Moody/Karens daughter Olivia

Thinking of you and Olivia, praying she is holding her own and that someone is able to find a solution so she may heal and whole again. I look forward to seeing her smile and giggle with friends.

Good Monday morning.

(((((((((((((((((((((((((((((((Olivia))))))))))))))))))))))))))))))))))))))))

What a very crazy road you've traveled. I hope that there's a very good map available at the next rest area. Sending you a smile from my little moppet of a grand-daughter:

She wants you to get better so that you can baby-sit.

kmccraw, she has many of the symptoms you listed!  I just dont know why none of the meds normally given for this are helping her.  I am going to keep researching this to see what other treatments may exist that we havent tried yet.  Thanks so much for posting this because I havent seen this before! 

LAM2009 , welcome to the thread, so sorry about your dx!!!!  This disease sucks.  Thanks for asking your questions.  I dont not know what Apthous ulcers are, but I guess she doesnt?  she had an endoscope that was all clear.  She doenst have diarrahrea, nor does she ever throw up. 

She is nauseaou 24/7 with fluctations only in intensity.  Because of it she has lost 13is pounds (from 92 to 77 now).  She says her esophagus feels like it is always squeezing and the intensity varies with the nausea.  She has occasional heartburn.  That is it, only symptoms.......

Faith, your grandbaby is PRECIOUS!!!!!!  I could just reach into my monitor and eat her up!!!  Give a bunch of kisses for me. 

Karen - when do you see Olivia's doctor again? If she's been on these meds for several days with minimal improvement, he needs to know! He may have started her on a smaller dose. If you call the office, maybe he can increase the dose, or the frequency, or change to another brand - there are plenty out there! BTW - is Olivia 5 now, or is she older than the picture you have posted? Lots of prayers and hugs for both of you!!! God has a Plan for all things! All things work together for good.....

faithand fifty - LOVE your granddaughter's picture! My son does photography - and I have to make sure he sees this one!

Prayers and more prayers coming to you and your family.

Jennifer

I left TWO messages with her pediatrician today, one at 8:30 and again at 4:15.  NO return phone call!!!

I am going to call them every hour tomorrow until they call me back.  She had to come to my office today for her homebound teacher.  She came in and went to my landlord's office (we're very close) to see her little dog......my landlord bout started crying. 

Olivia is so pale and I believe she has lost more weight.  If the pedi cant get a quicker appt at Wake Forrest, I believe we are just going anyway and take our chances at their ER......

I think you need to go to Wake Forest ER.  They will probably admit her and you can finally get to the bottom of this.

One of our friend's grandchild weighed 17 pounds at one year old.  Everything he ate came right back up.  My sister, a physician, suggested just that - go to Childrens Hospital ER and they will admit and hopefully find the cause of his failure to thrive - don't wait for a referral.

Good Grief you and Olivia have had enough already! 

We southern girls tend to be too polite....I say go to WF and park yourself in the ER and demand answers.  Olivia is too little to lose anymore weight.  Something is wrong and there is an answer.

We are praying for your family. {{HUGS}} - Gretchen

Good morning ladies!  No change, except one.  Olivia joined up over at http://www.breastcanswers.com (I started one there under the "Give Us This Day Our Daily Prayer") because she wants to talk to you lovely ladies.  I know many of you have joined that forum, if you haven't I hope you will at least take a look and maybe join up so she can talk with you all.

If you have any problems there, will you let me know?

I pray Blessings for your day!

Her pedi called me back right after I posted this morning - I just forgot to come back here and tell ya - anyway HE actually called not the nurse like usual.  He sounded a bit agitated (big shock) but said he would see what he could do.. 10 min later his office called back with a NEW appointment day/time.

We are now going April 6th.  Two weeks, but still way better than May 12th!

I here exactly what you wonderful ladies are saying and it is still NOT out of the question.

She had a better day today than yesterday for sure.  If we can maintain this, we can make it till Apr........But if not, I have already got the hotel lined up and GPS saved on my BlackBerry, all I gotta do is jump in the car! 

Binney4 I am going right now to look that up!  Thanks so much for mentioning it!

It reminds me too, the pedi told me today to NOT call it "chronic nausea" anymore, to call it "intestinal motility" and that is what I am suppose to say at Wake Forrest......I havent looked it up either, but I am guessing it is a "medical term" for "nausea"  LOL

Binney, I am making a copy of what medline says about that thing you posted (lol) as alot of it does fit also.   She had an endoscopy that was "normal" but medline says that it is often missed with endoscopy.  Thanks again.

Stepp, loving on you too!  How are Rads going????  (Yeah!  I remembered!)

Karen - When my daughter was 16 she had a lot of issues that resulted in inpatient treatment for a year. Prior to that time we were a total mess for more than a year. A friend gave me a plaque w/ the "footprints in the sand' poem. It was a real comfort to me. I am sending the images of you being carried for a while - you have all been through so much. Hugs ((())) Olivia will get better. You are a wonderful mother! Take care. - Jean

Karen, I am so sorry that Olivia is not better by now.....I will check out the Daily Prayer over at breastcanswers....I would definitely go for another opinion.  Kick that doctor in the balls.  He should call you back and at least tell you to take her somewhere else....Come to think of it he probably does not even have balls....  Prayers and hugs

Oh Karen, poor Olivia with all she is dealing with, and now to have those darn nose bleeds! She sure is a trooper! I think of her and pray for her healing, every day. Are you able to do anything to stop the nosebleeds? The reason I am asking is that I was getting them a couple of months ago, and learned how to stop them. She would need to pinch the end of her nose with her thumb and forefinger, and keep it closed for 5 minutes, with her head bent forward. It is not comfortable doing that (they make "noseclips",but hard to find a pharmacy that has them)...your thumb and finger get so sore, but it worked for me, and I sure hope it will work for her. Hope you all can get a good night's sleep tonight!

Gentle hugs,

Kathy