How important is liking the oncologist's nurse?
Greetings! I'm in the midst of choosing an oncologist for treatment of my IDC, and am wondering how much I should take into consideration how I feel about the nurses involved. One of the oncologists I like very much so far, but I really haven't liked my interactions with his nurses -- they've made me feel like a pest when I call about test results or want copies of reports, etc. But maybe once I'm done with this initial treatment, I won't have much interaction with them, and so it won't matter? And maybe the nurses will change over time anyway?
For those who are further along in treatment, how much do you interact with the nurse(s) and how important do you find that relationship/connection? In general, I value the nursing role very much, and have always found my relationship with a nurse just as important to me as the one with the doc. But in this case, should I let it interfere with my decision about the oncologist? It's going to be a long-term relationship (I hope...I'm 42), so it feels like a big decision, and one I'd hate to make based on short-term impressions of a nurse. On the other hand..
Agh, I'd love to hear from this wonderful group! Thanks very much.
Comments
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I am finished treatment but to me, it helped in my view to be around nurses that were sensitive to my needs. Having cancer is a bear enough without the added work of dealing with indifference, most importantly from the medical staff that is helping to provide the treatment.
Sensitivity is a right when dealing with the public even if some nurses don't bring out the 'warm and fuzzy' in us. If there are other nurses on site that you like, ask to see if your treatments can revolve around their schedule. If not, it can't hurt to ask or speak with the doctor regarding the manner you're being handled.
Unless asking for your medical records are a crime, I don't believe you should be treated like a crimminal for asking for routine documents. Those records document what a new doctor would need to see if you were to relocate, so someone will have to get over it. Perferably them.
Either that or bring coffee; sometimes java in everyone's system helps one get through the day.
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This is just a pet peeve of mine....Are you sure that the person you are speaking to on the phone is a "Nurse " ? Usually when you call ..an office person is usually the one you speak to...as an RN, I detest it when people say the "Nurse " did such and such..when in actuality it was a person trained to work in the office not an actual LPN or RN...Don't get me wrong if it was a nurse..speak to your physician at your next visit and tell him/her...I can be quite critical of my profession if they don't act professional...so I am not making excuses. There is no excuse for a patient to be treated in the manner in which you speak.....
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Yep, I'm sure they're both RNs. I have their cards from the initial visit with their titles, degrees, etc., and remember checking that that's who I was speaking with on the phone, too (I got the office person first, but they left a message with these nurses, who called me back with whatever info, etc.).
And it's not that they weren't professional; they were. I think it's more a "fit" issue above all; I just don't feel at ease and supported in the way I have in other settings, and I'm really wanting that in this relationship. But I also wonder if I'm being oversensitive, and also if I'm judging them soon too and on too little info!
I need to make the decision soon, and at this point hoping that I like oncologist #2 as much as #1 and that #2 has a nurse team I like, too, so I can avoid this issue altogether!
Thanks for the quick replies!
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In the setting I'm in I talk to and see the nurse practioner and the nurses more then the Onc
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seagan, you aren't going to want to hear this. I love my onco, and wouldn't trade her for the world ... but it was her nurse I talked to during chemo, more than anyone else. She was the one I was supposed to ask for, if I called the clinic switchboard. She was the one who called me back when I had questions about my latest chemo SE. She was the one who relayed my questions to my onco if she could not answer them herself. (Usually, she could.) She was always kind, patient, and understanding, as well as knowledgeable.
I wasn't too thrilled with the other people in the clinic office. The receptionists were okay, but they dropped the ball sometimes (like the one who was supposed to schedule my DEXA bone density scan and forgot to call to tell me what day to show up). Even the other "floor" (?) nurses--the ones who took BP and other vitals at each office visit--weren't always warm and fuzzy.
But my onco's own nurse was extraordinary. She was very busy, and I did not see her personally at every onco visit. But she always took the time to come over and say hi when she saw me. She would volunteer to track down paperwork, including copies of medical reports, whenever I would ask about them. She double-checked treatment or appointment dates, if I had any doubts. And, although she wasn't a chemo (infusion) nurse, she was in the infusion room on my last day of chemo, so she got to participate in the traditional "Last Day of Chemo" song and dance.
At my last follow-up, which was 8 months after finising chemo, she saw me at the cashier's window and came over to say hi. She grinned really big, and exclaimed, "You've got HAIR!!!".
OTOH, while your comfort and sanity might depend on your onco's nurse, your life and health depend more on the credentials and relationship you have with your onco.
otter
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If you are going to have chemo, the nurses are very important to your care. Where I went, the oncologist deals with fighting the cancer, issues of life and death or serious long term side effects. For example, it was the onc who looked at my blood test results before each chemo to decide if my body could handle the next one or if the doses needed to be adjusted. The nurses were in charge of dealt with quality-of-life-during-chemo side effects and they were much more knowledable about how to handle a bothersome side effect. There was a nurse chemo advice line to call if I had side effect problems. If you hesitate to call the nurses because of lack of comfort with them when you have a side effect, that could be a problem. I would say that talking about my care was split about 50/50 between the onc and the nurses.
