New lump!
Hi Ladies,
This forum kept me going in March of 2006 when I first started treatment (changed email and lost user name). I'm a stay at home mom and wife of an active duty Air Force dentist. I just found a small lump just above my breast. I have my scan tomorrow and an appointment with the surgeon on April 21st. Thirteen days after the scan! How am I going to make it 13 days without knowing what is going on? I had a hard enough time waiting the 8 days for the scan.
I've walked this path before and I thought it would be easier the second time around. Not so, I'm freaking out more! I didn't know with my first treatment in 2006 that I was TN. They just told me that I had a very aggressive form of cancer. I thought that meant fast growing. Still didn't put two and two together when the clinic wanted me to take a BRAC test...came back negative! Anyway, I didn't put two and two together until I read a local magazine the other day, about a mom that passed away from TN. I thought to myself ....what is that? I've never heard of TN Breast Cancer but some of the language sounded familar. I got out my records and looked up everything and just about hit my knees! Now, I've read so much stuff and I'm a nervous wreak. Why didn't anyone call it TN in 2006?
If the cancer is back, do they use the same drugs? I'm having a really hard time relaxing and sleeping at night is just not happening.
Comments
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Debra
My mother also a Deb was diagnosed in 06 as well. She had no node involvement and the Dr's felt they caught it early and she would be great! We were unaware at the time that she was TN as well. She was rediagnosed with cancer again in November of 08. We of course were devistated. We did re-search the first time around but were not aware of the TN prognosis since we did not know she was TN. I think she was on Taxol the first time (4 treatments and then 36 rads). With her second round she was on Taxotere and has just recently been switched to Gemzar. She does take the Avastin along with the chemo and Zometa. Her cancer has spread unfortunatlely to her lungs, chest cavity, liver and bones. She did have a bout with depression and most recently was hospitalized with fluid in the chest cavity. Since her release she is doing much better. You need to go at this with your horns out and fight this beast. You can do this.
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Hi Debra,
I have had this come back and it is an awful blow to the tummy. I hope they find that your lump is nothing. It is really such a raw emotional thing to even fear it is back. Many women use a mild sedative and/or anti-depressant.
Try to stay busy, focus on today, this hour. I know it is hard because your mind is racing.
They've only recently been actually coming out and saying TN and still some Oncs do not which is a horrible disservice to the patient.
They do have some chemo they think might work better, the platin drugs but many women are still getting the same ACT chemo.
Why don't you call and asked to be on a list in case there is an opening sooner. That you are very anxious and need to see the doctor right away?
Also you might come over and check out http://www.tnbcfoundation.org
This is a new non-profit organization, our first and they are doing a remarkable job bringing
awareness to this disease. They also have a terrifc forum specifically for TNBC.
Let us know how you are doing. Vent my dear, we understand.
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Deb
Is yours this time a new primary or a recurrence? Is it in the same breast? Usually the second time they cannot use the same drug they did first time. What was your first time treatment? Did you get a mast. or lumpectumy?
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Sorry you had to join us again and with a husband in active duty. First off let me thank you and your family for serving our great country. (A feel the whole family service not just the soldiers) Are you in the US or overseas? More than likely they will not treat you again with the same chemos. Only reason they might it has been three years. I would not take them again just for that reason. What were your first chemos and what kind of surgery did you have? Remember we have learn more about TN in just the last couple of years.
It really will depend on your stage again on what your treatment will be. But they will definitely treat you aggressively. Have they told you for sure that you are still TN. You could come back a different receptor. I just had a friend have this happen. Make sure they do the FISH test before your appt.
I hate you are waiting this long. Have you really pushed to get in more quickly? With you already having bc, normally they move a little faster. I would call and remind them you having a recurrence and possibly TN.
Sending prayers your way...
Flalady
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Thanks everyone for all the great replies...it really helps when you are down and out. After reading all the posts, I realized I don't know much about what type of cancer I had/have..so I got out my records. This is all foreign to me, so I will just type as shown in my records.
