Has anyone started a forum for Chemo in Dec 2008?

Good morning Divas. Sign me up too for the reunion and I'll even offer to push anyone in a wheel chair, I'll only be 50

Good for yoy simvog, putting your foot down and getting that port out of your body!

Busqueen congrats on the new job

Firni How did the port removal go? It was yesterday, right? The dent didn't stay very long, it's already gone. I'm suspecting it to be due to some mild swelling though.

I'm up for a 16 year NED reunion.  I'll be 69 but don't plan on being in a wheelchair!!

 My port comes out today at noon.  I'll get back on later and let you know how that went.  I do know someone from the hospital called last night at 7:00 to remind me of my $500 co-pay.  How nice of them.  I did have to have a blood draw yesterday to see if the Tamoxifen will work for me so it was nice to still have the port for that.  But I am ready for it to be gone. 

Hello All I have not posted in a while.  I hope everyone had a nice holiday.  I have been feeling pretty well.  Still very tired.  I don't know if it is the Tamoxifen or not.  Since I was on CMF I didn't loose my hair like most of you.  It just thinned out a lot.  But my last chemo was in Feb. and lately I seem to find more of my hair everywhere.  I have only noticed these SE's from the Tamoxifen my hair, still tired and sometimes I feel achy like my joints in my arms and legs hurt.  I will see the BS on the 29th.  It will have been 6 mths. since my surgery.  Sometimes I can't believe that it was already 6 mths.  You can definitely count me in for the reunion.  I will be 63 and my daughter will be 29 and son 27.  That seems very scary!!!!  It seems that everyone is doing pretty well and keeping very busy.  Have a great weekend.  The weather in NY is suppose to be like Spring!!!!  Yea!!!!!

Colleen

OK, I'm just plain angry right now! My MIL called this morning, her good friend celebrate her 5 y. anniversary of being cancer free last month. Well, she went in for some testing, they found 3 large tumors and they're 99% positive of it being uterine & ovarian cancer She'll get the results later today. They're thinking chemo before surgery I'm just plain mad & angry at cancer right now. And my port MIL has had a rough time dealing with cancer with me for the past 6 months, now that I'm finally reaching the end of my journey, she has to start it all over again with her friend Cancer sucks!

Caroline, that is terrible news.  Cancer does suck and it seems if it isn't us, it's someone else we know.  Do you know if your MIL's friend has been taking Tamoxifen or some AI for the past 5 years?  It seems that reproductive organ cancer is a SE of those lovely drugs.

Good to hear from you Busqueen.   Keep in touch!

Good luck Firni & Elaine on your port removals!  I can't wait to get mine out. 

Caroline - I am so sorry for you, your MIL and her friend!  Cancer seems to hit us from every angle!  My prayers go out to you!

Elaine - how are your rads going?  Are you somewhat close to being finished?  I can't remember when you started.

Speaking of hair, my eyelashes are crazy!  I have about 1/2 of my eyelashes.  What is weird is they are gone on the inner eye but the outer lashes are still there.  I feel so ugly.  Gained 20 lbs during chemo, bald, no boobs and now the eyelashes.  Oh well in time all of this will change.

As far as the NEDs reunion in 16 years, I can help push too!  I'll only be 58. 

Have a great day ladies!

Sonia

Zumba Gold! LOL! That should be a sight

Thanks Divas, still waiting to hear the final results. No idea about tamox or AI.

Zumba Gold what a hoot!  I need that now!  I don't have to wait the 16 yrs!

Good to hear that you are half way through rads and you doing ok. 

I tried to curl the lashes I have remaining before I put on my mascarra but the just stick straight out.  The hair on my head started doing squirley things right before it fell out.  I'm praying these stubs stay intact.  I know I look like a 8 yr old who got into mom's makeup but it's better than me going a la natural!

Lisa, we will be celebrating at the same time!  My bday is the 12th and my last rad is the 13th.  I might have a glass of wine that week! woohoo!

