Cost of Cancer

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idaho
idaho Member Posts: 1,187

I have been reading many posts especially about the cost of radiation.  How can some places charge $40,000 and some charge $8,000 for the same thing?  I guess it is happening in other treatments also- surgery, chemo, etc.  No wonder our insurances are so screwed up.  My surgery - lumpectomy-(5 hours in hospital) cost about $20,000.  It just makes me ill, that is almost a years wages for me.  What did other peoples surgery cost?  Tami

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  • deb6563
    deb6563 Member Posts: 179
    edited April 2009

    I haven't even started my chemo yet and already up to $40,000+  it is crazy how much this cost

  • cherneski
    cherneski Member Posts: 726
    edited May 2009

    My MRI cost approx $5300.00.  Each time I see a Dr. it is a $50,00 co pay. 

  • Hoolianama0508
    Hoolianama0508 Member Posts: 162
    edited May 2009

    my biopsy was $22,000; can't imagine what the surgery is going to amount too.

  • tkone
    tkone Member Posts: 511
    edited May 2009

    I nearly passed out when I got my first chemo bill for the first two rounds.  $55,000.00.  My first radiation treatment (set up, tattoos, etc) was $13,000.00.  Yipes!!!!  Thank goodness for good health insurance.

  • dlb823
    dlb823 Member Posts: 9,430
    edited May 2009

    My hospital (only) bill for my lumpectomy, which was done as an out-patient, was $43,000!!!  This was at a sizeable regional hospital in a resort area.  Ironically, my hospital (only) bill for a 4-night stay at a larger, university hospital where I had my mast.+ Diep 3 months later was only $40,000.  I haven't kept a running total, but I wouldn't be surprised if the grand total for those procedures + surgeons + tests like 2 MRI's & an MRI-guided biopsy + chemo & rads was somewhere around $250,000.  No wonder the cure is so "elusive."  This is big business.   In fact, I'd heard somewhere that each cancer patient (not sure if it was for bc or cancer in general) is worth approx. $850,000 to the medical establishment.  Deanna

  • Leia
    Leia Member Posts: 265
    edited May 2009

    For my 2006 2cm IDC, Stage 1, Grade 1, 0/3 nodes, ER+PR+ HER2- cancer the billed charge was $34,700. That was just for the biopsies/surgery. I did not have radiation or any other ancillary treatments. 

    In 2007, I had an abnormal mammogram on the other breast. Which proceeded from a stereotactic biopsy, to an MRI, to an excisional biopsy. All negative. Total cost for that, $25,000.

    In 2008, an off year! Just the $500 cost of the mammos.

    In 2009, another bad mammo/bad MRI on the X-Cancer breast. Resulting in an U/S guided biopsy. All negative. Total cost of that, $14,800. And they actually wanted to do another MRI-guided biopsy, not believing the pathology reports, but I prevailed, in the end. And didn't have it. That would have been probably another $8,000. 

    As a CPA, I'm just wondering what is going to happen when President Obama institutes his Universal Health Care. This is just not sustainable.  

    Is that much going to be saved with the electronic medical records? I don't think so.

    There's only so many MRI machines and techs and docs to read them. When you add $47,000,000 million people to the health care insurance, under Obama's plan, 1/2 of them, women, what happens then?  

    The answer is that we'll just all be getting, less treatments. 

  • GramE
    GramE Member Posts: 5,056
    edited May 2009

    I know that my Neulasta shots alone, 5 minutes to do it, were $ 6600 each (4 of them)...

  • KEW
    KEW Member Posts: 745
    edited May 2009

    Wow what variation.  I had a BLM and stayed in the hospital for two nights, ~43,000.00, BS ~ 7000.00, PS ~ 9000.00, .  My core biopsy was ~5,000.00.  I'm having my exchange and a hyster/ooph on Monday and expect to be in the hospital for about 3-4 nights.  Can't imagine what that bill will be.  It is really crazy, we need to scrap the whole system and start over.  I had a friend who became ill in France and spent two days in the hospital, had a ton of tests, and left with medicine.  When he was being discharged he asked for the bill and they said no charge, as an American he nearly fell over.  I don't want to get into a debate about where it is better and tax rates, etc., but it is clear our system isn't working, people shouldn't lose their houses because they have cancer, nor should people have to race back to work during treatment in fear of losing their jobs.  It is uncivilized in my opinion that money gets in the way of treatment for some and others are driven to bankruptcy.