Primary tumor 2cm, ER-neg. PR-neg, and Her2/neu 2+borerline but FISH negative. Underwent a lumpectomy with axillary node dissection with 21 nodes removed, all negative .
Treatment adjuvant chemo Adriamycin, and cyclophosphamide every 21 days four cycles, followed by Taxol at 175 mg total dose 300mg again four cycles every 21 days. Rads Oct.5-Nov.28th for total of 6660 centigray. BRAC I and II neg. Found something else...Nuclear grade III
Wow, that's a lot of junk and I made it!
Today, I'm waiting around the house feeling sorry for myself.....scan tomorrow morning.
This is the way the military works...... made appointment for scan and to see the surgeon. Get scan, get another appointment for needle biop, sit around and wait again for appointment on the 21st.
If the scan doesn't look good, I will call or walk my butt down to the clinic and see if they can get me in sooner. However, they said it will take about 7 days for the labs to come back. I guess there is no reason to meet with the surgeon until they have a game plan.
I sure am glad that I had copies of my records at the house. With a change of duty station....Tampa, FL to Fairfield CA, they make you hand carry a copy with you.
Can't believe I just found out last week about being TN!
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Debra:
I've had triple neg cancer twice. Part of the reason they call it aggressive is that it grows pretty quickly, faster than most other types of breast cancer. That makes it a Grade III, not to be confused with "stages," which are completely different. (Stage 4 means mets.)
It looks like your first tumor was found fairly early, since it was only 2 cm. Keep in mind that you don't know if your lump is cancer. It could be something else that's much less scary.
If it's cancer and in the same breast as last time, I think they call that a recurrance, Mine was in my other breast, and they decided it was a brand-new tumor unrelated to my first one. In those types of cases, they call it a "second primary."
As long as you don't have any tumors far away from your breasts, you do NOT have mets.
In 2005, I had four dose-dense ACs followed by four Taxol treatments. Yours were every three weeks. Mine were every two weeks. They rarely have you do Adriamycin (sp?) more than once because it can be hard on your heart. In 2007, I had weekly Taxol/carboplatin.
There are some women who initially have had hormone-positive tumors and then their second tumors (years later) turn out to be triple negative. And the reverse occurs, too. So *if* your lump is cancer, it might be hormone positive, so they'd recommend a different treatment plan.
I honestly think the waiting around for tests and test results is the hardest thing about dealing with all this. Two phrases that have helped me a little are:
"You need good information to make good decisions, and this test will give me information."
"Until I hear differently, I'm still doing OK."
That lump could be a cyst. Are you having an ultrasound? They may use the ultrasound to help them guide a needle to it to try to suck some fluid out for testing. For me, that type of test didn't hurt any worse than an injection, and I'm a pretty big baby about needles!
If you're still very anxious and having trouble sleeping, call your family doctor and ask for a prescription of generic Ativan. It can be addictive with long-term use, but it will calm you right down. You just need a little help to get through these next few weeks.
Hang in there. I'm thinking about you.
--CindyMN
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A 'recurrence" is the same receptor no matter where it is located when it returns. New "primary" is if the cancer has a new receptor or a different kind of bc.
Flalady
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OK, good to know.
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Hi Debra,
My mom has the almost-exact same dx time and waiting time as yours. She had her first bc in mid 06, and then she felt a soft lump above her breast below the collarbone on the same side where the 1st bc was. When I knew about it, it was already three months after she noticed it, and it was about egg size visually. The whole referral process from onc to surgeon then back to onc is the same here in Kaiser SF. It takes about 3 weeks from primary doctor's referral to the first needle biopsy report came out. Then it takes another 3 weeks from second needle biopsy (they didn't get enough sample from the first biopsy) to PET scan to being contacted by the onc. It was one week before Thanksgiving, and my mom is still doing perfectly fine although still having treatment.
TN grows fast, but perhaps it doesn't justify how much damage it can make. As long as you don't feel any pain or discomfort physically, let your mind calm down and relax. I understand how it feels while waiting. Hang in there! The result can come back negative.
