Starting Chemo May 2008

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  • familyroks
    familyroks Member Posts: 575
    edited April 2009

    ranD - I love Rock's idea!  I hope you are feeling better this afternoon.

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  • robink
    robink Member Posts: 336
    edited April 2009

    MY NEW FAVORITE CD..."MAY 08"

    Jeano, the CD arrived today. When I realized what was in the envelope there were a mixture of emotions - goose bumps, speechless, teary, loved.  I love the selection of song, am listening to it now afterwhich I'm going to load it onto my ipod.  Thank you for putting it together. 

    Randie will breath better listening to it (and getting that fluid off her lungs), Sue will be more relaxed in her post op recovery hearing the music and knowing what it represents.

    WE ARE BLESSED TO HAVE ONE ANOTHER!

    Arnie - thank you for the kind thoughts. I'm glad you found this site and hope you'll find the same support we have.

    Randie and Sue - let us know how you are doing when you are able.

    Jackie - how are you doing today?

    To Everyone - love ya!

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  • Roxi65229
    Roxi65229 Member Posts: 462
    edited April 2009

    Can't wait to get home and check the mail.....tomorrow is the Awards Ceremony for the Society of Marketing professionals. I wrote a speechm just in case. Nothing as clever as Rock or Otter, but from my heart. It outta do.

    RanD, Jackie and Sue....hope your all feeling better. Thinking of all of you.

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  • MsKarin
    MsKarin Member Posts: 647
    edited April 2009

    Gracie - Glad your back home and all is well.

    ranD - Hope you're back home and breathing better.

    Jean - Thanks for the CD, I also got mine today.

    Sue - Hope you're out of surgery by now and resting comfortably. I decide to join Sable in doing the new boobie dance for you. I can't post that on the web so instead would you settle for two Blue Footed Boobies Dancing?

    Boobie Dance

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  • Sable
    Sable Member Posts: 738
    edited April 2009

    *checks to see if her feet turned blue" ROFL!

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  • lewing
    lewing Member Posts: 1,288
    edited April 2009

    Yay - my CD came today, too!  I love to imagine all of us checking our mailboxes and squealing and dancing when we see the contents.  Jean, that was so, so thoughtful of you.

     (You asked about my half marathon . . . the gory details are on FB, but the short version is, I had to drop out in mile 10 with an injury.)

    Special thoughts for Jackie, Randie and Sue.

    Linda 

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  • ewesterman
    ewesterman Member Posts: 417
    edited April 2009

    Talk about getting your full medical report blasted on TV.

    Watch to the end as he got to do sports too..... Only watch if you can deal with Susan G. Komen. Still, worth watching the first part as you all will appreciate the medical report.

    http://www.pugetsoundraceforthecure.org/site/TRC/Race/General?pg=peditor&fr_id=1130&px=1305182

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  • sueper13
    sueper13 Member Posts: 1,224
    edited April 2009

    Greetings all,

     Sue is in recovery following an 11 hour reconstruction surgery.  The surgeon just came out to brief me and reports that she is doing well.  Nothing out of the ordinary was noted during the mastectomy or her right breast -- we will get the results from the pathology in 48 hours for confirmation.

    She had very little bleeding during the operation and didn't even have to receive any blood.  Doc says she has great anatomy and they accomplished their goals of the bilateral reconstruct with a tummy tuck as a bonus!

    I havn't been able to see her yet, but she wanted me to post when I could.

     Tonight: morphine......for her,  none for me, thanks, I am on sentry duty to fight infection.

    Mike

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  • otter
    otter Member Posts: 6,099
    edited April 2009

    Thanks, Mike!  Wow--eleven hours!  It's such a long surgery, so we didn't know when to start asking about her.  That's great to hear she's in Recovery and doing well.  The morphine will help for sure.