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Interestingly enough, in the Spring Edition of Women and Cancer there is a wonderful article Uncommon Bonds: Oncology Nurses and Patients.
I feel for me, my relationship with my chemo nurse, Lynn, and the onc's other nurse, Alexis (who I dubbed "Sexy Lexie" and she dubbed me "NOT plain Jane" made a huge difference in my entire experience with my onc's office, my chemo, my questions, my scheduling of tests, prescriptions, etc. Those ladies really gave me a feeling that they cared about me, wanted to assist with any problems, and I was free to call or e-mail them (which I find so much easier instead of playing phone tag) at any time when I needed them.
I just cannot imagine having gone through that all with out their support and care.
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I think it is extremely important that you feel comfortable with your oncologist and his staff. I can relate to how you are feeling.
The first person I ever saw at the surgeon's office was his receptionist and she was just unpleasant. I sat their stunned at how she could be working at a Cancer Institute at all? I found my oncologist's office slightly better. They just seemed to be worked off their feet.
If you truly feel comfortable with your oncologist, then maybe give the nurses a second chance. Perhaps they had a bad experience prior to your arriving.
The next time you go there, try sending "love ahead" to them in your mind. Sometimes that can clear the air and when you walk in, everyone is pleasant. It doesn't always work but it helps to relax me at least.
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I agree with Hool.... if you like the Oncologist then give the nurses a second chance. Usually the nurses who work Oncologoy are really nice.
However they are all really busy, plus it's a bit of a high pressure job as you've got to be CERTAIN that the folks in their chairs are doing OK. You have to be moving bags around, monitoring side effects, queuing up the next thing. Then you've got to be lining up tomorrow's chair folks - have their drugs been ordered properly, did they come in for their blood work.....
I think I might give someone who was short with me on the phone a break, because they're pretty busy with today's customers.
That said, have you found out what the protocol in the office is? Our place had a nurse-supervisor and then the Onc nurses. The supervisor was often helpful. The LPN or receptionist answered the phone and she was helpful within her scope, which was limited.
Sometimes it helps to know what their hours are and what days they're really busy so you can avoid those days. Perhaps they can tell you a good time to call in with low-priority requests -yes, in an Oncologist office asking for copies of tests is low-priority for a phone call as compared with people with side-effects, complications, crisis.... Maybe if you can establish how that office likes to handle paperwork and other things you can feel better about their service.
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The hospital where I had most of my treatments recently went through a sensitivity training program. Everyone from the janitors and clerks to the nurses, technicians and physicians is nice and pleasant and caring which makes patients feel comfortable and a little less anxious. I really notice the difference when I am at other medical institutions. Wouldn't it be wonderful, if all medical personnel had to go through sensitivity training!
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I think the nurses in the oncologist office are EXTREMELY important - you'll be seeing them more than the oncologist himself!
I loved my first oncologist - he was compassionate and had a sense of humor. However, his nurse practitioner (who was also my infusion nurse) had an "edge" or attitude that I didn't like at all. She joked at my expense and more importantly, didn't follow through on my onc's instructions - she worked with him for so many years, I think she thought SHE had all the answers and didn't always check with him. Because of this (and a sign in her office that read "pull up your big girl panties and DEAL with it") and because of the distance to travel to their office every two weeks for an entire year, I decided to switch to an oncologist closer to my house. I LOVE the nurses there (even though the onc himself doesn't have much personality) - especially my infusion nurse who is always kind and respectful and on top of all my paperwork.
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There is a special place in heaven for oncology nurses.
I agree with many of the others. The oncology nurses are the ones that you will interact with most during your treatment. They will be your counselor, cheerleader, and the warm comforting hug when you need one.
I couldn't have made it without Peggy and Sheri here in Florida and Patty in Maryland (received herceptin during visits to my daughter).
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Although it would be exceedinly helpful and reassuring to like the Onc. nurse, the dr. is more important. He/she will plan your treatment to fight the cancer. My b/c surgeon had a really strange unfeeling nurse. It made a frightening situation worse, but I knew the time spent with the surgeon is less than with the onc. You will want to be somewhere where you feel nurtured. However, if your onc. is the best one in your area you may need to prioritize. If you stay there, as hard as it is, you could heighten the nurses' awareness. Call them out on their behavior. Do it in a way where you say something to the effect of, have I done something to offend you? You are a strong, intelligent woman and you absolutely can speak up for yourself. You need it and deserve it. We are breast cancer survivors. We are strong and articulate, we know what we deserve. If this helps, remember that you may also be helping the other patients! Speak up!
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Tell your doctor you don't like the way his/her staff has been treating you. Ask for a different nurse. I have had issues with some nurses and told my doctor I would not deal with them. I feel we are going through enough, we don't need to deal with crabby staff. Be your own advocate.
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