    Best,

    Karen

    KEW

  • lexislove
    lexislove Member Posts: 2,645
    edited May 2009

    I don't even know how much everything cost. I'm interested to know. I'm in Canada and our healthcare is just covered by the government...we don't have insurance company's for that stuff. I didn't pay for any treatment and I don't pay for Lupron or Tamoxifen. I'm gonna ask my onc next visit. 

    No hospital here asks questions or turns anybody away ,if they are in need of medical attention. It's a one for all kinda thing...

  • jancie
    jancie Member Posts: 2,631
    edited May 2009

    Sentinel Lymph node biopsy - $5,500.00

    Mammogram $400.00

    Breast MRI - $4,000.00

    Chest X-rays $151.00

    Ultrasound/biopsy - $2300.00

    Chemo - each treatment $16,000  - estimated cost (8 treatments total)

    Emend  - each $300.00 (4 prescriptions total)

    Neulasta Shots - each $3,000.00 (Estimated - could be $6K - can't remember)

    I haven't even had surgery, radiation or reconstruction and I am already up to $89,551.00 not including all of my other prescriptions that I have to take.

    Fortunately I have great insurance so I only pay $30 for each chemo treatment, $22 for the Emend, I don't have to pay for the Neulasta Shots.  My co-pay for MRI's is $100   My sentinel lymph node biopsy was a $300 co-pay.

    When I have my surgery my bill will be around $300 for the co-pay.  I don't know about radiation but if I have to pay $30 for each visit then I will be out $750.  I am not sure what my reconstruction cost is going to be yet. 

  • Brenda_R
    Brenda_R Member Posts: 509
    edited May 2009

    Leia, I imagine they won't be allowed to charge such high rates in the first place.

    My insurance company has paid out over $200,000 to date for my cancer trearment.

    Now I am down to yearly mamms and yearly onc visits with blood work.

    The $200,000 is with some big provider discounts, otherwise the radiation alone would have been over that by itself.  I was very lucky to have good coverage and got help with my co-pays from a local cancer association.

  • nelia48
    nelia48 Member Posts: 539
    edited May 2009

    It is just mind boggling, isn't it?????

    Let me tell you my story:  I found my lump in my breast in 2001.  I didn't have any insurance and didn't have the money for all of the above costs.  Yes, maybe I could have swung it for the mammogram and MAYBE a biopsy.  But what was the use of doing that if I couldn't afford the first treatment, no less all the rest!!!!!  So I let it go for SEVEN years!!!!  The tumor grew larger and larger, and then broke through the skin with a very large, open sore.  I had to do something and I was sure I would die very soon.

    I went to the county health department, as I had heard they give free mammograms, etc.

    They did get me into a program for women with breast and cervical cancer.  This was in June of 2008!  By this time, the tumor was about 10cm in size, spread to my underarm and lymph nodes, and coming through the skin.

    I have no idea what the total cost of all this was.  But I feel sorry for all the women out there who do not know about this program.  I wish I could shout it from the roof tops!  There is help out there. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2009

    Hi Nelia48 - you just did tell many and I thank you for them.  Many new "friends" come here when they are scared because they have found/felt something and I'm certain many of them are also stressed about it because they don't have or have minimal health insurance.  So hopefully as they browse these boards they will see they can try and find help and not have to wait. 

    You've just shown how valuable these boards are. 

    Hugs!

  • KEW
    KEW Member Posts: 745
    edited May 2009

    nelia48--Wow, I am so sorry that you had to go through that experience.  I hope that you are receiving great care now.  I think it is criminal that anyone in this country has to think twice about going to the doctor because of money.  It is not a very positive way to care for one's fellow citizens. The lack of equity in health care (and education)  I think, are some of the greatest failings in our country. I hope that will change over time.  I'm grateful for my insurance, I have good insurance, I work for a medical university, nonetheless, I still had to take all the equity out of my car to pay bills.  By the time I've paid that  car off, I will have paid on my 2004 Toyota Corolla (I bought it new) for 9 1/2 years. 