    Please tell her hello from us, and that we're thinking about her and sending her big (but gentle) hugs.  On second thought--our tradition in this May 2008 support group is to tell each other that we're all right there together, offering support.  That would mean her room is pretty crowded!

    otter 

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  • ellenoire
    ellenoire Member Posts: 674
    edited April 2009

    Yay! my Sueper Siouxie Sue is ok!!! In the delirieum of fever and a bad bad cold day I thought of all of you and thought about Sue in surgery and said a prayer....

    Being stoned on cold meds made me think of chemo more than ever. Feck I hated last summer.. sometimes I forget when I never thought I would... 

     Early bed for me me and the BF are really feeling the strains of a long last year, a long spring with no money and a long year ahead getting things back on track.As much as this Monavie thing may seem nuts, it is the only way I paid my mortgage and my groceries last week. 

    I feel like I am walking on my hands and would like the ground to meet my feet sometime soon. 

     Love you all! 

    RanD and Jackie... best of days... please God, for both of you! 

    N

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  • Gracie713
    Gracie713 Member Posts: 302
    edited April 2009

    Thank you for the update, Mike.  Sending lots of healing prayers!  Morphine is good!

    Randie----are you back home yet??????  I am praying that you are feeling better.  I admire your strength.

    I want to thank everyone for the cards and calls.  I can hardly wait for the mail to run tomorrow!!

    Noelle--get some rest and feel better!  

    Nighty night all, time to lay down.  I am in total agreement with Robin--we are so blessed to have each other!!

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  • Sable
    Sable Member Posts: 738
    edited April 2009

    Thank you so so much Mike for updating us! 11 hours.... wow. *starts doing the blue footed boobie dance again* LOL

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  • angelsaboveus
    angelsaboveus Member Posts: 298
    edited April 2009

    Thanks Mike,....glad to here our Sue is OK, take care of her for us !!!!

    Can't wait too get my mail....al be it I'm sure it will be the last too arrive to the north netherlands.. I have a road trip next week and would love some new travellin tunes .   Thanks Jean for doing that !

    Time to plop in front of the tv , sweat dreams everyone !

    (edited to say i don't want you sweating in your dreams but just to have sweet dreams Embarassed

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  • ewesterman
    ewesterman Member Posts: 417
    edited April 2009

    I BLEW IT...this is the link...

    http://www.youtube.com/watch?v=96CfYulN9VU

    Go SUE....

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  • ranD
    ranD Member Posts: 373
    edited April 2009

    Got back at 4, long damn day,,,lol...

    They have no idea what happened, there was only 1 liter to drain in the left and they got it all.  They want to do the right asap, but first want me to talk with my onc.

    Don;t get all freaky here, but this was the worst ever, I could not catch my breath, I almost passed out several times and my oxygen dropped to 89 eevn on 4 liters.  They ended up getting an IV in me with no prob as we are hurtling down a windy mountain road...lol...you know i was out of it if I didn;t bitch...lol

    GOt to ER, still raggedly breathing.  They tried morphine (felt too freaky) and then ativan which calmed me down.  They tried to put a BiPap on me, but it felt so closed in I couldn't.  Turns out the resp therapist had turned down the o2 to what SHE thought I should be breathing and then refused to turn it up...fuckin cow.  So, I pulled the gotta throw up and they whipped it off pronto and put me back on the nasual cannula and mask.  So, that was my day.  lol, they also gave me some zofran, so that helped.

    Breathing okay, but a littel worried about whats to come, so need some + thought and prayers...plus its hard standing inthe room wtith Sue, need more air...lol

    randie

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  • drcrisc
    drcrisc Member Posts: 836
    edited April 2009

     Mike - Thanks for posting about Sue.  She's a good mother; she knows we would worry.

    Randie - Shite.  I just don't get the waiting part - if you're there and they are draining, why not do a 2-fer?  Okay, this calls for a Daily Word update [pause while Cristine gets her Daily Word book...hmmmm....hmmmm...here we go} and today's word is "Healing" - "My body is a temple of the risen Christ.  I am strong and whole."  (I swear I'm not making that up!)  Tomorrow's word is "Grace" - "Wherever I am, God blesses me." 

