Starting Chemo May 2008
Comments
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Hi Robin - thanks for the card. That was so sweet and so fitting for us. You asked about surgeon follow up. Mine wanted to see me every 3 mos for 2 yrs and then spread it out after that, but I've still been seen by the oncs so haven't gone back to her yet. My lumpectomy was a year ago last Saturday (done by a different surgeon) and my SNB anniversary is next month. I will probably go see her then, just so she can check everything from a surgeon's point of view. But I'm scheduled for my 6-month mammo in May so someone has had his/her hands on me about every other month since rads ended.
Jen - how was the u/s?
Dana and RanD, too - Rock did a great job expressing her love and ours, too for you girls. I look at it like marriage. We'll take you for better or for worse, in sickness and in health and hope we can help lift your spirits if you are at a low point in treatment and celebrate everything else. Don't be afraid of coming here with any kind of news. We're a sisterhood that will stick together. I can definitely relate to not getting anything else done - especially since I've gone to FB. I just keep telling my husband that "I've been busy" and yes that does include tending my new farm on FB's Farm Town. I hope that makes sense.
Mary - need trip details - sorry you had to jump right back in at work.
Talk to you all later - Julie
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Ok now I'm a tad freaked out.... flax seed is estrogenic???? I'm going to have to call the onc about that one again just to make sure. I've been taking 2 of those darn things a day the past 3 days. so much stuff to learn.... Maybe my cholesterol went down a few while taking it at least. :0S
U/S went uneventful .. that seems to be my new word now LOL. She did come across a small dark spot in the same exact area where my cyst was a few months back. Most likely it is the same cyst only much smaller. The other one I had was gone.
Tex~ I'm sorry you felt like you had to pull back because of the dx. Daulin' we are all here thru thick and thin and worry ourselves sick when one of the "sistas" disappear. Even thought we are across the river, it doesn't mean we are going to leave you behind to swim alone.
Rock~ the only other thing I can think is to go into your add/remove programs and look for that last update and manually uninstall it. You can also trying reinstalling skype again and see if that helps any. OH, and check your volume control box and make sure that it didn't turn off or mute one of the settings. Without being able to cuss out your lappy in person, its hard to fix from here LOL.
Robin~ I got your card today! It was a T-Totally wonderful surprise. It made my day! :O)
Howdy to everyone else! XXOO!!!!
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Robin - rec'd your butterfly..THANK YOU! I love it!
First mammo since diagnosis tomorrow morning. I didn't realize how worried I was until today.
Hugs to everyone.
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Adrienne...prayers for you tomorrow....
night all, randie
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I only took a two day break and already have a book to read to catch up. Only thing I have time to say now is WELCOME back Dana!!!
This is just a quick morning hello to all. Today is the first day of my new 1 one 1 BD student in morning latchkey. This waking up early is going to take some getting use to. The sun isn't even up yet. I'm going to miss my 1st cup of coffee on the porch watching the birds. At least I'll have that to look forward to on the weekends.
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Dana, so good to have you back - what Rock said. And you should come here, or not (though of course we all hope you do!) based on how it makes *you* feel, And when you feel like whining - whine away.
Robin, your butterfly alighted in Michigan yesterday - thank you!
Karin, we can get up early together. (I'm naturally an early riser, most of the time, but the early switch to daylight savings time this year is kicking my ass.)
On the surgical follow-up issue: I last saw my surgeon last April, and that was only to check that my seroma, aka this frickin' clementine under my arm, had resolved. My port was inserted/removed by the interventional radiology folks. No plans to see him again, and no desire to (though I have to say, I do think his physical exam of my breast/axilla was the most thorough I've ever had). I'm on a six month check-up schedule with my oncologist.
Linda
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Adrienne - glad you had a great weekend. Just keep those happy thoughts with you today for your mammo. We'll be there with you.
Julie
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Morning Ladies!
Tex-So glad that you are back. We've really missed you.
Robin-Thank you so much for the butterfly! Did you get any snow?
A big thank you to all for your thoughts & prayers for my granddaughter--she is doing really well and her life is pretty much normal, for the most part. You all are the greatest!
Adrienne- good luck today-will be thinkiong about ya!
Randie-hope that you are having a great day!
Follow up with med onc today to see how I am tolerating the Tamox. So far, no problems, hot flashes have actually gotten better. After today, I won't see her for 3 months.
Love & Hugs to all!
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Robin- thanks for the butterfly- it arrived yesterday and is already on my desk at work.
My BS wants to see me annually after my mammogram BUT said if I noticed anything unusual or just had concerns or questions to come in immediately.