    Karen

  • lisasayers
    lisasayers Member Posts: 850
    edited May 2009

    It is CRAZY what they charge!  I'm well over $200,000 and haven't seen the charges for the implant surgery yet.  I almost died when I saw the charge for the Neulasta shot...$6500.  However, that isn't what insurance pays!  They write off about half. BUT...if we don't have insurance, we are responsible for the full amount!  Totally MESSED up!

  • bluewillow
    bluewillow Member Posts: 779
    edited May 2009

    Yep, this is all criminal!  My Neulsasta shot was $6500 too, my chemos were $17,000, etc.  I work for our public school system here in North Carolina and am covered under the state employee insurance plan, but our state health plan is going broke and our deductible is going to double from $300 to $600 per person--  plus we are getting our salaries cut in order to bail out the State Government!  Breast cancer is depressing enough, without this mess!  I am very thankful to have a job and to have at least some kind of health insurance, but I feel that I am swimming upstream in trying to get ahead and pay off my medical bills.  And I realize I am not the only one-- I just hope our new administration can do something to help us!

    One thing I would love to know is this: does a doctor get a monetary "kick-back" for ordering imaging tests, such as CT, PET, bone scans, MRIs, etc.?  I am asking this because during my treatments, my doctor told me I wouldn't need any more scans unless I had symptoms, and then all of sudden at my post-tx visit when I had no symptoms, he up and says "we need to get you some more scans", which I refused, because I didn't want the stress and really don't think my insurance would have covered it anyway.  Makes me wonder if the cancer center and imaging center are feeling the effects of the bad economy and needed some more revenue...????  As you can tell, I'm not a very trusting person at times... Embarassed

  • idaho
    idaho Member Posts: 1,187
    edited May 2009

    I hear you bluewillow.  I have the not very popular idea that there is a better and cheaper way to combat cancer, but if it was made known hoo many hospitals and doctors would go out of business? Cancer is big business, and a big money maker. It is a crime that someone like Nelia48 had to let her cancer go for EIGHT years because she couldn't afford help!  It's not just us that is sick, our country is sick!  I can't believe the difference in costs from around the country. unbelievable!  Tami

  • deb6563
    deb6563 Member Posts: 179
    edited May 2009
    BlueWillow:  the doctors and hospitals do not get kickbacks.  There is an anti-kickback law that makes it illegal for the doctors to get compensation for doing test, etc.   I have worked in the medical field for 15 years is the reason I know this.
  • rosesinwinter
    rosesinwinter Member Posts: 70
    edited May 2009

    Blue Willow and Deb-

    I absolutely agree that physicians can not get kickbacks for testing. I work for a large dialysis company and we are required to go through extensive compliance training each year to avoid government fines for such behavior.  However, cancer physicians DO make money off of treatments that they administer at their own free-standing oncology unit. A pretty small local practice makes > $3 million yearly from chemo, EPO shots, iron infusions and Neulasta.  I asked one of the oncologists at a seminar that I attended about the FIN-HER study where women received only 9 weeks of Herceptin with their chemotherapy; he started ranting about how that was done in a socialist country and he was becoming quite angry about it.  Is it appropriate when your physicians are worried about making large amounts of money in a capitalistic medical economy?  It is interesting that many women no longer get EPO shots to build red blood cells after treatment because clinical studies showed higher mortality rates when that was done routinely.  EPO was/is a big money maker for Amgen and for oncologists.

  • deb6563
    deb6563 Member Posts: 179
    edited May 2009
    Thanks for the info roseinwinter  I was not aware of that.  Just go to show that you learn something new EVERY day.Smile
  • Leia
    Leia Member Posts: 265
    edited May 2009

    Well, unfortunately, the USofA's current medical system is designed to reimburse doctors/hospitals, for procedures. That's how everyone makes their $. 

    That's why the current med students/future docs are all going into specialities. Not primary care. 

    There's no $ to be made, in primary care. Why should they.

    But then, this discussion belongs on the "Alternative" thread. 

  • KEW
    KEW Member Posts: 745
    edited May 2009

    I don't think I understand why this "belongs" on the alternative thread.  That is about non-traditional treatments.  Most of the women here have IDC, this is the IDC forum, even if they have a different type of  bc they still have/had it,  and the reality of bc is the cost of treatment. 