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I had TN, grade 3 on 3 measures, 9 of 9 on invasivness diagn 9-07 with mastectomy 10-07 and chemo TC four dense doses (3 weeks apart). I now have a couple of sore places and lumps. One doesn't show on a digital mammogram (had it yesterday) or ultra sound. The smaller one..very sore as well...showed up as clear and the radiologist thinks it is a cyst. I am concerned as the only reason my original cancer was found was the pain and soreness! No one could feel them and it only was confirmed via ultrasound. Anyone else have that experience? I see my onc on the 8th of May and in the meantime she is sending the results to my surgeon for his opinion.
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I with you Mimsi I've been able to feel my disease recurrences because of pain and soreness long before the tumor shows up. Don't give up until you feel comfortable about their answers to what is going on. I hope that this is really just a B9 bump.
Flalady
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I think recurrence means it is from the orignal same tumor. I knew some women had same receptor tumor in different breasts and that is considered a new primary. One can develop same type of breast cancer at different time zone.
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Anytime the same receptor disease returns it is a recurrence. Talk to anyone who is stage IV 95% is a recurrence of the same disease. Why would movement change it to a new primary? Our disease is labeled by receptor not location.
Flalady
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Well, I'll have to ask my onc the next time I see her. In my head, I figured that my body could produce a new tumor of the same flavor as the first one, without the "seed cells" necessarily coming from my old tumor. So, to me, that would technically be a new primary.
Not that it really matters, though. I think the treatment would be the same.
--CindyMN
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When cancer returns: How to cope with cancer recurrence
Use lessons from your initial treatment to give you confidence and strength as you face the anger and fear that comes with a cancer recurrence. By Mayo Clinic staff Your cancer is back, and so are the shock and fear that came with your first diagnosis. The uncertainties are back, too, and you wonder about more cancer treatment and about your future. The distress you feel is normal - some say the second cancer diagnosis can be more distressing than the first. What is a cancer recurrence?When cancer returns after a period of remission, it's considered a recurrence. *****A cancer recurrence happens because, in spite of the best efforts to rid you of your cancer, some cells from your cancer were left behind. These cells could be in the same place where your cancer first originated, or they could be in another part of your body. These cancer cells may have been dormant for a period of time, but eventually they continued to multiply, resulting in the reappearance of the cancer. A cancer recurrence means it's the same cancer coming back after some period of time. In rare cases you may be diagnosed with a new cancer that's completely unrelated to your first cancer. This is referred to as a second primary cancer. Where does cancer recur?Your cancer can recur in the same place it was originally located, or it can migrate to other parts of your body. Recurrence is divided into three categories: Local recurrence. This means the cancer reappears in the same place it was first found, or very close by. The cancer hasn't spread to the lymph nodes or other parts of the body. Regional recurrence. A regional recurrence occurs in the lymph nodes and tissue located in the vicinity of your original cancer. Distant recurrence. This refers to cancer that has spread (metastasized) to areas farther away from where your cancer was first located. Where your cancer recurs depends on your original cancer type and stage. Some cancer types commonly recur in specific areas. How are cancer recurrences diagnosed?Cancer recurrences are diagnosed just like any other cancer. Your doctor might suspect a cancer recurrence based on certain tests, or you might suspect a recurrence based on your signs and symptoms. After your last round of treatment, your doctor probably gave you a schedule of follow-up exams to check for cancer recurrences. You were probably told what signs and symptoms to be alert for that might signal a recurrence. Watching for a cancer recurrence is often very different from screening for the original cancer. And the goals of the two are different. For most forms of cancer, a local recurrence may still be curable, so early detection of a local recurrence is very important. For most cancers, a recurrence at a site distant from where the cancer first began means the chance of cure is not good. All cancers are different, so it's important to talk with your doctor about what type of cancer you have and what can be done if it recurs at a distance. This can guide what tests you undergo during routine checkups after your initial treatment. Can cancer recurrences be treated?Many gains have been made in the treatment of cancer. In many cases, local and regional recurrences can be cured. Even when a cure isn't possible, treatment may shrink your cancer to slow the cancer's growth. This can relieve pain and other symptoms, and it may help you live longer. Which treatment you choose, if any, will be based on many of the same factors you considered when deciding on your treatment the first time. Consider what you hope to accomplish and what side effects you're willing to endure. Your doctor will also take into account what types of treatment you had previously and how your body responded to those treatments. You might also consider joining a clinical trial, where you may have access to the latest treatments or experimental medications. Talk to your doctor about clinical trials that are available to you
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Another article I could find that maybe some help.