Kerry and RanD- I have chooks again- actually my youngest, Joe, has 4 little bantams. We ordered 24 black star- supposed ot be good brown egg layers- we get them in May. The bantams got booted out of their crate in my kitchen this morning before work when I noticed they were starting to fly. We had put together a hutch (from a kit) 2 weekends ago so they hurriedly moved into their new home this morning- on the back patio with a heat lamp but at least out of the kitchen LOL. joe has them all named and he plays with them so I am hoping they stay tamed.
Ready to have fresh eggs again but I realize it is months away!
Kristy
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Who HOO. Just found out that the new grandbaby, Ds and DIL are coming out in April and wil be here for 10 days at Easter. Yipeee!!!
Kristy/Kerry: we are swimming in eggs, they are laying a dozen every day. The kis are selling them for $3/doz
Gracie Glad the granddaughter is doing well, yo are all in our prayers.
Gotta go take a shower...randie
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I love that the Texans are using the word Chook!
Kerry! U should be proud of how you have infected us with you Aussie jargon.
My Aussie Big Brothers ( 2 PHD students that lived in my house when I was a child)would love this...
Gotta run... had a massive breakthrough/ breakdown this morning.. not something that happens to me often. Lots of crying and deep thought about how the hell I am going to keep this store open in this recession... make it grow if/when we make it through the recession. I was here 5 years ago. Sitting in the stupid store, with not a customer in sight trying to work out how to juggle the money, the time and everything needed to run on almost no staff with no money left over to pay myself....and I hate that after a year of fecking cancer I have to work my ass off just to feed my family.
Working Hard is fine.. working hard to almost no gain is hideous.
There is a lot more to this... but that is how the as my mother used to say "ranting and raving crying and throwing things" emotional breakdown started... ( I was not throwing anything, she never did either... my mother was the queen of exaggeration)
Fine now... just have a lot to think about...
xoN
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Noelle: Because I am at a loss for what to say, I'm tempted to not say anything. But that doesn't seem right. What a tough, tough place to be in. As if cancer wasn't tough enough. As if being a single mom wasn't tough enough. As if being small business owner in a recession wasn't tough enough. I just don't know what to say...
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Robin - Your butterfly is here - it reminded me of the song "Butterfly Kisses" (some of you may know it). Thank you! Surgeon follow-ups - I was told every 6 six months for probably about 5 years and it will be longer with both oncs.
Dana - Heeeyy!!!! I'm glad you posted. I can't say more than Rock did, but just echo it. In my mind, I have a different (but special) connection to each of you and I distinctly remember us talking about our triple neg status but the highlight will always be TAWANDA!!!!
Jen - Glad the u/s was uneventful - that's a great word. And I love that you're trying to help Rock fix her computer from how-ever many thousands of miles away!
Rock - I got no help for you - I would turn it off in disgust.
Adrienne - Hope the mammo went smoothly, hon.
Randie - Great news about your son and family!! I remember being on pins and needles when you hadn't heard from them last year.
Noelle - It's never fun but sounded necessary? (I hope that comes across like I mean it - gently and with a big hug.)
Big hugs and love to everyone else - gotta run - I'm being beckoned to help with homework!!
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Aack! Homework? I am sooo over doing homework.
rock has a wonderful way of putting thoughts into words. Ditto what rock said.
I spent 20 minutes working on a post about my recheck appt schedule with my surgeon, and then when I hit "submit", something ate it. So, here's attempt #2:
I was told to alternate recheck appts with my breast surgeon and my med onco. I end up seeing one or the other of them every 4 to 6 months. My med onco is the most important right now, because I'm on Arimidex. She's keeping watch on liver enzymes, bone density, other SE's of AI treatment, etc.
Both my med onco and my breast surgeon do super-thorough exams of my mast scar line, my remaining axillary nodes (except for the 3 that are in the jar in the path lab), and my good breast. Their exam techniques are slightly different, but each does a much better breast exam than my GYN did for the 25 years I went to him.
The deal is, my breast surgeon (who's a surgical onco) is also the co-director of the "breast health center" at the university hospital/cancer center where I'm being treated. So, I assume--and hope--I'll be seeing her for my annual mammograms and breast exams for the next, oh, 30 years or so. That would be good, since I've fired my old GYN who insisted that the lump in my left breast was "just your usual fibrocystic tissue."
Robin, I was really glad to discover that all the butterflies didn't fly north already. Mine arrived yesterday--thanks so much!
Noelle, I don't know what to tell you except that you've been through hard times before, right? And, you are doing something you like to do...so keep at it. Things will turn around. (I sure hope so. My retirement investments would have done better this past year if they'd been in a fruit jar under the bed instead of in Mutual Funds.)
We are headed for the boat tomorrow, and then on to Oklahoma to visit my in-laws. I might be out of contact but not for long.