    Karen 

  • mke
    mke Member Posts: 584
    edited May 2009

    I think the problem is not so much the reimbusement of doctors and hospitals, but the insurance companies.  The lack of these middle men is the reason that most countries manage to deliver similar health care for less.  Some years ago I watched a TV program about a hospital in Oregon with a similar patient mix to the one where I worked in Ontario.  We had a couple secretaries that did billing when it was necessary, the Oregon hospital had a whole separate building of billing clerks and of course the insurance companies had their whole phalanx of clerks too.  All those people need to get paid to move paper and the doctors need to submit that paper.

    I don't know most of my costs, but my Neulasta was about 2800/shot - not covered by the government plan but I have good drug insurance.  Tamoxifen was about 30/month.  I read a paper that said that herceptin was about 35,000 for a year's treatment.

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited May 2009

    After reading the posts above, I feel rather sheepish about posting what I've paid for treatments. I have Kaiser Permanente HMO. I would estimate (and I'm going to total my receipts one of these days) that I've paid less than $5,000 in copayments, total, for: multiple mammograms, biopsy, axillary node dissection, bilateral mastectomy, chemo port placement, genetic counseling and BRCA testing; three mastectomy bras and bilateral protheses; six rounds of TAC chemotherapy with all the best complementary drugs, including Neupogen; lab work; six weeks of radiation; two CT scans, a 3-phase liver study, and a full-body bone scan; chemo port removal; treatment for a staph infection; oophorectomy; EKG; tamoxifen; zometa infusions; port flushings; and all of the doctor visits that went with a year's worth of treatment. And not only was the price right, but 95% of the doctors, nurses, and technicians I had dealings with were absolutely wonderful, caring, well-trained professionals. My health insurance is completely paid for by my employer. I pay a $15 copayment for doctor visits, surgeries, and some procedures; prescription copayments are usually $5, but a few times I've paid $15. Believe me, it isn't lost on me that I'm very fortunate to have had access to the quality of care I've received.

  • bluewillow
    bluewillow Member Posts: 779
    edited May 2009

    Good Saturday morning to everyone,

    I have certainly enjoyed reading your posts here and have learned a lot.  Thank you, Deb and Janet for explaining the presence of the kick-back law.  I guess that was the logical explanation in my mind as to why all of a sudden my dr. wanted scans again (I had them at dx and all were clear).  I asked again at my check-up why my dr. ordered them, and the nurse danced around the subject and said something about because my tumor was node negative and then she diverted our conversation to something else...  Then I start wondering, did my dr. hope to find something so I would have to keep coming back for more visits and treatments?  Idaho, I totally agree with you that cancer is a huge industry.    That leads me to make another bold statement about my state health plan-- there are so many women that work in our school system that have been diagnosed with early stage bc in the last 2-3 years-- it's really creepy-- and while I was in chemo, my husband listened one day and later said that every woman in the room that day taking chemo had state health insurance.  BTW, it's ok if you all throw rotten tomatoes at me for my ramblings, but I firmly believe that money overrules compassion in so many instances now.  It is a pure shame that in our great country of the United States, every single person cannot have access to the health care they need, regardless of income or insurance, and feel like they are not being drained dry and put into financial ruin.

    Gonna hush now and get to my Saturday chores!  Take care, everyone and thanks for being here to listen.

  • KEW
    KEW Member Posts: 745
    edited May 2009

    Celtic Spirit-- I was a Kaiser user for more than 20 years and had both my kids while there.  It cost me 16.00 and 24.00 to have my children!

    Blue Willow--since my diagnosis in October I know five other women who've been diagnosed, it is creepy.

    Off to do chores as well.

    Have a great weekend ladies!

    Karen

  • vivre
    vivre Member Posts: 2,167
    edited May 2009

    Wow, this is an interesting discussion! The problem with our health care is the ridiculous costs. It is not just the middlemen as mke noted, it is the overcharges and the litigation. When I had my kids, 25 years ago, a 3 day stay in the hospital, and the deliver was about $1200.  I would hate to see what that is now. Why the increase? Because the hospitals have to cover their butts. They have to pay high insurance for all the lawsuits and they have to pay for all the people who do not have insurance and for all the illegals who walk in. At the same hospital where I had my kids, my friend is an OB nurse. She tells me that one out of 3 births there are to illegals. Why are they allowed to come here and have babies?