Types and treatment of breast cancer recurrence
Recurrence describes the return of breast cancer after primary treatment.1 There are three types of recurrent breast cancer:1
- Local recurrence occurs when cancerous cells reappear at the original tumour site over time. Local breast cancer recurrence is not considered to be a spread of the cancer but rather due to failure of the initial treatment. Even after mastectomy, portions of breast skin and fat remain, making local recurrence possible, albeit uncommon. Rather, it is women treated with breast-conserving therapy and radiation who are at slightly higher risk of this type of recurrence. Treatment of locally recurring breast cancer depends on the initial therapy undertaken at the time of first diagnosis. If breast conserving surgery was originally performed, recurrent breast cancer will usually be treated with mastectomy.
- Regional recurrence is more serious than local recurrence because it usually indicates that the cancer has spread past the breast and underarm (auxiliary) lymph nodes. Regional recurrences of breast cancer can occur in the chest muscles, in the internal mammary lymph nodes under the breastbone and between the ribs, in the nodes above the collarbone and in the nodes surrounding the neck. The latter two sites of regional recurrence tend to suggest more aggressive cancers. Overall, regional recurrence is very common, occurring in approximately 2% - 5% of all breast cancer cases. Treatment can be complex however, including surgery to remove the cancerous node, radiotherapy, chemotherapy and adjuvant endocrine therapy depending on the previous treatment used.
- Distant recurrence, also known as metastasis is the most serious type of recurrence and is associated with significantly lower survival. Having left the confines of the breast tissue, the cancer usually spreads first to the axillary lymph nodes. In 65-75%2,3,4,5 of distant recurrences the breast cancer then spreads from the lymph nodes to the bone. More rarely, the breast cancer may metastasise to other sites including the lungs, liver, brain or other organs. Surgery is rarely an option for metastatic breast cancer because the cancer is not usually confined to one specific site on a given organ. Instead, treatment approaches include chemotherapy, radiation therapy or endocrine therapy.
A new cancer may occasionally occur years after the initial tumour, in a different area of the breast and with different pathology. Second cancers such as these are treated as new cancers, independent of the first cancer, and are not considered to constitute a recurrence.
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Hi Ladies,
I wanted to check back in and let you know where I stand right now. But first, I would like to thank everyone for all their support, kind wishes, prayer and articles. You guys are the best team anyone could have behind them. I can only hope that one day, I will know enough about breast cancer to help someone else through a rough patch.
Ok, I had my ultra sound and no dark colored mass area showed up. There was a little light colored area but they were not too concerned. They thought it might be trauma to the breast. Like someone or something poked me. I can't think of anything that happened. Anyway, they still wanted me to keep my appointment on next Monday with the surgery department. I think they wanted another set of hands and eyes to look over the spot.
I'm not doing a jig right now, but I'm sleeping much better with my stress level very much lowered. I still feel something and it doesn't feel right. I'm keeping my eyes wide open and watching the spot for any growth. I'll know a lot more after my appointment on Monday.
FLORIDALADY- thank you for the articles, they really did help. I miss Florida. My husband was stationed at MacDill in Tampa. My time to enjoy Tampa was cut short due to my cancer but it still holds a special place in my heart.