Hugs to everybody.... huddle around now... (((((HUG)))))
otter
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Noelle,
PLEASE hang in there- as soon as I get all my deductibles paid I will order again- Valerie took my small bottle of lotion- she loved it and it didnt burn her face like other OTC lotions- You are WONDERFUL at what you do and your love for it shines through. I am hoping the purple juice will help out your financial situation. I am in love with the muscle mist and salt scrubs most recently!
Is there an ingredient list on the monavie- I need to make sure of the soy and estrogenic stuff before I try it- Ive become absolutely addicted to eliminating soy and estrogen like ingredients.
Kristy
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Noelle - I am so sorry you are having go through this. Its really so unfair. You have companies that lie, cheat and steal and somehow they get by (or rescued) and the hard working small business gets the short end of the stick. You are in my thoughts and I'm sending super strong vibes your way.
Had my mammo today (they do digital) and I was expecting that it would get reviewed while I was there like last year. When she finished, and said go ahead and get dressed and you'll receive a letter...blah blah blah....I started to cry. This just has to change. They have to understand our position. This was my first mammo since diagnosis. They have to understand how anxious we are at this point. She said it was because last year was a diagnostic eval. So perhaps I'm being unreasonable? If the doctor is there, why can't they tell him that we have a breast cancer patient in for her mammo and have him read it?
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Adrienne, that's really awful. They just don't understand what this is like for us.
I suppose they figure, if the request is marked "diagnostic mammogram," they're supposed to be looking for something specific, and they know the woman in the waiting room is afraid it's cancer. But, if the request is for a "screening mammogram," no one is expecting to find anything wrong, so they're not in a hurry to read it.
Never mind if we're in a hurry, though, huh? What if we want the results, so we can stop worrying about that one thing?
I never have been able to figure out the waiting thing. It doesn't take the radiologist any longer to read that mammogram right now while you're waiting, than it does 3 days later... except then, I suppose, he/she can take his/her sweet time about it and have a lunch break in-between and stop and talk to his/her buddies for a while. <sigh>
Maybe that explains why my surgeon has been ordering "diagnostic mammograms" for me. Plus, that way she knows the results will be available when I see her later that same day.
Come to think of it, I need to check the appt. card for my mammo next summer, to see which kind it is. ... [Time out while otter goes to find that card and see what it says] .... Yup--it says my appt. is with "Diagnostic Mammography." That's a good thing, apparently. I wonder why they don't do that for all of us post-BC-dx women?
Big hugs...
otter
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Called onc today to double check on whether or not it is ok for me to be taking flax seed oil. The message from him was quote "take it with my blessings". He musta been in a goofy mood today LOL. So Now I take 2 of those darn things a day with my liquid life vitamins. I hate taking pills.
I'm worried about my gf.... About 6 years ago I was having problems with my period. It was SUPER heavy and lasted forever. My gyn told me I had too much estrogen in my body and put me on a low dose birth control pill to regulate things. She is now having the same problem. It's thrown up a red flag in my head..... What if that was the start of my bc? I'm going to keep on her about self checking and getting those yearly checkups done. I refuse to let another person I know go thru this if I can help it. I'm probably being paranoid, but it goes with the territory anymore I think. She is hoping for early menopause. I told her to stand next to me during a good hotflash and she will change her mind on that one.
Adrienne~ I totally understand wanting results right then. It's hard for us to wait after what the past year has brought us. I did a sneaky my last ultrasound and asked to see the pics of the tumour. Now I have an idea of what to look for on the screen. Not that I am schooled in reading grey fuzzies but it makes me feel better.
Noelle~ hang in there best you can girl! I'm going to order again as soon as I am able. Ya I know that won't do a whole lot......
RanD~ If I was closer we'd be all over those eggs as well. Ya'll are making me want to get a few chooks for my backyard. Possum would probably eat them though. -
Adrienne I feel for you, just want to give you a big hug ! Until they have gone thru it themselves they just don't get what goes on in our minds, all the what ifs.
I don't know if it is just our area but when i do in for the mamo at the hospital the girls who does the procedure takes the films to the tech who actually reads them while i'm getting dressed and then if they don't see any thing then i get to go home. If there is something of concern that might need another film then i get more done. So if you get that nod to go home you know things are ok. When i got my mammo last year after feeling the lump i went right from mammo to ultrasound without an appt. Maybe it's the perks of being in a smaller center.
I go on Thursday for my first mammo since it all began. I hope you don't have to wait too long for the results!
Noelle sending hugs your way too, you have to deal with way too much...wish i could be there to help you in some way.
Otter have a great time on the boat and with family,
And i hope everyone who has chooks they are blessed with eggs in the future.
A big hug to everyone else!