    Jackie and Sue - I think today's word is also quite appropriate for both of you!

    Eddie - Tried both links, but no luck.  Boo hoo.Cry

    Otter - I thought the FB peeps were supposed to do something, but apparently not.  Glad there is no snow for you!

    Noelle - Rest.  Feel better.  Everything's harder when you're sick, don't we know that!!

    I am D.A.T. tonight (lot of backspacing going on here...lol).  Girls have 2 more official days of "spring break" - they are having a grand time; I'm D.A.T.

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  • LorenaB
    LorenaB Member Posts: 937
    edited April 2009

    Hello May friends.  I have not been over here to eavesdrop in a while but I was just checking on how Sue was doing with her surgery and it led me to this thread. I was glad to find an update and see that she is doing well. 

    I had my unilateral DIEP surgery on March 30th, and I'm happy to report that I am healing very well.  I got my last drain out on Tuesday - hurray! - and have started taking short walks (very short, like 5 minutes, but that's an improvement over last week when I could barely make it from my back door around the building to the front door). It really is an incredibly surgery -- I woke up to find a breast where there wasn't one before!  Granted, it's a bit smaller and higher up than the other one, and has some weird-looking bumps on it that were part of my belly buttom before, but it's a breast! The worst part is that I have to sleep on my back for another month, and also the abdominal binder that I'm supposed to wear 24/7 for the next two weeks. But I'm trying not to complain, there are so many potential complications with this surgery and I have been incredibly lucky.  I wish Sue the same steady recovery.  If anyone else is considering this surgery, feel free to pm me!  I sent Sue a message a couple of days ago but it sounds like she was too busy cleaning her house to respond.  ;-)  Funny, I did the exact same thing, I was obsessed with going through all my random papers and clutter before going into surgery.  Some kind of twisted nesting instinct maybe?

    Noelle, I just wanted to tell you that I finally ordered the DevaCurl products and they came yesterday! I got the low poo shampoo, the conditioner and the AnGel. Can't wait to try them.  I hope they are worth the big bucks I paid for them.  I decided that after having no hair at all, I am entitled to treat myself to expensive hair products for once in my life - or maybe even for the rest of my life if I can afford them!

    Sending out healthy and happy vibes to all -- especially RanD, I just read your last post and it sounds like you had quite an ordeal. You May ladies are so lucky to have found each other. Take care!

    Lauren

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  • Sable
    Sable Member Posts: 738
    edited April 2009

    Oh RanD is it ever going to end? I so wish you didn't have to go thru this shite, its just not fair after everything else you have gone thru. My prayers for you my daulink.

    Sue~I'm thinking of you. I want to call but I figure you might not be up to it just yet. Maybe I'll mental call ya LOL. "calling sue, come in sue"

    We have new arrivals this morning at my house. I have been protecting a small finch nest in my wreath for a few weeks now. It's in a prime spot to be smooshed by the front door of the house. And this morning we were treated to 2 baby finches. So I grabbed a big rock out of our flower bed and put it so it blocks the front door from getting to them. My husband's parents are supposed to be coming up tomorrow to look at housing here in town. I didn't want to take a chance to hurting the babies with them not knowing about them. I'm really not looking forward to this visit, his parents are very hard people to deal with. Plus our house is about 1000 sq ft... teeny tiny place. So I get to sleep on the couch for the next few days and hubby is bunking with the kiddo. Anyone want a visitor for a few days? I'll bring my laptop, food and fan. *sigh*

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  • rock
    rock Member Posts: 1,486
    edited April 2009

    Randie, Sue, Jackie:  I am throwing all of my love at you right now.  (Okay, I did not mean for that to sound like a threat.  Sorry about that.) 

    Jackie and Sue:  Yes, heal. Heal, heal, heal.  Heal as fast as you can.  (Mike, thank you for posting the update.  Please tell Sue "Burma Shave" from me.)

