38.  My doctor gave me xanax too, but I didn't feel very well when I took it.  The results from my chest x-ray, bone scan and abdominal ultrasound came back good.  What a relief!  I'm gathering all the information from the ladies here too.  I don't have too much to post yet but am trying to prepare myself.  I see the Onc next week.  I hope nothing was missed with the tests.  Thank God we are not alone with this.  My mom made a silly comment the other day after I told her I'd been to the Dr. to get something for my nerves.  She told me it was my age, (46 and pre-menopause), uh, yah, no kidding.  But, that's only part of it!  I wish she could be a little more sympathic or something.  Oh well.

    Wishing you all well with your treatments and I guess 'one day at a time' for those of us still waiting....

    Have an awesome day everyone, it gets better....... right?

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  • lassie11
    lassie11 Member Posts: 1,500
    edited May 2009

    hi all - I had a reprieve. Or perhaps I should say - yet another test has been ordered! yesterday while in the next town ordering a mastectomy bra and boob (my brave daughter was along) my cell phone rang and the doctor's office wants me to go for a CAT scan on Wed. The long and short of it is that I asked if chemo start was moved to Thurs, could it be pushed on to Monday so I could attend a long planned family wedding on the weekend. One phone call later, the answer was yes.  Yay. I don't mind what effects happen after that so am very happy. So now I have a week free with all my preparations done. Wig ordered, bra ordered, chemo bag ready to pack, freezer stocked, etc.

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  • sfritz
    sfritz Member Posts: 1
    edited May 2009

    I will start chemo on May 7th, so I am going to be joining this group. I have been lurking since I first discovered the lump in my right breast in mid Feb. I opted for a bilateral mast on Mar.20. Good thin I did because after the surgery they found precancerous cells in the left breast. The last thing I want is to repeat this. I have  learned a lot from everyone on here and thank you all for being here.I am to start T/C at every 3 weeks for 6 times.I did the per chemo training last week and wish I could say I'm ready but I only remember about half of what the PA said; he gave me a lot of notes,so I guess I better get reading. He did mention a shot to help with the weakened immune system, but I can't remember if it is supposed to be given one day before or after? Is anyone familiar with these shots? He also went into some detail about not eating at buffets? Know anything about this?

    By the way I live in Alaska which makes getting treatment a little difficult because the Doctors are all in Anchorage, a good 50 miles away but I am very impressed with both the BS and PS, I started reconstruction right at the same time of the Mast. The oncologist seems very good too, so I hope all goes well. I have been trying to work part time; but get too tired to work more that 4 hours. 

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  • LRM216
    LRM216 Member Posts: 2,115
    edited May 2009

    Hi to all:

    Shadow - I have all the same nausea meds - I was taking the Emend - day 1, day 2 and today the last.  I have Zofran and Compazine as well.  When I ran into my problem with using too much colace and ducolax,  I called the onc as I wasn't sure if I should try the immodium to clear up the mess I caused, and she asked me if I was also taking my Zofran and compazine and I said no, as I just took the 3rd Emend.  She said to go ahead and take the Zofran and then after it a compazine which I did and really had no further nausea.  I too am confused as to how and when to take these things.  I am getting the impression that we are to take them to keep a level of them in our systems during the days after chemo.  Wish they were a bit more informative as to how to take them.  Feeling pretty good right now - hope it continues.

    And to all others on this thread, keeping you in my thoughts and prayers that we all sail through this just fine!

    No pain from the Neulasta shot, so I have to thank the Claritan and the Aleve.

    Linda 

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  • HY66
    HY66 Member Posts: 7
    edited May 2009

    Thanks, Gramof!

    She was given the Emend tablets as specified by the manufacturer (1 on chemo day and 1 daily the next 2 days), at the same time she also has 5 days of one-a-day Kytril and 6 days of Dexamethasone (3,3,2,2,1,1 tabs). The triple-then-dual combo seems to have worked fine - no nausea since last Thursday when she had her first FEC infusion.   The hospital knew it was her first time so they arranged for a private room for her, and we had a great onco nurse who explained everything to us in detail - we arrived at 9.45am and left at 2.45pm so I reckon everything went quite smoothly.  