God Bless and take care everyone,
Debra
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Debra
See if you can find a place that does thermal-imaging. This is where they look at your chest wall after taking pictures with a heat sensitive camera. This will show if the area has a blood supply. Tumors have to have blood supplies and B9 tumor's don't.This is painless and cost about $150. This could give you peace of mind. Sorry you did not get a chance to enjoy Tampa. But I'm sure you enjoyed our weather as long as it was not deep summer months.
Flalady (Debbie)
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Deb
If tumors have to have blood supplies, then how could they tell if there is vascular invasion or not? I heard someone saying on the board, that if there are blood supplies around the tumor, then there is likely that some cells are in the blood. If no blood supply, then it is no vascular invasion to start with. I am confused. They told me that I don't have vascular invasion. What does this then mean?
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I remember during/after? my MRI that a tech got pretty excited about vascular invasion. If I hear that again, I'll know what it means! newalex, that may be very good news for you, but you make a good point that if blood goes in, it must circulate and come out!
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Fladlady
I think both tumor and B9 tumor need blood supply to grow because to grow they need oxgen which is only carried by blood. Thus, they have to do biopsy to see if B9 or not. Right?
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B9 tumor's do not use a high rate of blood supply. They can form from tissue and protein's, fluids etc. Ask your radiologist to go over your mammo films and they will show you what a b9 tumor looks like to a cancer tumor. They are 80% sure it's cancer before you ever have a biopsy. They know because b9 are usually perfectly round and cancer tumors will have one side distorted where the tumor is attached to the blood supply. The confusion starts because some tumor's blood supply is in the back where they can't see it.
If you research thermal imaging you will find that this is how they are using in clinical trials right now. Instead of doing a lot of biopsies they are using mammo/ultrasound and than looking at the area of concern with thermal imaging because this will show how much blood is going into this area. If I can find the article again I will post it here.
Flalady
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Advancing Technology for Breast Cancer Detection
A thermal imaging system is being tested in an effort to reduce the number of breast biopsies.
by Eva EmersonSix hundred women are being recruited by the USC/Norris Comprehensive Cancer Center to test a new, non-invasive technique researchers hope will more accurately detect breast cancer while reducing the number of breast biopsies.
Yuri Parisky, M.D., associate professor of radiology at the USC School of Medicine and a specialist in breast and oncological imaging, will lead the study.
Researchers will use the new medical imaging technology-called the thermal breast imaging system-to evaluate breast masses suspected of being cancerous. Then, the team will compare participants' thermal breast images with results from the biopsy to gauge the effectiveness of the new system.
Used as an adjunct to traditional screening methods such as mammography, "the technology may help us determine whether a mass or lesion in a woman's breast is malignant or benign," Parisky says.
Despite significant advances in the ability of radiologists to detect suspicious breast lumps in the last two decades, physicians still struggle with the fact that less than half of masses identified with the traditional screening methods turn out to be cancerous.
Currently, the only way to determine if a lump is cancerous with total accuracy is to surgically remove a small piece of the mass or lesion in a biopsy procedure and have a pathologist examine the tissue.
What's more, breast biopsies have become very common. A recent study in the Archives of Surgery reported that more than half a million women had breast biopsies in 1994 alone-making open breast biopsy the third most frequent surgical procedure performed by general surgeons. Yet, biopsy results show that as many as three-quarters of these women don't have cancer.
USC physicians hope the new imaging system will allow for more accurate diagnoses than traditional methods alone, while also decreasing the number of unnecessary biopsies.
"We're constantly looking for new tools to help us determine if something is malignant-without using surgery," Parisky says.
Researchers still don't know whether the thermal breast imaging system will allow them to do that, but they're encouraged by the results from pre-trial tests conducted at Howard University in Washington, D.C.
"We feel that thermal imaging could serve as a significant complement to current detection techniques," Parisky says.
The thermal imaging system has been adapted for medical use from an infrared-detecting technology used by the military to spot enemy tanks. The human body constantly releases heat, a portion of which takes the form of infrared radiation. The thermal imaging system uses a special infrared camera to record the amount of this type of heat that is emitted from the breast. With the aid of a computer, the imaging system can then create a three-dimensional map of breast, revealing areas with very slight differences in temperature. Theoretically, this map of "hotter" and "cooler" areas will help doctors discern between abnormal, cancerous and healthy breast tissue.