    It seems like there is a big difference in costs between states. Why does a rad treatment cost 5000 in one state and 20000 in another? We need to encourage competitive pricing. I also know that those of us who are insured get charged more, because our insurance will cover us. My friend recently took a visitor staying with her from another country to the ER for some stitches from a minor fall. The bill was $800! How ridiculous! They charged $100 for surgical supplies for 3 little stitches and $700 for walking in the door! We need to make all our hospitals non profit!

    As bad as it is, it could get worse. Socialized medicine will destroy us totally. Any time the government gets involved, the bureaucracy gets more and more expensive. And who wants health care decisions to be made by some health "czar" and not our doctors? We have way too many people to go to this system. We need to find a way to lower costs, and get everyone who is legal insured, and we need to keep the feds out of medicine. It may work in smaller countries, but in a country with a population like ours, it will mean a lot of people dying because they have to wait for care, or some fed thinks they are too old to deserve life support. It may be bad now, but it could be a lot worse.

    By the way, I was listening to a Canadian legislator last week. He said that one of the ministers who voted for the current Canadian health care system came to the US for treatments when she got breast cancer. Those who have the money will always be able to pay for the best care. Those who do not will die. A lot of great doctors come to the US to practice because they cannot make a living in socialist systems.

    Sure wish there was an easy answer.

  • Katalin
    Katalin Member Posts: 230
    edited May 2009

    Hiya,

    Belinda Stronach is the daughter of the Frank Stronach who runs Magna (ie rich rich rich)...yes she was a member of Parliament for a couple of years.  When she was diagnosed, she wanted immediate reconstruction, IMMEDIATELY,so she could continue acting in Parliament,  and so she was not willing to wait one tiny bit.  That's why she went South to LA for treatment.  Canadians have that option, though it's hard to pull off, because your costs are so much higher down there and we have to prove we cannot get the same treatment here in a timely manner.  I have a friend needing laparascopic surgery, and she is making arrangements now to have the thing done sooner in Michigan.  Do not think though that our system is so crummy or our physicians so hard-done by financially. It's sad that their payments are controlled, but the upside is that you don't have these wide variations in costs of procedures. Though we do lose practitioners to the States, we do have some upsides and for example, my DIEP surgeon moved from Sloan Kettering to Toronto to be at Princess Margaret...something we have going for us here is that we're not so litigious as they are in the states...Your physicians have to charge more to cover their astronomical malpractice insurance premiums which raises costs too. Everyone in my personal circle (5 friends/family/myself) who had cancer DX were into the best places for surgery, with choices of surgeons, within two weeks. There is zero discussion of who pays for what.  If it happens in a hospital, the gov't pays.  It's good to not have that financial pressure to consider, or wonder whether the best surgeon will take our insurance.  If you're not in a major centre, it's more difficult, but I think the same is true anywhere.  Our GP just recommends the best, (or the closest, or whatever) and if we can get there, we can have the best of the best.  Sometimes it's a wait for non-emergency surgeries, and we're working on reducing wait-times, but I think it's a good system. If we can't look after our own, in terms of basics like health care, I think it's a sad reflection on our basic humanity.  Your system is VERY complex right now, and it will be very hard to make changes, but it sounds like some good things are happening.  I just think it's incredibly sad that poor women have to have the additional stress of finding their way to treatment when they don't have coverage.  Now if we could just get national health coverage for EVERYONE for drugs...we'd be on our way!

  • nelia48
    nelia48 Member Posts: 539
    edited May 2009

    Wow!!!!!  This sure has been an enlightening discussion!  I remember sitting in one office months ago and a Canadian lady was sitting next to me.  She said she maintains a US residence so she can come here and get the free health care from the county health department.  Seems a little unfair, don't you think????

    My Cancer Center has their own PET, MRI, etc., equipment, so they are making their own profits from that.  Their PET Scan is in an 18 wheeler, and this goes to each of their branch offices 1 day a week.  I had all the scans at the beginning of BC, and then, after chemo and surgery, I had another PET scan.  I'm thinking it will be about time for him to order a whole new round of testing soon, as it will be a year next months since I started it all.  Will it ever end?

  • Brenda_R
    Brenda_R Member Posts: 509
    edited May 2009

    I don't want to get into a political discussion, but we already have "socialized" medicine.  Medicare, and it did very well by my Mom when she was so sick. Over 9 months of surgeries and hospitalizations. Home health care, etc. 

    There are limits, but those are in every insurance company. 

    I'll find out soon. I start on Medicare in June. 

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