    Randie: I wish I could give you back even HALF of the strength that knowing you gives me on a daily basis.  Because then I swear, you'd feel okay. Yeah, your lungs would still fill, but you would have the strength that you need to get you through this. God, you must be sick of this.  (Yes, that would be me, stating the obvious.)

    EyesOTex/Dana:  Hello? Where are you, cupcake? Where are you?

    Lorena: Glad you're on the mend!

    Jen:  The finches:  Very cool. The visit from the difficult in-laws? Not so much.

    (In about 1 hour and 45 minutes, I am going to meet my crush for the very first time.  We are meeting on the steps of this building with a beautiful view and then we are going to a photography exhibit, curated by a woman who I met on these boards.  I thought that was appropriate, non?  And then tomorrow I go to a gyno to figure out what the mystery bleeding/cramping action is all about besides a cruel God's way of ensuring I never have sex again.  But am I worried? NO I AM NOT.  Why am I not worried? BECAUSE I AM NOT HAVING A LUNG DRAINED, THAT'S WHY.) 

    Shoot, I need to run and there's still posting to be done.  Sorry guys.  Noelle:  So sorry you are feeling like crap.  Karin: Your talent for finding images continues to amaze!

    Must go.  lots of love to all of youse.

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  • MsKarin
    MsKarin Member Posts: 647
    edited April 2009

    Sable and Karin slowly crack open the bathroom door and peek out. Pssst, Sue are you awake? We didn't leave you. The room was so crowded and with us doing the blue footed boobie dance (having too much fun in your honor), Nurse Ratched made us leave. Not to worry though, as you can see we snuck back in and we're hiding out in here until her shift is over.

    So how are you feeling today? How do you like the music in the background ? Jean brought her CD player and the CD she made for all of us. We turned it down low as to not wake you.

    Don't be alarmed by the shovel in the corner. ranD had quite an ordeal yesterday with her resp therapist. She had a scary day yesterday and is resting in the recliner by the window. If anyone tries messing with her today she's ready. I know it's a bit cold in here, that's why you have all the extra blankets on you. ranD needed some more air so we opened the window and pushed her recliner next to it.

    I'm so glad you have a big room. We were able to convine the nurses at the nurses station (before Nurse Ratched showed up) to bring in another recliner so Gracie could join us.

    As you can see we are all here. That is except Linda and otter. Well they are here but stepped out to go to the nurse's kitchen. Linda is making us some Scallion Pancakes and otter is brewing up some tea. You can go back to sleep if you'd like. We'll wake you when they get back with breakfast. Oh I almost forgot to mention you had a special visiter stop by. Lauren stopped by to check on you.

    Sweet Dreams.

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  • MsKarin
    MsKarin Member Posts: 647
    edited April 2009

    Yay! Here shift is over.

    We're coming out of the bathroom now. Sure is crowed in here.

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  • MsKarin
    MsKarin Member Posts: 647
    edited April 2009

    On a serious note:

    ranD when do you see the onco? As for the thought and prayers; I think I speak freely for all when I say that it is a daily given.

    Rock have fun at your Crush meeting and know I'll be with you tomorrow at your gyno visit. I'll be in the waiting room if you need me. Since this is a new gyno for you I will have shovel in hand just in case.

    Gracie hope you are healing well.

    Noelle hope you're feeling better today.

    Everyone else your in my thoughts too but no more time to read. The sun is finally shinning here and I'm headed out to get some VitaminD.

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  • ranD
    ranD Member Posts: 373
    edited April 2009

    AhWe are family

    I gots all my sistas with me....

    Who hooo hoooohooo

    Feeling better, took an ativan last night and slept like a baby, weird dreams, but slept.

    Going to onc today and asking about diuretics, steroids for the swelling and shit, forgot what else...

    Grace heal!!!! Noelle heal!!!!