Using infrared technology to detect cancer is "based on the idea that malignant tumors give off more infrared radiation because they have high metabolism and more blood flowing to the area" than normal tissue, explains Parisky.
In addition to reducing the number of breast biopsy surgeries, the thermal breast imaging system may prove less uncomfortable for patients than mammography, since the breast does not have to be compressed during the procedure.
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Flalady
I spoke to my father in law who is a doctor and he said the B9 tumors must have blood supply as well and you can never be sure by looking at blood supply alone whether or not it is B9 or cancer.The main difference from imaging is that B9 tumors are not "invasive", meaning more rounded in shape but it is not often true. That's why just from imaging, you cannot tell for sure and you need bipsy to be sure.
I had ultrasound and mamograph. In ultrasound, they saw a dark image which they were not sure if it is fibroadenoma or cancer, so they did biopsy and biopsy came as DCIS. On mamograph, there was no tumor at all just micro calcification. After the mast. surgery, final path report came and they saw there were DCIS and in the middle of DCIS there was a small 1 cm invasive cancer. But they said no vascular invasion.
Pathologist can tell if there is a vascular invasion by looking at the blood vessal walls if there are signs of being invaded.
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No one said that you would not have to have a biopcy. The discussion was if thermal imaging would work to show the difference between b9 tumor's and cancer. And it does as noted in article BY BLOOD INTAKE TO SITE. Cancer tumors show large activity because of blood supply. Please research this techology and how it works. If this shows blood activity at a "higher" level she could pressure her doctor's to quit waiting and get busy treating her. This techology is moving forward as a tool to help diagnose bc.
This can be a valuable tool if your doctor is putting you off. I've used it and it worked.
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I agree to that but your earlier post said that B9 tumors don't have blood supply which confused me. I think the technology is for sure valuable and should be used but the fact is that B9 and cancer tumors both have blood supplies in order to exchange oxgens, Co2, etc to grow. It is true that cancer tumors tend to have fast blood flow although not always, so now you are talking about the rate of flow not about if there is a blood supply or not. It's pretty different topics.
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With out having to say it I thought it was understood every living thing in our bodies have some kind of blood supply. The key to the technology is the "increase" in blood supply. And do ask your radiologist about the shape of a tumor they will tell you though know most cancer tumor's before they are biopsy. The key for then for them is the SHAPE because they can see blood supply with most patients tumors.
Here is another article from my local research hospital that is in trial
The CTI BCS 2100 is based on dynamic infrared imaging, a process in which an infrared
imaging camera captures and records a series of images over time in response to
changing air temperature. It will then determine if the infrared patterns show a profile
indicating a benign condition or patterns that may indicate malignancy. Dynamic infrared
imaging provides information about active processes, and provides different information
than x-rays, for example, which produce anatomical images that are not associated with
active processes. The CTI BCS 2100 provides dynamic infrared images and information
about the physiological processes occurring in the human breast over time
(approximately 3 minutes) in response to a cooling challenge. The BCS 2100 is designed
to obviate the need for some biopsies.
There are several physiologic features related to malignant tissue that may contribute to a
thermal or infrared signal that is higher than the infrared signal associated with benign
tissue. One feature that may contribute to an elevated infrared signal in malignant tissue
is increased blood flow in the area surrounding the malignancy. Studies using ultrasound
have reported increased blood flow in breast carcinomas compared to benign lesions.
One likely contributing factor is angiogenesis, the formation of new capillaries from
existing blood vessels, which supplies the nutrients required by a neoplasm. Although
angiogenesis is important to normal physiologic processes such as wound healing it also
plays a key role in tumor growth. Angiogenesis is linked to both the growth of breast
cancer as well as to its metastatic potential.
Another likely factor contributing to the infrared signal
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