    She was actualy pretty good Fri and we went out for a while in the afternoon, Sat she felt fatigue and stayed in bed most of the day, Sun (today) she had less fatigue than Sat.  So far her tastebuds are OK but she doesn't have a great appetite - I have to nag her to eat.

    I have a question re antioxidant supplements that I posted in another section but realised I could seek opinions here as well from other women starting their chemo in May:

    We asked her onco about her antioxidant supplementats and he told us told to avoid them just on the actual day of chemo infusion; we also asked the onco nurse (with 13 years experience) for his opinion and he said definitely to avoid high-dose Vitamin C, but couldn't help us with the rest.

    The various articles I've found which say to avoid AntiOx supplementation don't specify whether they mean just the few days before and after the infusions, or the entire chemo course, which in this case is 18 weeks, followed by 6 weeks of Rads for a total of 24 weeks!

    I think she'll need the AntiOx supps to rebulid her health in-between the infusion days, so my questions are:

    Did you or didn't you avoid AntiOx supps?

    If yes, how long did you stay off them for?

    Were there any consequences either way i.e. with or without them?

    If any of you would like details of her supplements in order to help answer our question, these are what she's taking (and the websites list the contents of each)
    Ki by www.zentherapeutics.com.au,
    LivaTone Plus by www.cabothealth.com.au,
    Blueberry Punch by www.DrRed.com.au,
    Women's Ultivite by www.swisse.com.au (every other day)
    Flaxseed Oil + Cottage Cheese at breakfast (1 tbsp + 2 tbsp)
    Fish Oil Caps 1000g (2-3 daily)

    Many thanks in advance! 

    EH 

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  • sherrilynne
    sherrilynne Member Posts: 65
    edited May 2009

    I've been taking my nausea meds but don't really feel good, but not bad.  Can we take a tylenol or something?  I forgot to ask what is acceptable and I don't see it on my paperwork.  Also, does anyone have any idea on when hair will start to fall out?  My first treatment was on May 1, and my next is May 22.  Thanks friends!

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  • Mimi50
    Mimi50 Member Posts: 13
    edited May 2009

    Hi,

    Well today is day three.  I felt pretty good yesterday, however today I felt really crappy, just sick but not to the point of where I cannot function.  I have slept quite a bit today, but I am up a moving around.  If this is the worst of it , CAN BEAT IT!

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  • Sukiann
    Sukiann Member Posts: 310
    edited May 2009

    Hi ladies, day 6 after first treatment.  Yesterday I felt pretty good.  Still, no nausea!  The emend is great, took that for the first three days and haven't had to take any other meds for nausea - yet.  Side effects are, fatigue (huge for the first 4 days), headache today, yuck taste in mouth, and a kind of weird one that I started with yesterday - pimples.  I have a few on my head, one big one on my forehead, one on my leg (yes, in a hair follicle I think) and about 4 on my private area (those are killing me).  Anyone ever hear of this?  I'm going to ask on the taxotere and cytoxin thread since that is what I'm on.  Going for blood work tomorrow.  Hoping no to neulasta shot but at least I'll have the aleve and the claritan ready - in fact I think I'll take a claritan tomorrow before I go just in case. 

    Sherrilynne, yes to the tylenol - which is good because I have a headache!  no to aspirin products and I think no to advil too but check on that.

    HY66 - I was wondering about supplements to - like vitamins.  I stopped taking them but was wondering if I could start again.  I'll ask tomorrow.  I think some of them thin the blood and that is a no no.

    LRM216 -  oh  the bowel problems.  yes, I forgot to mention those.  first comes the constipation  then the diarrea.  I didn't use anything to combat the constipation, it went away and now I'm dealing with the diarrea!  This too shall pass.

    sfritz - welcome

    lassie11 - why did they order the cat scan?  are you having pain?  they didn't order one for me, should I have one - is this standard? 

     Good luck to all that are starting treatment this week.  Keep up the faith!  Kiss

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