    Rock, how cool would iy be if your cruesh was your gyn, get all that stuff out of the way early....lol...seriously, good luck and hugs and kisses :)

    thanks all of you guys, you help me be strong and fearless!!! Lot of Psalm reading going on.  David had some terrible shiite following him most of his life and he was the man after God's own heart.  reading him inspires me, knowing you all sours me on.

    mush mushush...love you....randie

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  • Gracie713
    Gracie713 Member Posts: 302
    edited April 2009

    Jean-I got my CD today and am listening to it now.  Thank you so much.  It really is like having a part of each of you right here with me.

    Randie-Psalms are very my favorite too--It seems like when I open my bible, the perfect Psalm is right there. 

    When I was on the vent, I sang a lot of songs in my head, to keep myself calm.  It should be against the law to let someone on a vent be wide awake.  (But honestly, they were giving me a lot of meds, but I was fighting against it-I was truly afraid to close my eyes and go to sleep, so I prayed and sang.)  And now, it all seems like a dream--I cooked supper last night and a big breakfast this morning--Still thinking about going back to work first of May.

    Rock-- Can't wait to hear details!!!!!  I missed it somewhere that he is a gyno?????

    Sue--I am praying that you are comfortable.

    Love to all!!!!

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  • MsKarin
    MsKarin Member Posts: 647
    edited April 2009
    Stopped back in the house to grab some lunch.

    Noelle over on FB you mentioned feeling like death warmed over. Doing a google search I ran across this. Is this how you feel?

    Hope you're feeling more like this (below) real soon.

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  • Sable
    Sable Member Posts: 738
    edited April 2009

    egads that dog is just beyond words!

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  • ewesterman
    ewesterman Member Posts: 417
    edited April 2009

    Okay....so glad you are home Ms. J.  Randie, we pray (my whole family) for you every day and will keep going. Rock, crush news please. I will be asking port questions today as I am very nervous and will still have port in until August.

    I am obviously a tech dweeb. I am sorry you couldn't get on the links. Sorry to misdirect. Here is the deal...if you have a few moments, go to You Tube and put in Race for the Cure featuring Adam Westerman. If you listen to just the first couple of minutes, you will laugh as a 12-year-old basically broadcast to the greater Seattle area that I was heading for herceptin today and that I was on femara....etc... etc. Very funny. When the interview was over, they asked him to stay and do sports.

    HERE IS THE WILD NEWS OF THE DAY. My cancer bully friend, Dottie, and I were just selected to do TV makeovers. We're both appearing in a fashion show (I have mentioned this) called Surviving in Style on April 28 to support Gilda's Club (I was feeling guilty about just doing Susan G. Komen work)....anyway, our NBC affiliate station asked for volunteers for a makeover the other night. Dottie and I were among many volunteers. We didn't hear and decided they chose some young things but guess what? We just got an email that we were selected as a package deal. We both get full makeovers to be televised the day before the fashion show. We are floored. Okay, you know, Oprah had her chance and blew it so we're going local. Love you and will take some time after we get back from LA next week. I am so excited about getting the CD. Thanks ahead of time.

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  • MsKarin
    MsKarin Member Posts: 647
    edited April 2009

    This was just too funny. Kathi posted it over on FB but for those of you that haven't been there for awhile or might miss it I'm posting it here.

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  • angelsaboveus
    angelsaboveus Member Posts: 298
    edited April 2009

    Karin ,

    It's funny you should put that up there.....I gave that card to my chemo nurse for her birthday and she took it to the chemo room to put up on the wall, the patients got a good laugh out of it.   When i saw it in the store i just couldn't not buy it.     Your dog picture is a little freaky, I guess it's a dog only it's mother could love !

    Eddie congrats on the makeover and fashion show , that sounds like a lot of fun!

    Rock good luck with your crush....I hope he is everything you had hoped he would be and then some.

    Randie hope you can breathe easier for awhile now and you don't have another scary episode like the last one.

    Sue & Jackie I hope you are both resting comfortably at home and being waited on hand and foot!

    Hugs to everyone else,   Innocent

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  • MsKarin
    MsKarin Member Posts: 647
    edited April 2009

    Angels, that's a card? Who makes it? I would love to send one to my rad onco.

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