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Adrienne, Maybe the wait is so theycan justify have to be ther 9-5 to write reports....sigh, if it were them,don't you think the results wouldbe faster??
Otter: Boat on!!!!
Angels, hugs in advance of Thursday appt.
Jen/sable: If I could send them toyou I would...they are getting the bnefit of my juicing, all the pulp goes right to them/I am thinking that I have super oxidant eggs now!!
Noelle, Will be nudging more of the fam and friends to look at your website....
back to mafia wars...lol...randie
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Adrienne - I hate that you had to endure that lack of responsivness today. Anxiety hit me also prior to my first mammo after diagnosis. Any chance of calling your ordering doc and asking them for a quicker read? Mini was ordered diagnostic like Otter's.
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Thanks everyone. Take care of your families first. I appreciate your business, but don't buy out of worry. I'll show up at your front door for dinner if things get really bad. I've told my local friends that too.
I can fire the staff if I have to. I ran the whole joint myself for years so we have some room to cut the fat.
Off to bed.
xoN
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Adrienne, Maybe you could get your ordering doc to request reading faster- my center reads them on the spot for 5 years for any BC patient- the Doc actually came in to talk to me and tell me mine was fine last month. I was really fearful going to the mammo thinking what if the tech doesnt know or read that I had a Mastectomy- found out they put all of us "special" people on Thursdays so the doc is available and the techs know everyone there has some kind of special handling!
I just found out Dundas was closer to Michigan than British Columbia!
Kristy
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Noelle - No words so I won't try.
Instead.
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I make a mean enchilada, so everyone is welcome to come for dinner!! :O)
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Finally, finished reading 5 pages. You ladies sure like to talk.
Our vacation was lovely. We left for our flight Saturday morning and found out our flight was oversold, we decided to surrender our seats and the got us out later that night, first class! Yes!!!
The cruise was lovely. We did so many wonderful family things. The first night, during family bingo, my oldest won the jack pot, $500! She was so cute, jumping up and down. I then reminded her that all the sail and sign cards go through my checking account. She was bummed but I reassured her that we would do something fun, which we did. We swam with the dolphins. This is so crazy expensive but such a treat. If we didn't win that bingo pot, I never could have afforded it. We had stops in three different ports, all warm and sunny. I'll post pictures on FB later I hope. Fly home on Saturday and sure enough, the flight from Chicago to Milwaukee was oversold, surrendered our sets again and took the bus. I now have 8 round trip tickets for future use. Score!!! Okay, the flight from Chicago to Milwaukee is about 20 minutes and the bus ride is about an hour and a half. It was a no brainer.
Robin, I when I picked up a weeks worth of mail (mostly crap and bills), I was thrilled to see your card. Thanks so much.
Noelle, I truly hope things change quickly for you. Your products are amazing.
Rock, you sure have a way with words. My heart tugs every time I read something well crafted by you.
I really missed you all and need to see what's up in everyone's world. The days just seem to fly by these days and I wish they would slow down. Love you all.
P.S. I haven't paid for air travel in years. We just keep surrendering our seats. One day I'll write a book about savvy travel.
Mary
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Karin,I have a great movie to post. Can I email it to you to load for the group???
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Roxi not sure what it is you want me to do but I'll check my email.
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Evening all! I am about to make a list and check it twice to find out who has and has not given me a song that they wanted on the CD. I will let you know, hope to burn and send this weekend.
Robin - After digging through 10 days of mail, I found your beautiful butterfly card - thank you!
Adrienne - Any chance that you could write a letter to the clinic telling them how absurd it is that a bc patient should have to wait to have their mammogram read? Truthfully, I was surprised that my clinic had me wait while the results were read. After I thought about it more, it seemed so logical to do that. I hope your doing okay - prayers to you!
Noelle - Hoping that things get better for you . . . you work so hard and have such a flair and passion for your business. Hang in there my dear . . . positive thoughts going out to you!
I find the comments how each of us interact with our surgeons to be interesting. Mine (very nice) did a cut and run. It is my onc and for the next 5 years, still see the onc every 3 months. Also I find interesting is that my onc said no additional vitamins other than a 1 a day. Her concern was that vitamins could mess with my hormone levels. Hmmmm.
Tomorrow is my 1 year diagnosis date - already decided that I am buying myself some flowers - stargazers - my favorite!
Off to track the music. Chow!
Jean
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Okay . . . . I apologize if I missed these . . .but I still need songs from Sue, Robin and Tex. Here was the original request so you understand what we are trying to put together.
What do you think about a May 08 - 1 year anniversary CD?? Maybe a song that made you happy, got you through chemo, etc. If you are up for it, simple send me your song and I will get working on it.
If you do not have a favorite, we can assign one to you ;-)
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