Lisa, Elaine and I will be celebrating birthdays for 3 days in a row next month.  I'll be 62 on May 11th, so someone will need to push me in that wheelchair at the reunion because I'll be OLD!  Zumba Gold from the chair should be just about perfect for me! 

Caroline -- I'm so sorry about your MIL's friend.  Cancer really does suck!

I am just getting over the worst case of food poisoning -- got REALLY sick Sunday night, spent Monday evening in the ER getting fluids and Zofran and am still not able to eat more than dry toast and plain noodles.  At least I'm on the upside, but haven't even had time to enjoy my new foob because I've felt crummy all but a couple of days since the surgery.  Rads simulation is in a week with rads starting the 27th.  No nail problems so far, lashes and brows are pitifully thin and hair on my head is filling in and starting to grow a little.

Do any of you have discomfort in your "bad" arm?  Mine hurts where it bends at the elbow and wrist and the top of my hand swells a little at times -- I expect it has something to do with the lack of nodes on that side.

~Bonnie

Bonnie,  Food poisoning is the worst.  I'm sorry you haven't been able to enjoy the results of your exchange surgery but I'm glad you're on the upswing.

I've had swelling in my node side hand since the beginning of Dec.  Onc is sure it's from chemo and I'm not so sure. I think it's lymphedema.  He said if it's still swollen a month out from chemo he'd send me to a therapist.  I don't have any pain in my hand or wrist, but my fingertips are painful with pressure.  I do still have edema from chemo in my feet and ankles so I'll wait till that is gone before I go back to onc for a referral. 

Hey ladies...we actually do teach Zumba gold for people in chairs!!!!  I'm serious. 

Swest...you can find our basic four set DVDs on Ebay...that is how I got started! 

Bonnie...sorry about the food poisoning!   Keep an eye on your arm!  When mine started feeling that way I ended up with lymphangitis.  Gently massage your arm, moving toward your heart...that will help!  Gentle stretching will help as well!  But if it gets worse or turns red...see the doctor! 

Sounds like May is going to be birthday month! 

I worked my Zumba class really good tonight...I had even more energy than usual.  Started my 7 day detox yesterday and it is working!  I had five pounds still hanging on from chemo and all the steroids, meds.  After one day of the detox...I lost 3 pounds!!!! 

Okay, my bed is calling my name!  Hugs to all! 

Make it a great Friday!

Bobcat, remind me again how far out you are from your last treatment?  I kept shaving mine for about a month after my last treatment and then finally decided to let it grow in.  Seems to be doing fine...you can't really see it on my photo.  It is coming in faster now.  For a while it seemed like it was "stuck", but it is growing!

I'll pm you about the detox.

The sun is shining today...it's going to be a fabulous day!!!!!!!!!!!  Hugs to all!

Oh no Texas!  That sounds awful!  Is it infected?  What can you do for them?  I am so sorry!

Thanks Lisa, I will check into these DVDs.

Firni - I heard on the news this morning you are getting pounded with snow.  Are you all right?  Isn't it spring time???????

Bobbi - It took my hair a good 6 weeks after chemo to see any significant growth.  It is still really short but I'm getting a lot of coverage now.  I need to trim the white hairs that did not fall out during chemo.  They are getting scraggly looking.

Hi swest.  Yes it is spring.  And snow is what it does during the spring in CO.  March and April are our snowiest months.  So far where I am in north Denver, we have about an inch of slush.  But it's still 33 degrees.  As it gets colder today, more snow will stick until we have 10-22 inches by tomorrow night.  At least it melts fast.  By Tues. it should be in the 70s again.  I did get the grocery shopping done so now we're ready to stay in and enjoy the snow.

Texas, Yuk.  I can't believe what a hard time you're having.  When will it stop??  What more could go wrong?  Didn't the Dr. want to take that nail off?  I sure hope the antibiotic keeps the infection from spreading to the rest of your nails.